Yeah, I wouldn't be too surprised if both illnesses have the same cause, I seem to have a very mild form of POTS myself, I started getting heavy dizzy spells a few years ago when I tried increasing my exercise by a lot
Just came across this video! Thanks so much for posting the petition! Great video - this retrovirus is really interesting and gives me lots of hope. :) Keep posting videos !!
N-Acetyl-Cysteine can help immune cells live longer with HIV infections... if you have XMRV you might look into it... it seems to have helped me. I also drink home-made kefir and take vitamin d regularly. i've noticed a HUGE improvement with this combination. just thought I would throw that out there if people are looking for alternatives to the nearly non existent medical ones out there.
Thanks for the tips, my cat actually has "FIV", the cat version of HIV and he's been doing pretty well on a new treatment/supplement, so I'm thinking you may be right that if the cause of CFS is similar to that of HIV then we may already have some effective treatments to try. Cool. I'm also trying to find a Vit D source that works for me. Regular supplements actually make my insomnia (delayed sleep onset mostly) worse, so looking into UV bulbs and things.
Great video Nate! The XMRV thing is pretty interesting.. i know with dysautonomia a lot of us started out with a virus of some sort...and thanks for the mention! looking forward to you making more videos! :)
a lot of ppl w dysautonomia actually end up with cfs too... which i suppose explains part of me being so tired and weak with pots.
ashpauls 2 years ago
Yeah, I wouldn't be too surprised if both illnesses have the same cause, I seem to have a very mild form of POTS myself, I started getting heavy dizzy spells a few years ago when I tried increasing my exercise by a lot
SharkBateNait 2 years ago
Just came across this video! Thanks so much for posting the petition! Great video - this retrovirus is really interesting and gives me lots of hope. :) Keep posting videos !!
chronicallykyli 2 years ago
N-Acetyl-Cysteine can help immune cells live longer with HIV infections... if you have XMRV you might look into it... it seems to have helped me. I also drink home-made kefir and take vitamin d regularly. i've noticed a HUGE improvement with this combination. just thought I would throw that out there if people are looking for alternatives to the nearly non existent medical ones out there.
judderwocky 2 years ago
Thanks for the tips, my cat actually has "FIV", the cat version of HIV and he's been doing pretty well on a new treatment/supplement, so I'm thinking you may be right that if the cause of CFS is similar to that of HIV then we may already have some effective treatments to try. Cool. I'm also trying to find a Vit D source that works for me. Regular supplements actually make my insomnia (delayed sleep onset mostly) worse, so looking into UV bulbs and things.
Cheers judder
SharkBateNait 2 years ago
New York Times is awesome, this thing is spreading! (note the pun) Let's hope this snowball keeps rolling, finally get some real attention!
How ya bin Sandy?
SharkBateNait 2 years ago
Great video Nate! The XMRV thing is pretty interesting.. i know with dysautonomia a lot of us started out with a virus of some sort...and thanks for the mention! looking forward to you making more videos! :)
radlikemad 2 years ago 3
Hey, did you manage to get down some goodies today? Got me some tasty turkey and pie so I'm happy.
I keep wanting to ask everyone how their Thanksgiving weekend is going, but so many people I know are Yanks. ;-)
SharkBateNait 2 years ago
We do have hope now and at least it is getting press attention and they are publicly looking for a biological cause. No more calling us crazy :)
Carrigon 2 years ago 2
I started poking them in the eye whenever they called me crazy so they don't any more, but yeah, still great news. :)
SharkBateNait 2 years ago