If you suffer from scarring as a result of Lupis, Dermaflage may be able to help conceal the indented scars- it is a cosmetic that was invented by a Hollywood special effects artist.
Hello Everyone! I work with a group who is actively trying to enroll people with skin lupus into a clinical research study. After reading your thoughts and comments, I thought some of you might be interested in being involved in a research study. To learn more about this opportunity, please visit lupusskin com and if you have any questions about clinical trials, please go to the clinical trials government website.
Thank you for this beautiful song! Brings me to tears - I wish I had someone to support me like you sing in the song... Life with Lupus is so hard sometimes! I have an extremely severe and aggressive form of SLE. My whole family has been affected massively by this disease...
It was people like you who shared their lives and videos that inspired me to start doing the same. Thanks again! I plan to send this to my mom to watch!
I've lived with SLE for 2 years now. Im in the hospital every week and I also have a 2 year old son. I wish I can be a mother without Lupus at times, but I try my best to be the best mother I can be. There needs to be more awareness about this terrible, life altering, life threatening disease!!!!! I hope for a cure within my lifetime. For all those who have Lupus, lets stay strong and stay true to WHO WE ARE! Im trying not to lose myself in this disease, Im trying to grow from this.
Thank you Alicia Keys! I've been suffering from systemic lupus erythematosus for 16 years and was recently diagnosed with fibromyalgia and tumid lupus erythematosus. Your song really touched my heart and comforted me. Thank you from the bottom of my heart and God bless.
@poker7499 it would depend on what type and how severe their case is. Every Lupus patient is different there are so many different affects for each case. But I have had Lupus since 1999 and I don't take anything but Motrin and Ibuprofens and I take antibiotics when I have a infection. Thats about it the rest of the drugs seemed worse I find that if I sleep alot then I feel better but leaves me very little up time to do normal things in life.I should ask my doctor that question!
@tonyman20002 that's a great idea. I'm going to try to work on that. I'm not of spanish decent but i am taking spanish in college right now so i can ask my professor to help me. Hope to have that up soon. Thanks for the advice.
Tnx for sharing this vid. I don't anyone in my family who have this disease and even with circle of friends. I'm thankful for that. Hope those who get it don't suffer too much from the pain.
what exactly does Lupus do? im guessing from all the comments litterally all of them usually include somewhere along the line of "Lupus Sucks". but what does it do exactly?
There's another video that was shared here about lupus and it explain the symptons and the result of lupus. Lupus doesn't have a cure just like major disease like MS. If u can't find the video...u can google it. Hope u get ur answer from there.
How do you feel the American television medical drama/dark comedy "House" has impacted the state of global lupus awareness?
As a fan of the show I must confess I was under the impression that 99.9999% of tentative lupus diagnoses prove false, and yet clearly the disease is still somewhat prevalent...
last time the patient just take steroids (prednosolone)as medication as much as 50mg per day.The side effect of the medication also very bad.Someone have to find the best medicine for this lupus.
I have lupus and im 18 but I was dignosed at 11 but have been sick all ym life im glad to see that there is some awarness n here keep up the good work les conqure lupus :)
I had a positive ana test and my arms are really sore and swollen and I feel nerve discomfort in my arms and hands. I dont know if I have lupus, but I am really scared now.
Exactly,there is support. A lot in fact. I've come to know many people who have Lupus. Some have had Lupus for a long time,others not so long. but they know what they are saying when you ask questions,share your thoughts,fears etc. You will get the information or help you are looking for.
Nice video. Sheila Shaw lives with Lupus, which knocked out her kidney function. She teaches all about taking control of your life despite living with chronic illness. I have talked with so many Lupus patients who all claim that their Lupus flared out at the most stressful point in their lives. This was Sheila's case as well. In my personal studies, it seems to be that keeping stress to a minimum would help with preventing it.... Thank you for this video!
My cousin has lupus. She is a widow with 3 daughters. She is not afraid to die cause she is a very regilious christian. However, she is scared to die before her daughter can take care of themselves.
Read the book "The New Arthritis Breakthrough" by Henry Scammell, it will give you information on to how to treat lupus and it really does work. I tried it.
Thank you for being an advocate for Lupus. I have Lupus but it is my vow never to let this disease get the best of me. I want the world to know that this disease does exist!!!! SO THANK YOU
If you suffer from scarring as a result of Lupis, Dermaflage may be able to help conceal the indented scars- it is a cosmetic that was invented by a Hollywood special effects artist.
Dermaflage 2 months ago
Hello Everyone! I work with a group who is actively trying to enroll people with skin lupus into a clinical research study. After reading your thoughts and comments, I thought some of you might be interested in being involved in a research study. To learn more about this opportunity, please visit lupusskin com and if you have any questions about clinical trials, please go to the clinical trials government website.
ClinicalStudies 6 months ago
So, what exactly should I be aware of? A truly useless video. I mean, shouldn't this have like basic information about what lupus actually is?
JanPospisil42 8 months ago
It's never lupus.
tryceo 8 months ago
It's not lupus.
StreetTalentTV 8 months ago
Thank you for this beautiful song! Brings me to tears - I wish I had someone to support me like you sing in the song... Life with Lupus is so hard sometimes! I have an extremely severe and aggressive form of SLE. My whole family has been affected massively by this disease...
It was people like you who shared their lives and videos that inspired me to start doing the same. Thanks again! I plan to send this to my mom to watch!
CNDbutterflybabe 9 months ago
How can it be lupus, it's never lupus... ;)
FreeSpiritAnime 9 months ago
I've lived with SLE for 2 years now. Im in the hospital every week and I also have a 2 year old son. I wish I can be a mother without Lupus at times, but I try my best to be the best mother I can be. There needs to be more awareness about this terrible, life altering, life threatening disease!!!!! I hope for a cure within my lifetime. For all those who have Lupus, lets stay strong and stay true to WHO WE ARE! Im trying not to lose myself in this disease, Im trying to grow from this.
aimeesato10 10 months ago
my cousin is in the hospital at the moment cause of lupas. were hoping shell get better soon... love you nancy, be strong
jonlorale 10 months ago
Thank you all for commenting KEEP IT GOING
am6662006 10 months ago
Dr. House: It's never lupus.
Oldenheimer1913 10 months ago
Thank you Alicia Keys! I've been suffering from systemic lupus erythematosus for 16 years and was recently diagnosed with fibromyalgia and tumid lupus erythematosus. Your song really touched my heart and comforted me. Thank you from the bottom of my heart and God bless.
Holy1knobe 10 months ago
Thank you for making this. So many just have no idea
DaughterofStFrancis 10 months ago
If somoene has lupis but does not take any medication how long do they usually live for?
poker7499 1 year ago
@poker7499 it would depend on what type and how severe their case is. Every Lupus patient is different there are so many different affects for each case. But I have had Lupus since 1999 and I don't take anything but Motrin and Ibuprofens and I take antibiotics when I have a infection. Thats about it the rest of the drugs seemed worse I find that if I sleep alot then I feel better but leaves me very little up time to do normal things in life.I should ask my doctor that question!
bloomerblossy 1 year ago
This has been flagged as spam show
Minha esposa se CUROU! de Lupus eritematoso sistemico e artrite Reumatoide, veja tudo no meu blog: curassecretas.blogspot.com
curassecretas 1 year ago
Thank you everyone for the comments...Keep spreading awareness
am6662006 1 year ago
This has been flagged as spam show
Just go to the angelsforlupusresearch website and read about Claudias story.
trudyntexas 1 year ago
thank you for making this video, I have SLE and APLS and I apppreciate the video.
scarletfire28 1 year ago
it will be good if we tha latin american people have some type of imformation in spanjh for the non inglish spicking
tonyman20002 1 year ago
@tonyman20002 that's a great idea. I'm going to try to work on that. I'm not of spanish decent but i am taking spanish in college right now so i can ask my professor to help me. Hope to have that up soon. Thanks for the advice.
am6662006 1 year ago
@tonyman20002
ingresa en el espacio de búsqueda de google las palabras: lupus eritematoso sistemico y te aparecerán muchos artículos para seleccionar.
igualmente puedes escribir en otra búsqueda las palabras lupus asociaciones o fundaciones y estas tienen muchos informes
dulcechio5 1 year ago
can an ANA test turn out negative in the beginning stages of lupus..? has anyones tests came out negative , then positive later?
nareen85 1 year ago
Tnx for sharing this vid. I don't anyone in my family who have this disease and even with circle of friends. I'm thankful for that. Hope those who get it don't suffer too much from the pain.
poknatcmat 2 years ago
what exactly does Lupus do? im guessing from all the comments litterally all of them usually include somewhere along the line of "Lupus Sucks". but what does it do exactly?
gunnybunnyz12 2 years ago
There's another video that was shared here about lupus and it explain the symptons and the result of lupus. Lupus doesn't have a cure just like major disease like MS. If u can't find the video...u can google it. Hope u get ur answer from there.
poknatcmat 2 years ago
The title of the video in You tube is "Lupus awareness Infomercial".
poknatcmat 2 years ago
it attacks your organs one at a time
TOOLGODDESSTT 2 years ago
How do you feel the American television medical drama/dark comedy "House" has impacted the state of global lupus awareness?
As a fan of the show I must confess I was under the impression that 99.9999% of tentative lupus diagnoses prove false, and yet clearly the disease is still somewhat prevalent...
apersonfromporlock 3 years ago
Beautiful video. I have Lupus too and just started my own awareness channel. Thanks so much for posting.
theleepchatchannel 3 years ago
Rest in Peace N'Deaye Ba, swedish-african actress who got Lupus in 2002 and passed away in 2005
zillertaller 3 years ago
It's not lupus
Mailbread 3 years ago
Agreed.
uwannawrastle 3 years ago
i have lupus, and let me tell u it sucks. i had to take predinsone, and i gained 28 pounds on it. but now im back to my normal body weight
narnia12fan 3 years ago
lovely vid
xxwendyx 3 years ago
last time the patient just take steroids (prednosolone)as medication as much as 50mg per day.The side effect of the medication also very bad.Someone have to find the best medicine for this lupus.
sanggarD5 3 years ago
I have lupus and im 18 but I was dignosed at 11 but have been sick all ym life im glad to see that there is some awarness n here keep up the good work les conqure lupus :)
merfmoo 3 years ago
my mum has lupus . not many people know of it . its terrible . i hate seeing any1 with this suffer .
XAngelwithattitudeX 4 years ago
my mom has lupus as well. I know how u feel.
badazzrockchic 3 years ago
what's the name of the song? I'm doing a ppt on lupus rite now. This was so moving!
ptry 4 years ago
My mother passed away 10 months ago after battling the disease for 11 years. It was a long, cruel death - my she rest in peace.
Thank you for creating awareness.
xx
chanstarug 4 years ago
I'm so sorry to hear about your mother's loss. I was diagnosed in 2003.
theleepchatchannel 3 years ago
sorry to say this ,but my wife died 8 months ago because of lupus,she was 40 years old,and now her brother has it.
badr747 4 years ago
I had a positive ana test and my arms are really sore and swollen and I feel nerve discomfort in my arms and hands. I dont know if I have lupus, but I am really scared now.
SxEshawn 4 years ago
please dont be scared there is alot of support out there i have lupus and and you learn to live with it but dont have to do it alone.
helenmarie1967 4 years ago
Exactly,there is support. A lot in fact. I've come to know many people who have Lupus. Some have had Lupus for a long time,others not so long. but they know what they are saying when you ask questions,share your thoughts,fears etc. You will get the information or help you are looking for.
singerdancer07 4 years ago
Nice video. Sheila Shaw lives with Lupus, which knocked out her kidney function. She teaches all about taking control of your life despite living with chronic illness. I have talked with so many Lupus patients who all claim that their Lupus flared out at the most stressful point in their lives. This was Sheila's case as well. In my personal studies, it seems to be that keeping stress to a minimum would help with preventing it.... Thank you for this video!
patientspride 4 years ago
My cousin has lupus. She is a widow with 3 daughters. She is not afraid to die cause she is a very regilious christian. However, she is scared to die before her daughter can take care of themselves.
Noosa1978 4 years ago
Read the book "The New Arthritis Breakthrough" by Henry Scammell, it will give you information on to how to treat lupus and it really does work. I tried it.
lavndrose 4 years ago
Thank you for your vidéo. I have a Lupus and it's very difficult for my every days. Very good vidéo :-)
gege1070 4 years ago
I love this vid! Thanks for making it!
kayleewyatt 4 years ago
Thank you for being an advocate for Lupus. I have Lupus but it is my vow never to let this disease get the best of me. I want the world to know that this disease does exist!!!! SO THANK YOU
catali3 4 years ago
In the search box type in: LUPUS AWARENESS INFOMERCIAL. Comment on it if u like. TELL ALL!!!
am6662006 4 years ago
That was an awesome video. Great Work.
DarkRomance30 4 years ago
Please Comment on my video. I made this video. Please forward this message to all you know.
am6662006 5 years ago