In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
My 17yrd old neice in England has Juvenile Huntingtons shes was diagnosed a couple of years ago.....her video is on my page she is a very brave girl xx
Where can I get this documentary? Me and my older brother are taking care of our younger brother who has hd, I have always been intrested in this disease. I would love to buy this.
I am a healthy, attractive, pleasant 40 year old woman who has just found out that I have lost the lottery. Thank God for Neuroplasticity! 2 kids at risk aged 10 & 12. Recently single. Open to dates from wealthy men who realize that my dancing ability is fantastic right now but will be outstanding in the upcoming years!
For a $1,000 I'd rather spend my money on researching HD rather than find out if I have it. I fear I have it like my father, or fear that it will one day surface. I don't want to know at this juncture in life (I'm 28) as I have enough problems battling ADHD and OCD. I pray for all families who suffer from HD. I'm tired of crying from these videos but am empowered to help with making people aware. Sometimes I laugh at the symptoms that I may face one day, not to be callous, but to be positive.
I really would like to Thank Mr DeVito for making this Doc, This is really a Blessing for all of the HD Community to see someone from Hollywood take the time to help us with the Awareness of this Disease. Maybe someday we will get to thank Danny & Friends in Person :o} Keep the Faith my HD Family.
Mike Anthony
I have two step boys with HD & two Grandchildren at risk,
i am 45 and going through this dilemma right now, my mother is 63 and has had huntingtons for over 6 yrs.
i am 1 of her 4 offspring and none of us have taken the blood test, sometimes i have symptoms like mild twitching in my fingers and toes but i dont want to know.
Can we somehow get this to Oprah. I have been trying to get her to respond to email. I would like to raise awareness and $ for HD research.The comments on this video are so powerful! How can we get someone to help us all?
My mother-in-law has HD and my wife is setting the stage for her to move in with us. I figured I better learn about the disease. It was a real eye opener.
I thought I would post a link to my research for anyone that wants to read more about it. It's free, or course.
i'm whats called at risk of hd. (i.e 50/50, heads or tails or read or black) but i dont let it ever get me down. if it means my lifes cut short by 40 years who cares its the time were alive is what counts, and who cares about statistics, my grandad (non hd side of the family) ran up a beach at d day. with a lot less of a chance than 50/50, he's 85 now and as he always says to me his at risk gransdson. drink all you can, smoke if you want to, if he wants you up there your going!!!!
Don't think we can get this in Australia. My 7yr old died of HD, my 9yr old and my husband both have HD and it is devastating to watch your whole family suffering. I wish I had known children can develop it, they say its too rare to mention but how rare can it be when you have 2 small children with it??
pwestman, my heart goes out to you, that would be a hard call if you would have had your kids if you knew. but man those kids, hey were would we be without them ehhhhhh
Huntington's Disease is very well known in my family. A 50/50 roll of the dice has resulted in 5 out the 6 chidren in Dad's family having the disease. Mom & Dad have 4 children; 2 of us have tested & both of us have the gene. Would I still have had children if I knew this before I started a family? I sure hope so. My kids are incredible. They bring joy into the lives of all who meet them. Who knows; one of them might find the cure for Huntington's Disease. We have so much to offer the world.
Wow...My Grandfather died of HD and passed it to my mom. She is 53 and it is getting real bad. I have researched HD and realize that there is nothing we can do. I'm taking my mom in next month and taking full care of her with my fiance
This has been flagged as spam show
In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
swhitt21 1 year ago
Thank You for the video My son passed away 5 years ago from HD so thank you! I hope truth is truth because anything less is not worth it....
Nonya63 1 year ago
My 17yrd old neice in England has Juvenile Huntingtons shes was diagnosed a couple of years ago.....her video is on my page she is a very brave girl xx
TwittyWhit07 1 year ago
The highest interest of life, life requires that it spreads upward mercilessly life degenerating,
For example, for the right to live, die proudly when no longer possible to live proudly,
Death freely chosen, death at the time, with clarity and a joyful heart, accomplished in the midst of the family.
For the love of your life you will have longed for a free and conscious death, no chance and not surprisingly,
We did not hand in a way that would prevent us from being born, but we can repair
welwitcha2000 1 year ago
does anyone know if this documentary is abailable at all?
mdw315 1 year ago
Is the video available to view? I have searched for it but can't find it!
mdw315 2 years ago
Where can I get this documentary? Me and my older brother are taking care of our younger brother who has hd, I have always been intrested in this disease. I would love to buy this.
daize215 2 years ago
I can't find the actual documentary film either. Can anyone help please. Thanks.
DJoyceR 2 years ago
Thanks Danny et. al.
I am a healthy, attractive, pleasant 40 year old woman who has just found out that I have lost the lottery. Thank God for Neuroplasticity! 2 kids at risk aged 10 & 12. Recently single. Open to dates from wealthy men who realize that my dancing ability is fantastic right now but will be outstanding in the upcoming years!
leahamattinson 2 years ago
I cant find film anywhere. Does anyone know where to find it?
tynavee 3 years ago
For a $1,000 I'd rather spend my money on researching HD rather than find out if I have it. I fear I have it like my father, or fear that it will one day surface. I don't want to know at this juncture in life (I'm 28) as I have enough problems battling ADHD and OCD. I pray for all families who suffer from HD. I'm tired of crying from these videos but am empowered to help with making people aware. Sometimes I laugh at the symptoms that I may face one day, not to be callous, but to be positive.
Machiavelli1513 3 years ago 3
Hi All
I really would like to Thank Mr DeVito for making this Doc, This is really a Blessing for all of the HD Community to see someone from Hollywood take the time to help us with the Awareness of this Disease. Maybe someday we will get to thank Danny & Friends in Person :o} Keep the Faith my HD Family.
Mike Anthony
I have two step boys with HD & two Grandchildren at risk,
madrywallmike 4 years ago 3
also mild jolts in my arms
kingiescastel 4 years ago
i am 45 and going through this dilemma right now, my mother is 63 and has had huntingtons for over 6 yrs.
i am 1 of her 4 offspring and none of us have taken the blood test, sometimes i have symptoms like mild twitching in my fingers and toes but i dont want to know.
kingiescastel 4 years ago
when ur toes twitch do they curle upward or downward?
chaosad999 3 years ago
@chaosad999 why
crazzer123 1 year ago
Can we somehow get this to Oprah. I have been trying to get her to respond to email. I would like to raise awareness and $ for HD research.The comments on this video are so powerful! How can we get someone to help us all?
momskippers 4 years ago
Wow I thought the same, why is oprah avoiding
HD she is covering everything else
Lorraine257 3 years ago
-->>>> Visit here for more - skjyblog . c o m
peoker5 4 years ago
My mother-in-law has HD and my wife is setting the stage for her to move in with us. I figured I better learn about the disease. It was a real eye opener.
I thought I would post a link to my research for anyone that wants to read more about it. It's free, or course.
helium dot com/tm/554418/huntingtons-disease-known-huntington
REMOVE THE WORD "DOT" AND REPLACE WITH A PERIOD TO GET TO THE WEBSITE
MultiModality 4 years ago
i'm whats called at risk of hd. (i.e 50/50, heads or tails or read or black) but i dont let it ever get me down. if it means my lifes cut short by 40 years who cares its the time were alive is what counts, and who cares about statistics, my grandad (non hd side of the family) ran up a beach at d day. with a lot less of a chance than 50/50, he's 85 now and as he always says to me his at risk gransdson. drink all you can, smoke if you want to, if he wants you up there your going!!!!
kev140181 4 years ago
Don't think we can get this in Australia. My 7yr old died of HD, my 9yr old and my husband both have HD and it is devastating to watch your whole family suffering. I wish I had known children can develop it, they say its too rare to mention but how rare can it be when you have 2 small children with it??
time4sleeping 4 years ago
pwestman, my heart goes out to you, that would be a hard call if you would have had your kids if you knew. but man those kids, hey were would we be without them ehhhhhh
braveharty 4 years ago
This video is awesome, it'll really open your eyes.
wrf121 4 years ago
Huntington's Disease is very well known in my family. A 50/50 roll of the dice has resulted in 5 out the 6 chidren in Dad's family having the disease. Mom & Dad have 4 children; 2 of us have tested & both of us have the gene. Would I still have had children if I knew this before I started a family? I sure hope so. My kids are incredible. They bring joy into the lives of all who meet them. Who knows; one of them might find the cure for Huntington's Disease. We have so much to offer the world.
pwestman2000 4 years ago
Wow...My Grandfather died of HD and passed it to my mom. She is 53 and it is getting real bad. I have researched HD and realize that there is nothing we can do. I'm taking my mom in next month and taking full care of her with my fiance
kobe8jordan23 4 years ago
I know I have a 50/50 chance and then my kids. I have two sons 10 and 6. I hope the best for you and your family. You really touched me
kobe8jordan23 4 years ago