Thank you for the videos. My son was just diagnosed. It came on suddenly last month. The Dr. says it was caused by a viral illness of some kind. We think it was vaccinations. He had 3 shots for school and was sick two days later. He passed out while we were out to dinner. It was very scary. He passed out at school last week. Today he had to quit his sports team, which is such a bummer. I appreciate your tips as we figure out his new normal.
I'm such a rebel, I started with part 3 and I'm gonna work my way back :)
So far so good, very good advice
nice of you to include your little nap near the end ;-) funny how sometimes not doing anything at all interesting... is interesting take a nap, and we're rivetted - lol i think it's good to show bits like that though, not just the words but let us see you feeling it, and we can really feel it with you
I could do with a decent light for filming... but hmm, then I'd get even hotter, concentrating on making a video shoots my temp up, easier now in a cooler place though hey, maybe you'd be willing to offer me a few filming tips, I'm sure you've also got a lot of good tips for that, being an accomplished YouTubing pro and all :) Cheers Kyli
thank you for the videos. I'm 46 and been in this battle of pots for 41/2 yrs. I don't faint but I have all the other stuff. I have a lot of pooling . I take a Vit b 12 shot every week, all the other meds they have tried makes me sick so I just live with it. Once again thanks
You cope very well psychologically with your positive attifue and you're right, that friends coming over would be a good idea if they understand to be quiet and not be too crazy and have a wild party. I hope to try that oneday, and it's a big boost mentally I think to have someone come over your home when you're too weak to be able to get out to socialise. Good idea.
this first one is for the second video. the part for the vitamins i take a multi vitamin. im 18 years old and im taking the little kids or like 4 and 5 year old cuz i get very sick from the adult kind. my doctor told me little kid ones. i was the same wy with friends to. i just started going out again about 2 months ago. its for a girl and she understands my condition which is nice and hard to find in people like that. love your videos keep them coming. please
You're welcome sweety! Sorry you felt bad at the end there! Low-noise fan next? lol... Seriously, you scared the crap out of me there... Continuing great on the tips though hun! Keep it up! :) 4 years... sounds familiar ;)
Thank you for the videos. My son was just diagnosed. It came on suddenly last month. The Dr. says it was caused by a viral illness of some kind. We think it was vaccinations. He had 3 shots for school and was sick two days later. He passed out while we were out to dinner. It was very scary. He passed out at school last week. Today he had to quit his sports team, which is such a bummer. I appreciate your tips as we figure out his new normal.
timjpearson 4 months ago
Your great Kyli, I can relate to you, hope it all goes fine. :D
24ducks99pigs 2 years ago
I'm such a rebel, I started with part 3 and I'm gonna work my way back :)
So far so good, very good advice
nice of you to include your little nap near the end ;-) funny how sometimes not doing anything at all interesting... is interesting take a nap, and we're rivetted - lol i think it's good to show bits like that though, not just the words but let us see you feeling it, and we can really feel it with you
SharkBateNait 2 years ago
I could do with a decent light for filming... but hmm, then I'd get even hotter, concentrating on making a video shoots my temp up, easier now in a cooler place though hey, maybe you'd be willing to offer me a few filming tips, I'm sure you've also got a lot of good tips for that, being an accomplished YouTubing pro and all :) Cheers Kyli
SharkBateNait 2 years ago
thank you for the videos. I'm 46 and been in this battle of pots for 41/2 yrs. I don't faint but I have all the other stuff. I have a lot of pooling . I take a Vit b 12 shot every week, all the other meds they have tried makes me sick so I just live with it. Once again thanks
bubblescfc4 2 years ago
Nice to get tips and simply having the knowledge that I'm not the only one!! Thank you!
lwp913 2 years ago
You cope very well psychologically with your positive attifue and you're right, that friends coming over would be a good idea if they understand to be quiet and not be too crazy and have a wild party. I hope to try that oneday, and it's a big boost mentally I think to have someone come over your home when you're too weak to be able to get out to socialise. Good idea.
luminescentfeeling 2 years ago
How wonderful of you to post these videos!
Deandra35 2 years ago
this first one is for the second video. the part for the vitamins i take a multi vitamin. im 18 years old and im taking the little kids or like 4 and 5 year old cuz i get very sick from the adult kind. my doctor told me little kid ones. i was the same wy with friends to. i just started going out again about 2 months ago. its for a girl and she understands my condition which is nice and hard to find in people like that. love your videos keep them coming. please
tobig2bagan09 2 years ago
Great video :)
Stacey31233 2 years ago
wonderful!
lednugenna 2 years ago
Awesome job on the tips! Hope you are feeling well today!
crazygal77 2 years ago
You're welcome sweety! Sorry you felt bad at the end there! Low-noise fan next? lol... Seriously, you scared the crap out of me there... Continuing great on the tips though hun! Keep it up! :) 4 years... sounds familiar ;)
bionyx86 2 years ago