POTS Full body tremors

[colltav]

And it seemed like the more it came back the worse the shaking would get worse to the point where I couldnt even speak almost. That felt so horrible like I was in hell! If what u have feels anywhere near as bad as what I felt then I feel so bad for the people that have to go through this all the time

[colltav]

Ok right now I am in the hospital. I have sickle cell anemia and Lupus as well. Ive been in here almost 3 whole weeks now this has been one of my toughest admissions but Im doing a lot better than I was about a week ago.I was admitted for a sickle cell crisis and just when it seemed to be all better I suddenly start getting fevers over 103.2 that would go down when treated with tylenol but come right back. Everytime that happened my whole body would shiver and shake uncontrollably like this

[TheRockinmama]

i have just recently been diagnosed with pots i dont kow if what i get are body tremors or not..... when i am resting my body shakes in a hard jerk for just a few seconds, i notice it gets worse when i lay down. its almost like the feelin u get when your dreamin u are fallin & then jerk to wake up. it really scares me....

[yazzleberry1994]

I have theses tremors all the time mine get so bad i have to go to the hospital because me mum and dad get so scared .. im 17 years old and iv just been diagnosed with POTS and i have been goin threw this now 3 years .. its horriable for people to go threw i got told the other day i was pretending to have a fit .. but it wasnt my hole body was shaking and i couldnt stop can anyone help me ?? i need to find more info out about POTS .. thankss

[Thecoolgirl324]

Get to the hospital!!!!!!!!!!

[LYNXVAL]

That seems so awful living with body tremors! I am so sorry for you! what is POTS Disease!!?

[LYNXVAL]

That seems so awful living with body tremors! I am so sorry for you!

[theladytwilight]

This happens to someone close to me, a 19 year old with POTS only hers are much more violent. She's injured herself, and bitten her tongue. Right now, Ativan is being prescribed.

[XxShadowfootxX]

I'm 14 and have POTS.

I drink lots of fluids and eat lots and lots of salts

usually saltine crackers or cheese-its,but I don't

see why I even still go to school due to my constant

tiredness and fatigue and going home due to low blood pressure

and headaches. it sucks and i'm trying my best to manage.

[michaeltymich]

this was a horrible experiance I have a drinking problem...and woke up at 2am this morning having one of these attacks

[swordsmen2005]

I have P.A.I.D the full body tremors lasting hours as well HR reaching as high as 285 bpm is it similar to pots?

[RichardBri]

Enterovirus enters the digestive tract through contaminated food/water. It infects the digestive tract and moves into the nerves infecting the vagus nerve. The infection travels up into the brain stem where all autonomic functions occur causing dysautonomia. I am a fully documented test case part of a research study of more than 3000 POTS patients. We are in need of an enterovirus antiviral, but no one is currently funding our illness.

[hetfieldshoney]

This is heartbreaking to see. Made my symptoms worse just watching for a few mins & sympathizing with you.... (my heart speeded up, twinges of pain in chest, imagining how horrible this must be for anyone to endure.) I pictured myself in your shoes, & to be honest, I don't think I could stand it. HOW does someone live with this?

I am very symptomatic with most of the Dysautonomia symptoms & have been for a few years now, but haven't been diagnosed yet. I'm terrified of getting worse.

[hetfieldshoney]

up until 3-4 weeks ago I'd never even heard of these things, until I saw an episode of Medical Mysteries & couldn't believe they were actually talking about MY LIFE! So I've been learning about itas my symptoms & days have been progressively worse over the last few months, & i'm really scared. My anxiety has been shyhigh & I'm already so ill with other ailments for 20 yrs, It's just so depressing. BUT, ppl like U on here R BRITE BLESSINGS to those of us who R searching 4 answers! U R so strong!

[cvalmarchiori]

Hi, I don't know what POTS is but I will do my research. The fact is that I had tremors like that a few days ago and they really hurt. I couldn't control them (almost like a seizure) and I felt very cold. I had a Urinary Tract Infection going on and high fever, but the doctor said that the tremors were normal. I was like this for 1 week or so, then it stopped, but I had fevers before and never tremors. I am freaked out.

[Strelenskaia]

Hi, you may be going into hypovolemic shock here. Have you heard of Hypovolemia before

[Strelenskaia]

Hi, I think you may be going into hypovolemia shock here. Look up hypovolemia in Wikipedia. Many people with POTS have hypovolemia. Hypovolemia means you have low amount of blood in your body.Ask your doctor to measure how much plasma/ blood you have in your body, and keep count. You should be in Emergency Department having saline, my dear. Saline expands how much "blood" you have in your body. Email me if you like and I will post you references.

[theladytwilight]

@Strelenskaia No, this is a part of POTS, and my daughter in law, a 19 year old, has it so much worse. She'll down salt and the electrolytes, etc. So far, only Ativan helps.

[Strelenskaia]

@theladytwilight thanks for correcting me, what is Ativan?

[mikeer222]

celiac disease caused my wifes pots!!! check for food allergies to whaet, gluten, milk, medicines!!!

[TheTrista2009]

omg i though i was the only one that got that

[AustinEngelman]

$100 Bucks says you've got Lyme disease. I don't care if your bloodwork is negative. Lyme causes your exact symptoms and so many others that are called Dysautonomia. Contact me for more information. I have a simple way for you to tell if it's Lyme without a blood test. Lymenurse at AOL

[AustinEngelman]

$100 Bucks says you've got Lyme disease. I don't care if your bloodwork is negative. Lyme causes your exact symptoms and so many others that are called Dysautonomia. Contact me for more information. I have a simple way for you to tell if it's Lyme without a blood test. Lymenurse at AOL dot com.

[educator519]

This video is heartbreaking. My daughter does the exact same thing. I am so tired of doctors saying its psychogenic and she needs to see a psychiatrist. They say she does this because she must be under stress,but it doesn't only happen when she is stressed. She's exhausted afterwards, and doesn't remember any of it. How do you feel after?

[fatalfish01]

Thank you for putting up this video. I know how hard it must be to put it out there for people to see... I became seriously ill at the end of last year and have now been officially diagnosed with POTS. I was getting these tremors and horrible episodes once or twice a day for months and it really shocked me to see this video of someone else going through the same thing but also helped me to not feel so alone. I really hope you are doing better now. Take care

[fatalfish01]

Thank you for putting up this video. I know how hard it must be to put it out there for people to see... I became seriously ill at the end of last year and have now been officially diagnosed with POTS. I was getting these tremors and horrible episodes once or twice a day for months and it really shocked me to see this video of someone else going through the same thing but also helped me to not feel so alone. I really hope you are doing better now. Take care

[missmisfits]

i doubt this will make you feel any better, but you're not alone. POTS does the same thing to me too sometimes :/

[blah0206]

wow. she's not having an orgasm and she's not gross. and she definitely does NOT deserve to drop dead! you people need to grow up. this is an actual disease that ruins people lives. its serious; not something to make cruel jokes about. i hope karma bites you in your ass.

[SharshLogan]

eeew stop having an organm ur gross

[PostHuman2113]

tard drop dead.

[orlandorocks14]

your an ass. that's an actual disease and you insulting a side effect.

[fballmen]

Thk you for documenting the tremors, I never managed to catch the full body tremors on video, because as you know you don't feel good in those moments. Have you ever experienced your jaws locking up during violent tremors?

We need to show the world what it looks like when it's like when we don't look So Normal!! Herbs & acupuncture are doing wonders for me. A lot of POTS sufferer find relief in natural treatment. There is help out there, Lots of healing love to you!! <3

[Trythisonline]

Thank God I tried a homeopathic chiropractor (Holistic Healing) She started me on craniosacral therapy. (That works on the autonomic nervous system).POTS is an autonomic dysfunction! They stopped my tremors! (Not all POTS patients get tremors) Long story short, I no longer have tremors. I am NOT on any drugs (I take Alpha base vitamins only) My heart rate is normal again,Blood pressure low,I can walk up the stairs.even run! I get out of bed or bath without falling over.Unbelievable.. But true!

[Trythisonline]

You can not go one or two times and think you should be cured or that didn't work for me. You have to REALLY want to be healed! Pray God will heal you during your session, and believe he will!

I am not a doctor..Just someone who had POTS!

Blessings..

[hallford522]

@Trythisonline what did they do to make them stop? i have full body tremors very often and they are soo horrible..i would give anything to have them stop.

[nutty85]

@Trythisonline

just stumbled on this vid. I'm so happy to read that ur tremors are gone. Thats amazing. Shanti.

[heyitsleeceuh]

@Trythisonline SAME. I was diagnosed with POTS 3 years ago and my mom's friend was a physical therapist and started doing craniosacral therpay on me before I knew what I had and I've been so much better. It's still hard to do many things but no where near where i was before.

[sonilakha]

@Trythisonline What Kind of homeopathic chiropractor did you go to? I also have POTS but its very different then the normal traditional POTS. But i do get tremors. I am very into holistic and energy healing, Im just curious about what exact treatment you had to help you. Please let me know. Thank you and god bless you.

[audiomosaics]

Wow..!! I'm so glad to see you've had success through homeopathic treatment.

Wonderful news.. Best wishes to a healthy life..:)

[coolgirlee]

I am 18 years old female.

I get these every once in a while. I also have POTS.

Doctors thought it was panic attacks . . .

[Trythisonline]

I was told it is in my head or anxiety and panic attacks. or I am too sensitive to how I am feeling.The Tilt Table test confirmed I did have POTS

Most doctors do not know about POTS.. they will give you more and more drugs. Making you have more symptoms, so they give you more drugs for those symptoms.

[DeadlyChinchilla]

@Trythisonline I don't have POTS, but I do have a moderate Essential Tremor (hands and head, but it can be full bodied on the worst days). Doctors for years told me the same thing. "Calm down. You're too sensitive. Why are you so stressed? Relax!" I even had a dental assistant tell me quite rudely "will you just hold your head still?" If I could, wouldn't I? GRRR!

Anyway, I don't envy anyone with POTS or more severe tremors than mine... don't let them get you down, we understand.

[OneManWolfPak]

@coolgirlee ...what were your symptoms when they started? whenever i do any physical activity for say about 5-10 minutes i start to get butterflies in my stomach, then panicky followed by weakness that causes me to passout if i dont immediately stop and sit down. if it gets to this stage i will feel like shit and be unable to work for at least one day

[mountain121]

does it hurt?

[Trythisonline]

Yes... Very Much!

[Forceus2OO7]

@Trythisonline I think I get these too, but only when I sleep. And it's horrible because I wake up from them believing there is an earthquake. =[ Hope you get better.

[supremepw]

i had had Pots for long time. however, after searching the net i saw that it does have to do with psychology on a great part. After improving my psychology, things got better. Anxiety and Panic has been my daily meal for the past 10 years or so. After anxiety/depression therapy my symptoms became a lot less. Still, there are bad days, but don't underestimate the psychological factor please.

[moriahm0nster]

I have had these tremors for years. I was never diagnosed properly. I have been told it was anxiety. I have lived in hell being diagnosed incorretly for years. My Daughter has p.o.t.s. and I am now able to get a specialist to really pay attention to the myriad of symptoms associated with p.o.t.s. Thank you for posting this video. It has helped me so much. God bless you

[irishoorah]

God bless you. I admire your courage for posting this. When i was 13 i was prescribed some medication for OCD and i suffered these for months on end even after they had taken me off of the meds. it left me perminately scarred though, if i get to excited or have to high an adreniline rush, i suffer these...again may God Bless you

[poetrygal1]

I am so sorry. Thanks for posting. Occasionaly I get tremors too. You are very brave for sharing.

[sleepingandwaking]

I have P.O.T.S and I found out that I am a lot better when I am on the multiple sclerosis diet (no saturated fats no beef or butterfat/dairy). And drink wheat grass everyday...of course with smart water and salt!!!!!! My P.O.T.S is 70-80% improved especially when I am on a diet with a raw food content. Doctors really don't know enough about this to help us!!

[sleepy976]

I had my first episode of tremors last night I was rushed to the hospital. I think you're a very brave person for doing this. I feel really bad that you're experiencing this.

[DrFrankyDolan]

I completely understand how you feel. I get the same tremors. You are not alone my friend. Thank you so much for making these videos. We are helping to educate each other when we document our lives like this.

Blessings to you... Sending love...

[ELAFATARDI]

that must be hard to live with

[MyLymesStruggle]

Oh my Gosh, My heart goes out to you. I get these and they are scary. Do you take anything. Usually xanax or ativan helps mine. Have you ever been tested for lyme? I have lyme disease and mine get worse when I am treating and oh yeah, the headaches are terrrible. My heart goes out to you.

[Trythisonline]

I have been tested with a Stress Test, a Tilt Table Test and Heart Rate Monitor I wore for 22 days. They all say the same thing... POTS... My Heart Rate has gone up to 214 bpm.within five minutes standing. My tremors get so bad sometimes it is more like convulsions! I do not drive any more because I never know when the tremors will start. If I get cold,or stressed are triggers I know so far. I also try to keep my legs up.. to help from blood pooling in my legs.

[Trythisonline]

I am sorry you have this kind of tremors too! They are very scary. It is nice to know other people who do this too! I feel so alone in this most of the time. I do take Clonazepam when I feel them coming on.. They do not always help. If they are going to be bad they are going to be bad. I have went to a homopathic Chiropractor to have Craniosacral therapy done.. This really calms my body. I have been tested for Lyme Disease five times in a month when they were trying to find out what was wrong.

[ColonelMarksman]

So this is tremors? I have something in the process of a diagnosis. I twitch and shake various limbs, but sometimes I tremble. The longest episode is 5 hours and 25 minutes. It really does suck, doesn't it? Well, we learn to live with it.