Stanford's Dr. Jose Montoya on Chronic Fatigue Syndrome

[BritishSnail]

ME and Th2 response, see my channel (for now)

[BritishSnail]

ME and Th2 response - see Stanford Channel for link if they'll agree to keep it showing

[dosh228]

between 2004-08 i was working 80 hour weeks with a travel time of 2 hours between home and work, i was a labourer/1st grade athelete i spent many hours in the gym and was also coaching a team of juniors with sport, every morning i was awaking to the feeling of pins and needles & a really drained and tired feeling like when you yawn, then all of a sudden i got a bacterial infection and within days started having seizures at 1st it was apparently stress 2 years on clueless

[cameoconnection]

this was very helpful and interesting to me.. I too have suffered from this disease with little to any improvements.. it even feels as the days go bye I am not getting or recovering from say the symptoms like " sore throat" last for weeks if not months before i get any relief while also during this time I will get another miserable symptom which makes it almost impossible to do anything on a routine bases. i will try to contact your office for more info

[KungZoo]

And it's for videos like this that make YouTube such a powerful tool of educational dissemination. Thank you, Stanford!

[jazzguy33333]

ME is the name used in Great Britain for CFS. The diagnostic criteria are identical.

[jazzguy33333]

Virus has not been ruled out. Just one particular virus that caused much excitement when it was discovered. Viral Induced Central Nervous System Disruption still most likely scenario.

[BritishSnail]

Virus as cause of M.E. now ruled out. Likely to be an autoimmune disease (we know! #mecfs - can we have some Prednisolone now please!???)

[StrudelFunkberry]

@BritishSnail It's a hiearchy of bacteria, protozoa, and viral infections, all starting probably with the bigger ones such as Borellia or Mycoplasma, once your immunity is lowered by the bigger bad guys your body is open to any amount of other invaders. I think its the mycoplasmal infections that really set you up for the fatiguing issues due to atp synthase disruption. Autoimmune aspects are true as well, these bacteria are in biofilms, which means chronic immune activation.

[BritishSnail]

@StrudelFunkberry Oh

[FlashmoreGash]

Ive been diagnosed with cfs/fibromyalgia Seems ive had it for maybe 10yrs progressively worse.It really is a painful condition(fibro side of it) and the painful fatigue/malayse is striking in its grip.

I cant seem to shale any of the symptoms so far.As i sit here now with arthritus type pain ,glands flu like pain.Muscles feel cramped!

[BritishSnail]

Before that the brain dysfunction, weakness and fatigue / paralysis had been intense. I was dizzy with it all in fact and literally. I had been feeling like death for so many weeks that I was actually expecting it. Everything is back to normal now - extremely limited.

[BritishSnail]

There is now an accelerator website, connecting M.E./CFS research across the globe. Research1stdotcom

[elektriksheep]

@BritishSnail: ME is not the same as CFS. They are separate illnesses. ME is a specific and distinct neurological disease. CRS is a syndrome - a set of symptoms. CFS is often incorrectly referred to as ME, but this is particularly unhelpful to both CFS sufferers and ME sufferers.

[BritishSnail]

@elektriksheep According to?

[elektriksheep]

@BritishSnail: healthmattershow . com/is-myalgic-encephalomyelit­is-me-the-same-as-cfs-enter-dr­-byron-hyde/

[BritishSnail]

@elektriksheep Snoring.

[jumb0mumb0]

@StanfordHospital

Thank you for posting!!

[BritishSnail]

You need a link that's on my channel to be able to access the CFS Advisory Committee Meetings in U.S.A. First meeting is loaded with information (2nd video).

[nikod9410]

un blog en espanol sobre sfc guardiolasfc.blogspot.com

gracias

[misstree75]

My Dr here in Massachusetts is amazing. He specializes in infectious diseases/internal medicine. I had many infectious going on and have epsteinbarr virus (got mono at age 25/26) I'm now 36 going on 37. He found vitamin deficiancies (spell).. D, C, A, E, Riboflavin B2 , B 12... Also, he used a tens unit for the fibromyalgia points. It helped and I bought one. I pray for a cure though. God bless us all. 

[justinreilly1]

The one dislike was from Simon Wessely

[elektriksheep]

@justinreilly1: Haha.

[BritishSnail]

I can't even eat cheap food. Boy was I ill recently for trying that stunt, in my increased poverty.

[BritishSnail]

I have a tiny infection (maybe) and I'm down. It's ridiculous.

[BritishSnail]

It is clearly and absolutely 'paralysis'. Anyone fighting paralysis throughout their body would be fatigued! In relapse my body is a dead weight. Try shifting that! My clitoris can even be paralysed. At the moment my bowel is paralysed and I am taking so much stuff to keep it moving, it's unreal! As for the pain, mine is currently under control. Thanks be to God and if anyone wants any tips with that, let me know. Get a move on to help us will you please, bless you? Gov is attacking us too!

[Freiflug7]

first you have to say chronic fatigue is the wrong name for this disease. in Germany many brainless doctors still believe it would be psychological origin. I think they just try to earn as much money as possible with imbecilic therapies , f. .. k them :-)

if there will ever be a solution, then by anti-viral drugs, immunoglobulin, etc., which are capable to destroy epstein barr virus and HHV6.

until then you should take hydrocortisone against the musle pain.

so long

[misstree75]

I've been suffering for almost the same amount of time. Only I was in my early 20's... didn't get the chance to even work or get an education :(

[BritishSnail]

@misstree75 Oh I am so sorry. It really does make me cry when I come to realise how many young people get this disgusting illness, as it is so life robbing and you've had none as such, yet! Big and very gentle hugs to you, and remember that Jesus blesses us greatly in our sufferings and in our isolation actually. You are GREATLY loved. Lean on Him, use Him in everything. I frequently work and walk in His strength alone. I promise x

[misstree75]

@BritishSnail

Thank you! God Bless you!

[BritishSnail]

@misstree75 Thank you :-). Hugs x

[angelonduty100]

i have been sick w/me/cfs/ & in the final stages of it affecting my whole body-organs. i have been sick (to put it mildly) for 25yrs+......oh, did i forget to say

that i have over 11 different pathegens in my body.....that NO dr, thinks "it a no-big thing !!!! now something is wrong w/this pic ???? miss/mr detective, Thank u for rec the 'house of #'s' i will pass it on...Blessing's to all

[FallaciesDetective]

folks, we need to watch the documentary: "house of numbers" - so that we understand how little we know about viruses and how much money is made with selling unscientific treatments to misinformed patients...

[TheLovelyLittleWitch]

Very informative!

[BritishSnail]

Cognitive therapy does help because it aids successful management when surrounded by negatives, but the greatest care is needed because cognitive therapy is an action based therapy, and our ability is so grossly limited, so it can cause harm eventually. It needs to be adjusted to realistically suit the needs of those with M.E., or it will eventually make it worse.

[BritishSnail]

No wonder doctors can't see our (oh so painful and debilitating) internal inflammation if our skin is turning white. I just heard that bit in this video.

[BritishSnail]

We are praying for mercy, Lord Jesus

[BritishSnail]

Come on everyone. We have only Jesus to help us now, since our governments have turned into such barbaric, cruel tyrants. Let us pray more. Pray, pray everyone, not only for our own sakes but for each other, for all humanity and for the sake of our Lord's sorrowful Passion for His love for the sick and poor is so great....... Pray in our Lord's mercy for He longs to share His many graces with each and every one of us......

[BritishSnail]

And Dearest Jesus, when my brothers and sisters are suffering so greatly, please let them know that You are there to hold them & to comfort them. Please ease their pain and sufferings. Please uphold all good work and bless not only each victim of acute illness, but also all those involved in research, which we pray bears fruit. For the glory of Your name dear Lord and in Your mercy, Amen. Thank You for blessing us in our sufferings Lord Jesus. We love You. Amen

[BritishSnail]

Dear Jesus, please help us. Please find a way of moving all of the money going towards investigating Mars and such things by people who have misplaced values, into research into chronic illness, to relieve suffering here on this earth. Amen

[Donington2006]

Thank you Dr. Montoya

[TheHazeyQ]

Thank you, Stanford. We need your help!

[scottmn1462]

Encouraging comments.. but is there a transcript of this? I'm having trouble understanding.

[TheLibra2767]

Really good,my bf has #MECFS for 10yrs now,just seems to get worse,but we need to have more mainstream info about this condition,alot of people don't know about it,or confuse it with MS not the same. The more we talk about it,how it affects people in any country,the better ;) #MECFS

[jendalen]

Finally to have someone on the "other side" actually believe and care and want the care givers who aren't listening to us to apologize. This is so interesting and I'm really glad I watched this video! Thank you, this is very hopeful to know Stanford cares.

[Danielgoerz]

bump

[BritishSnail]

Once it pays big business for us all to be sick, as is the current direction, the entire country is in danger. UK < NOTE

[BritishSnail]

@Bryt25 MMR is also loaded with mercury. Kids can't concentrate and sit still. They continually get in to trouble and then 'give up'. The strain breaks families and wrecks society.

[Bryt25]

@BritishSnail You're dead right. I had lots of vaccinations as a kid - we travelled overseas with my dad in the RN in the 1950s. It's also passed on in breast milk. Had real trouble focusing throughout school and got continually bollocked for 'not concentrating'. The whole business is shameful. Medics are in severe denial about it - mention it and you are ridiculed. There are several people in the UK who can treat for this but it's private.

[BritishSnail]

@Bryt25 It's very interesting to have that actually confirmed by someone from the appropriate generation. Thanks for that. How are things now?

[Bryt25]

@BritishSnail I'm a lot better now thanks, I sleep well for the first time ever, my head is clearer, I lost lifelong odorous urine and sweat, and sensitivty to noise and light, and have had several amazing days of normal energy since starting a treatment in May 2010. I still have around 18 months to go and fatigue is usually the last to leave the body so there are still some ups and downs in that respect.

[BritishSnail]

@Bryt25 I'm pleased you are out of that chronic, initial hell and pray you keep progressing, though many of us get stuck at a certain level. You have M.E., yes? Is this your first experience with M.E.? If so, you stand good chance of achieving full, long term recovery but hold back still upon recovery if you make it which I pray you do. Have you had it long? Which treatment are you receiving?

[Bryt25]

@BritishSnail I'm having a fatigue downturn at present, just testing for anything serious, but otherwise fine! I had brief bouts since 1960 but thought they were flu. When I studied who got well (they all treated for mercury/candida. I thought back and realised my bouts were related to dental work. I read Ian Solley's e-book (google it) and got his nutritionists number. Her approach is based on the Kane Protocol - dense detail in The Detoxx Book - Practitioners Guide £30! How are you?

[BritishSnail]

@Bryt25 Sorry to hear of your downturn. I am just recouping from an awful allergy to Citalopram thanks. Depression caused by so much gov abuse and theft. Have plugged the hole/emotional pain with increased amitrip. now, but have to mind brain fog it can cause in higher doses. Also administering a small amount of prednisolone to myself, which I have acquired from a friend, G.P.s not having a clue about the level of our suffering! Hang on in there my friend, Anne x

[Bryt25]

@BritishSnail Many thanks. It turns out to be something different. I'm having a heart valve op soon to fix it so things may improve again. Did I see some comments on ATOS?! During one interview I replied that I had one alcoholic drink in a year, hardly watched tv, and used my mobile phone about once a month just to cancel appointments. The doctor wrote: "He drinks alcohol, watches tv and chats with friends on the phone every day." It took 7 months to get my benefit back. Best wishes.

[BritishSnail]

@Bryt25 Oh bless you, but I'm glad things are getting sorted out for you. You poor thing re Atos. I absolutely believe you. It's all very evil, what's going on isn't it? I lost my (low) DLA last August, fought for a year, managed to even make it to the Tribunal but DWP were there (which is unusual apparently). Basically one is in the room with 4 prosecutors and we don't stand a chance. Judge stopped it as 'cruel' but all voted to support removal! Did you go to Appeal?

[Bryt25]

@BritishSnail Yes, it took six weeks to write14 pages of rebuttals on every point. The doctor had taken 1/4 of my answers and pasted them into other parts of the question sheets. Most didn't even make sense. It is a nice earner for some retired doctors with very 1950s attitudes working to control the govt quotas for sick people. Finally the appeal lawyer said, "You're right, we agree with you but the questionaire doesn't allow for your answers.They had to fiddle it in the end. Take care.

[BritishSnail]

@Bryt25 You are fortunate my friend and I'm pleased. How long have you had M.E.? Have just been saying on Twitter that there is no provision for our needs in DLA & we need to start working on PIPs which replaces in about 2 years time. CEO of Atos rakes in Eu2.5million p.a.

[Bryt25]

@BritishSnail Since 2004, but there were unrecognised symptoms long before and I eventually saw them in my mother too - mistakenly treated for depression for years. Like many I was initially sent home to be my own carer, but was 65 in 2010 so at least no benefit worries, and cashed a tiny 10k work pension to pay my mercury detox. Govt took 20% in tax! btw if you want to write more any time you can get my real e-mail address via: r2345c(at)yahoo.co.uk which I rarely use now because of spam.

[BritishSnail]

@Bryt25 The age on your profile my friend is 28. So can I confirm that your age is over 65? This would account for your keeping your DLA (eventually!). as it is those of working age who are being targeted, persecuted and robbed. Thanks for the addy and sorry about the spam. Can't you just click it all onto spam and thus get rid of it?

[Bryt25]

@BritishSnail I will check that, thanks, could do with some rejuvination tho! but I thought my age (66) was clear when discussing childhood vaccinations in the 1950s. It's just a mail account I that no longer use for messages and when signing into med suppliers whoall tend to send regular 'new product info'. Just finding the word limit here a little frustrating.

[BritishSnail]

@Bryt25 Can you or someone on the appropriate channel remove your addy now, as it's not safe? All the time you and I are chatting here, we are raising the profile of this video. So it's a good place to do it? Shall touch base via your addy also, thanks.

[Bryt25]

@BritishSnail Yes it's just an anti-spam e-mail, not my real one, which I can pass on once trusted people write.

[BritishSnail]

@Bryt25 Hi. Did I mail you?  I thought I had. Have no reply at the moment.

[Bryt25]

@BritishSnail no, nothing has shown up yet, I assume you changed the (at) in the address to @!

[BritishSnail]

@Bryt25 Sure. I'll message you my addy. How's it going?

[BritishSnail]

@BritishSnail Crikey (correction?) those DWP bonus figures & criteria info are from Public & Commercial Services Union website!

[BritishSnail]

@Bryt25 I think I just replied to myself, lol. Try to find it? Also - DWP bonuses £52million < blood money. "Special Bonuses allow managers to make payments or vouchers to their FAVOURITE STAFF in a COMPLETELY NON TRANSPARENT way "...so that NO ONE KNOWS WHO HAS HAD A BONUS or WHAT THEY MAY HAVE DONE to get one." Quote DWP website.

[BritishSnail]

@BritishSnail And again, also, check out Nazi T4 Programme. God bless you and I'm pleased your in a sufficiently safe position. Well done!

[BritishSnail]

@Bryt25 It's ok, all replies went through to you. I just checked. Save you fatiguing your brain looking :-).

[BritishSnail]

@Bryt25 What's the treatment you are having, that you mentioned (1 month ago)?

[Bryt25]

@BritishSnail For mercury toxicity. You need to address several areas because once you chelate residual mercury it enters the bloodstream and re-deposits, so you take a binding agent (chlorella) , but the liver is already overloaded, and there is often a candidiasis accompanying the mercury which is freed up, So there are about 4 areas to address but it's not complex once you understand the issues. There is some bad advice online tho and it's possible to bring out too much at once.

[BritishSnail]

Crikey, has no-one commented in a month? Commenting, commenting, commenting.............

[Bryt25]

I would like to mention for fellow CFS sufferers that mercury leaching out from dental amalgam is a major contributory factor to the condition. Never mind what your dentist says. Have your amalgam fillings safely replaced, treat for mercury poisoning for a few months and see what happens. My GP thought I was crazy but now I'm more than half-way recovered. Amazing after 7 years. It's well worth at very least eliminating this possibilty. Just be careful, study up on it, and don't go too fast.

[BritishSnail]

Posted and not for the first time neither, on Twitter today, as the most accurate explanation of M.E. and where current research is at. Thanks

[BritishSnail]

Some discussion about infection in blood today. This is highly possible. Also wondering about hormones as when menstruating some months, I'm having a couple of days when I'm hyper. Quite nice!

[misstree75]

I'm glad I got ill very young.... I could never have a family with this unless a husband and a nanny were there. I would be a great mom mentally, emotionally, and spiritually, but not physically.

[BritishSnail]

@misstree75 Awww (((hugs))) x x x Really upsets me to hear of young people getting this life robbing, horrible illness. I'm so sorry and you're attitude is well adjusted. Well done with your courage and how you are coping..... 'respect'. And if it does ever shove off, the skills you've learnt will make you an even more super duper human being, manager and Mum! x x x I got rid of it once, so if you do, be real careful not to get poorly again. Only work p/time for years after? x

[DysautonomiaMD]

Nice to hear from Stanford.....always nice. They know what they are talking about. Hope this gives our CFS friends hope and sunlight. Refreshing to hear a doctor say, "I do 'believe' in CFS". Hat's off to you, Ducbert, for posting this again here! I sent it to my FB!! LoLv!!

[TheSleepymum]

Thank you. Someone is taking M.E/CFS seriously and looking into it. There's so much stigma about it that just having an acknowledgment that it is a 'real' illness means so much.

[bernhard11]

Thank you Dr. Montoya. I write about this speech in an article at Psychology Today if anyone would like to see it. It's called "The Stigma of Chronic Fatigue Syndrome" and can be found at Psychology Today online under my name, Toni Bernhard.

[MyBjm123]

thank you DR. Montoyo for your efforts in this field. I have had this "illness" for 20 yrs.I only wish everyone could see this. I don't know what people think but I know they don't think I'm ill. To hear it is real and I have all the symptoms,I'm not crazy" means so much. Thank you.

[predoje]

You see, chronic fatigue causes depression not the other around. 18:50

[predoje]

You see, chronic fatigue causes depression not the other around.

[rathbrett]

A wonderfully informative lecture, thank you Dr. Montoya and Stanford Hospital.

[KnightofZeroME]

Those sufferers, caregivers & friends, with Facebook!--ChaseGiving is giving donating money to your favorite charity (up to $500,000). Including CFIDS/ME.

Search the "Chase Community Giving App" & "Chase Community ['Community Page]" hit "like", and vote for favorites, including:

*** Whittemore Peterson Insitute ***

(Biomedical research into M.E.; setting up a clinic & found XMRV/MLV in M.E.);

*** American Blue Ribbon Awareness for Myalgic Encephalomyelitis ***

*** CFIDS Association ***

[jayarte2002]

Thank goodness someone posted this, and that there are people out there who understand this condition.

[TheJoyLoveMoney]

rationality, at long, long last...

[silverlight00]

My daughter has had CFS for 9 years since age 16 and I have Fibromyalgia. My poor daughter has gone through so much suffering only to have friends and family act as if it's nothing. Live with someone with this disease and you will soon see what they go through every day. Thank you for posting this as it may help others to understand CFS.

[bigblindray]

@silverlight00 I empathise with you. My GF has been suffering with CFS for 7 years and people dont seem to accept it as a real disbility. Not enough is done to shed light to the public about this condition.

[mutantboy777]

this video is awesome!

and contains potentially life changing information for many many people!

[jimijamesh]

evidence is mounting that xmrv is not a lab contaminant.

[sandra4803]

Why has my post been flagged as spam??? I thought I had accidentally posted twice, as I'm not a frequent poster, so I clicked remove on one. But now I see that the other has been flagged as spam! I guess that's what I get for posting with brainfog... It's NOT spam, okay?! :)

[sralbright]

Thank you Dr. Montoya for pursuing this research.

[StevieNicksfann]

Thank you so much for this

[deadgirldreaming]

Thank you Professor Montoya.

It is nice to be believed by the medical profession - in the Uk we are having to put up with the terrible results of the PACE trail and the spin that has been put on it and on this illness.

I sincerely hope that soon we will beable to be treated properly and bio-medically in the Uk as well as in America.

[catsondacoast]

Thank you Dr Montoya for directing your considerable mental ability and kind heart into solving the puzzle of this crippling and widespread illness.

[flamin222]

If you only watch one thing about ME/CFS it should be this. It sums up the current state of knowledge and gives a good picture of what the impact of the disease is on a sufferer.

[r5t9m0]

@ChronicFatigueSyn

Yes, he mentions it between 40:15 and 40:22- a small study that has not been fully published from NYC?

[r5t9m0]

Anyone know what what he is talking about when he refers to the study in NY that found XMRV that remains unpublished is? Is this something connected with Cornell Univ.?

[cfidsurfer]

Amazing!

[ExccentricWild]

@ChronicFatigueSyn

Dr. Kerr is located in UK.

[jimijamesh]

Dr. Jose Montoya is my hero!!!

[ironbith]

Very good video! Thank you!

[ExccentricWild]

@ChronicFatigueSyn I'd like to add Dr. Jonathan Kerr and Dr. Anthony Komaroff to them.

[ExccentricWild]

Dear all, I thinks this lecture is great and influential, so I'd like to use it. But I am a Japanese who can't follow what he says well. Anyone, could you send me the transcript of the lecture?

[WalkWithWheels]

Thank You Dr Montoya.

[quick741]

I wish I was born 100 years from now into the future, then we all wouldn't have to deal with illnesses/diseases on a day to day fucking basis.....there would be cures for so many things....

[quick741]

It is madness, people who get cancer suffer and then die yet we suffer like people with cancer yet we don't die we just have to live with it. People with cancer have a way out of their misery as they eventually die if the cancer is bad enough, but we.... have to carry on...... FUCKING NIGHTMARE!!!!

[grannykatie43]

Watching this video as really cheered me up. I have been I'll for 24 years and watching Dr. Montoya's talk has given me hope. GrannyyK

[quick741]

@grannykatie43 I have been ill for 1 year 4 months and it has also given me hope lets hope they get a cure soon, I don't want to lose much more of my life to this illness.

[CABlairify]

A great scientist and clinician! A very clear, comprehensive presentation. On the subject of CFS, talks don't get any better than this one. Watch it!

[BritishSnail]

@ChronicFatigueSyn I'm supposed to know what that means? The notes are for Stanford.

[BritishSnail]

Re environmental factor NOTE

A) Work contract - contracted M.E., 6 months in bed, M.E. gone completely.

Another work contract elsewhere - fine.

Then a work contact back at A) (scared but good contract so went ahead) - contracted M.E. again - can't get rid. Large open plan office - entire floor, AIR CONDITIONING, many computer systems to study, lot of temporary staff, huge asian/euro mix. I'm sure I saw others going downhill.

[jorgepeterbarton]

This has cleared up everything. In this climate where it seems studies are stated as fact or exagerated. Thank you!

[ExccentricWild]

Dr. Montoya, Thank you very much. I've suffered CFS for 23 years. I believe you will give us hope. From Japan.

[ExccentricWild]

Dr. Montoya, Thank you very much. I've suffered CFS for 23 years. I believe you will give us hope. From Japan.

[slovokia]

To all who might think that Stanford Medical Center is now taking CFS seriously please name 2 other doctors there who are willing to state publicly in front of their peers that CFS is a seriously disabling illness deserving or proper study and who are willing to do CFS research and public papers about CFS.

[slovokia]

Dr Montoya may be ahead of the curve but believe me the rest of Stanford medical center is at least 10 years away from taking CFS seriously. Dr Montoya has enough stature to take the political risk he is taking. If you have CFS the healh care system would be quite happy if you silently dropped dead and went away.

[synapse131]

PACE Trial:

30% improved to the level of a 75 year old. That's definitely NOT improvement. The version of Cognitive Behavioral Therapy (CBT) used is not the "warm" and "fuzzy" supportive kind that we know in the U.S.; rather it's a "directive," "brain washing" type of CBT in which they tell the patient that they should not trust their own sensations and to ignore their pain and abnormal recovery and push through according to the schedule. PACE has numerous methodological and ethical problems.

[jorgepeterbarton]

@synapse131 i started getting seriously ill after CBT. during, there was not any mention of a single physical symptom, and i was sent there to manage physical symptoms. i understood depression and also thought that managing physical symptoms would be a part of CBT in depression. it was not.

They told me not to trust my own thoughts. To feel like an idiot that i 'couldn't snap out of it'. Brought up a whole manner of family and social issues.convincing me that icould not do anything.

[synapse131]

@jorgepeterbarton Crazy huh! Seems like very poor psychology to encourage a lack of self empowerment and to not trust yourself. It goes against such a mass of ethical principles in counseling and psychology, it's not funny. Wessely and Co. need serious counter-transference training (and maybe a 5x5 cell.)

[synapse131]

@jorgepeterbarton Dude. I am SO glad I have never had to go through something like that. I put myself through enough trying by myself to exercise the illness away. It just makes me incredibly angry to hear stories like yours. No one should be "brain washed" into not believing in their own experience. Keep trying. Someday you may find something that helps.

[zanzan121]

I love Dr. Jose Montoya! He is the best.

[BritishSnail]

PS I also have glomerulonephritis. I believe when investigations are conducted the internal inflammation is found. I have it in other areas too and we know about spines (pathology).

[BritishSnail]

Massage is essential help as assists build up of toxins to drain off through the lymph system. Re alternative therapies, yes they do help but along with massage & Prednisolone denied here in UK. Thought, connected to low level of virus? Treating gentle/low level with same whilst more powerful treatments not effective? Thank you for all you are doing to help 20 million worldwide, robbed of life that is replaced with isolation, persecution, escalating pain and severe disabilities. ~God bless~

[BritishSnail]

Thank you. 8 years M.E. - management expert UK.

Definite to auto-immune. Prednisolone relieves all for me, but given side effects it is not allowed except in crisis, whilst benefits are being withdrawn + additional stress = death sentence. Yes - study blood. Caffeine, correct = crashes. Yes to sub groups-it changes. Geographic, well noted. Definite to early intervention, rest & antivirals (interesting). Pregnancy, note I have anti JKA + anti S, but not from pregnancy so cause is unknown.

[frenchtuli]

Wonderful! Dr. Montoya and Stanford are definitely ahead of the curve! Thank you for posting!

[maciejwrotek]

This is exactly how symptoms look like. i have all of these after catching Lyme Disease -

[bernhardfranz]

maybe lemmon juice ...