You have my sympathy...I have been on pred for the past 6 yr s and it totally sucks!! It changes your looks and other ignorant people think you have just gotten fat! I did wean myself off it 4 about 6 weeks but wham another flare put me straight back to square one!
Hi i'm taking predisone 30mg for two weeks, then on to 20mg for another 2 weeks then onto 10mg for a further two weeks. I started my treatement today. I'm really worried about the side effects. Can you give me some advice as to what I can do while on prednisone? like taking supplements and what diet to eat?
I have been on prednisone for 12 years, very short breaks between, I'm weaning off even though might be too soon, I can't take it anymore. It's not only bad on my face, but my moods, I miss being myself. I'm only on 6 mg at this point, most I been on was 20 Yikes, I got Rheumatoid arthritis, what a freaken trip. I rather be on more Chemo lol. I'm on the road to no pred, thanks for sharing with us, it means a lot to someone else going through it girl
I have to be on prednisone for my pemphigus illness. I've been on it for the last 2 months. I'm currently on 40mgs and my doc just told me to stay on that for the next 2 weeks at least. It really sucks. I have the moonface and experiencing some hair loss(the worse side effect yet). Thank God no weight gain and I've been eating like a pig. I'm well enough to hit the gym and excersize. Can't wait to get off of it.
My tonsils have been swollen since December its now June. I have tonsillitis. And they gave me a prescription for Prednisone 10 MG. I have to take 6 a day for 2 days. Then 4 a day for 2 days, and 2 a day for 2 days. I started today and I took a quick nap and i thought i pissed in the bed, but it was sweat. My shirt was soaked especially around the neck area and my back. I could squeeze the sweat out my shirt and I have heavy eyes. Is this a common side effect from this medication? Thanks!
prednisone is fine... it has cured me... if you cant controll you hunger dont blame the drug, blame yourself for being weak... weak minded people cannot controll their hunger and keep eating when their sad.tired, or bored
I'm so sorry sweetie. My mama is on the stuff and it's killing her. Well, it's killing her AND saving her at the same time. I know that sounds crazy but it's true. Good luck in your life and may God bless you.
I am on prednisone right now. The cravings our the worst. My face got a little wider but I didn't gain any weight. I have maintained my weight through diet and exercise. If I was not on prednisone and followed my diet and exercise then I would have probably lost 20 pounds by now haha. The medication really really sucks though and I am glad you're off it!
HI, I don't know why you were put on that drug..but you could go to a medical doctor who specializes in natural hormone replacement. There is Cortef, a natural cortisol vrs. pregnizone which is 20 times stronger and not natural to your body. I have gone to this kind of dr and am getting my life back.
I too had this happen to me but now as an extra bonus the prednisone gave me osteonecrosis which means my bones in my joints are dieing/dead. I need a knee and 2 hip replacements.
brave posting, thank you! i'm experiencing the same effects from prednisone. I have been on it for the last two years, since they found out I have Wegener's, looking forward to one day getting off of it.
I was 12 when I got Wegener's and was put on a ton of prednisone and chemo and looked just like this and well... middle school girls are cruel to everyone so I was an easy target. I'm 22 now and things are a lot better. You are incredible for posting this! I wish your vid was around 10 yrs ago!
You are extremely brave to post this video - and clever. I've been on this evil bastard drug for 17 years with Rheumatoid Arthritis. It is the only treatment which works for me - or else I would live in bed. I have gained a huge amount of weight, which is difficult as I was a ballerina and a model. You are an inspiration, as people think that the physical effects of taking prednisone mean that you over-eat. It's really unfair. Stay cool!
Last month, I went ot my doctor for asthma medication. He prescribed me Advair and gave me some prednisone to take. There was absolutely NO WAY I was taking prednisone because I had already known all the side effects since one of my best friends has taken it for years. The Advair works GREAT so thankfully, it wasn't even necessary. I really hope things get better for you health wise and you'll never have to take this stuff again.:-)
I think you are very brave and I admire you for showing the REALITY of prednisone ! It is a nasty drug. SOmetimes I do not know what is worse the drug or the problem the drug is treating. I have crohn's, HS and asthma and have been on and off of prednisone for years. Thanks for being brave...you are beautiful. BTW I love the pic @ 1:17. You will be back one day...Chin up, girl !
I've been on this shit for 3 years now; up and down and back up again. Horrible what this does. Also my mind is insane a lot of the time. It also seems to fail to do what it's supposed to do for my illness. It totally sucks.
Pred has had the same effect on me, I gained 4st and I have jowls ! It's a nasty drug, but I currently need it. Don;t let it depress you (easier said that done) at least it keeping you alive, until a better solution can be found. Most of the side effects are reversable.
Pred has had the same effect on me, I gained 4st and I have jowls ! It's a nasty drug, but I currently need it. Don;t let it depress you (easier said that done) at least it keeping you alive, until a better solution can be found. Most of the side effects are reversable.
Hmm. I was on it - 10 days, 60mg/day. I actually lost 10lb because I didn't feel like eating and was VERY VERY stressed. Couldn't sleep, woke up in the night every two hours swatting like a pig and felt like a robot in the morning going to work. Gave me headake, fear, tinnitus, back pain, leg pain, panic attacks, stomac bloating. I couldn't eat and drank a lot of water. I recommend taking ranitidine every night before going to bed while on prednisone. It's a beast!
Thanks for sharing, I'm glad you are doing better. I've been taking this drug for four months now. I hate my moonface the most!! I've just started tapering off down to 30mg. When did you notice your face going back to normal?
Thanks for posting this. This medication is like a demon with a life preserver. I know EXACTLY what your going through. My before and after pictures would shock you. Thanks for bringing some understanding and sharing ; I am sure it has helped people to feel a little less alone.
you should just lower you calorie intake and it will help..prednisone can be real tuff on ppl you suffer from being overweight ..if you didnt have a over eating problem it wouldnt be as bad but i no were your coming from i gained 10 pounds from this medication
WoW! You are still a good looking gal. I am now back on Prednisone, It did the same to me after taking it for a year. Good job on the video and I thank you.
Yeah Its not so hot taking these meds. I got wegeners desease so Im taking 60 mgs a day and Im only 25. I gained about 40 pounds. Cant wait to get taken off this crap. I know how you feel.
i was put on it , in early 2007, 60 mgs a day. got weened down to 5 mgs a day, 8 months later. if i knew then, what i know now, i would have taken the 1st day, of starting it off. people thought i had the flu...that 1st day about killed me. now it's late 2009, still suffering some of the sideffects, weak muscles, achy joints, and very week.
why were you on prednisone? i took it for 3 weeks at a time 4x a year when i was a kid for about 6-7 years. after that i didnt take it as much. i gained about 60lbs on the shit and have bad acne scars on my shoulders. ive lost 30lbs since january. im within a normal weight range now but i still feel fat. and i do have the abnormal fat distribution. hips down are skinny, and my chest is skinny and my face is skinny. my chin and stomach are fucked though.but i just need to work out more and im ok
wow totally understand where ur comming from.. i have kidney disease and my doctor presricbed me 80mg of Prednisone, it was tough , extremely depressing. but off of it n better den everr
I have kidney diesease too, lupus, my face is starting to puff up. I want to stop it altogether.How did u get off it, did ur doctor listen or did u just finish the treatment?like di u just quit it or was it time to stop it anyway? to be honest I think the doctors don't listen. puffy makes u look mentally challenged.
I hope you are better now Connie. You are funny. Those negative comment people have NO clue. Predisone makes you feel like eating. It does that to your mind. When you are already dealing with an illness that makes you have to take it in the first place it is very hard to deal with dieting too but even if you did it wouldnt matter. I was on prednisone for months and also on TPN-(no food at all-at all) my body was a stick and my face was so fat it felt like it would pop!!!!
i feel ya. i've been on prednisone for Crohn's. it made me break out like mad which it didnt do to you, so you got lucky that way! i wish you well in your recovery.
I'm doing very well, thank you! I've done several videos on WG, and your Prednisone video is one I want to reference, along with another, because of the factuality and reality of how it works. I hope I never have to be on Prednisone again!
Prednisone is one of two drugs used to bring Wegener's granulomatosis, which I have, into remission. It's no bed of roses for older people, either. Anyone put on this drug should insist on a full disclosure of the side effects from the prescribing doctor or get the information off the internet to use for questions to ask the doctor. My experience with it reflects Christina's!
Thanks for your comment. I was diagnosed with Goodpastures Disease, but when they were first diagnosing me, they thought I had Wegeners....hope you are doing well now!
I have been off and on prednisone for nearly 13 years due to my ulcerative colitis...I am 38 and was always very thin...UNTIL the predinsone..now I can't get the weight off and am about 30 pounds overweight. The prednisone has also taken the calcium from my bones and now I have Osteopenia. If there is any alternative to taking steroids I would highly recommend it!
hey i just started taking prednisne yesterday cause i have a mild case of bells palsy but i have to say that i dont feel moody or anything, maybe every1 has different reactions to it. but im only going to be in for 11 days but tapering off of it. but im glad that everything has gone back to normal for you and thanks for sharing your story about this drug with us.
i started to take prednisone 2 days ago, and my doctor said i have to take 60 mg of it a day for 1 week, and i think 2 times a day in the following week. So it will be 2 weeks for me to take prednisone. Do you think it will gain me much weight too? please guys help me.. thanks..
it was bad for me too i was on it for like 4 months i ganied 25 pounds in that time and i was all swollen it took me like about 6 months to get back to normal "look" again but i didnt lose the wight
I am so glad you are off it. I hope you never need to repeat that again. I am down to 30 mg and tapering to 20 mg in two days. Ugh! Even though it is a lifesaving drug for those of us with Crohns I wish they would never have intvented it and had found something else instead. Nine years with this disease and three rounds of the dreaded Prednisone and who knows the future?
I was on predisone for my 8th grade year. Worst year of my life.
unityofchoas 1 week ago
Ur so lucky u got off it
Im 13 and a girl and i just cant seem to get off prednisone
rockergal2016 2 weeks ago
moon face
thelion2808 2 months ago
You have my sympathy...I have been on pred for the past 6 yr s and it totally sucks!! It changes your looks and other ignorant people think you have just gotten fat! I did wean myself off it 4 about 6 weeks but wham another flare put me straight back to square one!
cassiesmum 3 months ago
Hi i'm taking predisone 30mg for two weeks, then on to 20mg for another 2 weeks then onto 10mg for a further two weeks. I started my treatement today. I'm really worried about the side effects. Can you give me some advice as to what I can do while on prednisone? like taking supplements and what diet to eat?
neil1758 3 months ago
I have been on prednisone for 12 years, very short breaks between, I'm weaning off even though might be too soon, I can't take it anymore. It's not only bad on my face, but my moods, I miss being myself. I'm only on 6 mg at this point, most I been on was 20 Yikes, I got Rheumatoid arthritis, what a freaken trip. I rather be on more Chemo lol. I'm on the road to no pred, thanks for sharing with us, it means a lot to someone else going through it girl
brooklynlulu 6 months ago
I have to be on prednisone for my pemphigus illness. I've been on it for the last 2 months. I'm currently on 40mgs and my doc just told me to stay on that for the next 2 weeks at least. It really sucks. I have the moonface and experiencing some hair loss(the worse side effect yet). Thank God no weight gain and I've been eating like a pig. I'm well enough to hit the gym and excersize. Can't wait to get off of it.
hotathlete2 6 months ago
My tonsils have been swollen since December its now June. I have tonsillitis. And they gave me a prescription for Prednisone 10 MG. I have to take 6 a day for 2 days. Then 4 a day for 2 days, and 2 a day for 2 days. I started today and I took a quick nap and i thought i pissed in the bed, but it was sweat. My shirt was soaked especially around the neck area and my back. I could squeeze the sweat out my shirt and I have heavy eyes. Is this a common side effect from this medication? Thanks!
MrAUFANATIC 6 months ago
prednisone is fine... it has cured me... if you cant controll you hunger dont blame the drug, blame yourself for being weak... weak minded people cannot controll their hunger and keep eating when their sad.tired, or bored
xxbrcakxx 8 months ago
I'm so sorry sweetie. My mama is on the stuff and it's killing her. Well, it's killing her AND saving her at the same time. I know that sounds crazy but it's true. Good luck in your life and may God bless you.
IslandFlier 9 months ago
I am on prednisone right now. The cravings our the worst. My face got a little wider but I didn't gain any weight. I have maintained my weight through diet and exercise. If I was not on prednisone and followed my diet and exercise then I would have probably lost 20 pounds by now haha. The medication really really sucks though and I am glad you're off it!
Darkpython88 10 months ago
HI, I don't know why you were put on that drug..but you could go to a medical doctor who specializes in natural hormone replacement. There is Cortef, a natural cortisol vrs. pregnizone which is 20 times stronger and not natural to your body. I have gone to this kind of dr and am getting my life back.
teika12 10 months ago
i just start it, i worried about it, already i feel my mind racing strangely and very very nervous jumpy
DasTuppen 10 months ago
i just start it, i worried about it, already i feel my mind racing strangely and very very nervous jumpy
DasTuppen 10 months ago
I too had this happen to me but now as an extra bonus the prednisone gave me osteonecrosis which means my bones in my joints are dieing/dead. I need a knee and 2 hip replacements.
bohemeanne1 10 months ago
Please try switching to raw food,! ASAP!
chrisg307 1 year ago
You are beautiful and will always be.
tasophy 1 year ago 2
what is ur condition /
maciejwrotek 1 year ago
brave posting, thank you! i'm experiencing the same effects from prednisone. I have been on it for the last two years, since they found out I have Wegener's, looking forward to one day getting off of it.
Clover2016 1 year ago
I was 12 when I got Wegener's and was put on a ton of prednisone and chemo and looked just like this and well... middle school girls are cruel to everyone so I was an easy target. I'm 22 now and things are a lot better. You are incredible for posting this! I wish your vid was around 10 yrs ago!
ammulford 1 year ago
You are extremely brave to post this video - and clever. I've been on this evil bastard drug for 17 years with Rheumatoid Arthritis. It is the only treatment which works for me - or else I would live in bed. I have gained a huge amount of weight, which is difficult as I was a ballerina and a model. You are an inspiration, as people think that the physical effects of taking prednisone mean that you over-eat. It's really unfair. Stay cool!
Ivyleaguegal 1 year ago
I can relate. It did that to me, too. Unfortunately I have to take it
Boowitch13 1 year ago
Last month, I went ot my doctor for asthma medication. He prescribed me Advair and gave me some prednisone to take. There was absolutely NO WAY I was taking prednisone because I had already known all the side effects since one of my best friends has taken it for years. The Advair works GREAT so thankfully, it wasn't even necessary. I really hope things get better for you health wise and you'll never have to take this stuff again.:-)
thunderstruck665 1 year ago
my mother is off it now but has no energy..after 1 year on it..did you find that too?
shairocks 1 year ago
I think you are very brave and I admire you for showing the REALITY of prednisone ! It is a nasty drug. SOmetimes I do not know what is worse the drug or the problem the drug is treating. I have crohn's, HS and asthma and have been on and off of prednisone for years. Thanks for being brave...you are beautiful. BTW I love the pic @ 1:17. You will be back one day...Chin up, girl !
3whisperedwords 1 year ago
I've been on this shit for 3 years now; up and down and back up again. Horrible what this does. Also my mind is insane a lot of the time. It also seems to fail to do what it's supposed to do for my illness. It totally sucks.
djbethell 1 year ago
Pred has had the same effect on me, I gained 4st and I have jowls ! It's a nasty drug, but I currently need it. Don;t let it depress you (easier said that done) at least it keeping you alive, until a better solution can be found. Most of the side effects are reversable.
Drenov 1 year ago
Pred has had the same effect on me, I gained 4st and I have jowls ! It's a nasty drug, but I currently need it. Don;t let it depress you (easier said that done) at least it keeping you alive, until a better solution can be found. Most of the side effects are reversable.
Drenov 1 year ago
Hmm. I was on it - 10 days, 60mg/day. I actually lost 10lb because I didn't feel like eating and was VERY VERY stressed. Couldn't sleep, woke up in the night every two hours swatting like a pig and felt like a robot in the morning going to work. Gave me headake, fear, tinnitus, back pain, leg pain, panic attacks, stomac bloating. I couldn't eat and drank a lot of water. I recommend taking ranitidine every night before going to bed while on prednisone. It's a beast!
radby 1 year ago
Thanks for sharing, I'm glad you are doing better. I've been taking this drug for four months now. I hate my moonface the most!! I've just started tapering off down to 30mg. When did you notice your face going back to normal?
krtz5555 1 year ago
Thanks for posting this. This medication is like a demon with a life preserver. I know EXACTLY what your going through. My before and after pictures would shock you. Thanks for bringing some understanding and sharing ; I am sure it has helped people to feel a little less alone.
julie1300 1 year ago
you should just lower you calorie intake and it will help..prednisone can be real tuff on ppl you suffer from being overweight ..if you didnt have a over eating problem it wouldnt be as bad but i no were your coming from i gained 10 pounds from this medication
jrocjams 1 year ago
Thanks for posting this video it makes me feel so much better knowing I am not alone. All the best. X
xxSweetHarmoniexx 2 years ago
WoW! You are still a good looking gal. I am now back on Prednisone, It did the same to me after taking it for a year. Good job on the video and I thank you.
francis98498 2 years ago
m taking this medz for S.L.E-60mg...swollen up like crazy..feelin very insecure...don wna go out...feel so yuck!!!!!
carlmax25 2 years ago
Yeah Its not so hot taking these meds. I got wegeners desease so Im taking 60 mgs a day and Im only 25. I gained about 40 pounds. Cant wait to get taken off this crap. I know how you feel.
chrisnshoe 2 years ago
Its a pretty brutal drug. It was the first steroid discovered, but it still has some value as an immune depressent.
BlueStateChronicle 2 years ago
i was put on it , in early 2007, 60 mgs a day. got weened down to 5 mgs a day, 8 months later. if i knew then, what i know now, i would have taken the 1st day, of starting it off. people thought i had the flu...that 1st day about killed me. now it's late 2009, still suffering some of the sideffects, weak muscles, achy joints, and very week.
puppypower84 2 years ago
why were you on prednisone? i took it for 3 weeks at a time 4x a year when i was a kid for about 6-7 years. after that i didnt take it as much. i gained about 60lbs on the shit and have bad acne scars on my shoulders. ive lost 30lbs since january. im within a normal weight range now but i still feel fat. and i do have the abnormal fat distribution. hips down are skinny, and my chest is skinny and my face is skinny. my chin and stomach are fucked though.but i just need to work out more and im ok
clayfromsanantonio 2 years ago
wow totally understand where ur comming from.. i have kidney disease and my doctor presricbed me 80mg of Prednisone, it was tough , extremely depressing. but off of it n better den everr
Chea112 2 years ago
I have kidney diesease too, lupus, my face is starting to puff up. I want to stop it altogether.How did u get off it, did ur doctor listen or did u just finish the treatment?like di u just quit it or was it time to stop it anyway? to be honest I think the doctors don't listen. puffy makes u look mentally challenged.
launwatch 1 year ago
@launwatch Have you tried cannabis ?
Respeckonize 1 year ago
i take prednisone for my artheritis i started taking it this year and i am 13 but i was diagnosed with artheritis when i was 8
superpiegirl24 2 years ago
WTF!!! i just took my 1st dosage today...now i dont wanna take it tomorrow!!
xplicitvio 2 years ago
just control what you put into your mouth and you will be fine.
clayfromsanantonio 2 years ago
You're kidding...!?
So let's see if I'm doing things right, and I take 2x 50mg I'm on 100 ??? Or like e 5x 20 mg is also 100 ??? ;-))
ConnieNick 2 years ago
I'm on 100 mg prednisone a day at the moment AND I LOOK AWFUL !!! I feel like a popped balloon and the side effects are huge... terrible ! UGH !!!!!
ConnieNick 2 years ago
funny thing is it only goes up to 50 mgs
fretburner101 2 years ago
you can take two tablets................
thecandyman255 2 years ago
I hope you are better now Connie. You are funny. Those negative comment people have NO clue. Predisone makes you feel like eating. It does that to your mind. When you are already dealing with an illness that makes you have to take it in the first place it is very hard to deal with dieting too but even if you did it wouldnt matter. I was on prednisone for months and also on TPN-(no food at all-at all) my body was a stick and my face was so fat it felt like it would pop!!!!
lesliegg1961 1 year ago
im 14 and im on prednisone right now. Its making my face huge and the worse part is, im going into high school after this summer. UGH!!!!!!
keysofjbush 2 years ago
i feel ya. i've been on prednisone for Crohn's. it made me break out like mad which it didnt do to you, so you got lucky that way! i wish you well in your recovery.
iicing 2 years ago
Yea I take prednisone for ulceritave colitis. It sucks. So I know where your coming from =)
thecandyman255 2 years ago
You should start working out alot so the prednisone goes to building up muscle.
fstms3 2 years ago
I'm doing very well, thank you! I've done several videos on WG, and your Prednisone video is one I want to reference, along with another, because of the factuality and reality of how it works. I hope I never have to be on Prednisone again!
phainopepla95 2 years ago
Prednisone is one of two drugs used to bring Wegener's granulomatosis, which I have, into remission. It's no bed of roses for older people, either. Anyone put on this drug should insist on a full disclosure of the side effects from the prescribing doctor or get the information off the internet to use for questions to ask the doctor. My experience with it reflects Christina's!
phainopepla95 2 years ago
Thanks for your comment. I was diagnosed with Goodpastures Disease, but when they were first diagnosing me, they thought I had Wegeners....hope you are doing well now!
chrissybell03 2 years ago
I have been off and on prednisone for nearly 13 years due to my ulcerative colitis...I am 38 and was always very thin...UNTIL the predinsone..now I can't get the weight off and am about 30 pounds overweight. The prednisone has also taken the calcium from my bones and now I have Osteopenia. If there is any alternative to taking steroids I would highly recommend it!
candy9597 2 years ago
hey i just started taking prednisne yesterday cause i have a mild case of bells palsy but i have to say that i dont feel moody or anything, maybe every1 has different reactions to it. but im only going to be in for 11 days but tapering off of it. but im glad that everything has gone back to normal for you and thanks for sharing your story about this drug with us.
Chantel24 2 years ago
@Chantel24 lyme ?
maciejwrotek 1 year ago
@maciejwrotek no i didnt have lyme disease when i wrote this.
Chantel24 1 year ago
@Chantel24 do u mean u have lyme now >? test can become positive after a while.
maciejwrotek 1 year ago
@Chantel24 no lyme disease here
Chantel24 1 year ago
i started to take prednisone 2 days ago, and my doctor said i have to take 60 mg of it a day for 1 week, and i think 2 times a day in the following week. So it will be 2 weeks for me to take prednisone. Do you think it will gain me much weight too? please guys help me.. thanks..
candyblooms 2 years ago
me to suffering the sameeeeeeeeeeeeeeeeeeee...its hell.....only we can understand the pain !!!!
IM DEATH !
lollu2008 3 years ago
i hated it,
im off it now,
they said most of the weight would go away...
lies.
i lost about 10 pounds in the hospital.
then when i started steriods i gained 30
cookiemnstrlvr93 3 years ago
it was bad for me too i was on it for like 4 months i ganied 25 pounds in that time and i was all swollen it took me like about 6 months to get back to normal "look" again but i didnt lose the wight
popo1035 3 years ago
they should like make a diet kind of thing for people going on and off steroids.
cookiemnstrlvr93 3 years ago
I am so glad you are off it. I hope you never need to repeat that again. I am down to 30 mg and tapering to 20 mg in two days. Ugh! Even though it is a lifesaving drug for those of us with Crohns I wish they would never have intvented it and had found something else instead. Nine years with this disease and three rounds of the dreaded Prednisone and who knows the future?
PENWESTERN 3 years ago
I am on 50 mg prednisone now. Had an IV last week in the ICU. My mouth is hurting from the effects.
PENWESTERN 3 years ago
Comment removed
osvoldcarrie 3 years ago 2