I saw this video before my bmb, first I broke down crying & then I screamed. I was so sad that I had to be worried about cancer and pain. My husband went with me & I was given 3 ibuprofin as well as some relaxant , only because I requested it. I hope I nev- ver have to have another, but it really wasn't so bad. My onco's P.A. did an awesome job. I hugged him after. My friend said ,it's not as bad as childbirth & it's only 15 min. With my experience she was right ! Best of luck to all. Suz
@whatwouldjahdo802 glad the bmb wasn't so bad. sucks that you had to have one in the first place! Thanks for sharing your experience - I'm srry if my exprnce frightened you, my hope is that it'll be an educational tool for both patients and health care providers, and will help patients know what to expect & what's going on (since it's hard to see anything from our vantage point on the table.) I also like that this is a forum for bmb discussion. Sending you good vibes as you kick cancer's butt!!
@pepilaropa She's getting a biopsy (small sample) taken for diagnosis purposes. When you donate marrow they take a larger sample and do give you general anesthesia because of that :) However, in 80% of the cases now it's usually a stem cell donation. Stem cells are the cells in your bone marrow that make the blood cells and some circulate in your blood. In these cases they give you a shot to boost the amount of stem cells in your blood and then it's similar to donating blood so not as painful :)
Your video is amazing, inspirational & kinda scary :S I got really curious and I read all the comments xP I thought what you were doing was donating bone marrow. But it wasn't right? I mean what you said in previous comments was basically that if you donate it won't be as painful?A while ago I started to consider donating bone marrow but everyone said I'd be really painful. I still want to do it in the future(now Im just 15) but I just think I'd be much better if they could do general anethesia.
I dont get it! I thought they'd invented anaesthetic a while ago. Is this medieval medicine reinactment or something? I would never have this done unless they put me to sleep first. :-P
Definitely seems medieval. you can't anaesthetize bone - alternative is to put person to sleep.Some hospitals do, some don't. sometimes no choice (I didn't - tried though). seems this procedure doesn't warrant risks of general anesthesia, or they don't warrant the extra resources (bed and anaesthetist). there's this other form of light anesthesia where you're put to sleep for a short period of time - not sure why they don't do this. maybe lack of resources.
My understanding (which may not be totally accurate) is that there are two parts to the procedure - first, where they take some bone and second, the aspiration where they suck some marrow out of the bone. Your husband might have had both parts but the doctor may not have referred to the latter as (liquid) aspiration?
OHHH MY GOD IM GONNA START MY BONE MARROW BIOPSIES SOON AND IM LOOKING AT THIS AND ITS MAKING ME CHANGE MY MIND....YES YOU ALL GONNA SAY ITS NOT THE FEAR OF THE PAIN BUT THE GIFT OF LIFE I MIGHT GIVE TO OTHERS....BUT I AM A BIG PUSSY FOR PAIN AND IF THEY CAN PUT ME TO SLEEP I WOULD DO IT...IF THEY CANT PUT ME TO SLEEP.....SORRY MAYBE IN ANOHTER LIFE TIME
If you will be donating bone marrow, my understanding is that they will put you to sleep. A biopsy is a small sample, but when you donate, they need far more marrow and it would be too painful to stay awake. Before deciding one way or another, talk to knowledgeable health professionals about what the process entails. Wishing you all the best.
@hostos90210 My husbands on the registry to recive a bone marrow donor. And if he doesn't recive a bone marrow donation then he will die! The only thing keeping him alive is blood transfusions every 3-4 weeks.
Our Dr. at the Mayo Clinic said to donate all they do is give you a shot on the first day, then for the next 4 days
you would drink a liqiued and that is to make the bone marrow inter the blood stream. Then they would filter out the bone marrow and put the blood back.
I think that such film clips as these help to bring honesty into the examination room, and keep the health professionals (more) honest. It will no longer be so easy for them to say that "this won't hurt" or that "hardly anyone has a problem..." when there are scores of film clips out there showing that this is not always true.
I work at a hospital, and have sometimes wondered what bone marrow tests are like.
I tried to donate bone marrow (would have been an aspiration, I think), but was not allowed to because of medication that I use. My motives for donating : I wanted to do some good for mankind, but also wanted to know what it was like and whether I would tolerate it or not. (They assured me that there were no obligations, and that no one would be angry with me if I had to abandon the project.)
And thank you so much for letting us in on what it's like, also helping other patients in this way.
Boo :o( I have to get this done tomorrow...I am so nervous, granted this didn't make it any better! haha. My doctor said he will give me pain killers to relax me and make me feel "fuzzy" but that he can't put me under. Ahhhh I am way too anxious for this!
The main reason the doctors do not like to put people to sleep is because it is more trouble for them and they do not want anything that could cause them some complication or incovience they tell you they can't because this or that could happpen , find yourself another doctor that will see to it that you , not they are comfortable.
Hi, I found your video through a link on twitter. I heard you talk about itchiness. Do you mind sharing what you were being tested for? I have mastocytosis and I have a bone marrow biopsy next week and I have been doing research to see if I can get full sedation.
I was being tested for relapsed hodgkin's disease. Sedation would be great if you could get that. Wishing you good luck and that the procedure is as painless as possible
om my god i cant imagine! ganyn pla ginawa sa tatay ko! meron xang bone cancer alm kona kung gano kasakit ito! nakkta ko xang napapa hiyaw sa sakit after 2weeks namatay XA DHIL SA DUONG LINGGO UN ANG DINADAING NIA! sana hindi nanamin xa pina biopsey mahirapm mawalan ng father! nalulunkot tuloi ako! kht 3yers na lumipas
Impressive. They do full sedation here in the US as well, especially for those that are donating. In regards to mortality, the rate is listed as near 10%, and there is no linkage to MS or HIV and bone marrow therapy....at least in the US. Anyway, I applaud your strength and courage and thank you for posting the video. It definitely helps to assuage the fears and show the reality of what to expect for patients everywhere.
i have my aspiration/biopsy next week and I didnt know what to expect so thank you for posting this. Ive seen animated vids but its nice to see a real person and an honest account coz everyone keeps saying it wont hurt...LIES! lol and im very very scared of needles. At least now i know what to expect so thank you and hope you are well
Never understood why patients choose local or no anaesthetic.Short term full anaesthetic is routine for colonoscopy, L puncture, endoscopy, etc. My partner died of NonHodgkins lymphoma last year & refused pain relief for his bone marrows. I pray this lovely girl is doing well, but darling you don't get extra points for pain - just say yes to the anaesthetic. I put off wearing fentanyl patches too long (bone cancer), but now all my energy is back & I can be joyful for the time I have.
To Birgit Munro, Thanks for your post and I am so sorry about your husband. With respect to anesthetic, I would have certainly taken it if it was available! I wanted to be sedated, but this was just not something that the hospital does. Perhaps they offer the option of sedation in the U.S., but not generally in Canada (at least not at the two separate hospitals where I had it done). They only offer local anesthetic, which as you saw from the video, I took!!
I'm 17 and I had this done 3 days ago. I'm like you; I'm healthy and I have very strong bones so it hurts more. But I didn't talk the whole time. My dad was with me and the whole time he was looking me in the eyes. When the hard part came few tears came in his eyes (he never cries) and then I started crying; but when the hard part was done we just started laughing through our tears. Not the typical father-daughter moment but I thought it was alright ;P
Hi there, I am so sorry that you had to go through this - that father-daughter moment was really touching. As you note, it's not the typical father-daughter moment, but it is so nice that you have such a strong relationship with your Dad and that he's a real support for you. I hope for the best results possible - what are they testing for? Wishing you health.
Thank you! I'm closer to my dad than my mom so I wanted him there with me. I actually didn't go through this exactly (misunderstood a bit, I'm from Iceland); I donated a bone marrow to my sister,she's 14 years old and she has leukemia. She's doing a lot better now and the doctors are very optimistic:)
My wife is having this done tomorrow, and she wants me there with her. Of course, I will be. Thank you and your husband for posting this, as I know it will help countless people as well as myself prepare and understand. I applaud your incredible courage, and wish you the best of health.
Thanks so much for your comment. I hope that the bone marrow biopsy goes as smoothly as possible for your wife. This must be a difficult time for you both, and I wish your wife healing and health.
Thank you. The physician assistant who performed the biopsy did an incredible job- much quicker and more painless than we'd expected. I had mentioned how seeing your video was so helpful, and she was very interested in seeing it. We're awaiting the results, and are hoping for healing and remission.
I'm not sure if this is the same thing I might have to do but my Grandma has Leukemia and needs a bone marrow transplant to live. I might be the best match. And honestly this is like one of my biggest fears ever. I really hope I don't need to go through this. I don't like the responsibility of potentially holding someones life in your hands.
Thank you for sharing this video. Before I was blind and terrified. Now I see what I have to be terrified of :S l0l.
Hi there, I can understand why this would be overwhelming - but what an amazing opportunity to save a life! The amount of bone marrow needed for a transplant is much more than for a biopsy, so they would certainly put you under general anesthesia. Afterwards, I suspect it will be painful, but you will heal! I am not sure though in your potential situation as to whether the stem cells could be obtained via blood (way easier), or whether the actual marrow would need to be accessed.
Don't be. I heard from doctors that all they do is take a little needle into your skin and they connect the pipe(like the IV pipe) and then have the bone marrow go in your body. You just wait four hours and then it's done.
I am sorry that you need a bone marrow biopsy, that really sucks -- but you'll be okay. I hear that some hospitals use anaesthesia that temporarily puts you to sleep (it's not quite general anaesthesia and it's short acting). You might want to ask them if they'll do that for you. If they only provide local anaesthesia like they did for me, you will still be okay. Good luck!
I have had two. The first time I tried to get off the table. I have an extreme phobia of needles! The second one they put me under. M.D. Anderson sedates if you want it.
I agree! The first time I had it done was at the hospital, and they don't sedate you there. They told me that I would be put in a twlight sleep and there wouldn't be a problem, cause they numbed you anyway. That was bull! You can't numb the bone and I felt it! M.D. Anderson said they needed to do it again and I said "Hell no!" Basically just let me die, I wasn't going through with that again. They sedated me so they could do another one. I won't have one done, unless they sedate me.
I'm going to join the Bone Marrow donation list and I was just checking out videos to see what I'd be in for. I'm definitely signing up for it though.
Come on Ice, the procedure is not worse than childbirth for goodness sake. Youre scaring people that dont have to be scared. Its not pleasant, but lets put things in perspective here. Were not talking 'kidney stone' pain here folks; think more along the lines of being stung by a yellow jacket. Not fun, but nothing crazy. And the first does not hurt any more (or less) than the rest, When you can still hold a conversation with an occasional 'ouch', it's not that bad, so relax.
No shit Icemom! It's not fun for any of us; but stop scaring the shit out of people comparing it to childbirth you moron, because trust me its not a billionth as bad (literally). You want pain? Try rehab exercises after knee surgery. Now that you CAN compare to childbirth even a nine pound baby Like I said the pain of a BMA is like being stung by a wasp or hornet (maybe not even as bad) or a MINOR leg cramp at most. It hurts, but people shouldn't be that scared it's not that bad.
@Posanne I think she said she's gone through both childbirth and BMA, so if her opinion is that a BMA is worse, you shouldn't be so arrogant as to think you can change her opinion, which again, stems from her OWN experience. And you're being very hypocritical, too. You accuse her of scaring people into thinking that BMA is worse than childbirth, but you yourself are scaring women into thinking that childbirth is "a billion times worse" than an evidently painful procedure such as BMA.
Ohhh yes, bone marrow aspiration and biopsy. You did very well. I know it hurts like hell sometimes but you got through it like a champ. I just run my mouth the entire time, never shut-up. I went thru treatment for non-Hodgkins lymphoma and have had 10 of these to date. Still get one a year during my check-up.
God that is so funny! I have had this done 3 times now and the 1st time I had it done I was in so much pain that I was laughing and that is exactly what I was saying to the poor tech, I was like " you're telling me we can do heart and eye transplants and shit like that and this is the best we can do with this procedure? I was like what the hell is this the Spanish Inquisition? " Actually though I have had it done where I was put under but I don't know why? Things are getting better. Thanks 4 LOL
I had one of these to diagnose polycythemia vera two months ago. For mine, a piece of bone was also removed. Thank you so much for posting this so others can see what this is like, esp. for those of use with young, solid, HARD bones! (I'm 33) I hope and pray you are doing well. Please keep us updated on your cndition. I can't believe you were so quiet... so brave. Take care!
So... what else do you have to do after this procedure? Or is that done?
I looked online on a medical web site, and it says that the donor has to be injected with some liquid to make the bone marrow grow bigger. And not until days after the bone marrow will be taken out.
The donation itself is not painful, the biopsy is the painful procedure...
They inject the fluid(growth factor) into you to stimulate the bone marrow to multiply, By doing that, some stem cell wil enter blood and they collect it with machine filter.
I didnt have cancer but a autoimmune disease. The first time they did a biopsy they sucked out clear fluid from my hip bone. From there I was diagnosed with severe aplastic anemia. I did another one before my BMT and three after my Bmt. But no matter how many times they do it it is one of the worst pains in my life. It feels like they are pulling out nerves for me. I was kinda quiet too because I didnt want to cry in front of my Hemo and her assisant. I wish everyone the best.
Wow! I write about my bone marrow biopsys in my book. Worst part of the whole cancer process.
In This Time's a Charm; Lessons of a Four-Time Cancer Survivor, Donald A. Wilhelm tells his real-life story from a patient's perspective about surviving cancer four times. His intent is to give his readers a true depiction of what cancer, and its treatment, is really like. He intends his eBook to parallel an old Chinese proverb that says: "To know the road ahead, ask those coming back."
Had one of these for my lymphoma...hurts like hell!! I'm Hodgkins Lymphoma Stage 3B, hope I never have to do the bone marrow biopsy again, it was the worst!
@bulldogtheory OMG YOU ARE STRONGER THAN I !! HOW OLD YOU ARE ? ! IF I WHERE YOU I WILL SCREAM LIKE A FREAK! I'M A BOY AND I'M 15 YEARS OLD
hjestrella 1 month ago
little girl is badass. i would've cried like a bitch
abdu2s 2 months ago
How was biopsy different from surgical operation,or just the same?
dgeramie1 2 months ago
I saw this video before my bmb, first I broke down crying & then I screamed. I was so sad that I had to be worried about cancer and pain. My husband went with me & I was given 3 ibuprofin as well as some relaxant , only because I requested it. I hope I nev- ver have to have another, but it really wasn't so bad. My onco's P.A. did an awesome job. I hugged him after. My friend said ,it's not as bad as childbirth & it's only 15 min. With my experience she was right ! Best of luck to all. Suz
whatwouldjahdo802 8 months ago
@whatwouldjahdo802 glad the bmb wasn't so bad. sucks that you had to have one in the first place! Thanks for sharing your experience - I'm srry if my exprnce frightened you, my hope is that it'll be an educational tool for both patients and health care providers, and will help patients know what to expect & what's going on (since it's hard to see anything from our vantage point on the table.) I also like that this is a forum for bmb discussion. Sending you good vibes as you kick cancer's butt!!
bulldogtheory 8 months ago
Comment removed
whatwouldjahdo802 8 months ago
@pepilaropa She's getting a biopsy (small sample) taken for diagnosis purposes. When you donate marrow they take a larger sample and do give you general anesthesia because of that :) However, in 80% of the cases now it's usually a stem cell donation. Stem cells are the cells in your bone marrow that make the blood cells and some circulate in your blood. In these cases they give you a shot to boost the amount of stem cells in your blood and then it's similar to donating blood so not as painful :)
kitkatandfriends 10 months ago
Join Now
When you join the Be The Match Registry®, you become part of every patient's search for a bone marrow donor. You could be the one to save a life.
rkoiym 1 year ago
Your video is amazing, inspirational & kinda scary :S I got really curious and I read all the comments xP I thought what you were doing was donating bone marrow. But it wasn't right? I mean what you said in previous comments was basically that if you donate it won't be as painful?A while ago I started to consider donating bone marrow but everyone said I'd be really painful. I still want to do it in the future(now Im just 15) but I just think I'd be much better if they could do general anethesia.
pepilaropa 1 year ago
I dont get it! I thought they'd invented anaesthetic a while ago. Is this medieval medicine reinactment or something? I would never have this done unless they put me to sleep first. :-P
Snezhinka9 1 year ago
@Snezhinka9
Definitely seems medieval. you can't anaesthetize bone - alternative is to put person to sleep.Some hospitals do, some don't. sometimes no choice (I didn't - tried though). seems this procedure doesn't warrant risks of general anesthesia, or they don't warrant the extra resources (bed and anaesthetist). there's this other form of light anesthesia where you're put to sleep for a short period of time - not sure why they don't do this. maybe lack of resources.
bulldogtheory 1 year ago
My husband just had a bone marrow biopsy and there was no liquid aspiration. What does that mean?
secureourboarders 1 year ago
@secureourboarders Hi there,
My understanding (which may not be totally accurate) is that there are two parts to the procedure - first, where they take some bone and second, the aspiration where they suck some marrow out of the bone. Your husband might have had both parts but the doctor may not have referred to the latter as (liquid) aspiration?
bulldogtheory 1 year ago
i just register to donation of bone marrow. hope you are feeling god by now.
MrYORVIK 1 year ago
gosh hes just jerking and twisting around in ther.
crazyjorge2111 1 year ago
Holy shit I just hope I never have to go through this
ElBarto1347 1 year ago
OHHH MY GOD IM GONNA START MY BONE MARROW BIOPSIES SOON AND IM LOOKING AT THIS AND ITS MAKING ME CHANGE MY MIND....YES YOU ALL GONNA SAY ITS NOT THE FEAR OF THE PAIN BUT THE GIFT OF LIFE I MIGHT GIVE TO OTHERS....BUT I AM A BIG PUSSY FOR PAIN AND IF THEY CAN PUT ME TO SLEEP I WOULD DO IT...IF THEY CANT PUT ME TO SLEEP.....SORRY MAYBE IN ANOHTER LIFE TIME
hostos90210 1 year ago
@hostos90210 Hi Hostos,
If you will be donating bone marrow, my understanding is that they will put you to sleep. A biopsy is a small sample, but when you donate, they need far more marrow and it would be too painful to stay awake. Before deciding one way or another, talk to knowledgeable health professionals about what the process entails. Wishing you all the best.
bulldogtheory 1 year ago
@hostos90210 My husbands on the registry to recive a bone marrow donor. And if he doesn't recive a bone marrow donation then he will die! The only thing keeping him alive is blood transfusions every 3-4 weeks.
Our Dr. at the Mayo Clinic said to donate all they do is give you a shot on the first day, then for the next 4 days
you would drink a liqiued and that is to make the bone marrow inter the blood stream. Then they would filter out the bone marrow and put the blood back.
secureourboarders 1 year ago
Continuation of previous comment:
Regarding the question: "Will this hurt?" --
I think that such film clips as these help to bring honesty into the examination room, and keep the health professionals (more) honest. It will no longer be so easy for them to say that "this won't hurt" or that "hardly anyone has a problem..." when there are scores of film clips out there showing that this is not always true.
I work at a hospital, and have sometimes wondered what bone marrow tests are like.
aabxy2 1 year ago
I tried to donate bone marrow (would have been an aspiration, I think), but was not allowed to because of medication that I use. My motives for donating : I wanted to do some good for mankind, but also wanted to know what it was like and whether I would tolerate it or not. (They assured me that there were no obligations, and that no one would be angry with me if I had to abandon the project.)
And thank you so much for letting us in on what it's like, also helping other patients in this way.
aabxy2 1 year ago
@aabxy2 Hi aabxy2,
I think it's great that you wanted to donate -- even if it didn't work out.
bulldogtheory 1 year ago
why were you getting this done? It looks like torture! Hope you were all right after it!
2artemis2 1 year ago
someone showed me this, i hope you don't have to go through it again.
gamer025 1 year ago
JonThm , just to correct you on the point of bone marrow infusion curing HIV. Sadly, it does not.
LippyNSkippy 1 year ago
Boo :o( I have to get this done tomorrow...I am so nervous, granted this didn't make it any better! haha. My doctor said he will give me pain killers to relax me and make me feel "fuzzy" but that he can't put me under. Ahhhh I am way too anxious for this!
keeganpants 2 years ago
The main reason the doctors do not like to put people to sleep is because it is more trouble for them and they do not want anything that could cause them some complication or incovience they tell you they can't because this or that could happpen , find yourself another doctor that will see to it that you , not they are comfortable.
Thundralight 2 years ago
Hi, I found your video through a link on twitter. I heard you talk about itchiness. Do you mind sharing what you were being tested for? I have mastocytosis and I have a bone marrow biopsy next week and I have been doing research to see if I can get full sedation.
Santiagosunshine 2 years ago
Hi there,
I was being tested for relapsed hodgkin's disease. Sedation would be great if you could get that. Wishing you good luck and that the procedure is as painless as possible
bulldogtheory 2 years ago
om my god i cant imagine! ganyn pla ginawa sa tatay ko! meron xang bone cancer alm kona kung gano kasakit ito! nakkta ko xang napapa hiyaw sa sakit after 2weeks namatay XA DHIL SA DUONG LINGGO UN ANG DINADAING NIA! sana hindi nanamin xa pina biopsey mahirapm mawalan ng father! nalulunkot tuloi ako! kht 3yers na lumipas
nursingaccount 2 years ago
Impressive. They do full sedation here in the US as well, especially for those that are donating. In regards to mortality, the rate is listed as near 10%, and there is no linkage to MS or HIV and bone marrow therapy....at least in the US. Anyway, I applaud your strength and courage and thank you for posting the video. It definitely helps to assuage the fears and show the reality of what to expect for patients everywhere.
hasabunso 2 years ago
A bone marrow infusion kills 40% of patients, but cures MS and HIV
JonThm 2 years ago
You are so brave ! GOD BLESS YOU HONEY
ladywilddoc 2 years ago 2
i have my aspiration/biopsy next week and I didnt know what to expect so thank you for posting this. Ive seen animated vids but its nice to see a real person and an honest account coz everyone keeps saying it wont hurt...LIES! lol and im very very scared of needles. At least now i know what to expect so thank you and hope you are well
0oemancipatedo0 2 years ago
Never understood why patients choose local or no anaesthetic.Short term full anaesthetic is routine for colonoscopy, L puncture, endoscopy, etc. My partner died of NonHodgkins lymphoma last year & refused pain relief for his bone marrows. I pray this lovely girl is doing well, but darling you don't get extra points for pain - just say yes to the anaesthetic. I put off wearing fentanyl patches too long (bone cancer), but now all my energy is back & I can be joyful for the time I have.
BirgitMunro 2 years ago
To Birgit Munro, Thanks for your post and I am so sorry about your husband. With respect to anesthetic, I would have certainly taken it if it was available! I wanted to be sedated, but this was just not something that the hospital does. Perhaps they offer the option of sedation in the U.S., but not generally in Canada (at least not at the two separate hospitals where I had it done). They only offer local anesthetic, which as you saw from the video, I took!!
bulldogtheory 2 years ago
I'm am Aussie & being knocked out is always an option here. You are so brave & hope you are getting better now.
BirgitMunro 2 years ago
I'm 17 and I had this done 3 days ago. I'm like you; I'm healthy and I have very strong bones so it hurts more. But I didn't talk the whole time. My dad was with me and the whole time he was looking me in the eyes. When the hard part came few tears came in his eyes (he never cries) and then I started crying; but when the hard part was done we just started laughing through our tears. Not the typical father-daughter moment but I thought it was alright ;P
is92jak 2 years ago
Hi there, I am so sorry that you had to go through this - that father-daughter moment was really touching. As you note, it's not the typical father-daughter moment, but it is so nice that you have such a strong relationship with your Dad and that he's a real support for you. I hope for the best results possible - what are they testing for? Wishing you health.
bulldogtheory 2 years ago
Thank you! I'm closer to my dad than my mom so I wanted him there with me. I actually didn't go through this exactly (misunderstood a bit, I'm from Iceland); I donated a bone marrow to my sister,she's 14 years old and she has leukemia. She's doing a lot better now and the doctors are very optimistic:)
is92jak 2 years ago
So amazing that you were able to help your sister, I am really glad to hear that she is doing well.
bulldogtheory 2 years ago
My wife is having this done tomorrow, and she wants me there with her. Of course, I will be. Thank you and your husband for posting this, as I know it will help countless people as well as myself prepare and understand. I applaud your incredible courage, and wish you the best of health.
auramac 2 years ago
Thanks so much for your comment. I hope that the bone marrow biopsy goes as smoothly as possible for your wife. This must be a difficult time for you both, and I wish your wife healing and health.
bulldogtheory 2 years ago
Thank you. The physician assistant who performed the biopsy did an incredible job- much quicker and more painless than we'd expected. I had mentioned how seeing your video was so helpful, and she was very interested in seeing it. We're awaiting the results, and are hoping for healing and remission.
auramac 2 years ago
I'm not sure if this is the same thing I might have to do but my Grandma has Leukemia and needs a bone marrow transplant to live. I might be the best match. And honestly this is like one of my biggest fears ever. I really hope I don't need to go through this. I don't like the responsibility of potentially holding someones life in your hands.
Thank you for sharing this video. Before I was blind and terrified. Now I see what I have to be terrified of :S l0l.
I hope things are well with you!
thombro705 2 years ago
Hi there, I can understand why this would be overwhelming - but what an amazing opportunity to save a life! The amount of bone marrow needed for a transplant is much more than for a biopsy, so they would certainly put you under general anesthesia. Afterwards, I suspect it will be painful, but you will heal! I am not sure though in your potential situation as to whether the stem cells could be obtained via blood (way easier), or whether the actual marrow would need to be accessed.
bulldogtheory 2 years ago
Thank you so much for sharing this!!!
inosentz 2 years ago
you are very brave girl Hope you Get better soon
bosbosbosy93 2 years ago
u r so brave... hats of to you
autouploadvideo 2 years ago
I'm sure I'd be screaming in agony.
LEYTONLOVER333 2 years ago
what kind of cancer has she been hit with? stage 2a breast cancer?
DarthTwilight 2 years ago
If it is done with sedation will you have memory or pain of it at all?
whymee100 2 years ago
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Polacy - oddawać szpik! Pozdrawiam
ergomicomdevgroup 2 years ago
your lucky i got tetnus
mwanamwiwa 3 years ago
everything come up good..
nicksgirl22 3 years ago
i have to do a bone marrow transplant in the second week of april im reeely scaredd !
AyOMARkk 3 years ago
Don't be. I heard from doctors that all they do is take a little needle into your skin and they connect the pipe(like the IV pipe) and then have the bone marrow go in your body. You just wait four hours and then it's done.
kjoker1992 2 years ago
I am scared i have to get one thursday..
nicksgirl22 3 years ago
Hi Nicksgirl,
I am sorry that you need a bone marrow biopsy, that really sucks -- but you'll be okay. I hear that some hospitals use anaesthesia that temporarily puts you to sleep (it's not quite general anaesthesia and it's short acting). You might want to ask them if they'll do that for you. If they only provide local anaesthesia like they did for me, you will still be okay. Good luck!
bulldogtheory 3 years ago
I have had two. The first time I tried to get off the table. I have an extreme phobia of needles! The second one they put me under. M.D. Anderson sedates if you want it.
kimspepper 3 years ago
It seems so much more humane to be sedated!
bulldogtheory 2 years ago
I agree! The first time I had it done was at the hospital, and they don't sedate you there. They told me that I would be put in a twlight sleep and there wouldn't be a problem, cause they numbed you anyway. That was bull! You can't numb the bone and I felt it! M.D. Anderson said they needed to do it again and I said "Hell no!" Basically just let me die, I wasn't going through with that again. They sedated me so they could do another one. I won't have one done, unless they sedate me.
kimspepper 2 years ago
I'm debating doing this. Seems like you're in a lot of pain. I'm really worried.
Spinaltapped333 3 years ago
It wasn't fun - but you get through it. Is it something they really need to do, or is it more of a routine, check-the-box requirement?
bulldogtheory 3 years ago
I'm going to join the Bone Marrow donation list and I was just checking out videos to see what I'd be in for. I'm definitely signing up for it though.
Spinaltapped333 3 years ago 2
It's wonderful to hear that you will be donating.
bulldogtheory 3 years ago
I have to do this on the 20th, 4 days before my birthday. I'm kind of scared
DRESSEDxTOxIMPRESS 3 years ago
Hi there,
Just got this now... how did it go? I wish you all the best.
bulldogtheory 3 years ago
Hey, thanks, oh it went okay, there was a bit too much pain at first so they had to sedate me and try again, but I'm healing up fine
DRESSEDxTOxIMPRESS 3 years ago
i had to get that done and was awake and they never froze it
kmce 3 years ago
You are so strong! I hope that you beat this disease! And as a mother of 2 this seems much worse than child birth. You are so brave!!!!!!!!!
icemom09 3 years ago
@icemom09
Come on Ice, the procedure is not worse than childbirth for goodness sake. Youre scaring people that dont have to be scared. Its not pleasant, but lets put things in perspective here. Were not talking 'kidney stone' pain here folks; think more along the lines of being stung by a yellow jacket. Not fun, but nothing crazy. And the first does not hurt any more (or less) than the rest, When you can still hold a conversation with an occasional 'ouch', it's not that bad, so relax.
Posanne 1 year ago 2
@Posanne shut the fuck up. this is terrible for her U jerk
icemom09 1 year ago
@icemom09
No shit Icemom! It's not fun for any of us; but stop scaring the shit out of people comparing it to childbirth you moron, because trust me its not a billionth as bad (literally). You want pain? Try rehab exercises after knee surgery. Now that you CAN compare to childbirth even a nine pound baby Like I said the pain of a BMA is like being stung by a wasp or hornet (maybe not even as bad) or a MINOR leg cramp at most. It hurts, but people shouldn't be that scared it's not that bad.
Posanne 1 year ago
@Posanne I think she said she's gone through both childbirth and BMA, so if her opinion is that a BMA is worse, you shouldn't be so arrogant as to think you can change her opinion, which again, stems from her OWN experience. And you're being very hypocritical, too. You accuse her of scaring people into thinking that BMA is worse than childbirth, but you yourself are scaring women into thinking that childbirth is "a billion times worse" than an evidently painful procedure such as BMA.
AlvinHDavernport 10 months ago
Ohhh yes, bone marrow aspiration and biopsy. You did very well. I know it hurts like hell sometimes but you got through it like a champ. I just run my mouth the entire time, never shut-up. I went thru treatment for non-Hodgkins lymphoma and have had 10 of these to date. Still get one a year during my check-up.
tullymars1961 3 years ago
here in holland they put me in sleep to do that!
sulo4life 3 years ago
what is wrong with her? i hope she doing okay.
chicarae2good 3 years ago
Is this the middle Ages or 2008. Why can't they numb the area
doglass3 3 years ago 8
God that is so funny! I have had this done 3 times now and the 1st time I had it done I was in so much pain that I was laughing and that is exactly what I was saying to the poor tech, I was like " you're telling me we can do heart and eye transplants and shit like that and this is the best we can do with this procedure? I was like what the hell is this the Spanish Inquisition? " Actually though I have had it done where I was put under but I don't know why? Things are getting better. Thanks 4 LOL
azbquinton 3 years ago
@doglass3 They can't numb a bone. Even 2 years later they can't. It's called bone marrow for a reason, it is in the bone.
RyanLikesAmp 1 year ago
I remember my doc had to do it twice. I remember the pain that your going through, plus I have really strong bones.
1980sFlashBack 3 years ago
thanks for posting this video..now i know how a bone marrow test is applied
rhenvill 3 years ago
I AM SO sorry why did they not put you to sleep?? you do not need to go through this!!
Yadiluv81 3 years ago
that's expensive!
bulldogtheory 3 years ago
Isn't that a shame that families that can't afford these medical bills have to suffer even more. i feel for you!I hope everything turns out great.
icemom09 3 years ago
I had one of these to diagnose polycythemia vera two months ago. For mine, a piece of bone was also removed. Thank you so much for posting this so others can see what this is like, esp. for those of use with young, solid, HARD bones! (I'm 33) I hope and pray you are doing well. Please keep us updated on your cndition. I can't believe you were so quiet... so brave. Take care!
mstscc 3 years ago
So... what else do you have to do after this procedure? Or is that done?
I looked online on a medical web site, and it says that the donor has to be injected with some liquid to make the bone marrow grow bigger. And not until days after the bone marrow will be taken out.
CrazyWeno 3 years ago
depends on what you have. they will give you different 'liquids' to increase production of stem cells, then they take out your stemmies.
bulldogtheory 3 years ago
The donation itself is not painful, the biopsy is the painful procedure...
They inject the fluid(growth factor) into you to stimulate the bone marrow to multiply, By doing that, some stem cell wil enter blood and they collect it with machine filter.
slayercun 2 years ago
I didnt have cancer but a autoimmune disease. The first time they did a biopsy they sucked out clear fluid from my hip bone. From there I was diagnosed with severe aplastic anemia. I did another one before my BMT and three after my Bmt. But no matter how many times they do it it is one of the worst pains in my life. It feels like they are pulling out nerves for me. I was kinda quiet too because I didnt want to cry in front of my Hemo and her assisant. I wish everyone the best.
robsbc1 3 years ago
Wow! I write about my bone marrow biopsys in my book. Worst part of the whole cancer process.
In This Time's a Charm; Lessons of a Four-Time Cancer Survivor, Donald A. Wilhelm tells his real-life story from a patient's perspective about surviving cancer four times. His intent is to give his readers a true depiction of what cancer, and its treatment, is really like. He intends his eBook to parallel an old Chinese proverb that says: "To know the road ahead, ask those coming back."
thistimesacharm 3 years ago
you are REALLY brave! get better soon :)
osquitar9595 3 years ago
you are very brave.
adomantay 3 years ago
Hope you get better honey. You are very brave!
Cheers! ;)
abecedddario 3 years ago
I just had this procedure done for the first time yesterday :(
OUCH!!!
octoberfire13 3 years ago
Had one of these for my lymphoma...hurts like hell!! I'm Hodgkins Lymphoma Stage 3B, hope I never have to do the bone marrow biopsy again, it was the worst!
sameegrl 3 years ago