Welcome to the National Foundation for Ectodermal Dysplasias (NFED).

[Cyndariss]

This is simply amazing! I am an artist that does donation drawings for different foundations, I am unable to donate money strait to due to our current state of economy here in America. I do donations to foundations that embrace difference and allows people to be their selves. I would love to help you out with this foundation. I am not the most experienced artist but I am willing to help however i can. I may only be 14, but i feel i can make a difference. Thank you, so much.

[nando6163]

soy de colombia y tengo mi hijo que tiene esta enfermedad me gustaría saber que crema es buena para su pielecita y si esto tiene alguna solución físicamente y si aqui hay fundaciones muchas gracias. agradesco a la persona que me pueda dar esta información

[joszyism]

I am a 64-year-old woman with hidrotic ectodermal dysplasia. I have problems still with people staring at my hands and thinking i have a contagious disease.

It is so good to know there is a group out there helping people like me.

I would love to attend one of the conferences. Keep up the good work.

[hyperswivel]

As an ED affected male, I was never interested in being in the groups. They made me feel like I had a problem, and here's all these other people with that problem. My coping mechanism was to convince myself I didn't have a problem and that I was as normal as the next person. Now that I'm older (29) and living a full, successful life I feel like I should probably get involved in sucha group.

[AnielloNASTASI]

OMG, my friend has this and he never told us what is was now i know.

[3stepandrun]

@AnielloNASTASI aniello, this is jesse, glad you finally get to see what i have. :) see how they look like me. that's why donovon looked like me.

[22maet]

wheeh....... i hope there will be foundation who care for the persons having HED here in philippines

[sharall]

Most awesome person in the world with HED is Michael Berryman, he is absolutely awesome!!!!

[nobodymm]

Thanks for the info.

I heard about HED on Iowa Public radio today, they were chatting with Bonnie Rough, who has a new book out (maybe its not new??)

Anyways, thanks for helping me to understand and accept people with these differences.

[lovemextender]

Mary you are an inspiration to us all!!!

[nightshadedesign]

Mary Kaye rocks....

[lwangsd]

Thanks so much for the video and im super excited for the summer family conference! (:

[angelhawk15]

Oh what a great video! I am so thankful for NFED!!!! It is amazing and helped me transition so wonderfully into my daughters and my diagnosis of XLHED! I felt so alone, and then We found you!

[DHolmanJ]

What a wonderful video! Without the NFED, I don't know what we would do. Thank you for your tireless efforts to bring awarness of ED. Thank you, thank you, thank you!!!

[thefly2674]

Muy buen video. Espero que sirva para difundir la inapreciable tarea que desarrolla este grupo de gente. Quien pueda trate de difundir el mismo. La NFED es de inapreciable ayuda y apoyo para quienes tenemos que tratar con ED. Un saludo para todos y sigan para adelante.

[jd27271]

where the heck was this stuff when i was a kid? i couldve used the support for sure. i mean im 18 an i have hed but i wish this stuff was around when i was young

[Boorken]

Greate clip... Thank you for what you do... Greatings from one of about 100 in Sweden that are effected by ED....

[excaliburno1]

I'm very excited to see this video. I won't try to say what NFED has meant to my family; not because I don't want to, but because I can't. What I can say is that the people involved with NFED are great people. When your child has something that you have no understanding of, having the information and support proved by NFED is a Godsend. Mary Richter is one amazing human being, and the lives of those in my family are better for her and her work. Thanks to all at NFED.

[DrewTheHalfJewPrince]

Beautifully done!!!

[fredewanuickfan]

I love this video and will be sharing it on my facebook account. Thanks NFED for everything you have done and continue to do!

[elaine4300]

Great video. Very informative. Thank you.