Added: 2 years ago
From: MPSrun
Views: 4,972
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  • My heart goes out to this little girl and her family.

  • What a vivacious little girl!

  • She is soooo cute <3

  • she is soooo cute!!!

  • Guru - the suckers and the cards will help raise awareness - this is such a rare disease perhaps less than 2,000 in the world? It is not a waste of money. Support is crucial. Allison, what a wonderful job you did! You are so confident on camera. You are so brave.

  • Why are they wasting money on cards and suckers when they can be putting it towards research....

  • @gurutheassasin The family pays for this out of their own pocket to raise awareness. Allison is doing a great job as is her wonderful family!

  • Allison, you are an amazing young lady. You are intelligent, brave, articulate and charming. Thank you for being. The world is a better place because of you. Keep up all of your good work.

  • :3 she is so adorable omg!!!!!!!!!!!

  • shes adorable..may God always be with her

  • love you Allison ! greetings from the sunny Spain!

  • Allison i shared your ever important message on facebook !!

    Take care , now ..... greets and a hug from Holland .

  • She is so adorable. I love her!!!! She looks like a lil grown up. Too cute!!!

  • Thank you for your great insight Allison. You seem to have a very deep and wise soul. I wish more people were like that. I think you are a very special person.

  • and purple ribbons of course :} that just made my whole day

  • That charming little girl should work in congress, in the health department. She an outspoken advocate of her life and for many other children such as her. EXCELLENT

  • I love that video and Allison is so adorable.  My daughter is 9 and has MPS1 and it just warms my heart to see Allison doing so well. :)

  • shes so sweet how old is she?

  • ur so sweet.. i also have mps(IV) and she's right.. it is hard and we really need a lot of courage.. smart girl!!!

  • Alli,

    what a brilliant, informative MPS awareness video. my daughter has MPS1H also, she is 2 years post transplant and will be turning 5 in a few months.

    i remember being in contact with your mum just as our Kaitie was diagnosed back in 2007, you gave us so much HOPE, and i want to thank you for that!

    God Bless you beautiful princess...

    xxxxx

  • Alli, you did a wonderful job! I'm so proud of you!

  • I loved watching Alli! She was an inspiration. Thank you both. Hope to get some of those bands and things. My daughter Allie is almost 2yrs old and has ML II. Thanks again!

  • I'm in tears Miss Alli, Happy Tears!!!

    Me and your buddy Zachie are sooooooo proud of you!!!!

    You are a VERY BIG HERO!!!!

    Love You,

    Zachie, Brenda and John :-)

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