Added: 4 years ago
From: righteousdude93
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  • Thought ID give you some positive feedback n hope. I have Nemoline rod myopathy there is 789 cases in the world only 30 of us are in our 30's few are still walking. Girls are usually carriers they usually do not get the disease, so when I got it; everyone had no clue whata to do. 2011 I am still walking even though in alot of pain. I have 4 beautiful kids none which got the defective gene. There is HOPE you just have to believe!

  • @moondancer72 hey, it's good ur still walking! i'm sorry about the pain though, i definitely know how that feels. i'm happy your kids don't have it, noone should have to go what we go through. i'd like to keep in touch with you, us muscular disease patients need to stick together. :)

  • stay strong

  • Tell the truth brother. I have this disease to. Love you man (No homo.)

  • a teaher at my school found out both of her sons have DMD and we had our own little marathon. Hopefully they'll find a cure soon

  • Hi C.J. so me and a friend of mine are doing MD for a huge health project. I was wondering if youd let us interveiw you for our project? Our main question is how does MD affect your life, what si it like? So please, we'd like to learn more and it would be really great. Thank you! Oh, by the way, my name is Anna.

  • Wth is with some ppl swearing and being rude in the comments section? i dont have muscle dystrophy but i dont c the reason to be rude like some assholes over here

  • I was touched. Great video

  • does your mullet help maintaining balance?

  • faggot shutup

  • well it could help, some animals use their tails to maintain balance, so why not a mullet?

  • ROFL actually thats pretty funny.

  • I met Darius Weems at my school and he is a great inspiration for people with MD

  • I don't know anyone who has Muscular Dystrophy , but I feel that a cure is eminant.. I find that those who have MD have a spirit that is unrelenting and downright inspirational.

    I just found out about Duchenne Muscular Dystrophy ( Don't know if that is your condition) but I was really touvhed.

    In January I started putting the money that would have gone to cigarettes in a can come Sept. I will donate that small amount almost $1600.00 to help fight this aweful disease. Hope it helps.

    David

  • CJ has CMT. Just letting you know. Nothing against you, just saying. I have DMD though. Anyway, thank u for donating!

  • I can inform you, that everyone can help finding a cure for

    Muscular Dystrophy. Please write BOINC or worldcommunitygrid into the search field of Youtube or any search engine for further info

    Running the Programm BOINC on your homecomputer you donate unused computer capacity to researchers. One of their projects is about

    Muscular Dystrophy. Please note that this is fundametal research. So, a cure cannot be expected too soon, unfortunately. BOINC is safe and has been working several years now.

  • @cooldit1 ther is several forms of Muscler Dystrophy and Muscler myopathy

  • @moondancer72 Sheeit! You think I don't know this? I have muscular dystrophy myself.

  • i have a form of MD its called SMA

  • Top marks to C.J. for having class.

  • Sorry to hear you have a problem at this level at such a young age. Hope they find a way to fix it! best of luck for the future

  • i walked the marathon!!!!!!

  • Hey dude, I hope all is well or at least doesn't get much worse. I cant believe some of the fools that can sit there and say ur faking or muscular dystrophy is not a reall disease. I know what you are going thru, believe me, I suffer from Muscular Dystrophy since I was 13. I have very little muscle function. I am totally disabled from it.

  • gosh- this is sooo EASY - if i had the time - i'd go and fill all your pages with beautiful, wonder-FULL, inspiring thoughts and comments. some people can be sooo AWFUL hey? HOW SAD!

    ok - so what i wanted to include in my previous post - but ran out of space - is a proposition.

    if you, cj, can send me a link to the walkathon, i would be so PLEASED to make a donation to the cause in YOUR name.

    think about it, and let me know :)

    you have a great spirit.. a HOPE, and it inspires me! THANK YOU

  • CJ! THIS is the video that started it all!

    I've FINALLY figured out how to post - and LOOK at me GOOOO! haha

    Ok.. so this is the deal.. I wrote you a message before... and I will send it now..

    Also - could you let me know what kind of MD you have?

  • HELLO CJ!

  • i guess this is the vid you got pretty big on

  • aw dubi dubi now dubi now go dubi nooow

  • Comment removed

  • can i smack ur tities around?

  • you are a really greasy dumbass faggot

  • you piece of shit commie i ducking hate u cripple/ governemtn did this ause u hate my freedom. terrorists bitch. go get stem cells or suck dick. get weaker while u get older lol u funnier than bob saget. fuck ur marathon

  • A fire.

    Go waddle into one.

  • Comment removed

  • oh...but by the time hes 'OLDER'.... if brains were bricks he'd be a hole in the wall. stop fucking acting so sad on your videos trying to get people to sympathise with you. yes you have some pretty deap shit like with the muscular crap and all but still trying to cry on youtube whilest explaining to people about your lifes problems is a perfect way to entertain people.

  • does muscular dystrophy make your penis really big? I'm a nigger and my penis is HUGE. I want dick reduction!!! Do I have this disease??? FUCK, why do I have to be black? This is bullshit. I want some fucking fried chicken! I'll steal your bike too, so make sure you put a lock on it!

  • HAHAHAAHAHA XD

  • everything is for a reason. your mature to acknowledge that. god loves you cj. your meant for a better world. but for the moment i wish you luck with everything. ps i reckon they'll definately have a cure by then. science is advancing all the time! peace

  • ...... uh........ die?

  • wow u do realize thats very fucked up for u to say sooprcool. who the fuck r u

  • well I realize that, but the thing is, before I found out he had muscular whatever, I was commenting on his vids saying DIE. cause I just thought he was some little redneck fucker.. I mean look at the rat-tailed little guy, I mean HOLY SHIT! but that was before I knew about his muscular problems... so sorry.

  • who?

  • That must be alot of words for, "I walk like a penguin".

  • eope111, you better shut the fuck up dude.

    This is a serious matter, and if you feel like your some rightous badass by condemning people for things they have no choice in, then your a fucking pussy.

    stay strong kid.

  • A little late for a comment there holmes.

  • people are really sad on this website

    takin the mikky oot of people with a disease is just sad

  • Heh, the ignorance of people never ceases to amaze me. I'm 24 and have Duchenne Muscular Dystrophy. Sadly, I've made more of my life than any of you jokers. For those who have DMD, have hope. Don't let idiots weigh you down.

  • so you really suffer from the terrible disease of muscular douchetrophy?

  • Comment removed

  • it is a real disease look it up.

  • Comment removed

  • porbably because you didn't look it up like you needed to. you just don't want to admit the fact that it's real.

  • thowing anyone in a lake could kill them, you are a fuck. muscular dystrophy is real, i have it

  • aAHahAhahahaa omg lmao

  • Is it true what they say?

    Is ignorance really bliss?

  • Comment removed

  • Comment removed

  • Comment removed

  • there, deleted them.

  • @SgtSanchez yah dude its a real disease your apparenly 30 so you should know

    but five kids at my school have it and all exept for one are in a power wheelchair

  • 'And they even have a marothon for those thats have the disease' I think ive heard of that what is it called...March of the Penguins?

  • no offense but umm umm umm umm..... stop making so many pauses and keep fighting through that disease kid and lets all hopr for a cure....

  • Hey :) Its good your talking about it :) My sisters realy close friend has Duchenne Muscular Dystrophy so i know some stuff about it, hang in there kid :) ignore the people who just say stupid things :) and we are all praying they find a cure :)

  • eclipse u fucking dumbass, u have no idea whats he going thru. hes a good kid. unlike u. u piece of shit

  • hope they get to find a cure soon..

  • ya aight

  • hey man we are trying to cure DMD if you think you can help us sell DVDs please hit me back up and ill let you know what you can do!

    stay strong

  • AWESOME MAN KEEP IT UP!

  • you know whats funny bout those marathons? the people who need it cant participate

  • ya we get what marathon is chief, what did all those people give money to see that mullet shaved?

  • strange lighting, lux like your in hell or something

  • hahahaha lol u succccckkkk douche bag

  • Comment removed

  • I was talking about some jerk being jerkish even though jerkish ain't a word to CJ

  • Seriously, stop trying to get fuckin sympathy. It isn't workin except with all the pussy ass momma's boys and all the chicks below..

  • dang... y people make fun of you...

  • okay, first of all: BWAHAHAHAHAHAHA

    2. don't make a video that u say umm... half way through

  • I'm sure ur a nyc boy n evryfing, but u have just made a video to tell ppl about ur disease, y? 4 sympathy, I do sympathise with you and disagree with the ppl below, there is no reason 2 call u for it, but please, get a hair cut, and stop looking for sympathy on youtube of all places.

  • Hey bro. Im not a hater. These people are jerks and dicks if they make fun of you. Keep strong. Keep playing guitar. Eveyryday. Become famouse.

  • dude he has to wear leg braces you insensitive bastard

  • LOLOLOLOLOLOLOL!

  • OMG IT'S FUCKING HOPELESS YOUR GOING TO DIE NOOOOOOO!!! haha jk plz do die.

  • you're probably glad you said this to him on the internet considering you obviously don't have the balls to say that to his face. Fucking jerk.

  • well said!!!

  • just play guitar for people

    you'd raise a shitload of money that way

    hahahahahahhahahahahahahaha

  • DO A BARREL ROLL

  • You may suck at guitar but i will give you one thing...you are really brave to put this on youtube. best of luck.

  • how could you be so mean he does have it he is my brother we cant go on holidays because of it he cant walk more then 10 meters plz say srry

  • thats just an excuse bc you dont want to admit that your a cock sucking hick bastard

    so go kill yourself

  • does your mullet get stuck in your ass ever?

  • Lets just say- U r not alone.

    Keep exercising as much as u can.. keep strong!

    Use your fame to speak up about CURES & healing, and peace. Hopefully they can get stem cell therapy to work for us someday.

  • I hope you get so sick you can never pick up a camera and make one of these damn videos ever, EVER again

  • CJ, you're a cool kid that has a lot of shit to deal with and I commend you for being able to share it with people. On the musician side of things, you seem so much better with technology than music and music will just get harder and harder as the MD gets worse, so don't get your hopes up. Also, I'm sorry, but I really hate the mullet. If it's what you want, then go for it, but I sure wouldn't sport a mullet.

  • to everyone hating on his mullet, obviously he doesnt give two fucks about your opinions, because if he did, he would have cut it by now.

    cj, you rock.

  • quit hating on the mullet people, he rocks it like a champ!

  • Hey CJ you are a big lier you said your feet,Arms,hands and your Ass are getting worse you have a video posted here Playing the Gitar

    (Iron Man)and feeling pretty good.

    He's trying to get your money people,Beware.

  • Hate your hair you look like a puff get it shaved or better still I will pay for it to be cut

  • What the hell is wrong with all of you? Give the kid a break! You don't give someone the middle finger when they announce that they have muscular dystrophy. Especially if they're a kid...

  • You may have muscular dystrophy, but thats still no excuse for a mullet

  • lol u fag

  • You're brave CJ. Never back down! And to all you shit headed bullies with no life...How many of you have PARENTS that, if informed about your behavoir on here, would rip you a new asshole?? How many of you have PARENTS with a HARLEY DAVIDSON and ride for people like CJ? Bikers not only ride people like CJ, but they also ride for 400 other illness's, both to do with humans and animals. RIDE AMERICA, RIDE!!!

  • Thank you, lostsouls79! If 79 is your year of birth, you are 29, almost 30, which explains the maturity of your comment, and your compassion for CJ. This kid is incredibly courageous and mature beyond his age unlike the people--or should I call them 'residue of human trash', 'pieces of human debris'--who made those unconscionable comments about his plight! They ought to be ashamed of themselves, but of course, they won't because they are jerks! I want to give CJ a big hug! Hang in there, CJ!

  • Well thank you as well. And your are correct about my age. Just turned 29 not long ago. I can only hope that CJ and or his parents are taking the time to read the NICER comments. I think he wo9uld be happy to know that he has a lot of people rooting for him. I can not say nor can half the morons leaving nasty remarks, what it feels like living with the challenge CJ has. But it seems to me, that he isn't letting a whole lot stop him. Now that's a hero in my books.

  • And go cut that greasy mop that you call hair off the back of your head. It makes you look like a trashy hick.

  • Seriously, all I'm sayin is, if you stop felling sorry for yourself, you will feel a bit better and will be able to move on a bit. No one feels sorry for you except these pussies below and god damned women. But, fuck me sideways, I DO NOT! I do not feel sorry for trash like you, who is most probably the product of close relation incest.

    Go grow a pair, and get on with your life. And stop posting shitty videos on the internet trying to get people to feel bad for you.

  • I have to say, for all you hateful people out there, your sick. This child has a "physical" disease, where as you people have a disease that runs much deeper than the physical. You are rotten, sick, demented, hateful individuals who shouldnt be allowed to speak about this. You say things that you have been taught, or rather spoon fed, to be seen as humorous. Its not... its just sick. You are carriers of the virus called apathy and its sad that humanity hasnt found a cure for you yet. t07

  • Who's the redneck? If any of these losers had the slightest bit of class, they would not be making such hateful remarks.

  • Leave the kid alone! What did he ever do to you guys? Seriously show some respect to others what if people made fun of you everday and put you down? How would you like it? You wouldnt you would hate it! So why do you think its cute to put others down. Cause your assholes with no respect at all.

  • Well, he keeps putting up videos hoping for pity comments... that's something he's done to me. Also, I DO know how it is getting bullied, but I solved the damn problem instead of getting home schooled.

  • If he wants to put videos then let him damn. At least hes strong enough to take this hate. Just because you didnt get home schooled doesnt mean anything? Other people have diffrent ways of solving things dumbass no ones alike.

  • hes not looking for pitty hes looking for support thats all the kid wants you have no idea what its like so you have no right to judge.

  • If you don't like that someone is posting something for reasons that a person with a fully closed mind would think right away, stop watching and go find better things to do please. :)

  • ahahahahahaahahahahahahahahaha­hahahahaha

  • keep it up

  • my poor babby cam i get you a wheelchair

  • lol

  • im just joking, i know ur not joking about this, and i wish they could do something about it!!!

  • hey man i lost my legs ina shark fight so dnt feel down buddy

  • Md runs in the boys in my family. The girls are the ones that carry it.But the boys are the ones that end up getting it. So I was lucky it skip me. But I have a lot of family members with MD. Stay strong you seem to have a good spirt So that is great!

  • What kind of md do you have? My little cuz has Duchenne and my friends son has the same. My cuz is still walking and has the leg braces. But my friends son he just had his surgery done on his legs. And the one that just had the surgery he is 12yrs old and will no longer walk again.

  • If you guys have fucking Muscular Dystrophy, you wouldn't like people saying mean things about you. You guys, can say all you want about him, but he has confidence, and I would like to see the people making mean comments come and put some vids like these on youtube. Take some of your mean comments and shove them down your throught cause he's way, cooler than you guys are being.

  • Your a brave man C.J. Ignore the haters. Keep powering on!

  • i have no respect for mullet rednecks(no offense)

  • CJ dont listen to all these harsh people all they are is full of shit and hateful people with no respect!

    Guys leave the poor kid alone no one wants to hear you talk trash about others! Did your parents ever teach any of you respect? Obviously not damn leave him alone. Theres not reason to make fun of him. What if you had problems and people harassed you? You sure in the fck wouldnt like it. So if you dont like him dont leave your negative shit that stuff pissesmeoff when people dont respect

  • aww. that made me sad :[

  • be well young dude. your a brave kid to get up there like that

  • bullshit.. men you are healty, i dont belive a word...sorry,,,,keep practicing with your guitar

  • yall a bunch of fake ass e thugs who wouldnt say any of this shit to this kids face. Which is sad because hes a kid

  • Not only would I say it to his face I would beat him with his own crutches if he has them.

  • I wish I'd be his neighbor just to laugh at him everyday.

  • (to misseptember) you are a douchebag,go kill yourself

  • saying someone should go kill themselves is a lot worse than laughing at someone...

  • lolololol thats funny

  • i call neighbor on other side!!!!

  • shut the hell up! u dont look to me dystrphical at all u fat ass. start doing sport instead of sitting in front of the web cam all day long. its a punishment for all ur stupid videos! stop trying to get people feel bad about this

  • hes full in the face because he probably takes prednisone to help him walk, i know what thats like

  • Must be rough penguin, but I'd feel more pity for you if you didn't have a goddam mullet. Don't be looking online for pity faggot face.

  • Stop posting videos to try and get fucking pity love you bitch. Nobody cares you have MD, that's your redneck problem.

  • SUCKS TO BE YOU PENGUIN!!!!

    CHIN UP SON

  • Fuck off... You've commented on pretty much all of his videos, cut him some slack. Grow the fuck up

  • Hey dude, keep staying positive about everything. Don't listen to internet shit talkers, there's no use in it. Keep doing what you do and keep the videos updated. I'm a fan.

    Later brooooo

  • Hi sorry to hear about muscular dystrophy keep positive in your outlook on life, don't take any notice of the shitty comments on u tube. My wife has MS so i know some of what you have to cope with. Keep smiling a cure will come.

  • lmfao kid like i sad you always just sit on your ass and don't do anything seriously did u see forest gump he didn't act like a pussy he ran and it made his legs stronger so get off your as life isn't always easy i don't mean to be mean but seriously mate. come on.

  • dont feel bad he is still a loser weather he can walk straight or not and seriously how do these kids run a marathon for their disease??????? Their legs are fucked up!

  • now I feel like a dick for saying shit about your guitar playing...

  • its youtube brodcast yourself, he can upload what ever he want motherfuckers, if you dont care don watch the video and leave stupid coments, shut the fuck up and i hope someday somthing worse happen to you, than call me and i will lough at you

  • DUDE WHY DO YOU POST VIDEOS LIKE THIS!!! no offense but no one cares ok

  • you should really

    MOVE AWAY FROM THE MIC TO BREATHE IN

  • Marathon? you mean telethon....lol

  • Run forest run

  • im talking to cooldit1

  • dude...don't tease him...his MD might happen to you also..

  • muscular distrophy is genetic dumbass

  • :D That made me chuckle :P Nice insult mate :D

  • First of all why are you so mad at him? was he your top and he thinks your hole is too loose now or something?

    Second, we are in America he can post whatever he wants so go back to Russia or Cuba.

    Third, you do care otherwise you wont be watching his videos.

    Lastly, GO FUCK YOURSELF.

  • My boy friend has MD! and he still walks and does normal things.i didnt even know he had it at first .

  • your alot braver then me mate, im a 20 yr old with MD no one really knows about it, its just to hard for me to speak about it

  • yeah i have it to its hard for me every day

    my dream is to play nfl football.

    all have to hope they find a cure for it

  • We made a film about our friend with DMD and are now out raising money to find a cure!!! DARIUS GOES WEST. Youtubeit and join us!

  • that was a good film

  • i,m sitting in my wheelchair as i have muscular dystrophy my muscles r getting weaker

    too

  • that's how i am. but i'm not in a wheelchair yet.

  • It's so hard... I'm 32, and luckily I can still walk and drive... I was always sick. At your age, the problem are GIRLS. Please don't laugh because is the easiest way to get away from this problem. Talk about it, don't make my mistakes. You're so courageous, keep fighting. It's too hard. I was alone from 14 to 18, when I was able to made new friends. There are a lot of s**k**s in the world.

    Sorry about my english. Greetings from Spain.

  • oh yeah... that's good... yikes. oh yeah! gotcha. thanks i'll try. it's very hard. yikes! oh yeah!

  • keep trying 2 bild strength my cuz is 31, and he is in a wheel chair, i carry it 2 :( my bro died from it

  • sorry. orry about your brother too.

  • Hey there, im dan from the UK and I am a nurse at a children's hospice. I work with all sorts of lads with Muscular Dystrophy and love playing PS3's and computers and all sorts. I think you are absolutely AMAZING and so awesomely brave - please keep going, on your hard days just remember that you are still a wonderful human being with so much to give. Keep at it matey! I hope that you have loads of friends and family to give you all the love you need! :) Dan (Birmingham UK)

  • hey awesome! awesome!! i love PS3 too. thanks. sure will, i'll try too. sure will! yeah i've got some good friends and an awesome family. thanks for sending me the comment.

  • Hey I think that's why I get on well with the lads becuz the lady nurses can't even wire the PS3's in! I just spent a fab week with a 19 year old lad with MD and we spent every day playing Gran Turismo 5! I wish that I could take every horrid day, every pain and discomfort from you and go through it myself for you. I really do. I'm not just saying that! That's why I love working where I do because I want with all my heart to make every day count and the best that it can be. Keep going! Dan.

  • LOL!!! that's awesome! thanks it gets hard sometimes. i'm trying out for drumline and we have to stand at practice for to hours and after a little while my feet start ro hurt. it's great that you want to help people with MD and it's a good think that you're doing. you keep going as well!

  • hey kid, just wanted to say I'm sorry about your condition and I think your heaps cool and you look like a friendly outgoing kid, you probably do have a lot of friends because of your great personality. Keep up what you do and ignore all those haters :).