Louis Growing up - Critical Aortic Stenosis 2/3 Year's after Surgery

[andie361]

I am a 40 yr old a/s survivor, hehe. I wish your son all the health in the world! 

[Durrantina]

My son had critical aortic stenosis at 6weeks of age....... He is now 14 and 2 open heart surgeries later.....tiz a tough haul and i keep my sanity by treating him as any other child/adolescent.

Its our life but i would love to be a member of a support group for it. I live in Western Australia.

[lynnbrum]

Hi, Louis had just had his 2nd Open Heart Surgery at the age of 5.5 and it was to replace the pulmonary valve, he was in and out in 5 days which was amazing !!! I am a member of Heartline Forum which is a VERY supportive group for all heart defects. I now have lots of grey hair LOL ;)

[StretchPhotography]

Hi. I grew up with aortic stenosis from a bicuspid aortic valve, and had a Ross Procedure when I was 43 years old.

You have a beautiful and wonderfully mischevous-looking little boy.

May he have decades of heart health ahead of him!

[Durrantina]

were you given the option of a prosthetic valve and warfarinisation??????? How did it happen for you?

[lynnbrum]

@Durrantina

No we wasnt given the option of what valve would be used. It was a pig/cow valve.

[lynnbrum]

@StretchPhotography

Thank you he is full of life X

[mammabutterfly75]

my daughter had a vsd closure at 22 months so I know how scary heart surgery can be I almost wish they had done her surgery early like they did his because it was so hard waiting everyday knowing she still had to have it done

[walterdoti]

HI! I´m writing from Argentina (sorry for my poor english). My son Ian is also affected by an A/S. He is now 5 years old and he was treated by a baloon catheterization. ¡He is incredible perfect!

Me and my wife celebrate your succesfull story from the distance.

LOve,

Walter, Silvana, Paloma and Ian

[tmttcd04]

Our son Donovan was born with mod-severe A/S, but we "got away" with baloon catheterization at Phoenix Children's hospital. Right now he has the "treat him like a normal kid" prognosis from the docs. 40 years ago a family member died from this a few days after birth. What a long way things have come! Still not looking forward to the replacement. We thank God for every day.

[Durrantina]

my son has arotic stenosis and has already had 2 x open heart valvotomies..... His diagnosis is moderate now. He also had a balloon dilatation which did not last very long.... My Cardiologist reccommends the Ross

[amandawilson81]

He is adorable. My son has Aortic Stenosis. He is 5. He wont have to have a valve replacement til around the age of 10.

[Sweeper1964]

Hi Lynn, I hope Louis is doing fantastic :]

[alanda5458]

He is soooo handsome and is getting very big!! I enjoyed this soo much!! He makes me soo excited to see my son grow :)