Spinal Muscular Atrophy - Shira Fisher News October 05

[Finkemeier525]

Thank you so much for sharing this. My daughter also has Spinal Muscular Atrophy Type 1. She is now 11 months old and unfortunately getting a tracheotomy this week actually. Keep your heads up and know that she is beautiful and very special in her own way!!! :-)

[Jolley185]

It hurts me that my father can't be there like you are for your great daughter! She will love you with all her heart and she knows what you are doing for her. She is truly blessed!

[subhendu55]

heartrending......

[lolawilson]

My niece had Type 1 Sadly She died 2 weeks after her 1st birthday

[Shira2]

@lolawilson Sorry to hear this. SMA is a terrible disease! Prayers and healing thoughts to you and your family!

[FlyinHyy]

sending hugs and prayers

[sylviesangels]

such a doll!

[mommasmith1977]

how's your daughter doing now? Within 5 minutes of having my baby boy on 10-12-06 I knew something did'nt seem right with him and by 10 weeks old he was having seizures and was diagnosed with tuberous sclerosis on 12-26-06. Kasey's first year was full of many seizures.Videos like yours and mine break my heart our babies are so strong!! Take care

[Shira2]

Thanks for writing. OUr daughter Shira is a fighter and is doing great for a child with SMA Type 1.  We have many struggles and many moments of joy. I wish you strength and peace in the care of your daughter. Give her a hug from us here. Brad