I agree with Carrigon, sometimes flagyl works where doxy fails. I don't think you were being sexist at all when you mentioned it affecting masculinity. I feel in many ways this illness attacks our identity and sense of self in every way imaginable, beyond just the physical problems and yes that would include your sense of masculinity or a woman's femininity as well. Btw doxy does almost nothing for me and i definitely have Lyme.
Hello my friend. I, too, am a man with M.E., and I think that we should talk more about this!!
I do not think that the statistics are correct either. More and more men are reporting M.E. /CFS /Lyme /POTS (All the invisible diseases) type of symptoms. I think it is a very dangerous thing to focus on this (these) as a female disease.
I am with you (and all others!) in this journey of survival --and in educating others about it. Great, great work!!
There's a huge misconception that not alot of men get this. I have known many men over the years with this disease. I think men just don't speak out about it as much, but we're seeing more of them speak as years go on.
You could be Lyme, too. It's hard to tell. The Lyme tests are not accurate.
Pushing can make it worse, as in permanent bedridden, I've seen it happen. Pacing is so important.
You may well be right. i know it is said there are more women than men how have ME/CFS, but I am not sure of the percentage. I think you are right about men finding it hard to talk about things like this. I think most men find it difficult to talk about or deal with any illness. It is a shame as it would help other men to not feel alone in having it. As for Lyme...Who knows I had tests that were negative, and tried high doses of Doxy for a few months but it had no effect.
In a case like yours where you are getting visible spasms and such, I would want you on antiprotozoals. I'd try hitting it with quinine, flagyl, maybe a combo of clindamycin and quinine. I'd go after parasitic diseases and see if any treatments for them help. And I'd up your magnesium and vitamin D intake.
@niknik54100 i have been pushed from pillar to post same hospital as you and others too and no help at all negative tests ....the nhs test for lyme is not accurate at all they always come back negative .......i have just paid to see a dr who knows about lyme and how to treat it ( long term antibiotics ) i have just had bloods done and they are being sent to USA as their test is a better test than ours
I agree with Carrigon, sometimes flagyl works where doxy fails. I don't think you were being sexist at all when you mentioned it affecting masculinity. I feel in many ways this illness attacks our identity and sense of self in every way imaginable, beyond just the physical problems and yes that would include your sense of masculinity or a woman's femininity as well. Btw doxy does almost nothing for me and i definitely have Lyme.
neelubird 2 years ago
Hello my friend. I, too, am a man with M.E., and I think that we should talk more about this!!
I do not think that the statistics are correct either. More and more men are reporting M.E. /CFS /Lyme /POTS (All the invisible diseases) type of symptoms. I think it is a very dangerous thing to focus on this (these) as a female disease.
I am with you (and all others!) in this journey of survival --and in educating others about it. Great, great work!!
DrFrankyDolan 2 years ago 2
There's a huge misconception that not alot of men get this. I have known many men over the years with this disease. I think men just don't speak out about it as much, but we're seeing more of them speak as years go on.
You could be Lyme, too. It's hard to tell. The Lyme tests are not accurate.
Pushing can make it worse, as in permanent bedridden, I've seen it happen. Pacing is so important.
Carrigon 2 years ago
You may well be right. i know it is said there are more women than men how have ME/CFS, but I am not sure of the percentage. I think you are right about men finding it hard to talk about things like this. I think most men find it difficult to talk about or deal with any illness. It is a shame as it would help other men to not feel alone in having it. As for Lyme...Who knows I had tests that were negative, and tried high doses of Doxy for a few months but it had no effect.
kaazoom 2 years ago
In a case like yours where you are getting visible spasms and such, I would want you on antiprotozoals. I'd try hitting it with quinine, flagyl, maybe a combo of clindamycin and quinine. I'd go after parasitic diseases and see if any treatments for them help. And I'd up your magnesium and vitamin D intake.
Carrigon 2 years ago
@kaazoom hi can i just tell you my story i really would like to help you
niknik54100 1 year ago
@niknik54100 i have been pushed from pillar to post same hospital as you and others too and no help at all negative tests ....the nhs test for lyme is not accurate at all they always come back negative .......i have just paid to see a dr who knows about lyme and how to treat it ( long term antibiotics ) i have just had bloods done and they are being sent to USA as their test is a better test than ours
niknik54100 1 year ago
@niknik54100 Yes,send me a message.
kaazoom 1 year ago
Hi, i left a comment earlier,
i forgot to mention my friend called kevin had ME, he is now cured of it,
Im not sure how or what he did but i will try and find out..
I know he mentioned being tested for adrenal exhaustion one time.
from what i have read stage 3 adrenal fatigue can cause ME.
check out dr lam adrenal fatigue
BUT I AGREE SOME OF YOUR symptoms dont seem like ME
bamptonbred 2 years ago