Just came across this video again today. I miss you, lum. You are a hero and all your work has not been in vain. Wishing you lots of love always. Margaret LoLv.
Kaazoom, I agree with what you said and add my thanks to LuminescentFeeling. The videos were a good source of info for me when I first began looking beyond what the doctors were telling me. I can understand how one could become battle weary. LuminescentFeeling, I just want you to know I appreciate what you've done. I wish you health.
Luminescentfeeling, PLEASE COME BACK. Your videos were extremely beneficial to many, as were your comments and co-support. Hope to see you again soon.
Luminscentfeeling - really sad to discover this evening your account closed - admire you and work you have done for a long time - hope you are okay and able to continue your creative artistic work - hope absence temporary - you are missed -
People can be mean online too, so u never know. Sometimes the pressure of trying to be social is too much for me cause it's so hard to get along with others at times.
Reading between the lines, I think he may have had pressure put on him to remove them. He is OK, but the person who contacted him for me said Luminescent didn't want his reason for removing his account discussed with others. He has also canceled his email account so their is no way of contacting him again. Please note -I am only speculating that he was put under pressure. I am sure he upset many people with vested interests in trying to make ME/CFS disappear.
Thank you very much for your reply. It's just odd as he could have changed his youtube subscription to a "fake" email so he wouldn't get bothered by anyone then just left the channel open. Very weird. It's a shame he was my main news source.
What the hell happened? I just went to check to see if I had missed any videos of his and they are gone and the account has gone? Why the hell would he not have left the vids up?
thx Paul I was wondering what happened to Luminescentfeeling recently, did alot of work and uploading and been here for some time and a huge contributor for ME/CFS. glad to know OK and hope back as soon as up to it. healing blessings. namaste
Thanks for posting this vid. I totally agree with you Paul, he has made a great contribution to the ME community and deserves all our support and appreciation. People were asking about him on the FF forum so it's a relief to hear he's okay.
I agree the Drs trained to neglect video in particular was excellent.
PLEASE COME BACK. Where else will I get the best and latest info on this horrible disease I have. I am too tired to look for hours through all the data on the internet. You always put up the most important news and info...
Luminescentfeeling, i'm glad to hear you are well. And yes you have done admirable work.
People have contacted me regarding your account being closed. And i was wondering if it is at all possible to maybe take it over from you? That is if the account can be reinstated? We would be happy to continue your work.
Thanks for your videos and advocacy! Please consider reposting them & putting your channel back up even if you don't post anything new. There was some great stuff that isn't avail anywhere else.
Thanks for making this video. It's good to know that Luminescentfeeling is all right. Hope he's reading this and knows how much he is appreciated. And I hope he takes care to have a break from stress. but carries on with his creative artistic work - he is really talented. All the best to you Luminescent!
Thank you so much for posting this! Luminescentfeeling created advocacy videos which were also art. His voice is unique and among the most compelling we have. I hope his absence is temporary. I will miss him so much!
Thank you for communicating that luminescentfeeling is well. His videos were a wonderful resource and I'm sad to learn that they're no longer available.
I wish luminescentfeeling all the best.
Thank you to everyone who works on CFS/ME awareness in this often hostile world.
I too would like to add my very best wishes to him.Also not least my thanks and admiration in the face of adversity in promoting with such vigour the plight of so many sick people. It is nothing short of a disgrace and human tragedy that vulnerable sick people have to fight year in year out in promoting what those who have authority over them know but choose to deride. Truth always wins the day eventually..this will be no exception.
Thanks for posting this. I want to add my good wishes to luminescentfeeling, as well as my thanks for everything he has done. He has helped me, and many others, to learn more about ME/CFS and to be able to make our own small contributions.
THANK GOD lum is OK. He is and always be a hero who is dearly loved and beloved. I hope we learn to carry his baton, and I hope we do it with the same true grit and determination which lum has exhibited.
Lums videos may be away, but no one can ever take away our memories...YES!
Our love and support to you, doc lum, 100%! I hope you rest knowing that the fight does go on, and that you have left us a legacy that no one can ever take away from us.
I sincerely hope luminescentfeeling is O.K. His video's were excellent and have helped many to understand some of the problems faced by thousands of people suffering from ME.
Luminescentfeeling, sending you xoxo's across the pond and letting you know that I never gave up. I think of you daily and send you all of my love.
DysautonomiaMD 1 month ago
Just came across this video again today. I miss you, lum. You are a hero and all your work has not been in vain. Wishing you lots of love always. Margaret LoLv.
DysautonomiaMD 10 months ago
Kaazoom, I agree with what you said and add my thanks to LuminescentFeeling. The videos were a good source of info for me when I first began looking beyond what the doctors were telling me. I can understand how one could become battle weary. LuminescentFeeling, I just want you to know I appreciate what you've done. I wish you health.
ixchelkali 1 year ago
Luminescentfeeling, PLEASE COME BACK. Your videos were extremely beneficial to many, as were your comments and co-support. Hope to see you again soon.
Suzanne42 1 year ago
Luminscentfeeling - really sad to discover this evening your account closed - admire you and work you have done for a long time - hope you are okay and able to continue your creative artistic work - hope absence temporary - you are missed -
33deepblues 2 years ago 2
People can be mean online too, so u never know. Sometimes the pressure of trying to be social is too much for me cause it's so hard to get along with others at times.
ironbith 2 years ago
I don't get why he would have gone and deleted his account? Why not just keep it open?
LewisDre4m 2 years ago
Reading between the lines, I think he may have had pressure put on him to remove them. He is OK, but the person who contacted him for me said Luminescent didn't want his reason for removing his account discussed with others. He has also canceled his email account so their is no way of contacting him again. Please note -I am only speculating that he was put under pressure. I am sure he upset many people with vested interests in trying to make ME/CFS disappear.
kaazoom 2 years ago
Thank you very much for your reply. It's just odd as he could have changed his youtube subscription to a "fake" email so he wouldn't get bothered by anyone then just left the channel open. Very weird. It's a shame he was my main news source.
LewisDre4m 2 years ago
What the hell happened? I just went to check to see if I had missed any videos of his and they are gone and the account has gone? Why the hell would he not have left the vids up?
LewisDre4m 2 years ago
thx Paul I was wondering what happened to Luminescentfeeling recently, did alot of work and uploading and been here for some time and a huge contributor for ME/CFS. glad to know OK and hope back as soon as up to it. healing blessings. namaste
CherylSpeaksOut 2 years ago 5
Thanks for posting this vid. I totally agree with you Paul, he has made a great contribution to the ME community and deserves all our support and appreciation. People were asking about him on the FF forum so it's a relief to hear he's okay.
I agree the Drs trained to neglect video in particular was excellent.
neelubird 2 years ago 6
Luminescentfeeling I'll miss you and your video's especially those where doctors in the UK are trained to neglect.
s5044726 2 years ago 6
PLEASE COME BACK. Where else will I get the best and latest info on this horrible disease I have. I am too tired to look for hours through all the data on the internet. You always put up the most important news and info...
sleepalot2 2 years ago 7
Dearest Luminescentfeeling,
You have been a hero in the fight against the automatons, and I salute you.
The quest for discovery and preservation of truth is the thing that matters, and I am proud to know you.
Khaly
Khalyal 2 years ago 8
Luminescentfeeling, i'm glad to hear you are well. And yes you have done admirable work.
People have contacted me regarding your account being closed. And i was wondering if it is at all possible to maybe take it over from you? That is if the account can be reinstated? We would be happy to continue your work.
Let me know.
Carla
Diagnose Support
diagnosesupportcom 2 years ago 6
Luminescent-
Thanks for your videos and advocacy! Please consider reposting them & putting your channel back up even if you don't post anything new. There was some great stuff that isn't avail anywhere else.
glad you are ok.
justinreilly1 2 years ago 7
Thanks for making this video. It's good to know that Luminescentfeeling is all right. Hope he's reading this and knows how much he is appreciated. And I hope he takes care to have a break from stress. but carries on with his creative artistic work - he is really talented. All the best to you Luminescent!
23andromeda 2 years ago 6
Luminescent Feeling
Hope you are as OK as possible.
You are being missed!
flopsyuk 2 years ago 7
He will be missed! Thanks for speaking truth to power!
oreganooilz 2 years ago 8
Thank you for all you have done. Take care and look after youself. Missing you.
joyscobby 2 years ago 8
Thank you so much for posting this! Luminescentfeeling created advocacy videos which were also art. His voice is unique and among the most compelling we have. I hope his absence is temporary. I will miss him so much!
WithMetta 2 years ago 8
I will miss your videos luminescentfeeling, thankyou for all you have done for ME/CFS. god bless
maureenjessica 2 years ago 7
This has been flagged as spam show
What happened? Luminescent feelings uploads were the best.I smell foul play. I bet somebody intimidated him. Another lifeline lost for ME sufferers.
sleepalot2 2 years ago 3
Comment removed
sleepalot2 2 years ago
Thank you for communicating that luminescentfeeling is well. His videos were a wonderful resource and I'm sad to learn that they're no longer available.
I wish luminescentfeeling all the best.
Thank you to everyone who works on CFS/ME awareness in this often hostile world.
WackyLisa 2 years ago 8
I too would like to add my very best wishes to him.Also not least my thanks and admiration in the face of adversity in promoting with such vigour the plight of so many sick people. It is nothing short of a disgrace and human tragedy that vulnerable sick people have to fight year in year out in promoting what those who have authority over them know but choose to deride. Truth always wins the day eventually..this will be no exception.
sly1958 2 years ago 8
Thanks for posting this. I want to add my good wishes to luminescentfeeling, as well as my thanks for everything he has done. He has helped me, and many others, to learn more about ME/CFS and to be able to make our own small contributions.
ptharcourt 2 years ago 7
THANK GOD lum is OK. He is and always be a hero who is dearly loved and beloved. I hope we learn to carry his baton, and I hope we do it with the same true grit and determination which lum has exhibited.
Lums videos may be away, but no one can ever take away our memories...YES!
Our love and support to you, doc lum, 100%! I hope you rest knowing that the fight does go on, and that you have left us a legacy that no one can ever take away from us.
Thank You and We All Love You so Much!
Margaret
DysautonomiaMD 2 years ago 11
I sincerely hope luminescentfeeling is O.K. His video's were excellent and have helped many to understand some of the problems faced by thousands of people suffering from ME.
Thank you for posting this update.
StopUnumNow 2 years ago 11