I am 33 years old I was just diagnosed a few weeks ago my copper content spiked from 380 to 860 in a month before medication I have not been given. We results yet to see if numbers are stabile or declining. I am so grateful for your videos I'm inspired to start a video blog. Please pray got me I am so vulnerable
i'm so overwhelm with all the information i've found about this disease. i started off in biochemistry class having to do to learn about this disease. Then I had a bio. research class and I started doing a literature review, and for my senior independentt study i'm examining why this disease is express the same patients, but with european patients and asian patients have the mutation at a different location on the chromosome. i wish this disease well more well known
I have switched over to Gluzin 9 months ago. I have had my test last month, everything looks normal. No symptoms! Gluzin is great! I had hard time getting my hands on Galzin, it seems everytime my doctor tried to place the order for me, it was in backorder. But with Gluzin, I order right online and I get my zinc in a few days in the mail.
My daughter and I both have WD. I have been on Galzin for over 8 years. After getting the Copper Connect on Gluzin from WDA. We had made the switch from Galzin to Gluzin more than 9 months ago. I am on Gluzin 50 mg, while she is on Gluzin 25 mg smaller capsules, because she has a hard time swallowing. My daughter's recent test came back normal. I have a few oversea friends that have a difficult time getting a good quality Zinc product - now they can order Gluzin for their WD treatment!
@AUSSIEDAVEROCKS I just had a blood test today checking for Wilson's Disease. I went to the neurologist for a sudden movement disorder. My tremors are more like sways and I have an ataxia gait when I try to walk without my cane. Did your sister's tremors seem this strong or just shaking in general. (Not meaning to belittle her movements. Just making a comparrison.)
God bless this lady,she is doing a good thing bringing this unknown disease to the forefront,I lost my brother Jared Kerns to the same disease,he got cheated out of life by this disease and the beureaucratic health care system of California.
The same happened to me too. I had Wilson's disease and then livertransplant. I waited for a liver for 6 days on the top of the list. It was a half year ago and now I'm doing well, but it was good to see that I'm not the only one with this story. :)
thank you for this interview. It was informative and educational, but most of all touching. I can use what learned here on my project on Wilson's disease.
Little-known, but highly treatable disease. Should be routine screening for copper levels in kids, to treat BEFORE the hepatic/neurologic damage. We just had the first annual Wilson's fundraiser in Chicago - raised $10K!
I am 33 years old I was just diagnosed a few weeks ago my copper content spiked from 380 to 860 in a month before medication I have not been given. We results yet to see if numbers are stabile or declining. I am so grateful for your videos I'm inspired to start a video blog. Please pray got me I am so vulnerable
Yogadanlive 1 month ago
i'm so overwhelm with all the information i've found about this disease. i started off in biochemistry class having to do to learn about this disease. Then I had a bio. research class and I started doing a literature review, and for my senior independentt study i'm examining why this disease is express the same patients, but with european patients and asian patients have the mutation at a different location on the chromosome. i wish this disease well more well known
hukanny 4 months ago
I have switched over to Gluzin 9 months ago. I have had my test last month, everything looks normal. No symptoms! Gluzin is great! I had hard time getting my hands on Galzin, it seems everytime my doctor tried to place the order for me, it was in backorder. But with Gluzin, I order right online and I get my zinc in a few days in the mail.
jbunter82 9 months ago
My daughter and I both have WD. I have been on Galzin for over 8 years. After getting the Copper Connect on Gluzin from WDA. We had made the switch from Galzin to Gluzin more than 9 months ago. I am on Gluzin 50 mg, while she is on Gluzin 25 mg smaller capsules, because she has a hard time swallowing. My daughter's recent test came back normal. I have a few oversea friends that have a difficult time getting a good quality Zinc product - now they can order Gluzin for their WD treatment!
SaraH5281968 9 months ago 8
I have Wilson's too but I still have my own liver right now. (I'm 42)
But you know that it effects different people in different ways.
My sister and I both have the disease but ours was late onset Wilsons.
(I was 18 when my sister was diagnosed but I still showed no signs of it then.)
I have the KF Rings and hepatic sypmtoms (Enlarged Spleen, etc.) but no neurological effects.
Unfortunately my older sister does have the neurological symptoms including tremors and psychological changes.
AUSSIEDAVEROCKS 1 year ago
@AUSSIEDAVEROCKS I just had a blood test today checking for Wilson's Disease. I went to the neurologist for a sudden movement disorder. My tremors are more like sways and I have an ataxia gait when I try to walk without my cane. Did your sister's tremors seem this strong or just shaking in general. (Not meaning to belittle her movements. Just making a comparrison.)
dmgodfrey 1 year ago
I FUCKING LOVE CHOCOLATE<3
TheDcassa29 1 year ago
Im using 30 seconds of this for my biology project if you don't mind. Thanks!
BenGandNickL 2 years ago
God bless this lady,she is doing a good thing bringing this unknown disease to the forefront,I lost my brother Jared Kerns to the same disease,he got cheated out of life by this disease and the beureaucratic health care system of California.
dogstar1967 2 years ago
i havee wilsons ddiease too n i got a liver transplant n eveything but i wanna kno how long will it take to recover?
shammybaby 2 years ago
you can flush excess copper from your system
soggyleftovers 2 years ago
The same happened to me too. I had Wilson's disease and then livertransplant. I waited for a liver for 6 days on the top of the list. It was a half year ago and now I'm doing well, but it was good to see that I'm not the only one with this story. :)
a 17 year old girl from Hungary
Tagban20062010 3 years ago
hey ur not only the one with wilsons i had it too!! And my 1 anniversary is this month:)
najma8sirah 2 years ago
woow i celebrated my first "birthday" on the 10th of july. :)
Tagban20062010 2 years ago
I'm doing a project on wilson's disease for school. This video helped alot, thanks for posting :)
XLoveLaughDanceX 3 years ago
thank you for this interview. It was informative and educational, but most of all touching. I can use what learned here on my project on Wilson's disease.
herndon5 3 years ago
i have wilsons disease too! omg i cant have chocolate it sucks!
nikki395 3 years ago 7
My friend's son has been diagnosed...which is why I've been learning about it online. Thank you for posting!
hooptastic1 3 years ago
Little-known, but highly treatable disease. Should be routine screening for copper levels in kids, to treat BEFORE the hepatic/neurologic damage. We just had the first annual Wilson's fundraiser in Chicago - raised $10K!
roadrattler 3 years ago