" CFS .......but you don't 'LOOK' sick!!! "

[iluvgh3tt0princ3ss]

With the sickness and all, how were you able to even learn how to drive?

[Suzanne42]

@iluvgh3tt0princ3ss I've had this illness for almost 12 years. During the first several years I was unable to drive. It's been a slow, slow climb out of bed, then walking again, then driving again, although I am still quite ill. I have always been very strong willed, so I think that perserverence, over time, has helped me to function better. Thanks for the comment!

[indemnis4]

Good point.

[ecftube]

Thanks for your video.....wanted to offer anyone interested a Lyme disease brochure. Wrote this with the help of 2 Lyme specialists. Will email to anyone interested. God bless

[Suzanne42]

I just watched your video, and it looks like you put together a very informative piece of information. It's wonderful that you did this!

[luminescentfeeling]

Great video. I like your attitude you're a really informative person yet calm and collected and able to express how you feel so well.

I'm sure it must be hard as a woman to have to look 'nice' (e.g. make up/hair/nails/lipstick) etc when you have your condition.

As a guy I don't have to do any of those things you ladies do, I just cut my hair off and look like I came out of boot camp! So I appreciate the difficulties you describe of having to do these extra things. Take care.

[Suzanne42]

Thanks for your comments. I really appreciate it. I'm posting another video this afternoon, so come on by!

[artsyfart66]

Hey Girl,

First of all, My condolences.

Secondly, you don't look sick, you look great! : )

I know it takes us so long to do simple things only to exhaust ourselves after wards. I hope you have recovered from that day. We should get awards like you mentioned...totally!

[Carrigon]

You sound just like me. And no one believes me that I'm really sick. I have to rest up to do anything. Makeup now is just concealer and lipstick. Once a year, I might do something with my eyes, but only if I have to.

I can't be around alot of people much. The noise, the lights, the sensory input nearly kills me. People don't understand why I leave and won't socialize. They think I'm being stuck up or something. But the reality is, I'm just too sick.

Lots of hugs :D

[peterpauliepan]

i understand. the sympathetic system being over active in lyme patients can really ruin our days. on one hand we need the burst of adrenaline to actually get up and be active but on the other it makes us more exhausted and twice as worn out in the end.

i had to get up and get dressed yesterday to go to brunch and a dance concert and i had to lay down before we left. just getting dressed wore me out. i'm sure nobody knew that i was having a very hard time yesterday.

[Suzanne42]

I'm sure all of the activity wore you out. I hope the brunch and concert went well.

[WillowDove40]

Thanks for posting this. I have heard that so many times. It's frustrating! I have lupus and fibro and a few other issues. Most people don't even know what those things are. I look fine to them. They think I'm just lazy and anti social. Sigh. Thanks for understanding. Love and Light.

[thane17]

Thanks for providing a snapshot of what a lymie has to do to pass as normal in society. My good buddy came by tonight and I was telling him how well I have learned to B.S my way through anything while I am so sick. It has become an art that i've been practicing a long time. I can put on a three minute performance and then I need to make my escape before it all collapses.

[Suzanne42]

Yep! Maybe one day there'll be an awards show for us! You know....best performance, best make-up, etc. LOL It just feels goooood to know we're not all alone in this journey.

[Carrigon]

I call it "passing for well". But we can never keep it up for long. I've actually had guys I dated tell me that they could see I wasn't okay. So I guess even trying hard, it just doesn't work for very long.