Lymphatic Malformation Video Two

[ricosalb]

Do you still work on rising awareness? Is it possible to add you on FB?

[roxygirl203]

i have the same thing except on the side of my face. its small and i dont notice it at times but everyone else does. im 15 and its my second year in highschool and its horrible on how judgemental people are , ive had surgery but it keeps coming back. id love to know how you learnt to cope with things.

[JerbiLou]

Hi thanks for your message :)

First of all it's great that you don't care about it, as for others noticing it, if their being judgemental about it they aren't the most open minded people out there. I had alot of trouble during my time at highschool and I still speak to ignorant people now. It's taken me a long time to learn to cope with it but being true to yourself is the main thing.

[JerbiLou]

I have kept a diary over the past year about my ups and downs and the treatment that I recieve. It's helped me, however at the end of the day your true friends and family love you for who you are not what you look like and they're all that count.

[sunclov]

damn, you so pretty. And you seem to have a positive attitude.

[JerbiLou]

Thank you. I think you need a positive attitude for something like this. There's alot of medical help out there in certain places however it's unknown and not alot of doctors know about this condition and because it's so rare neither do the public which is something i want to change! xx

[fatneil10m]

Surely all your true friends loved you for WHO you are and not anything else. Plus, since when have P.E teachers been the best thinkers?

[JerbiLou]

It is at times but, its just something i've learnt to get on with :) xx

[JamesPoel]

You speak a lot of sense, Jerbi!

Sounds like something thats hard to live with.