You claim a person can live a normal life and work....BULL.... This dreadful disease killed my Mom, Sis & more family members. I've suffered for 19 years & now bed ridden, can't walk and came from a professional career that I had to leave.. There are NO medications that help, only relieve SOME of the symtoms,yet make you gain so much weight. I want my life back........ Hebrews 11:1 'FAITH"
I am very set back financially because of this disease...and need help. I fear losing my home. I have lost so much of my life's abilities due to severe photosensitivities...feeling very alone in Wisconsin...that Chapter is not active at this moment and have not heard from them...could you tell me...
I have Lupus and the Discoid on my face also...I have failed most all treatments...I have had some success with prednisone orally, plaquenil, and Imuran...topically Clobetasol is the first to help in seven years of treatment. I have has ointments, creams, laser, and more...all which failed...every day that I contact light source I would/will reflare...very photosensitive...and it does disable my life very dramatically...please help us find a cure...
You claim a person can live a normal life and work....BULL.... This dreadful disease killed my Mom, Sis & more family members. I've suffered for 19 years & now bed ridden, can't walk and came from a professional career that I had to leave.. There are NO medications that help, only relieve SOME of the symtoms,yet make you gain so much weight. I want my life back........ Hebrews 11:1 'FAITH"
LaLadyDJ 4 months ago
I am very set back financially because of this disease...and need help. I fear losing my home. I have lost so much of my life's abilities due to severe photosensitivities...feeling very alone in Wisconsin...that Chapter is not active at this moment and have not heard from them...could you tell me...
dooners2u 1 year ago
I have Lupus and the Discoid on my face also...I have failed most all treatments...I have had some success with prednisone orally, plaquenil, and Imuran...topically Clobetasol is the first to help in seven years of treatment. I have has ointments, creams, laser, and more...all which failed...every day that I contact light source I would/will reflare...very photosensitive...and it does disable my life very dramatically...please help us find a cure...
dooners2u 1 year ago