Neonatal Repair of TOF/PA

[ems19792002]

My wife had this done in 1979 when she was 6 mo. old her lips were blue everyday before the surgery. She is now 32 she still has a leaking valve but otherwise in pretty fair health. Its amazing how small these scars are my wifes id huge and very deep. she has 2 drain holes too that left bad scars too. But it saved her life so thats what counts.

[arthur835]

Wow wow wow - this is exactly the repair my little boy had 4 years ago - withour teams like those on this video he wouldn't be with us today....thank you all so so much x

[ishqo0o]

u r awesome.. love your job :) thank you so much

[amandinhaalabch]

q merda de video nada a ver

[mollym44]

wow this is way more realistic then greys anatomy

[Redmond111]

@mollym44 We hope these videos help to inform patients and families with CHD (Congenital Heart Disease), and caregivers who are interested in our latest techniques.

[paulebe525]

may i know about the strength of heparin? that provided?

i am a trainee nurse .B.Sc 3rd year...

[julianna4eva]

I love you Baby Kathrine!!!! You are truly a gift from God and a miracle to us all!!!! I love you SO much and after watching this, I am giving you the BIGGEST hug next time I see you Honey!!!! :-) God bless you<3

[Redmond111]

@julianna4eva

Kathrine is very lucky.

Sincerely,

Redmond Burke MD

[PauleQueenie]

After performing heart surgery (any type of heart surgery which involves dissecting the myocardic muscle) have you noticed a weaker or shallower heart beat in the recovering patients, due to the surgical dissection, even if minimal only? If so, do you know how long the myocardic contraction remain weaker or shallower?

Extremely interesting surgery, thank you.

[rollacosta123]

Hello, I am a medical student, and I have a question. Why was heparin administered into the RAA? Won't this increase the chance of bleeding?

[Redmond111]

@rollacosta123

We heparinize the patients to prevent blood clots from forming in the bypass machine.

Sincerely,

Redmond Burke MD

[DaFischQC]

Amazing work Dr. Burke! Brave men and women like you saved my son (Pulmonary Atresia with VSD). I thank his doctors and people who do what you do everyday! He is turning 6 this month and we couldn't be happier! Thank you more than you will ever know.

[DaFischQC]

We started in Iowa at Children's Hospital with Dr. Burkhart and crew, and now see a team at Boston Children's. Dr. Lock and his crew there at Boston Childrens are amazing as well (thought you might know him as you went to Harvard)

[Redmond111]

@DaFischQC

I know Jim well, he's great, as is the rest of the Boston team, you're in good hands.

Sincerely,

Redmond Burke MD

[Redmond111]

@DaFischQC

Happy to hear about your son, congratulations.

Sincerely,

Redmond Burke MD

[Redmond111]

@DaFischQC

We're always here if you need us.

Sincerely,

Redmond Burke MD

[BETHSANGIE]

Today I went to the appointment with the cardiologist for my son and he told me that is a small leaking of the blood and need to make correction of valve: (

[LoveAbleCharlene]

Hi Doctor. I was wondering if the OB/GYN were to catch this on ultrasound before birth, would there any cure or anything that can help remove the chances of surgery after birth? Could the hole close in the heart and the pulmonary valve not be narrowed when born by any chance? What causes this heart problem if the no one in the family has had it? And if no one in the family has had a 22q11 DiGeorge Syndrome, how come a new born baby can get this? By chance?

[Redmond111]

@LoveAbleCharlene

I hope your baby is OK, how is everything going?

Sincerely,

Redmond Burke MD

[LoveAbleCharlene]

My newborn baby is just a week old. She has TOF. Cardiologist said she'll be needing surgery earliest is 4months latest is 9 months. How long do you expect the baby to recover after the surgery and leave the hospital? And what further meds are given after surgery? Just found out today that she has DiGeorge Syndrome too and low on calcium. Will any of this change after the surgery for her to become healthy and live a normal life? I'm really worried right now. **sniff**sniff**

[BETHSANGIE]

DOCTOR, GOD BLESS YOU!!!

[Redmond111]

@BETHSANGIE

Thank you very much.

Sincerely,

Redmond Burke MD

[DitDitDah]

Completely stunning to watch, and I'm really impressed with the MD whose patience, articulate narration and compassion were captivating.

[Redmond111]

@DitDitDah

Thanks for the kind thought.

We're trying to empower patients and families, so that they can protect their babies.

Sincerely,

Redmond Burke MD

[ExarKenneth71]

Thank you for posting this, my sister's baby is getting ready to be born with this disease, he's to be born at the baby heart hospital, in GA, there's so much that we don't know about this ..........and even though I'd never show her, this has helped me alot.

[BETHSANGIE]

Mi hijo nacio con la condicion de tetralogia de fallot (tof) gracias a Dios fue corregida aqui en Tennessee. La operacion la hicieron a los 6 meses de edad por el angelito que Dios nos mando Umar Boston. mi nino se recupero muy bien ahora tiene 2 anos y esta super bien gracias a Dios en 2 semanas le haran el chequeo para ver como va todo. Mi nino aun no habla pero para eso resivira terapias pero gracias a Dios esta bien despues de esta operacion y otra del rinon llamada hydronefrosis

[BETHSANGIE]

My son was born with the condition of tetralogy of Fallot (TOF) was corrected thanks to God here in Tennessee. The operation was made at 6 months of age by the angel that God sent us Umar Boston. my child recovered well now he is two years old and is super well thanks to God in two weeks they will check him with a EKG to see how everything goes. My child does not speak yet but he will receivetherapies but thankfully hes okay after this operation and one of the kidney called hydronephrosis

[Redmond111]

@BETHSANGIE

I hope all is well with your son.

God Bless.

Redmond Burke MD

[lucky070808]

my son is suffering from pulmoanry atresia+vsd+mapcas.now he is doing well and spo2 is 83 to 85,now my son's age is 9 months.how many surgeries he needs after surgery will he leads normal life.please tell me doctor....thanks in advance

[Redmond111]

@lucky070808

[Redmond111]

Respond to this video...

Please contact my office if you would like us to evaluate your son's condition. I'm sure he is being cared for by a dedicated team.

Sincerely,

Redmond Burke MD

[lucky070808]

my son is suffering from pulmonaryatresia+vsd+mapcas,no­w his spo2 is 83 to 85 now his age is 9 months.how many surgeries it takes after surgery will he lead normal life....please tell thanks in advance..

[Redmond111]

@lucky070808

This is a challenging problem, and may take many operations and catheterizations to treat. I hope your son is doing well.

Please let me know if you need help.

Sincerely,

Redmond Burke MD

[SANDRAYLEE]

WOW....May GOD continue to bless you and your team to continue with miracle work... THANK YOU

[Redmond111]

@SANDRAYLEE

Thanks for your kind thoughts and prayers.

Sincerely,

Redmond Burke MD

[BabyBreezy22]

Dr. Burke, what was that plastic-like tube that remained inside as you closed the baby up?

[Redmond111]

@BabyBreezy22

We leave drainage tubes in the chest at closure to drain any blood or fluid out of the chest. The "Chest tubes" are pulled on the first or second day after surgery when the bleeding stops.

Sincerely,

Redmond Burke MD

[lucky070808]

HI doctors my son was borm with vas+pulmonary atresia+mapcas.how we can solve this we can this.if any donate heart we can use this heart .i cant see my son with multiple surgeries.

[annepabito]

DR. BURKE, YOU AND YOUR TEAM ARE AMAZING.. MY FIRST BORN SON HAVE TOF WITH PULMONARY ATRESIA. HE WENT PDA STENTING A WEEK AGO. HIS SURGEON TOLD US HE MUST UNDERGO OPEN HEART SURGERY SOON.. I'M GLAD TO KNOW A SURGERY TO CORRECT TOF/PA IS FEASIBLE. I PRAY THAT WE CAN RAISE ENOUGH FUNDS FOR HIS OPERATION. MAY THE GOOD LORD BLESS YOU.. ANNE P., PHILIPPINES

[annepabito]

DR. BURKE, YOU AND YOUR TEAM ARE AMAZING.. MY FIRST BORN SON HAVE TOF WITH PULMONARY ATRESIA. HE WENT PDA STENTING A WEEK AGO. HIS SURGEON TOLD US HE MUST UNDERGO OPEN HEART SURGERY SOON.. I'M GLAD TO KNOW A SURGERY TO CORRECT TOF/PA IS FEASIBLE. I PRAY THAT WE CAN RAISE ENOUGH FUNDS FOR HIS OPERATION. MAY THE GOOD LORD BLESS YOU.. ANNE P., PHILIPPINES

[annepabito]

DR. BURKE, YOU AND YOUR TEAM ARE AMAZING.. MY FIRST BORN SON HAVE TOF WITH PULMONARY ATRESIA. HE WENT PDA STENTING A WEEK AGO. HIS SURGEON TOLD US HE MUST UNDERGO OPEN HEART SURGERY SOON.. I'M GLAD TO KNOW A SURGERY TO CORRECT TOF/PA IS FEASIBLE. I PRAY THAT WE CAN RAISE ENOUGH FUNDS FOR HIS OPERATION. MAY THE GOOD LORD BLESS YOU.. ANNE P., PHILIPPINES

[sactownism]

Wow. Hope that baby is doing well. I'm a 20 years old man and I had 2 TOF surgeries so far. My first surgery was at the age of 5 and my second surgery was at 13. Just recently, I had a pacemaker implanted in me due to my heart beating too slow at night. Now, I'm going to have another TOF surgery soon. I like to thank all the pediatric and adult cardiothoracic surgeons for their work, especially my surgeon.

[Redmond111]

@sactownism

I'm sorry you have to have a third operation. Our goal is to give every patient a complete repair with a single operation. If you don't mind my asking, why do you need another procedure?

Sincerely,

Redmond Burke MD

[sactownism]

@Redmond111

I don't really know much about medical terms, but my doctor said something about replacing my pulmonary valve and another procedure to patch a small hole in my heart wall.

[Redmond111]

@sactownism

Hang in there. I hope the pacemaker helps. If your next operation is for your pulmonary valve, you should know that we have transcatheter pulmonary valve options now, which would allow you to avoid another open heart operation. If you need any advice, feel free to contact my team.

Sincerely,

Redmond Burke MD

[sactownism]

@Redmond111

I'll try to talk to my cardiologist about the valve you're talking about. If I have any questions, I will ask you. Thank you

[jennifersanchez78]

My daughter had her repair at 11 weeks. She had ToF with severe PS, a PFO, PDA, right sided aortic arch (vascular ring). She was having severe tet spells prior to her repair and ended up in the CICU on morphine and propranolol.

She is a super smart, fiesty three-year-old now! She already has some right ventricle dilation, and she has sinus node dysfunction, so a pace maker and valved conduit is in her future as well.

I am so grateful for how far ped card. throracic surg has come.

[sactownism]

@jennifersanchez78

I'm glad that you three-year-old daughter is doing well.

I just had a pacemaker surgery about a year ago and I don't even feel the pacemaker inside of me. I think it will take about a month and a half to fully recover from the operation judging from my experience. I wish your daughter the best and be strong.

[sactownism]

Wow. Hope that baby is doing well. I'm a 20 years old man and I had 2 TOF surgeries so far. My first surgery was at the age of 5 and my second surgery was at 13. Just recently, I had a pacemaker implanted in me due to my heart beating too slow at night. Now, I'm going to have another TOF surgery soon. I like to thank all the pediatric and adult cardiothoracic surgeons for their work, especially my surgeon.

[Redmond111]

@sactownism

I'm happy to hear you are doing well.

We try to perform complete repairs much earlier than 5 years of age now. And we are very careful about not damaging the electrical system of the heart so that patients don't need pacemakers.

Sincerely,

Redmond Burke MD

[chris09jazz]

I have a new grandson that was born on 3/5/10 with TOF.

I am in awe of what these doctor know and do.

The baby has to see a cardiologist in a couple of days to determine if he is going to need this surgery after he is four months.

I am hoping that his doctor can and will perform this surgery with success.

I am some what speechless to see this and think that he has to go thru this.

I hope I can see my grandson through this.

[Redmond111]

@chris09jazz

Dear Chris,

I hope your grandson does well, you are obviously trying to learn as much as you can to help him, and I applaud your efforts. Let me know if we can help you in any way.

Sincerely,

Redmond Burke MD

[liscarolyn]

Wow. I am a nurse and have never seen anything like this. My daughter has TOF/PA and had her first surgery at 4 days old. Her last surgery was at age 2. She is now eight and will have another surgery this spring. She does everything that other kids do and is my miracle baby. It's amazing seeing this. Thank you to all pediatric cardiovascular surgeons!

[Redmond111]

@liscarolyn

It sounds like you have been given great care at a good cardiac center, congratulations. I hope your daughter continues to do well.

Sincerely,

Redmond Burke MD

[Redmond111]

@liscarolyn

Congratulations, sounds like you're doing a great job with your daughter. I know how hard that can be when you're working in the medical profession. Sometimes it's worse if you know too much. I'm happy that this video helped.

Sincerely,

Redmond Burke MD

[Redmond111]

@liscarolyn

That's great, happy to hear your baby is doing so well.

Sincerely,

Redmond Burke MD

[Redmond111]

@liscarolyn

God Bless your baby.

Redmond Burke MD

[zendragon533]

This is amazing to me. My son had a ToF/PA repair done when he was 5 days old, he's now 20 months and doing wonderfully. It just amazes me that someone one day looked at a little heart and said "I think I can fix that" and that these surgeons today continue to "fix" these little hearts.

Thank You So Much,

Jen

[Redmond111]

@zendragon533

It is amazing, my generation of surgeons stands on the shoulders of giants, the surgeons who first thought what you said "I think I can fix that", a remarkable observation on your part. Good luck to you and your son.

Sincerely,

Redmond Burke MD

[Redmond111]

@zendragon533

It is beautiful. Glad your son is doing well.

Sincerely,

Redmond Burke MD

[Redmond111]

@zendragon533

It is amazing. I'm happy for your son.

Redmond Burke MD