I had a roommate in the mental hospital I was in 2009. He had the disease M.E and the psychiatrists forced heavy anti-psychotic drugs on him without his consent and he had no choice but to take them. They made him so much worse it was HORRENDOUS watching him suffer from what the psychiatrists were doing to him, I am only 22 and have witnessed the worst of the worst, they gave me a medication which I had to take and it made me throw up for 3 months giving me M.E as it destroyed my immune system.
Wow!! Greg and Linda that is just so true. You have a wonderful ability to be able to portray how many of us feel. A real sense of hope is given that this illness WILL be validated if we keep on pushing together. We are so undermined and isolated it is an outrage in this day and age when this is such a real and devastating illness. Thank you for sharing your videos, they are such an inspiration and really help to feel that we're not alone.
So Spot on Greg and Linda you are doing sooooo well. I have ME and I couldnt have put all this so well. Linda and I and hopefully loads of other ME sufferers out there are so very lucky to have fantastic loved ones in our lives and it is so unfair that not only does it grind the sufferers down but also our Loved ones/carers and they never signed up for that they just happen to love us SO huge thanks to all those who care and Good Luck Linda and Greg hope we are all on top of ME soon : ) xx
This is SO true. It's all part and parcel of that mentality of "you're doing it to get attention" or "having a cushy life getting other people to do things for you". I'd love to wave a magic wand and force them to live our lives for a week and see how happy they'd be to swap their busy and active lives for ours!
I wish more people were watching this too - its a great way to get the message across and I really like the references to writers, etc because the philosophical questioning goes to the heart of how serious illness affects a person's sense of being in the world. Best Wishes Paula.
Good for you Linda - it is a disgrace the way people with ME are being treated. I echo Nicole's sentiments - these videos are SO inspiring that I hope you decide to keep them going, maybe not daily but we do want to follow your progress. I am only sorry that more people aren't watching. God bless you both for your loving spirit and lack of bitterness, but righteous anger at your predicament. Nigel
I must confess that if I wasn't also severely affected, I'd probably rather not see those pictures, because as Greg has said himself, the suffering is huge and it's not easy to look at it. It sounds hard, but I'd wish it would not be true, not be there and not be possible that this long suffering exists.
I have just found your videos Greg, you and your wife are a beautiful couple, you are both in my thoughtsxx (I also suffer from M.E)
bublz31 1 year ago
I had a roommate in the mental hospital I was in 2009. He had the disease M.E and the psychiatrists forced heavy anti-psychotic drugs on him without his consent and he had no choice but to take them. They made him so much worse it was HORRENDOUS watching him suffer from what the psychiatrists were doing to him, I am only 22 and have witnessed the worst of the worst, they gave me a medication which I had to take and it made me throw up for 3 months giving me M.E as it destroyed my immune system.
835283 1 year ago
Wow!! Greg and Linda that is just so true. You have a wonderful ability to be able to portray how many of us feel. A real sense of hope is given that this illness WILL be validated if we keep on pushing together. We are so undermined and isolated it is an outrage in this day and age when this is such a real and devastating illness. Thank you for sharing your videos, they are such an inspiration and really help to feel that we're not alone.
Bacard888 5 years ago
So Spot on Greg and Linda you are doing sooooo well. I have ME and I couldnt have put all this so well. Linda and I and hopefully loads of other ME sufferers out there are so very lucky to have fantastic loved ones in our lives and it is so unfair that not only does it grind the sufferers down but also our Loved ones/carers and they never signed up for that they just happen to love us SO huge thanks to all those who care and Good Luck Linda and Greg hope we are all on top of ME soon : ) xx
Merekitty 5 years ago
This is SO true. It's all part and parcel of that mentality of "you're doing it to get attention" or "having a cushy life getting other people to do things for you". I'd love to wave a magic wand and force them to live our lives for a week and see how happy they'd be to swap their busy and active lives for ours!
neelubird 5 years ago
Greg,
Saved it to the PANDORA founder favorite list.
My best to you and Linda
Marla
pandoranet 5 years ago
Great video today. I'm sure more people will see these videos over time, as more and more people find out about them. Can only be a good thing.
Alexsk1 5 years ago
I wish more people were watching this too - its a great way to get the message across and I really like the references to writers, etc because the philosophical questioning goes to the heart of how serious illness affects a person's sense of being in the world. Best Wishes Paula.
paula2048 5 years ago
Good for you Linda - it is a disgrace the way people with ME are being treated. I echo Nicole's sentiments - these videos are SO inspiring that I hope you decide to keep them going, maybe not daily but we do want to follow your progress. I am only sorry that more people aren't watching. God bless you both for your loving spirit and lack of bitterness, but righteous anger at your predicament. Nigel
ivortick 5 years ago
I must confess that if I wasn't also severely affected, I'd probably rather not see those pictures, because as Greg has said himself, the suffering is huge and it's not easy to look at it. It sounds hard, but I'd wish it would not be true, not be there and not be possible that this long suffering exists.
bunnytothemoon 5 years ago
Well said Linda!
I'm getting used to that diary, I'll be missing you when the fortnight will be over.
Love
Nicole
bunnytothemoon 5 years ago