Oprah Show Idea: Faustman vs Type 1 Diabetes

[rogo1966]

Oprah must have been to busy giving away useless crap to her screaming fans and never had time for this very important cause.

[observerking]

Outstanding video, my sincerest regards!!!!

I have been to a warzone, but the greatest battle I will ever fight is with Diabetes T1!

[giraffer77]

I realize this was made 2 yrs ago BUT COME ON OPRAH!!!!  IM A TYPE 1 DIABETIC! And I'm only 13. I was diagnosed at only 10 yrs old!!! I don't want anyother child to go throug this .... Please!!!

[barrysarita]

YES YES YES - PLEASE OPRAY DO IT.

DR FAUSTMAN'S WORK IS SO PROMISING AND IF SUCCESSFUL WOULD DRAMATICALLY HELP MILLIONS OF KIDS AND ADULTS OVER TIME.

[lilmaddysmom]

Please join our network! maddyshope(DOT)com and share your experiences and expertise on our forum and help support other parents dealing with T1D.

[kenadyc]

I am 18, I have had this since I was 12.

i love my pump, my a1c is 6.4

with shots ( i was taking 14 a day) my a1c was never under 15

[IMCrazyQuick]

The JDRF isn't interested in curing diabetes. The JDRF knows that the money is in treating diabetes. It's simple economics. Nobody will ever market a cure for diabetes. Every two years a news story will come out about a promising discovery to cure diabetes and you never hear any more about it. It's all BS and there will never be a "MARKETED CURE".

[toranacar]

Unfortunately youre right. I think Dr Faustman is our only hope.

[toranacar]

Lets not forget there are other auto immune diseases which are more devastating more insidious. Motor Neuron disease for example which should emphasize the importance of Dr Faustmans work. Think of type 1 diabetes cure as a beginning and stepping stone to other auto immune disease.

[Grondhog]

we can still hope

[kenadyc]

Thanks for all the hope you give, jerk.

[IMCrazyQuick]

Face it kenadyc.... '"That IS reality". All your hope and donations aren't going to change big business and business doesn't get any bigger than pharmaceuticals. Now run off and bury your head again.

[peaceloveandballet]

if the drug is so common and inexpensive, why has it taken this long? and, i know this is pessimistic, but if this had any chance of working i would think JDRF and lots of other pharmaceutical companies would be dying to get their hands on it. i mean, who doesnt want to cure type one? but the fact that no one seems to be interested leads me to believe that its kinda "out there" if you know what i mean.

im saying this all as a type one diabetic, diagnosed november '07, when i was thirteen.

[IMCrazyQuick]

There is much more money to be made by "treating illnesses than in curing them". As long as they keep you alive you have to keep buying insulin, strips, needles, etc... If you were cured, it would be a one-time payment then"Poof" you're gone. That's why they won't cure it. They will keep promising a cure but you will never see it. I was 14 when I was diagnosed and that cure has always been 5 to 10 years off. It's a moving target they don't want to hit.

[lilsurelybeans]

@IMCrazyQuick I off and on agree with your sentiment. Although, there really aren't a ton of type 1 diabetics compared with type 2 diabetics. So, I'm not sure how much is being made off just us. NPH and Regular insulin are relatively inexpensive (unlike $100 a bottle Lantus). The test strips have the super high retail price, but type 2s (who won't be cured by Faustman) still need those.

The elderly=big bucks for pharma. No type 1 diabetes=more elderly people to sell Viagra to down the line.

[jbluvr123]

good video , wats sweet breath?

[curtis596]

Thanks! Sweet breath is a sign of DKA, which is life threatening and associated with undiagnosed type 1 diabetes. DKA can also happen with a type 1 when ill or lacking enough insulin.

[jbluvr123]

wats dka?

[Rh1no1]

Look it up. It's diabetic ketoacidosis. Do some research.

[ilovenickjonasx33]

email her people. seriously. they actually read their emails and watch these videos, i know for a fact.

[curtis596]

Thanks, I have emailed them. I will continue to do so.

[toranacar]

Has Oprah replied or showed any interest?

[curtis596]

I thank you for your continued interest. I have not received any feedback from any news organization. (I have sent to many)  I do receive great feedback from the D community and know that it is making an inpact. Many have contacted me about fundraisers and such. The internet is an amazing thing and who can say whose lap it will eventually land in?!

[bernfarr]

Great video. We have to raise $25 million to support the phase II trials. So we need to raise awareness of this NOW.

Note that the Iaccoca Foundation is now also sponsoring other diabetes research. So donating directly to Faustman lab is the BEST way of getting money to the research.

[curtis596]

Thanks, Bernard. I didn't realize that when I made the video. I need to start working on round 2.

[toranacar]

Will do :)

[toranacar]

Im surprised there hasnt been more interest on this site.

[toranacar]

I just made a donation. Hope everybody else does

[curtis596]

Thank you for donating! It really made my day to read this when I got home from a LONG visit to the

ER to find my type 1 son, who also has Celiac, is now dx'd with epilepsy. I kind of needed this pick me up. Thank you!

[toranacar]

My pleasure mate.

Try to keep your chin up, stay strong and positive and keep moving forward.

[toranacar]

I must say its great there are people out there who know how I feel. I have had type 1 for 24 years and others longer. When I see these kids in this movie clip I hope they don't have to put up with type 1 as long as I have, hopefully it will only be a short time in their lives, and hopefully it will be over soon for every body including myself of course as im 32 years old.

I often wonder how I would react when im finally cured. Or should I say if? I can only hope.

[toranacar]

Great idea, has Oprah responded?

I would love to know what she says.

[Vrastaman]

Great video! Has it been sent to Oprah's team?

[curtis596]

Yes it has. It has also (different version) been sent to all sorts of media outlets.

[tinycrack]

Great presentation. You can't help but keep reading & it's a much better way than mindlessly listening to/watching someone talk.

[curtis596]

Thanks for the suggestions. I really only put them in to give credit for some of the stats I used. I guess I could have worded it different.

I guess soon there will be "Round 2" :)

[ReginaChick]

Fabulous video. 2 points:

-Reinforce that Type 1 is not preventable in ANY known way (not related to obesity, etc.), and the world needs to know that Type 1 exists if we are to save children's lives and get donations.

-I would take JDRF/ADA out of the supporters list, if you are going to point out that they did not support Faustman in her quest for a cure.