Hello, my 2 ½ years he was recently diagnosed with Turner syndrome, mosaic 46XY this scares me a lot, but watching the video gave me hope that I'll have a normal life. This is what most desire with all my heart, that she has a normal, happy life. I hope to have the strength to accompany the whole process and in life. It was operated on for coarctation of the aorta and has seen many doctors, you see a white coat is a veterinarian so she cries and is scared. I hope these troubles happen soon.
hi everybody, i'm a T.S girl, I'm 24 years old and that didn't afecct me at all, if you see me, i'm like any common girl, we are special and we have to be united so we can be informed about our condition, i'm a musician, play violin and viola, I speak spanish , english and french! of course i'm under treatment, but hey life is just one and we have to enjoy it, so you and me have to be strong!!!!
@pato424 Hi!! I just wanted to say I am the same age as you with T.S.! I also speak a little Spanish and French! We seem so much alike... I wish we could talk :)
Please I would love to be in contact with other girls with TS or Moms of girls with TS to know how to go about everything while my baby is only 21 months. I also want to know how to get shoes on her I am currently cutting regular shoes and putting velcrow, also does this edema go away with time and how long does it take and what should I do in the men time Please someone help I'm going crazy she is the best thing that has ever happened to me.She has every specialty dr. known to man kind they
THis is beautiful.My baby has Turner syndrome and currently has a heart problem liver damage from an absent portal vein to the liver, lymphedema that is so severe I can't get shoes on her, Bloody diarrhea constantly, malobsorption issue,aspiration, low protein, and has broken several bones from extremely low vitamin D, and she was born with her intestines outside of her abdomen I want her to also help with linking other things such as the intestinal and liver issues that she is having to TS.
Hi, I'm Hannah and I have Turners syndrome. I'm 12 years old. My mom made some very good choices such as modeling/fashion shows so I can build confidence in myself and see the beauty in me. Now I'm studying music and theater. I will be a singer or an actress, so add that to your list. I believe I can use my voice to spread some good in this world and be a living success of TS. Thx for making this video, it helps to see more girls like me! Check me out under H@nn@h- singing for T.S Girls
Thank you so much girls for being bold enough to create this video. I cried the night I say it at the Turner conference and have cried every time I have seen it today. I am trying to spread it around facebook to help further awareness! Thank you James for a job well done and thank you TSSUS for all the help you provide.
Hello, my 2 ½ years he was recently diagnosed with Turner syndrome, mosaic 46XY this scares me a lot, but watching the video gave me hope that I'll have a normal life. This is what most desire with all my heart, that she has a normal, happy life. I hope to have the strength to accompany the whole process and in life. It was operated on for coarctation of the aorta and has seen many doctors, you see a white coat is a veterinarian so she cries and is scared. I hope these troubles happen soon.
hocicosfelices 1 month ago
hi everybody, i'm a T.S girl, I'm 24 years old and that didn't afecct me at all, if you see me, i'm like any common girl, we are special and we have to be united so we can be informed about our condition, i'm a musician, play violin and viola, I speak spanish , english and french! of course i'm under treatment, but hey life is just one and we have to enjoy it, so you and me have to be strong!!!!
pato424 1 month ago
@pato424 Hi!! I just wanted to say I am the same age as you with T.S.! I also speak a little Spanish and French! We seem so much alike... I wish we could talk :)
Loca8723 1 month ago
Watching this made me cry , i lost my little girl to turners syndrome . You are all beautiful <3 and Amazing girls/women <3
musicEQULESlove 2 months ago
Hey ladies I am also a turner a baby, I would like to meet others:)
1978janel 2 months ago
aww the girls are soo cute :) / beautiful
tiffanyamber121 3 months ago
I have TS!!! I never let TS stop me. It just happens to be apart of who I am :) Guess what? I'm bilingual :)
pookymuffin101 4 months ago 2
The Dr.s think my daughter is a lab rat. And I'm sick of her being poked and proded can someone ease my anxiety
babygerrl1734 6 months ago
Please I would love to be in contact with other girls with TS or Moms of girls with TS to know how to go about everything while my baby is only 21 months. I also want to know how to get shoes on her I am currently cutting regular shoes and putting velcrow, also does this edema go away with time and how long does it take and what should I do in the men time Please someone help I'm going crazy she is the best thing that has ever happened to me.She has every specialty dr. known to man kind they
babygerrl1734 6 months ago
THis is beautiful.My baby has Turner syndrome and currently has a heart problem liver damage from an absent portal vein to the liver, lymphedema that is so severe I can't get shoes on her, Bloody diarrhea constantly, malobsorption issue,aspiration, low protein, and has broken several bones from extremely low vitamin D, and she was born with her intestines outside of her abdomen I want her to also help with linking other things such as the intestinal and liver issues that she is having to TS.
babygerrl1734 6 months ago
Hi, I'm Hannah and I have Turners syndrome. I'm 12 years old. My mom made some very good choices such as modeling/fashion shows so I can build confidence in myself and see the beauty in me. Now I'm studying music and theater. I will be a singer or an actress, so add that to your list. I believe I can use my voice to spread some good in this world and be a living success of TS. Thx for making this video, it helps to see more girls like me! Check me out under H@nn@h- singing for T.S Girls
middleman36 6 months ago 2
Beautiful job and wonderfully moving. Hi Susan. So nice to see you.
bonniewoman1 7 months ago
great video xxx i'm in the UK my daughter has TS. well done to all involved
fluffyfairy321 7 months ago
You did an awesome job on this...just awesome! How did you get everyone involved?
LisaJMoore 7 months ago
@LisaJMoore This video wasn't my idea. I was asked to be involved at the last minute, and I'm so glad I was. :)
KelseighAnne 7 months ago 4
Thank you so much girls for being bold enough to create this video. I cried the night I say it at the Turner conference and have cried every time I have seen it today. I am trying to spread it around facebook to help further awareness! Thank you James for a job well done and thank you TSSUS for all the help you provide.
cmedic35 7 months ago
@cmedic35 Thank you so much!
KelseighAnne 7 months ago