You are simply awesome! I was diagnosed with JME when I was 16 and it was so confusing for me at that time. I hadn't read up anything on it, never discussed it and it was mostly kept a secret. You address a very important issue here- to discuss and increase awareness. It is a sort of taboo and if no one discusses it, it would continue to be so. Indeed, you are very mature, responsible, strong and come across as a sweet person.
I have a rare combination of Epilepsy and Tourettes Syndrome... Doctors originally told me it was not possible. I later saw a different Neuralogist and got diagnosed.
You and I have something in common!! My favorite hobby is bowling though. I had many seizures in my life. And I was in the hospital for them when I was younger.
sweety don't worry you gotta be brave don't listen to the barking dogs just keep on moving I a[[reciate your spirit recently a girl lost her life cause of epileptic damage to her brain sadly :( God Bless you :)
I was diagnosed with tonic clonic seizures when I had my first grand mal in Jr. high. My parents tried to convince me to keep it a secret until the day I had a seizure and drove off of a cliff. You and your family are very strong, and you don't know how many people videos like this will help.
@jennx3jenn That accident paralyzed my left arm for a year. I've also busted out my front teeth three times from seizures. But I don't let it slow me down. I've lived in South Eeast Asia for seven years, and I love when people ask me why I'm wearing a purple shirt every November.
You are a lovely, strong & smart young lady. I am impressed with you and what you did for us with out and those with Epilepsy. I hope you know God will not give you anything you are not strong enough to handle. I think that you have found something in yourself to help teach others of how to handle Eiplepsy and teach those who have no idea what it is. Well stay strong and God Bless
Jenn, you are fantastic! Thanks for showing everyone what epilepsy is like for you. It has a whole range of symptoms that can be misunderstood for other things like mental illness, addiction, etc. It's especially hard for teens,who just want to be like everyone else at this stage in life, so kudos to you for doing your own thing and educating the public. People with seizures need to talk about it and improve understanding. I know I'll never be cured, but it doesn't stop me.
I'm 15 and i have epilepsy, and i realised the start of 2010 when i fainted at school and the ambulance collected me, i stayed in hospital for 2 weeks and i got told about my condition, it contains me twitching alot, but mainly flashing light but my main problem is me staring at alot things and moving my arms, at school people think i'm a freak but it dont bother me cos wer'e all normal really :) but great video it made me realise i have nothing to be worried about:)
Oh, before the first trip to the hospital I was actually injured due to seizures, which at that time we didn't know. But I doubt a head injury would cause loss of muscle control and then loss of conscienceness. And I told it exactly in that order on the 1st trip to the hospital. Love the vid!
Then a little more than a month later I had a seizure and shipped to the hospital in an ambulance. Fun! A different hospital. Told them the same thing. They probably thought that I drank the night before, which I don't. Then around 5:00pm I saw my uncle; I was placed on the 4th or 5 floor, I don't remember....Anywho, saw my uncle for about 5 minutes and I went into a seizure. So, it took all of that until they finally diagnosed my with epilepsy. Grand Mal seizures.
I just realized that I have 103 friends on Facebook and I have epilepsy. Go figure! This was refreshing to watch, of course I was just recently diagnosed with epilepsy Aug 23, 2011. I ended up in the hospital 2wice. 2 different hospitals. The 1st hospital I told them that I lost conscienceness, and lost muscle control. They told me it was amnesia. Well, duh! Thanks doc obvious! Not you. (the user of this vid or anyone else, that's what I was thinking).
I heared there is an ancient cure for Epilepsy that was well known around the Arab world, and in Iraq to be specific ... I am 100% sure there is a cure for it somewhere ... Stay strong kid
=O I have JME too...woot! I take topamax and banzel...used to be on keppra
I'm 19 and I've had mine since 8th grade..first one in front of the whole school
I twitch the same way too
Like your vid....was very entertaining and I never see people who are (I'm guessing your around me age now) younger doing videos like this. Its refreshing to see.
Thank you for posting this video :) Not enough people understand epilepsy. I even had my electives taken away from me in highschool by the school counselor. The nurse "couldn't handle" me be in her office so often because of my seizures that they decided to only have me in school for the second have of the day, only letting me take my generals. Not enough people are educated in epilepsy. I'm in college now and I still have problems with people overreacting. Again, thank you for this video :)
@Kelsrizzle she also called me mentally challenged. Bull crap! Having epilepsy has nothing to do with that part of your brain. Just google famous people with epilepsy. Lewis Carroll, Theodore Rosevelt, etc.
Now Im on Lorazepam 1 mg 4 a day, Gabapentin 300 mg 6 a day , Lamotrigine 250 mg 4 a day, Diazepam 10 mg 3 a day , Dilantin 100 mg 4 a day . All together 21 a day.
People think it is funny. Doctors told me I suppose not to remember when it happens. Wrong. 20 min PAIN. Mussels, Bones, every thing felt like its going to explode. Now for me there is no god. Heaven and hell is right here. Also about 20-30% ppl cant take it any more, they kill them self. How ppl can think that is funny? Too many videos here as a joke. I wish every one,just ones had this problem to know how it feels. MetalBroketsOnMySkull. No Mussels on my left side any more
@djmaxpaul Seeing that you remember what is happening during the seizures, you might have psychogenic seizures. That is what I have. Medication can't control it. You need to learn how to control your stressors that trigger your seizures. Stress management could work.
@Kelsrizzle I tried Stress management,and didnt work but I dont know why nothing is wrong when I am around ppl,looks like I dont think about my problem. Looks like it is my stress at home. Still have problem to get a job when ppl see my scars from head injury. I dont think every one is awesome, I think every one should be human. It not looks like that.
Respond to this video... 10 years ago I was volunteer at hospital before end up who I am. I heard a lot from ppl how they would like to die. Would Like Too And It Push Me More To Stay a Live
Got my left side of skull broken.2X dead on operating table. Drs removed 4 peaces of my skull bones for 5months because my brain got swollen from bleeding.They had my bones in the freezer(no joke). After that they put it back with MetalBracket.Month later I got seizures every 2 days for 20min.No one could even hold me.It was strong and strong pain.Now Im on Lorazepam1mg,Gabapentin300mg,Lamotrigine250mg,Diazepam10mg,Dilantin100mg.All of them 3X a day.So far Im ok but I cant drive any more.NoLife.
Epilepsy is very difficult to live with especially to cope mentally when ur young with ur whole life ahead of u and life feels very limited.Not enough awareness,education.
No cure for epilepsy,just by luck i've had surgery 2yrs ago from cronic epilepsy and gone from 10-12 complex partial/tonic clonic seizures per month to NONE,majority never get surgery and only aprox 2% of surgical canditates reach surgery then 80% post op will never have seizures again and i've fallen into that catorgy by luck
There is a wonderful family in WI who lost their son to epilepsy last year at age 5. This is a family I have known for years. They are fantastic people with bright and happy children. They are currently involved in a contest with country star Dierks Bentley to help raise awareness! They are 200 votes behind with 33 hours left! If you could all please click and like this link via FB, you'd be helping a wonderful cause! Thank you and God bless! joeyssong (dot) org / dierks-bentley
@jennx3jenn i reallu liked your video. i have epilepsy and have had it 10 yrs since i had encephalitis. it was much worse in the early years and getting easier now. it is important to talk about these things, share stories, be brave, be honest. it helps other people to also share thier problems
@alamidblackcat Don't let them discourage you. My medication makes me depressed, but my doctor told me I was being "childish and stupid". Needless to say, I don't go to her anymore even after an apology and presentment of proof from the FDA
Epilepsy is a nightmare, I got in a car accident but not one doctor can back up why I really have seizures. They went away for years 4, then came back. Then turned into grand mals. So many I couldn't talk for like 3 hours straight. Honestly I can't wait until their is a CURE for all of us suffereing with seizures. Generalized or epileptic.
@Thetruenihilus november is epilepsy awareness month! gotta find a cure for all of us fighting, no one realizes how bad it is because it's not talked about. 1 in 100 have epilepsy 1 in 10 have a seizure withing their lifetime!
@jennx3jenn Yeah I hope to attened some groups with people in my town. People are not very educated about epilepsy and even the doctors themselves don't fully understand. Hopefully the neurologist I work with is very amazing and is a huge part of fighting to cure epilepsy and research. Look up Dr. Sangh Singh, Creighton University. His videos are very interesting. Keep up the good fight Jenn and I wish the best for you and everyone fighting this disease.
Thanks kid you made me laugh! Although i am older I have had g-mals for about 18 yrs. I think now I have tics,an aura my whole life. I have had well over a 1,000 g-mals. I have a 13 yr old daughter. I too feel the same as you EDUCATION is key & have NEVER been scared of this. It is harder for me now so i need to remember that I have same attitude as you . thanks have a great day. Rick Wichita Kansas. join E.com chat we have a good group there most of the time too.
...ive tried to explain things to people about my condition, but no one will believe me. i finally convinced my parents to take me to a doctor about it later this week. ive researched a lot about it and my symptoms and it always leads back to simple partial seizures. basically my mind goes blank, i forget everything. i can't remember anything i've said during one of these. i start feeling sick... and then I start to sweat like crazy. I pretty sure something is wrong.. thanks for posting this.
This is a great video! It's so important to talk about epilepsy, cause each one of us who does helps chip away at the stigma. There are so many of us out there with epilepsy and we need to support each other. Way to go.
i recently discovered that I had epilepsy, in february, actually. only had 2 seizures so far, though. how often do you usualy have seizures? are you able to go to clubs and such?
Hey im brittany i have had epilepsy since i was 4 now i am 14 and i just wanted to say hi! and that your not alone(: it affects my life too! and i have the same as your brother and i always feel like i am alone but i guess i am not! and i was wondering do you get affected by strobe lights?
Hi friends...I used to be an epileptic patient too for 15 years.Now,I had stopped the medication.I am being under depression because of my sisters.They start boycotting me when i start to love a friend of mine.They dont let me sleep at night, they will on the lights, force me to cook for them, never talk to me. I feel very depressed with their cruel attitude.They are so inconsiderate. I just want to ask advice how to ignore this attitude, because i am scared it will effect my health again.
Thank you for sharing your story. My son has epilepsy along with so many other issues and he is only 3. God bless you!!! God bless everyone with epilepsy in their families.
thank u 4 yr story. Yr a very beautiful girl also. I have 3 different types of seiz's. Dist, Absences that last up 2 5 seconds & have now started to have drop attacks due to change of med's. My head's just about had it. I have just a small quest. "Are u aware that u r having yr twitches? Take care.
@lawzie89 my daughter is 17 and has tonic clonic seizures about once every two or three months, these always happen during sleep. She has bitten her tongue very bad on many occasions. She also has partial complex seizures almost few times weekly lasting 10-15 seconds. She loses all peripheral vision in one eye & has a bad headache. She has very bad memory loss from these seizures so I am afraid to put her on Topomax as suggested by Dr. I heard really bad side effects including memory can u help?
@pinkyt67 Iv been taking topamax since i was 12, im 22 now and out of all the meds i've tried, its worked best for me. I have been forgetful time to time but its not bad at all, just silly things here and there and the dr. says this is cos of the other meds im on, lamictal. The only side effects iv really suffered are weight loss. I sometimes have trouble concentrating but the doctor thinks thats cos of the lamictal. So i got nothing bad to say about the topamax, iv always wanted to stay on it
@lawzie89 Thank you...my daughter also has bad migraines and topomax is supposed to help with that also. They want to start her on a graduating dosage. The weight loss would be an added bonus for her as her last meds made her gain 45lbs which upsets her a great deal, being 17. So we will give it a try and hopefully it works well with limited side effects as it has for you. Good luck and continued good health :)
Ever since I have epilepsy, I was not allowed to play video games at all. My mom took my ps2 away, and now I am really angry about it. The changes that I have to bear with, from his condition took everything that I love doing, such as riding a bicycle, swimming, or possibly not allowed to drive a car. I hate the changes! I grew up loving video games, it's a part of my childhood, and to have that taken away, makes me so upset. It keeps entertained, and free from boredom.
@andrewtom3d My daughter is 17 and I've been thru with her what you are going thru. Her first seizure happened when she was 13. She went on a fieldtrip last year with school to a museum & part of the display was in a darkened room with photos flashing all around the room. On the way home she fell asleep on the bus & had a tonic clonic seizure & the bus stopped & ambulance came & took her to hospital. She was very embarassed by this. She is also upset about not being able to drive or swim alone
@andrewtom3d I try to make her understand that yes it sucks to have seizures but there are children who cannot walk, or see or hear or have cancer so it could always be much worse. I think you should be able to swim in a pool with attentive adults around who could help u if u did have a seizure. Wearing a helmet while riding a bike again with someone should be allowed. Ur parents need to find the balance on keeping u safe but letting u still be a kid & have fun, they should talk to DR. about it
i started having epieplsy when i was 14 and it was all from when i was playing one of my fifa games, my vision went all blurry then i dropped the controller then i had an epiepltic fit and was rushed to hospital and i was out for 5 mins and i couldnt speak which took 2 mins 2 get my speech back
I have genetic tonic clonic epilepsy...and I find this incredibly inspiring for me. I'm 15, my dad has it, my little sister has a different kind...and I go to this really big docter in wisconsin. Last time I visited...acouple weeks ago, the docter told me...give it 1 or 2 years, you can outgrow it. I've never met someone other then my dad or my sister with epilepsy but..sometimes its really hard to live with.
I'm 15 and am on 1000 mg of keppra twice a day - I am also very open about my condition and do find that being able to smile and laugh about the condition helps me cope better with it.
thank you so much for speaking out, ive always felt uncomfortable that i have epilepsy and then i see someone like you who is so positive! it puts a smile on my face!
I too have epilepsy, also jme aaand i also use kepra but 1000 so 2 pills a day.
I got it last summer when at night i has a grand mal seisure, this was my first ans so far last one but i did get twitches before, the most at night. I would wake up and my muscles were tight and just kept twitching so i started screaming everytime, i dont know why but i coudnt stop. so after the grand mal it was oficial that i had epilepsy and was put on medication. This video made me much feel better, thank you
4 people are fucking douches and loved it when hitler killed the jews in the gas chambers wow you pathetic douches you have to diss on her? fuck off cry me a river boat across and i will drain it and make sure you dont come over here again.
i've been having epieplsy since i was 14, mine triggers if my speech goes all abit funny like gibberish and vision would go blurry and i'm like out for 5 mins then when i wake up i can't talk at all its like when i want to say whatever the words won't come out at all. i had weird side affects which was when my skin was white as a sheet, bald patch (fully grown now) and currently my hands shake which i'm currently working on my hand controll
I also have Epilepsy grandmaul seziures and some where I pass out and fall over and then I had a surgery and two years after the surgery I had some other kind of seziures like when I am asleep I stop breathing and I had about 7 or 8 different kinds of pills I was on kepra but it made my anger go out of control. I just started on another medicine and my doctor keeps increasing the dose of the pills and it didn't work. I really hope I can have the epilepsy be cured some day.
I take Keppra too!! :D 1000mg a day! arrgh I feel like a zoooombie! :P I am also 16 and your videos have been soooo useful to me! I have TC seizures and it always happens in public! LOL. Im a major fail! However, Hot Junior doctors?! Yes please! :D Love for you girl! :D
I have epilepsy aswell, it bothers me everyday and changes my life. All I want to be is normal and my problem has caused me lose friends, hobbies, and has also affected my family. It has been becoming worse throughout the years, and I dint
I found your video through studying for an epilepsy lecture (I study pharmacy). Your video was very enlightening and I think your views are very mature (: I learnt alot from watching this and I wanted to say kudos to you for filming it and putting yourself out there and the epilepsy disorder. (:
I myself suffer, or should I say am blessed with Grand Mal Epilepsy, I was born epileptic , then after a few weeks it went away, laid dormant for about 21 years & well, it decided to rear its beautiful face again when I was about 22-23 years old & have been dealing with it ever since.Mesa turning 25 in July, Woopty-Dew! I'm on medication and all that happy stuff, on a average I would have to say I get one seizure every 2 months or so, I've been great these past few months though.Later alligator!
I have seizures (I've had almost any kind) but I'm as I like to tell everybody still a normal dude-I wish people would drop their opinons due to what they see on t.v. or in a movie-I've always felt like not enough info is presented to the public about seizures-SUCKS having them but like my dr. said is the glass 1/2 full or 1/2 empty? My DREAM is to have my 5 fav. bands come together for a concert each band playing 1 after another take all the $ made their use it to help for epilepsy research.
I had a seizure not too long ago. If I have one more they'll call me epileptic. I was wondering how many seizures you have per week because you said you have good days and bad ones... And can you drive?I'm not old enough to drive, but I heard somewhere that you can't drive if you have epilepsy...
well yeah the last report that i saw said 60 million estimated are diagnosed worldwide and lol i dont think that many canadians have it too with epilepsy i think it was like in 2000 or 2004
I hit my head when I was 5 years old and began having a couple randon seizures, but I didn't know what it was. I'm 35 now and on proper medication to control it, but now and again one will slip through and I'll wake up sore and out of breath. I just wanted you to know you're not alone. It's hard to be on the meds, hard to think, but it made me stronger in ways most people. I had to fight the DMV just to get my license back. Take care=]
@desertray715 About 3 million have Epilepsy in the US, so that number is way out of the ball park. I don't think 57 million Canadians have it. In fact, I think it's about 100 million world wide.
Can you drive since you are 16 with myoclonic seizures? Im asking because my 4 year old daughter has them and was born with them like you. That is one of my biggest questions? She is on kepra as well.
I use to have complex partial seizures until I got surgery for my epilepsy I had a full blown seizure in 6th grade and in 8th grade I had my right temporal lobe taken out to stop the seizures I still take meds for it I take kepra xr 2 times a day and I've been seizure free for about 2 years now im in 10th grade but I feel like if I talk about it people would think somethings wrong with me so I usually keep it to myself. But I loved your video :) lol
@leashywebb don't be scared she won't die it's very rare for people to die from seizure.Although i'm one of those rare cases i died a few times in front of my friends from seizures my heart randomly stopped :/ but they gave me CPR n brought me back feel terrible for putting them though that but thats what friends are for.just be understanding thats all you can do.P.S. don't fear death n dont worry about its nothing just focus on living n being a good friend thats all u can do ^___^
thanks for sharing i hate seizures i have severe tonic clonic c seizures but lucky for me mostly only have them after waking up.ive been on every med out there n even dropped outta school cause of them.now i dont take any n just live with the seizures not to smart considering ive died a few times from seizing but what can you do rather live my life then be a zombie :) the worst thing is having a seizure then having to go too work right after doing 8 hours of manual labor its like torture lol d
hi jenn i saw ur video it is lesson to other people what is feeling when they have a seizure. i also have seizure and i take phenobarbital 1 grain 4times aday cause im 83 kgs. but i feel sleepy everytime when i didnt do anything. how about you?
I have epilepsy and started having tonic-clonic seizures when I was 15 but I had "small" ones all my life... My sister also has epilepsy... Right now I am on three meds for it but I am not under control... It's really good that you are open about it, in high school I was very open about it, and I don't deny that I have it now but it gets annoying being asked all the time how your seizures are doing.. So I don't mention it a lot... It's really great you are so open, hope things are well
Hi jen, my name is brian and I have epilepsy and have hd if for over 20 years, so I know what you go through as well as I am happy to see that someone has posted something up about epilepsy and that it is real.
Hi jen my name is emmanuel and i have epilepsy to, my dad had it my grandpa my uncle my sister had it alsow so i have it to, i know how it is and how it feels to have it. i think the hardest thing of epilepsy are the medicine side effects. i wanted to also tell you that i am your num 1 fan :)
Very interested video, i have also epilepsi . im 28 and have had epilepsy since i was 10 because of a brain damage and i can see your getting alot of small seizure, and im also having same seizure as u, and it sucks
I also have epilepsy. I have both grandmal and petitmal and I take 8 pills each day, and epilepsy doesnt effect my life at all. Or a little bit of course, but i mean look, it could been so much worse. Dont talk about it like its a horrible disease, because its not
i was having this kind of epileptic seizures when i was younger. maybe in a little bit worse way. but i guess i m ok now. no more seizures and stuff. what s your story? havin seizures yet?
this video is very comforting to a mother of a 7 year old who is yet undiagnosed. how do you feel when you are having a seizure? my son is only just 7 and he says he gets a funny feeling in his stomach which indicates he will have one and sometimes he rushes off to the bathroom as if he is going to be sick (he never is, but he obviously feels sick) you are very wize for your age and very upbeat - thank you for sharing your story. i hope we get diagnosed soon and medication.
This video actually helped me tremendously! Thank you! I am a junior in high school and I suffer from what they call psuedosiezures. They practically ruin my life and I was home schooled the entire first semester. Your video really made me feel better and more confident about who I am. thx so much!
Hello Jenn (: 7 months ago i had a bad accident with my horse, was knocked unconscious & woke up in hospital (nice one) a few days after i was back on track to my normal life, im 16 so i started college in September, & was training to join the army, but unfortinatly 3 months ago i started seizure-ing as a late reaction to my accident, and have been diagnosed with epilepsy (I have the type your brother suffers from) its so nice to be able to relate to you :) message me any time xxx
I'm 13 and i have epilepsy ive had it since i was 7 i have absence seizures. I am on 3 medicines Keppra,Clobazam & Lamotragine and my seizures are not controlled :(
@cheekychops1377 have you looked into the Modified Atkins Diet for Epilepsy? I have a video for it and i was on keppra, clonopin, zonegram, and lamictal too and none of them helped stop my seizures but the diet does and helps for a lot of people with absence seizures as well you should look into it!
My 17 yr old daughter diagnosed with JME 4 yrs ago, Not controlled by meds. Last night she had a popular :) grand mal type. I was surfing for vagus nerve implant, came across the link to your video. Yes, frustrating, maddeningly so. Next week we visit a clinical dietitian to have a shot at Modified Atkins Diet. Thanks for posting your video. Best of wishes for you...
and the depresstion side effects in the medics. If i was to have a seizure infront of my friends, I guess they would just stare before freaking out. It's a pity, I could tell them if they botherd to listen... Btw sorry for all the comments, but my iPad just wouldn't listen to me :p hope you enjoy the rest of the start of this new year :)
Believe me when i said i had a seizure. After that I had to boost my keppra again, so I'm taking 1500 mg a day, and I having a hard time with the constant darkness in northern norway
Baah, it's iPad is liveing it's own lite. At least there were five people not freaking out and got me to the hospital... Where amazingly the doctors didn't do anything othere then walk in and out of the flom
I'm afraid of getting a seizure infront of my classmates. I got a really big gt seizure, and was like in and out of consuiznes, I was beeing epileptic in about three hours after the worst had gone. And 2 weeks ago I got to know that the people I was hanging with negler getting the big seizure, allmost left me laying in the woods alone, I'm happy there was five people who didn't fresk
It's so great that you posted this. I feel like the only one in the world having it. I've had epilepsy since I was..... 13? Or something, and it didn't really bother me untill august last year (I'm turning 18 in two weeks). I'm diagnosed with jm epilepsy, and it sucks bit time. I've only had like 3 or 4 gt seizures, but it still hits sometime in mornings where my hands, wristes and arms will start shaking, and if I ignore it. I could do that and gamble on it going well, but I'm to afraid of veg
i guess the biggest torment i have with epilepsy isnt even the seizures, its the memory loss that comes with the meds(Topamax) i take, i feel like an idiot when i cant spell a simple word, even though i have a Bach of SC in Ag from the U of A. probabaly the next biggiest struggle is keeping a job. i've been fired from 2 jobs because of my epilepsy and dismissed from several interviews because of my epilepsy. when i tried to press charges they always find a way around.
i have complex partial and simple epilepsy. i have severe scaring throught my brain, on both my brain. i have had it from birth and i was originally diagnoised with juivenille myocollonic (sp) epillepsy but it took about 10 different docs and about 3 states to get the right diagnosis. i have found the best neuro in the world in the world. i also had a vagal nerve stimular at mayo clinic-MN. thats helped alot. i've been on so many meds any am on near toxic level meds now.
@DirtxInxThexGround yeah it's hard my brother doesnt accept his either, i was kind of forced to accept it since i had seizures no stop every day for a long time and everyone saw me having them. atleast you have your dad to talk about it to!
@absfan16 awe, well a lot of people can take it as a joke or don't know how to react to it, many people have told me i was faking it. don't let others pick on you for it
Thank you for being so brave and being strong enough to post about your condition. BTW...great choice in music...I'm an FOB fan as well. Keep on keepin' on girl!!
you are cute, marry me
own8ge 2 weeks ago
@own8ge awe, that's sweet of you
jennx3jenn 1 week ago
You are simply awesome! I was diagnosed with JME when I was 16 and it was so confusing for me at that time. I hadn't read up anything on it, never discussed it and it was mostly kept a secret. You address a very important issue here- to discuss and increase awareness. It is a sort of taboo and if no one discusses it, it would continue to be so. Indeed, you are very mature, responsible, strong and come across as a sweet person.
Hats off to you!
LipikaDG 3 weeks ago
@LipikaDG thank you, gotta start one story at a time!
jennx3jenn 1 week ago
I have a rare combination of Epilepsy and Tourettes Syndrome... Doctors originally told me it was not possible. I later saw a different Neuralogist and got diagnosed.
trayheartlessgb 3 weeks ago
@trayheartlessgb hope all is going well and you can find some relief
jennx3jenn 1 week ago
-3
zer0frk 1 month ago
You gorgeous :]-3
zer0frk 1 month ago
@zer0frk thank you
jennx3jenn 1 week ago
Awesome job on the video Jenn!
TheEpileptic1 1 month ago
@TheEpileptic1 thanks!
jennx3jenn 1 week ago
You and I have something in common!! My favorite hobby is bowling though. I had many seizures in my life. And I was in the hospital for them when I was younger.
Skating18ify 1 month ago
sweety don't worry you gotta be brave don't listen to the barking dogs just keep on moving I a[[reciate your spirit recently a girl lost her life cause of epileptic damage to her brain sadly :( God Bless you :)
sapphirezobi 1 month ago
I was diagnosed with tonic clonic seizures when I had my first grand mal in Jr. high. My parents tried to convince me to keep it a secret until the day I had a seizure and drove off of a cliff. You and your family are very strong, and you don't know how many people videos like this will help.
AcidReflux27 2 months ago
@AcidReflux27 oh my gosh! good thign you're okay, i drove into a tree myself. thank you for your kind words!
jennx3jenn 1 week ago
@jennx3jenn That accident paralyzed my left arm for a year. I've also busted out my front teeth three times from seizures. But I don't let it slow me down. I've lived in South Eeast Asia for seven years, and I love when people ask me why I'm wearing a purple shirt every November.
AcidReflux27 1 week ago
I want to know.
What does it feel like to have a seizure
epicawesomesauceguy 3 months ago
@epicawesomesauceguy for my type it feels like a muscle in my neck to me shoulder are being plucked by puppet strings all at once
jennx3jenn 1 week ago
You are a lovely, strong & smart young lady. I am impressed with you and what you did for us with out and those with Epilepsy. I hope you know God will not give you anything you are not strong enough to handle. I think that you have found something in yourself to help teach others of how to handle Eiplepsy and teach those who have no idea what it is. Well stay strong and God Bless
arng31 3 months ago
Jenn, you are fantastic! Thanks for showing everyone what epilepsy is like for you. It has a whole range of symptoms that can be misunderstood for other things like mental illness, addiction, etc. It's especially hard for teens,who just want to be like everyone else at this stage in life, so kudos to you for doing your own thing and educating the public. People with seizures need to talk about it and improve understanding. I know I'll never be cured, but it doesn't stop me.
TheChriscrosbie 3 months ago
much fucking respect to you, i am all too familiar with this!
temptationswings29 3 months ago
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ChaseManhattan516 3 months ago
I'm 15 and i have epilepsy, and i realised the start of 2010 when i fainted at school and the ambulance collected me, i stayed in hospital for 2 weeks and i got told about my condition, it contains me twitching alot, but mainly flashing light but my main problem is me staring at alot things and moving my arms, at school people think i'm a freak but it dont bother me cos wer'e all normal really :) but great video it made me realise i have nothing to be worried about:)
Xleah01 3 months ago
@Xleah01 I had the same problems and I found the best think to do was to just tell everyone about it and be honest.
untyroo 3 months ago
Oh, before the first trip to the hospital I was actually injured due to seizures, which at that time we didn't know. But I doubt a head injury would cause loss of muscle control and then loss of conscienceness. And I told it exactly in that order on the 1st trip to the hospital. Love the vid!
SandritaRowan26 3 months ago
Then a little more than a month later I had a seizure and shipped to the hospital in an ambulance. Fun! A different hospital. Told them the same thing. They probably thought that I drank the night before, which I don't. Then around 5:00pm I saw my uncle; I was placed on the 4th or 5 floor, I don't remember....Anywho, saw my uncle for about 5 minutes and I went into a seizure. So, it took all of that until they finally diagnosed my with epilepsy. Grand Mal seizures.
SandritaRowan26 3 months ago
I just realized that I have 103 friends on Facebook and I have epilepsy. Go figure! This was refreshing to watch, of course I was just recently diagnosed with epilepsy Aug 23, 2011. I ended up in the hospital 2wice. 2 different hospitals. The 1st hospital I told them that I lost conscienceness, and lost muscle control. They told me it was amnesia. Well, duh! Thanks doc obvious! Not you. (the user of this vid or anyone else, that's what I was thinking).
SandritaRowan26 3 months ago
I heared there is an ancient cure for Epilepsy that was well known around the Arab world, and in Iraq to be specific ... I am 100% sure there is a cure for it somewhere ... Stay strong kid
UltimateBokanator 3 months ago
=O I have JME too...woot! I take topamax and banzel...used to be on keppra
I'm 19 and I've had mine since 8th grade..first one in front of the whole school
I twitch the same way too
Like your vid....was very entertaining and I never see people who are (I'm guessing your around me age now) younger doing videos like this. Its refreshing to see.
Keep it up!
msfreebyme 3 months ago
Thank you for posting this video :) Not enough people understand epilepsy. I even had my electives taken away from me in highschool by the school counselor. The nurse "couldn't handle" me be in her office so often because of my seizures that they decided to only have me in school for the second have of the day, only letting me take my generals. Not enough people are educated in epilepsy. I'm in college now and I still have problems with people overreacting. Again, thank you for this video :)
Kelsrizzle 3 months ago
@Kelsrizzle she also called me mentally challenged. Bull crap! Having epilepsy has nothing to do with that part of your brain. Just google famous people with epilepsy. Lewis Carroll, Theodore Rosevelt, etc.
Kelsrizzle 3 months ago
Sorry for my spelling
djmaxpaul 3 months ago
Now Im on Lorazepam 1 mg 4 a day, Gabapentin 300 mg 6 a day , Lamotrigine 250 mg 4 a day, Diazepam 10 mg 3 a day , Dilantin 100 mg 4 a day . All together 21 a day.
djmaxpaul 3 months ago
People think it is funny. Doctors told me I suppose not to remember when it happens. Wrong. 20 min PAIN. Mussels, Bones, every thing felt like its going to explode. Now for me there is no god. Heaven and hell is right here. Also about 20-30% ppl cant take it any more, they kill them self. How ppl can think that is funny? Too many videos here as a joke. I wish every one,just ones had this problem to know how it feels. MetalBroketsOnMySkull. No Mussels on my left side any more
djmaxpaul 4 months ago
@djmaxpaul you're awesome.
ScrewTheLiving 3 months ago
@djmaxpaul Seeing that you remember what is happening during the seizures, you might have psychogenic seizures. That is what I have. Medication can't control it. You need to learn how to control your stressors that trigger your seizures. Stress management could work.
Kelsrizzle 3 months ago
@Kelsrizzle I tried Stress management,and didnt work but I dont know why nothing is wrong when I am around ppl,looks like I dont think about my problem. Looks like it is my stress at home. Still have problem to get a job when ppl see my scars from head injury. I dont think every one is awesome, I think every one should be human. It not looks like that.
djmaxpaul 3 months ago
Comment removed
djmaxpaul 3 months ago
This has been flagged as spam show
Respond to this video... 10 years ago I was volunteer at hospital before end up who I am. I heard a lot from ppl how they would like to die. Would Like Too And It Push Me More To Stay a Live
djmaxpaul 3 months ago
Respond to this video... Need to see Lewis Carroll, Theodore Rosevelt
djmaxpaul 3 months ago
Got my left side of skull broken.2X dead on operating table. Drs removed 4 peaces of my skull bones for 5months because my brain got swollen from bleeding.They had my bones in the freezer(no joke). After that they put it back with MetalBracket.Month later I got seizures every 2 days for 20min.No one could even hold me.It was strong and strong pain.Now Im on Lorazepam1mg,Gabapentin300mg,Lamotrigine250mg,Diazepam10mg,Dilantin100mg.All of them 3X a day.So far Im ok but I cant drive any more.NoLife.
djmaxpaul 4 months ago
Epilepsy is very difficult to live with especially to cope mentally when ur young with ur whole life ahead of u and life feels very limited.Not enough awareness,education.
No cure for epilepsy,just by luck i've had surgery 2yrs ago from cronic epilepsy and gone from 10-12 complex partial/tonic clonic seizures per month to NONE,majority never get surgery and only aprox 2% of surgical canditates reach surgery then 80% post op will never have seizures again and i've fallen into that catorgy by luck
CarlAndrewEvans 4 months ago
me and my sister have grand mal epilepsy so your not alone x
racheljw0402 4 months ago
i hope u get over that thing, im scared after watching u shaking :(
thenoobzors 4 months ago
There is a wonderful family in WI who lost their son to epilepsy last year at age 5. This is a family I have known for years. They are fantastic people with bright and happy children. They are currently involved in a contest with country star Dierks Bentley to help raise awareness! They are 200 votes behind with 33 hours left! If you could all please click and like this link via FB, you'd be helping a wonderful cause! Thank you and God bless! joeyssong (dot) org / dierks-bentley
ElizaKat001 4 months ago
Thanks so much for sharing your story!
ElizaKat001 4 months ago
@alamidblackcat thank you i keep on pushing and trying to promote awareness
jennx3jenn 4 months ago
I have juvenile myoclonic epilepsy as well and just told my story! Stay strong. Its tough.... very tough.
MissLeslieNicole 5 months ago
@MissLeslieNicole of course gotta fight every day
jennx3jenn 4 months ago
@jennx3jenn i reallu liked your video. i have epilepsy and have had it 10 yrs since i had encephalitis. it was much worse in the early years and getting easier now. it is important to talk about these things, share stories, be brave, be honest. it helps other people to also share thier problems
zcantcook 4 months ago
@alamidblackcat Don't let them discourage you. My medication makes me depressed, but my doctor told me I was being "childish and stupid". Needless to say, I don't go to her anymore even after an apology and presentment of proof from the FDA
5hape5ter 5 months ago
Epilepsy is a nightmare, I got in a car accident but not one doctor can back up why I really have seizures. They went away for years 4, then came back. Then turned into grand mals. So many I couldn't talk for like 3 hours straight. Honestly I can't wait until their is a CURE for all of us suffereing with seizures. Generalized or epileptic.
Thetruenihilus 5 months ago 3
@Thetruenihilus november is epilepsy awareness month! gotta find a cure for all of us fighting, no one realizes how bad it is because it's not talked about. 1 in 100 have epilepsy 1 in 10 have a seizure withing their lifetime!
jennx3jenn 4 months ago
@jennx3jenn Yeah I hope to attened some groups with people in my town. People are not very educated about epilepsy and even the doctors themselves don't fully understand. Hopefully the neurologist I work with is very amazing and is a huge part of fighting to cure epilepsy and research. Look up Dr. Sangh Singh, Creighton University. His videos are very interesting. Keep up the good fight Jenn and I wish the best for you and everyone fighting this disease.
Thetruenihilus 4 months ago
you look on life is great! good for you<3
SaNdRaDEbest 5 months ago
Greetings from Greece.Hope to one day you will not have to take the pills.Very nice video i see another side of this. :)
sougiasdj 5 months ago
Thanks kid you made me laugh! Although i am older I have had g-mals for about 18 yrs. I think now I have tics,an aura my whole life. I have had well over a 1,000 g-mals. I have a 13 yr old daughter. I too feel the same as you EDUCATION is key & have NEVER been scared of this. It is harder for me now so i need to remember that I have same attitude as you . thanks have a great day. Rick Wichita Kansas. join E.com chat we have a good group there most of the time too.
wichitarick 5 months ago
@wichitarick thanks i'm going to try and get online more and keep things updated
jennx3jenn 4 months ago
...ive tried to explain things to people about my condition, but no one will believe me. i finally convinced my parents to take me to a doctor about it later this week. ive researched a lot about it and my symptoms and it always leads back to simple partial seizures. basically my mind goes blank, i forget everything. i can't remember anything i've said during one of these. i start feeling sick... and then I start to sweat like crazy. I pretty sure something is wrong.. thanks for posting this.
CalvinsBeats 6 months ago
I started having epilepsy when I was 1 1/2 year old now I'm almost 21 years old.
tttran20 6 months ago
This is a great video! It's so important to talk about epilepsy, cause each one of us who does helps chip away at the stigma. There are so many of us out there with epilepsy and we need to support each other. Way to go.
livinginabrainstorm 6 months ago
i recently discovered that I had epilepsy, in february, actually. only had 2 seizures so far, though. how often do you usualy have seizures? are you able to go to clubs and such?
anacatarina178 6 months ago
and i also take keppra :)
anacatarina178 6 months ago
Good for you for being able to articulate your experience and doing so in a positive manner! You are a lovely person!
krystalshamonsky 7 months ago
what medcine to you take? i take lamictal
brittanybunny5 7 months ago
Hey im brittany i have had epilepsy since i was 4 now i am 14 and i just wanted to say hi! and that your not alone(: it affects my life too! and i have the same as your brother and i always feel like i am alone but i guess i am not! and i was wondering do you get affected by strobe lights?
brittanybunny5 7 months ago
8 people haven't epilepsy
helljawz 7 months ago
Hi friends...I used to be an epileptic patient too for 15 years.Now,I had stopped the medication.I am being under depression because of my sisters.They start boycotting me when i start to love a friend of mine.They dont let me sleep at night, they will on the lights, force me to cook for them, never talk to me. I feel very depressed with their cruel attitude.They are so inconsiderate. I just want to ask advice how to ignore this attitude, because i am scared it will effect my health again.
ravimalar 8 months ago
Thank you for sharing your story. My son has epilepsy along with so many other issues and he is only 3. God bless you!!! God bless everyone with epilepsy in their families.
lupitaramos80 8 months ago
Dear Jenn, how's yr memory doing. I seem 2 sometimes/most times 4get things. You've amazed me how you could remember so many things.
ssilvana4 8 months ago
thank u 4 yr story. Yr a very beautiful girl also. I have 3 different types of seiz's. Dist, Absences that last up 2 5 seconds & have now started to have drop attacks due to change of med's. My head's just about had it. I have just a small quest. "Are u aware that u r having yr twitches? Take care.
ssilvana4 8 months ago
i have petit mal epilepsy.. on 250mg topamax twice a day and 600mg a day.. very brave of u :) nice to know theres other ppl out there with it
lawzie89 8 months ago
@lawzie89 my daughter is 17 and has tonic clonic seizures about once every two or three months, these always happen during sleep. She has bitten her tongue very bad on many occasions. She also has partial complex seizures almost few times weekly lasting 10-15 seconds. She loses all peripheral vision in one eye & has a bad headache. She has very bad memory loss from these seizures so I am afraid to put her on Topomax as suggested by Dr. I heard really bad side effects including memory can u help?
pinkyt67 7 months ago
@pinkyt67 Iv been taking topamax since i was 12, im 22 now and out of all the meds i've tried, its worked best for me. I have been forgetful time to time but its not bad at all, just silly things here and there and the dr. says this is cos of the other meds im on, lamictal. The only side effects iv really suffered are weight loss. I sometimes have trouble concentrating but the doctor thinks thats cos of the lamictal. So i got nothing bad to say about the topamax, iv always wanted to stay on it
lawzie89 7 months ago
@lawzie89 Thank you...my daughter also has bad migraines and topomax is supposed to help with that also. They want to start her on a graduating dosage. The weight loss would be an added bonus for her as her last meds made her gain 45lbs which upsets her a great deal, being 17. So we will give it a try and hopefully it works well with limited side effects as it has for you. Good luck and continued good health :)
pinkyt67 7 months ago
Ever since I have epilepsy, I was not allowed to play video games at all. My mom took my ps2 away, and now I am really angry about it. The changes that I have to bear with, from his condition took everything that I love doing, such as riding a bicycle, swimming, or possibly not allowed to drive a car. I hate the changes! I grew up loving video games, it's a part of my childhood, and to have that taken away, makes me so upset. It keeps entertained, and free from boredom.
andrewtom3d 8 months ago
@andrewtom3d My daughter is 17 and I've been thru with her what you are going thru. Her first seizure happened when she was 13. She went on a fieldtrip last year with school to a museum & part of the display was in a darkened room with photos flashing all around the room. On the way home she fell asleep on the bus & had a tonic clonic seizure & the bus stopped & ambulance came & took her to hospital. She was very embarassed by this. She is also upset about not being able to drive or swim alone
pinkyt67 7 months ago
@andrewtom3d I try to make her understand that yes it sucks to have seizures but there are children who cannot walk, or see or hear or have cancer so it could always be much worse. I think you should be able to swim in a pool with attentive adults around who could help u if u did have a seizure. Wearing a helmet while riding a bike again with someone should be allowed. Ur parents need to find the balance on keeping u safe but letting u still be a kid & have fun, they should talk to DR. about it
pinkyt67 7 months ago
I am epileptic.
Casper4092 9 months ago
i started having epieplsy when i was 14 and it was all from when i was playing one of my fifa games, my vision went all blurry then i dropped the controller then i had an epiepltic fit and was rushed to hospital and i was out for 5 mins and i couldnt speak which took 2 mins 2 get my speech back
The1990Doctor 9 months ago
Bless u girl....I m soo happy to c a girl like u. I HAD an Epilepsy n just cured last year.
maanmukh 9 months ago
What exactly happens when you look at flashing images?
Here's an example: /watch?v=leMnAQfshTI
If you do watch it and it makes a difference then please record it.
Mrvideosandgames 9 months ago
I have genetic tonic clonic epilepsy...and I find this incredibly inspiring for me. I'm 15, my dad has it, my little sister has a different kind...and I go to this really big docter in wisconsin. Last time I visited...acouple weeks ago, the docter told me...give it 1 or 2 years, you can outgrow it. I've never met someone other then my dad or my sister with epilepsy but..sometimes its really hard to live with.
californiagirl199 9 months ago
God bless you honey. I think it was very brave of you to make yourself vulnerable, It is a good video in that it truly makes a point.
thescooterbell 9 months ago
My little sister has epilepsy along with mito and autism and stuff if you ever and i mean ever need confidence message me ok!
Emmyg1171999 9 months ago
I'm 15 and am on 1000 mg of keppra twice a day - I am also very open about my condition and do find that being able to smile and laugh about the condition helps me cope better with it.
wolfdancer96 9 months ago
ice had epilepsy ever since 2nd grade it stopped when i was 9 came back when i was 14
cutie1360 9 months ago
I was so nervous that you were going to poke your eyball with your eye liner!
ScrewTheLiving 9 months ago
"you're a medical oddity, go play the lottery" WTF? LOL
I have Epilepsy
macroevolve 9 months ago
I have an epileptic friend... SHEZ AWESOME!!! And epileptic kids are completely normal... And like serioustly almost everyone knows that
eliopoulos97 9 months ago
Hello.
I'm Japanese.
I have epilepsy since i was 26 years old.
I assist in you.
WANNSA 10 months ago
Glad to see somebody speaking out. I was diagnosed with stress/focal epilepsy in January and it's nice to see that people can be positive about it
AlexiVanGates 10 months ago
thank you so much for speaking out, ive always felt uncomfortable that i have epilepsy and then i see someone like you who is so positive! it puts a smile on my face!
angelinad1993 10 months ago
-3 **
55jamal5 10 months ago
Ur cute..! -3
55jamal5 10 months ago
I too have epilepsy, also jme aaand i also use kepra but 1000 so 2 pills a day.
I got it last summer when at night i has a grand mal seisure, this was my first ans so far last one but i did get twitches before, the most at night. I would wake up and my muscles were tight and just kept twitching so i started screaming everytime, i dont know why but i coudnt stop. so after the grand mal it was oficial that i had epilepsy and was put on medication. This video made me much feel better, thank you
antaimr 10 months ago
4 people are fucking douches and loved it when hitler killed the jews in the gas chambers wow you pathetic douches you have to diss on her? fuck off cry me a river boat across and i will drain it and make sure you dont come over here again.
mysonicgirl 10 months ago
you poor thing :'(
davidkobe123 10 months ago
i've been having epieplsy since i was 14, mine triggers if my speech goes all abit funny like gibberish and vision would go blurry and i'm like out for 5 mins then when i wake up i can't talk at all its like when i want to say whatever the words won't come out at all. i had weird side affects which was when my skin was white as a sheet, bald patch (fully grown now) and currently my hands shake which i'm currently working on my hand controll
The1990Doctor 10 months ago
I am taking kepra now and this one doesn't have any effect on controlling my seziures and I don't know why.
killer247305 10 months ago
I also have Epilepsy grandmaul seziures and some where I pass out and fall over and then I had a surgery and two years after the surgery I had some other kind of seziures like when I am asleep I stop breathing and I had about 7 or 8 different kinds of pills I was on kepra but it made my anger go out of control. I just started on another medicine and my doctor keeps increasing the dose of the pills and it didn't work. I really hope I can have the epilepsy be cured some day.
killer247305 10 months ago
I take Keppra too!! :D 1000mg a day! arrgh I feel like a zoooombie! :P I am also 16 and your videos have been soooo useful to me! I have TC seizures and it always happens in public! LOL. Im a major fail! However, Hot Junior doctors?! Yes please! :D Love for you girl! :D
StephanieHOLLYx 10 months ago
I have epilepsy aswell, it bothers me everyday and changes my life. All I want to be is normal and my problem has caused me lose friends, hobbies, and has also affected my family. It has been becoming worse throughout the years, and I dint
BigRoblilG 10 months ago
I found your video through studying for an epilepsy lecture (I study pharmacy). Your video was very enlightening and I think your views are very mature (: I learnt alot from watching this and I wanted to say kudos to you for filming it and putting yourself out there and the epilepsy disorder. (:
melduo 10 months ago
I myself suffer, or should I say am blessed with Grand Mal Epilepsy, I was born epileptic , then after a few weeks it went away, laid dormant for about 21 years & well, it decided to rear its beautiful face again when I was about 22-23 years old & have been dealing with it ever since.Mesa turning 25 in July, Woopty-Dew! I'm on medication and all that happy stuff, on a average I would have to say I get one seizure every 2 months or so, I've been great these past few months though.Later alligator!
KillKeymo 10 months ago
I have seizures (I've had almost any kind) but I'm as I like to tell everybody still a normal dude-I wish people would drop their opinons due to what they see on t.v. or in a movie-I've always felt like not enough info is presented to the public about seizures-SUCKS having them but like my dr. said is the glass 1/2 full or 1/2 empty? My DREAM is to have my 5 fav. bands come together for a concert each band playing 1 after another take all the $ made their use it to help for epilepsy research.
kardzfn21 10 months ago
Ur really amazing:) thx I dnt know much but know I can understand it more
XoxOmusic8494 11 months ago
Epilepsy is a gift! I wish I could dance like an epileptic, I'd be the fucking bomb at a rave!
PickledYoshi 11 months ago
I had a seizure not too long ago. If I have one more they'll call me epileptic. I was wondering how many seizures you have per week because you said you have good days and bad ones... And can you drive?I'm not old enough to drive, but I heard somewhere that you can't drive if you have epilepsy...
shelizabeth25 11 months ago
well yeah the last report that i saw said 60 million estimated are diagnosed worldwide and lol i dont think that many canadians have it too with epilepsy i think it was like in 2000 or 2004
desertray715 11 months ago
I hit my head when I was 5 years old and began having a couple randon seizures, but I didn't know what it was. I'm 35 now and on proper medication to control it, but now and again one will slip through and I'll wake up sore and out of breath. I just wanted you to know you're not alone. It's hard to be on the meds, hard to think, but it made me stronger in ways most people. I had to fight the DMV just to get my license back. Take care=]
Subatomic1000 11 months ago
an estimated 60 million ppl only have it in north america i think
desertray715 11 months ago
@desertray715 About 3 million have Epilepsy in the US, so that number is way out of the ball park. I don't think 57 million Canadians have it. In fact, I think it's about 100 million world wide.
macroevolve 11 months ago
Can you drive since you are 16 with myoclonic seizures? Im asking because my 4 year old daughter has them and was born with them like you. That is one of my biggest questions? She is on kepra as well.
kimemmatthews 11 months ago
this video helped me so much thank you so much. I just found out yesterday I have them and it got me kinda scared
babyboyarmstrong 11 months ago
I use to have complex partial seizures until I got surgery for my epilepsy I had a full blown seizure in 6th grade and in 8th grade I had my right temporal lobe taken out to stop the seizures I still take meds for it I take kepra xr 2 times a day and I've been seizure free for about 2 years now im in 10th grade but I feel like if I talk about it people would think somethings wrong with me so I usually keep it to myself. But I loved your video :) lol
AARlover66 11 months ago
Epilepsy suck my mum has the same type as Jenns brother :( bug this video was good help
kiwinuva 11 months ago
@leashywebb don't be scared she won't die it's very rare for people to die from seizure.Although i'm one of those rare cases i died a few times in front of my friends from seizures my heart randomly stopped :/ but they gave me CPR n brought me back feel terrible for putting them though that but thats what friends are for.just be understanding thats all you can do.P.S. don't fear death n dont worry about its nothing just focus on living n being a good friend thats all u can do ^___^
kushkiemcgee 1 year ago
thanks for sharing i hate seizures i have severe tonic clonic c seizures but lucky for me mostly only have them after waking up.ive been on every med out there n even dropped outta school cause of them.now i dont take any n just live with the seizures not to smart considering ive died a few times from seizing but what can you do rather live my life then be a zombie :) the worst thing is having a seizure then having to go too work right after doing 8 hours of manual labor its like torture lol d
kushkiemcgee 1 year ago
I'm in a similar situation to you. You have a mature head on your shoulders
mdekq007 1 year ago
My uncle died from a seizer in a pool :c I never got to meet him.
shikalov 1 year ago
Wow your hot!
layzy22 1 year ago
hi jenn i saw ur video it is lesson to other people what is feeling when they have a seizure. i also have seizure and i take phenobarbital 1 grain 4times aday cause im 83 kgs. but i feel sleepy everytime when i didnt do anything. how about you?
langgapu 1 year ago
I have epilepsy and started having tonic-clonic seizures when I was 15 but I had "small" ones all my life... My sister also has epilepsy... Right now I am on three meds for it but I am not under control... It's really good that you are open about it, in high school I was very open about it, and I don't deny that I have it now but it gets annoying being asked all the time how your seizures are doing.. So I don't mention it a lot... It's really great you are so open, hope things are well
soasmedic25 1 year ago
Hi jen, my name is brian and I have epilepsy and have hd if for over 20 years, so I know what you go through as well as I am happy to see that someone has posted something up about epilepsy and that it is real.
biranthunderhawk 1 year ago
Hi jen my name is emmanuel and i have epilepsy to, my dad had it my grandpa my uncle my sister had it alsow so i have it to, i know how it is and how it feels to have it. i think the hardest thing of epilepsy are the medicine side effects. i wanted to also tell you that i am your num 1 fan :)
thegreenhack 1 year ago
Ya im saying the same as alot of other "thanks for this, your brave"
roidavidsen 1 year ago
Very interested video, i have also epilepsi . im 28 and have had epilepsy since i was 10 because of a brain damage and i can see your getting alot of small seizure, and im also having same seizure as u, and it sucks
roidavidsen 1 year ago
I also have epilepsy. I have both grandmal and petitmal and I take 8 pills each day, and epilepsy doesnt effect my life at all. Or a little bit of course, but i mean look, it could been so much worse. Dont talk about it like its a horrible disease, because its not
sabinaistheshit 1 year ago
your very pretty and you seem like a really sweet person. stay strong :)
enilorac8181 1 year ago
i was having this kind of epileptic seizures when i was younger. maybe in a little bit worse way. but i guess i m ok now. no more seizures and stuff. what s your story? havin seizures yet?
freedomfeel 1 year ago
@jennx3jenn there is a website that you can join its called theTEAroom its for teenagers aged 13-19 hope this helps im on it aswell lol
cheekychops1377 1 year ago
you're cute bebe. stay strong.
atticjax 1 year ago
this video is very comforting to a mother of a 7 year old who is yet undiagnosed. how do you feel when you are having a seizure? my son is only just 7 and he says he gets a funny feeling in his stomach which indicates he will have one and sometimes he rushes off to the bathroom as if he is going to be sick (he never is, but he obviously feels sick) you are very wize for your age and very upbeat - thank you for sharing your story. i hope we get diagnosed soon and medication.
lucishand 1 year ago
i love that even though you have hard times in life you dont let it spoil your sense of humor :) more power to ya!
MizBritt8ny 1 year ago
This video actually helped me tremendously! Thank you! I am a junior in high school and I suffer from what they call psuedosiezures. They practically ruin my life and I was home schooled the entire first semester. Your video really made me feel better and more confident about who I am. thx so much!
mclennanrox64 1 year ago
Hello Jenn (: 7 months ago i had a bad accident with my horse, was knocked unconscious & woke up in hospital (nice one) a few days after i was back on track to my normal life, im 16 so i started college in September, & was training to join the army, but unfortinatly 3 months ago i started seizure-ing as a late reaction to my accident, and have been diagnosed with epilepsy (I have the type your brother suffers from) its so nice to be able to relate to you :) message me any time xxx
SummerLoving941 1 year ago
@SummerLoving941 that's crazy to be so young and in college and joining the military, I guess you're from out of the US?
Yeah me and my brother have the same type of epilepsy but we have different seizures. I hope they find the right med for you to help control them!
jennx3jenn 1 year ago
@jennx3jenn everyone tell's me it's crazy! :') haa, & yeah I'm from England :) thank you! :)
SummerLoving941 1 year ago
I'm 13 and i have epilepsy ive had it since i was 7 i have absence seizures. I am on 3 medicines Keppra,Clobazam & Lamotragine and my seizures are not controlled :(
cheekychops1377 1 year ago
@cheekychops1377 have you looked into the Modified Atkins Diet for Epilepsy? I have a video for it and i was on keppra, clonopin, zonegram, and lamictal too and none of them helped stop my seizures but the diet does and helps for a lot of people with absence seizures as well you should look into it!
jennx3jenn 1 year ago
My 17 yr old daughter diagnosed with JME 4 yrs ago, Not controlled by meds. Last night she had a popular :) grand mal type. I was surfing for vagus nerve implant, came across the link to your video. Yes, frustrating, maddeningly so. Next week we visit a clinical dietitian to have a shot at Modified Atkins Diet. Thanks for posting your video. Best of wishes for you...
MrTwoSticks 1 year ago
@MrTwoSticks good luck on the MAD diet it did miracles for me, I also posted a video about it on here you could look up
jennx3jenn 1 year ago
and the depresstion side effects in the medics. If i was to have a seizure infront of my friends, I guess they would just stare before freaking out. It's a pity, I could tell them if they botherd to listen... Btw sorry for all the comments, but my iPad just wouldn't listen to me :p hope you enjoy the rest of the start of this new year :)
MaineeAgga 1 year ago
@MaineeAgga thanks, but i know how it is and the depression and everything as well, it's not any good at all.
jennx3jenn 1 year ago
Believe me when i said i had a seizure. After that I had to boost my keppra again, so I'm taking 1500 mg a day, and I having a hard time with the constant darkness in northern norway
MaineeAgga 1 year ago
Room staring at me, guess they didn't believeme
MaineeAgga 1 year ago
Baah, it's iPad is liveing it's own lite. At least there were five people not freaking out and got me to the hospital... Where amazingly the doctors didn't do anything othere then walk in and out of the flom
MaineeAgga 1 year ago
@MaineeAgga oh wow it's good that you had people there to help you out!
jennx3jenn 1 year ago
I'm afraid of getting a seizure infront of my classmates. I got a really big gt seizure, and was like in and out of consuiznes, I was beeing epileptic in about three hours after the worst had gone. And 2 weeks ago I got to know that the people I was hanging with negler getting the big seizure, allmost left me laying in the woods alone, I'm happy there was five people who didn't fresk
MaineeAgga 1 year ago
@MaineeAgga yeah i've had seizures in front of my class mates
jennx3jenn 1 year ago
It's so great that you posted this. I feel like the only one in the world having it. I've had epilepsy since I was..... 13? Or something, and it didn't really bother me untill august last year (I'm turning 18 in two weeks). I'm diagnosed with jm epilepsy, and it sucks bit time. I've only had like 3 or 4 gt seizures, but it still hits sometime in mornings where my hands, wristes and arms will start shaking, and if I ignore it. I could do that and gamble on it going well, but I'm to afraid of veg
MaineeAgga 1 year ago
@MaineeAgga congrats on turning 18 this week!
jennx3jenn 1 year ago
3:59 what a champ
TheCleetz 1 year ago
@TheCleetz haha thank you
jennx3jenn 1 year ago
i guess the biggest torment i have with epilepsy isnt even the seizures, its the memory loss that comes with the meds(Topamax) i take, i feel like an idiot when i cant spell a simple word, even though i have a Bach of SC in Ag from the U of A. probabaly the next biggiest struggle is keeping a job. i've been fired from 2 jobs because of my epilepsy and dismissed from several interviews because of my epilepsy. when i tried to press charges they always find a way around.
1hogfan83 1 year ago
i have complex partial and simple epilepsy. i have severe scaring throught my brain, on both my brain. i have had it from birth and i was originally diagnoised with juivenille myocollonic (sp) epillepsy but it took about 10 different docs and about 3 states to get the right diagnosis. i have found the best neuro in the world in the world. i also had a vagal nerve stimular at mayo clinic-MN. thats helped alot. i've been on so many meds any am on near toxic level meds now.
1hogfan83 1 year ago
Nice video,
I have Juvenile Myoclonic Epilepsy too.I was diagnosed at 15,My dad has is too.Genetically passed on ;)
Just came out of hospital yesterday after having a bad seizure on Monday due to Keppra...they just don't agree with me.
Even though I am 23 (24 next month) I've never been able to fully accept my epilepsy.
DirtxInxThexGround 1 year ago
@DirtxInxThexGround yeah it's hard my brother doesnt accept his either, i was kind of forced to accept it since i had seizures no stop every day for a long time and everyone saw me having them. atleast you have your dad to talk about it to!
jennx3jenn 1 year ago
hey, i have epilepsy aswell, and no one takes me siriously
x absfan16
absfan16 1 year ago
@absfan16 awe, well a lot of people can take it as a joke or don't know how to react to it, many people have told me i was faking it. don't let others pick on you for it
jennx3jenn 1 year ago
i have epilepsy i have tonic clonic seziures thats were i fall to the floor
daisydoo210153 1 year ago
@daisydoo210153 ah yes I've had a few of them, they are very dangerous, hope you are doing ok!
jennx3jenn 1 year ago
@daisydoo210153
Ya i also have sometimes the same. falling down, its suck, especially if your outside in puplic.
Im also very sensitive and cry when i wake up after a seizure hehe
roidavidsen 1 year ago
Thank you for being so brave and being strong enough to post about your condition. BTW...great choice in music...I'm an FOB fan as well. Keep on keepin' on girl!!
princessmag00 1 year ago
@princessmag00 thank you (:
jennx3jenn 1 year ago
@princessmag00 thank you (:
jennx3jenn 1 year ago
thank youfor sharing ur stoy. this make me feel better
plushbanana 1 year ago