I had my VP Shunt revision on May 12, 2010 this way my fourth revision and I'm 28. We can do anything. Personally my recovery is almost a year in and I'm still inproving my motor skills that. I somewhat lost after the surgery but the doctor said that normal for the amount of surgery's I had in total which is 4
@Cartoonsoldier83 I'm happy to see you are doing fine. This is why I like going online to network with others with a VP Shunt. it gives hope to all the little ones going through what we have to. Many blessings to you and I hope you have many many years to go with fewer surgeries. :)
hey,my name is Jake, have congenital hydroepalus, first surgery within the first 2 wks. of life, many revisions, and now have been surgery free for 13 yrs. I am now 38 and hoping for another 38 yrs. at least, have 5 shunts, they say that they can always find a spot. Oh the hair, it sucks but does come back. Hang in there.
I have hydrocephalus, i havent had any replacements since i was a little child. 2 years old or so. hope nothing goes wrong with me. but anyways. Stay strong!
Hi, Denise (sp?), thanks for making this video. It's good for people to know about hydrocephalus and what we experience. I'm going to subscribe and see if you have made any further videos to find out how you have been doing since this video. Best wishes to you.
my lil girl is 11 and she has Hydrocephalus since she was 2 weeks on and she had the same shunt since 98.how long did u have ur firtst one in b4 it had to be revised?thanks kish
To tell you the truth, I'm not exactly sure. It's a real blur to me now. I have to ask my parents. :) Thanks for watching my video and I shall let you know. What I do remember though is that I've had more than one revision before turning 13. Your daughter is really lucky.
thanks for puttin this up. I've had hydocephalus all my life and just had 58th shunt revision 2weeks ago. Glad ur perfessor let u finish that papper... hope school go's well!! It's cool for me to hear from other hydrocephalus paitents!! Good luck with everythin!!!!
2 weeks ago? wow I'm glad to know you're okay. Actually I had to drop that class since I've missed a full week. :( It's fine though because I'm taking that class again over the summer.
thanks for putting this up honey, im 25 and just got home (Friday 20th) from my first vp shunt op. It sucks your teacher wasnt a bit more understanding. Good luck in your studies! I have many questions id like to ask, however, lol, I cant think of what they were. when i remember ill whack it down. hope your goin well hun.
alright :) I'm happy to see (read) you are doing fine. Yeah I was dropped for missing a couple days ad couldn't make it up in time for the mid term so I'm taking the class over again during the summer. But since that happened, now I'm taking a class/job training for medical coding. So all is good and i hope all is well for you. Thanks for your reply! :)
Im 17 and have hydrocephalus, i have a shunt. Ive had numerous VP shunts throughout my life until 2 weeks ago, ive now got a VA shunt, which goes inot my heart instead of my abdomen.
I always wondered aboutpregnancy with a catheter in the belly. Ive raised this question before and apparently there is no cause for concern =) Theres extra tubing in your belly for that type of growth, also the tubing rests into your peritoneum so it wont get in the way.
&& well since ive had it, ive had some discomfort in my heart. Ive never experienced any pain in my heart before and didnt even know where abouts my heart was until i started getting this sensation. Whether this is normal, im not sure, so i cant speak on behalf everybody with a VA. =) hope youre doing well
I hope that pain goes away! :( yeah up until now, I cant really sleep on the right side of my head because it feels like I'm putting a lot of pressure on it when I'm not. I really hope that your pain goes away hun. I can't imagine how it feels. X(
Professor? You're in university? That rocks. I'm 41, was shunted when I was 4 months old. I don't have the memory capacity for further education past high school which was a real struggle. To you or anyone else who can succeed like you did - you're really to be commended. I wish you happiness and health.
Thanks for your Video. I am 34 years old and was born with Hyrocephalus. You sound to be holding strong. I am thankful tobe able to due things such as lift weights, had trraining in martial arts also play and write music. I seems you are doing good I am very glad to see that thanks again for your video.
I also have the problem. I had a new VP shunt inserted when I was 10.
tguilbeau456 3 months ago
hi, i have hydrocephalus n i have to schedule to get the shunt inserted ... and your video was very infromative. thank you
SweetBrwnSuga 3 months ago
@SweetBrwnSuga you're very welcome :) I hope all is well and good luck to you! please keep us posted on how you are doing
dadorothy 3 months ago
Hello, I have this also! Got my first at age 17 and had 6 new ones since than. Nothing lost as far as I know, but gained! Stay postive peeps!
Koekie0812 5 months ago
I had my VP Shunt revision on May 12, 2010 this way my fourth revision and I'm 28. We can do anything. Personally my recovery is almost a year in and I'm still inproving my motor skills that. I somewhat lost after the surgery but the doctor said that normal for the amount of surgery's I had in total which is 4
Cartoonsoldier83 1 year ago
@Cartoonsoldier83 I'm happy to see you are doing fine. This is why I like going online to network with others with a VP Shunt. it gives hope to all the little ones going through what we have to. Many blessings to you and I hope you have many many years to go with fewer surgeries. :)
dadorothy 11 months ago
hi, i undergone surgery too. we're on the same boat.. mine was last sept 16,2002
that was my first surgery my whole life.. and im glad that im ok now,, though im experiencing some pain sometimes..
innova220 1 year ago
hey,my name is Jake, have congenital hydroepalus, first surgery within the first 2 wks. of life, many revisions, and now have been surgery free for 13 yrs. I am now 38 and hoping for another 38 yrs. at least, have 5 shunts, they say that they can always find a spot. Oh the hair, it sucks but does come back. Hang in there.
bocajnibas 1 year ago
I have hydrocephalus, i havent had any replacements since i was a little child. 2 years old or so. hope nothing goes wrong with me. but anyways. Stay strong!
jeffmcaraturnbull 1 year ago
Hi, Denise (sp?), thanks for making this video. It's good for people to know about hydrocephalus and what we experience. I'm going to subscribe and see if you have made any further videos to find out how you have been doing since this video. Best wishes to you.
Diffie64 1 year ago
Glad you are well. You are a trooper, God Bless!
fromla2bklyn 2 years ago
i have hydrocephalus i'm in the same boat. i have 2 vp shunts my first one was in at 20 days ago
titaniumtori 2 years ago
really? awe I hope you are feeling better! so are there any questions you would like to ask anyone?
dadorothy 2 years ago
my lil girl is 11 and she has Hydrocephalus since she was 2 weeks on and she had the same shunt since 98.how long did u have ur firtst one in b4 it had to be revised?thanks kish
kisha42003 2 years ago
To tell you the truth, I'm not exactly sure. It's a real blur to me now. I have to ask my parents. :) Thanks for watching my video and I shall let you know. What I do remember though is that I've had more than one revision before turning 13. Your daughter is really lucky.
God Bless..
dadorothy 2 years ago
*alright
Hoopstergir2l005 2 years ago
im already but this ear infection sucks io havent had any more problem with my head
Hoopstergir2l005 2 years ago
im not sure it been a while
Hoopstergir2l005 2 years ago
how are you feeling? wow dumb question. XD sorry
dadorothy 2 years ago
I have a hydrocephalus since i was a few month olds
Hoopstergir2l005 2 years ago
It's nice to meet you! :) when was your last revision? sorry if you don't mind me asking..
dadorothy 2 years ago
ive been tryin to fingure out how to make a video for a while but don't know how.
Em1594 2 years ago
hmm. Do you have a movie editor of some sort?
dadorothy 2 years ago
well that stinks but i'm glad u can take durring summer... hope that gos well!!
Em1594 2 years ago
Thank you so very much! You know? You should make a video yourself! Not only you but everyone should! :) What do you think?
dadorothy 2 years ago
thanks for puttin this up. I've had hydocephalus all my life and just had 58th shunt revision 2weeks ago. Glad ur perfessor let u finish that papper... hope school go's well!! It's cool for me to hear from other hydrocephalus paitents!! Good luck with everythin!!!!
Em1594 2 years ago
2 weeks ago? wow I'm glad to know you're okay. Actually I had to drop that class since I've missed a full week. :( It's fine though because I'm taking that class again over the summer.
dadorothy 2 years ago
thanks for putting this up honey, im 25 and just got home (Friday 20th) from my first vp shunt op. It sucks your teacher wasnt a bit more understanding. Good luck in your studies! I have many questions id like to ask, however, lol, I cant think of what they were. when i remember ill whack it down. hope your goin well hun.
tostrivetoseek 2 years ago
alright :) I'm happy to see (read) you are doing fine. Yeah I was dropped for missing a couple days ad couldn't make it up in time for the mid term so I'm taking the class over again during the summer. But since that happened, now I'm taking a class/job training for medical coding. So all is good and i hope all is well for you. Thanks for your reply! :)
dadorothy 2 years ago
Heey
Im 17 and have hydrocephalus, i have a shunt. Ive had numerous VP shunts throughout my life until 2 weeks ago, ive now got a VA shunt, which goes inot my heart instead of my abdomen.
I always wondered aboutpregnancy with a catheter in the belly. Ive raised this question before and apparently there is no cause for concern =) Theres extra tubing in your belly for that type of growth, also the tubing rests into your peritoneum so it wont get in the way.
Goodluck in your recovery =) xo
tobybelchy 3 years ago
oh wow! thank you for your reply! :) I've never heard of the VA shunt. May I ask how it feels to have a VA shunt? sorry, just curious.
dadorothy 2 years ago
well ive had it now, what, 3 weeks?
&& well since ive had it, ive had some discomfort in my heart. Ive never experienced any pain in my heart before and didnt even know where abouts my heart was until i started getting this sensation. Whether this is normal, im not sure, so i cant speak on behalf everybody with a VA. =) hope youre doing well
tobybelchy 2 years ago
I hope that pain goes away! :( yeah up until now, I cant really sleep on the right side of my head because it feels like I'm putting a lot of pressure on it when I'm not. I really hope that your pain goes away hun. I can't imagine how it feels. X(
dadorothy 2 years ago
Professor? You're in university? That rocks. I'm 41, was shunted when I was 4 months old. I don't have the memory capacity for further education past high school which was a real struggle. To you or anyone else who can succeed like you did - you're really to be commended. I wish you happiness and health.
Love, Sean
UglySean 3 years ago
Lol I'm only a freshman in college... It's nice to meet you Sean and thank you for commenting! :)
dadorothy 3 years ago
No problem! :)
Darkwarrior702 3 years ago
Thanks for your Video. I am 34 years old and was born with Hyrocephalus. You sound to be holding strong. I am thankful tobe able to due things such as lift weights, had trraining in martial arts also play and write music. I seems you are doing good I am very glad to see that thanks again for your video.
Darkwarrior702 3 years ago
wow! hey! you're very welcome... :)
dadorothy 3 years ago
i love u
phoenosso 3 years ago
i love you too!
dadorothy 3 years ago
hhaha. u are funny
phoenosso 3 years ago