I'm a 21 year old man with living with cf and watching this video brought tears to my eyes. thank you Susan for sharing your story and giving us hope and the strength to overcome our disease. I hope everyone with cf lives a long, healthy, prosperous life and cherish it with the people you love the most. If it weren't for my friends and family I'd be lost and alone in this world.
what a great story! My friend has cf and she recently had a double lung transplant at age 40, here in NZ. She waited about 7 mths on the list. I think she was top of the list the whole time! She is slowly recovering and now is being treated for bowel cancer - still, she's a strong lady with a really supportive family and will make it I am sure. My 10 yo son has cf too, so this is likely to be in his future.
my partner has CF and would love to contact someone in NZ who has CF and a transplant. We live in wellington. My address is gemma-marshall@hotmail.com
I am a 34 year old man and I too have CF. I want to thank you Susan for allowing the public to see you at your best and worst. It is helpful to me because I am one of those rare dying people that have zero belief in God. I put my faith in science and people. You make the faith in both a little stronger. You rock! Thank you. BK
I have CF too, but I dont know if I would want a transplant and trade one headache for another.......When its my time, Ill go but until then....I fight every day!
I'm a 21 year old man with living with cf and watching this video brought tears to my eyes. thank you Susan for sharing your story and giving us hope and the strength to overcome our disease. I hope everyone with cf lives a long, healthy, prosperous life and cherish it with the people you love the most. If it weren't for my friends and family I'd be lost and alone in this world.
dankcharlie666 1 year ago
my mother is 59 with CF, she is sick with pneumonia right now in ICU. Im not sure if she will pull through this time.
meanoboy 1 year ago
dude!! That's my friend's mom!! :D Leah just left my house from spending the night :) Thsi is soo....... weird!!! haha
KairaNeverland 1 year ago
I had my lungs for 11 years! i waited 1 month.
pyrskorp 1 year ago
what a great story! My friend has cf and she recently had a double lung transplant at age 40, here in NZ. She waited about 7 mths on the list. I think she was top of the list the whole time! She is slowly recovering and now is being treated for bowel cancer - still, she's a strong lady with a really supportive family and will make it I am sure. My 10 yo son has cf too, so this is likely to be in his future.
suburbanbabe 1 year ago
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@suburbanbabe
my partner has CF and would love to contact someone in NZ who has CF and a transplant. We live in wellington. My address is gemma-marshall@hotmail.com
thank you very much
gemmawatmakoo 10 months ago
Comment removed
thebillykeith 2 years ago
I am a 34 year old man and I too have CF. I want to thank you Susan for allowing the public to see you at your best and worst. It is helpful to me because I am one of those rare dying people that have zero belief in God. I put my faith in science and people. You make the faith in both a little stronger. You rock! Thank you. BK
thebillykeith 2 years ago
well i have to have a transplant i have cf also i'll be 25 jan 27th....so i hope it all works out
chaoticXdisaster 2 years ago 3
I have CF too, but I dont know if I would want a transplant and trade one headache for another.......When its my time, Ill go but until then....I fight every day!
DHurley21 2 years ago
i have cf too im 16....pray for a cure!!
Riley1516 2 years ago
How long do patients live post transplant?
dalvirsinghnarula 2 years ago
..this video brought tears to my eyes..i have cf aged 42...keep the faith..
S888999333 2 years ago
great awareness...keep well Susan...I have CF too..
S888999333 2 years ago
I have Cystic Fibrosis and I got my Lung Transplant on 09/29/08.. at st.louis childrens
IM doing GREAT
Antichase 2 years ago 5