I am 18, and had all of those symptoms since I was 14. I was 14 when I first fell to the ground (blacked out). I have blacked out many times...Recently I was diagnosed by a cardiologist that I have POTS. I was on a heart monitor/event monitor for a month before they made the diagnosis. Have POTS made me get severe anxiety, and since I am on anxiety medicine, my doctor won't prescribe me anything to help POTS. One of the side effects of the anxiety medicine I am taking now, helps with POTS.
@Lev8mysoul and @ncantu2011 Thank you so much! I am so glad this video was so helpful! Hopefully it helped your friends and family understand more about this not very well known illness.
I am 46 and was recently diagnosed with POTS. I shared this video with my friends to help them understand what I am going through. I received emails thanking me for sharing this. Everytime I watch your video, I cry and thank you at the same time for this helpful video.
You did an excellent job with this. My daughter, age 17 also has pots. To help the rest of the family to understand more about this I'm passing it on. TY very much.
I had mono for about a year and was confined to bed for about six months. After i got over the mono i still felt horrible, so we went to so many doctors until one said i had fibromyaltia. Ive been taking meds for that but they havnt worked. Im hoping now if i tell my docs about POTS (which encompasses all my symtoms) they will finally be able to do something about my dizzyness which has put me in a wheelchair at school and so many other places.
@NeverShoutAlex19 No problem! Thanks for spreading awareness :) Thanks for telling me part of your story! (I only said part because I know most of our stories are o so long!)
I was recently diagnosed with POTS after almost 2 years of being misdiagnosed. I was only taken seriously by doctors after fainting in drama class. My family only had started to take me seriously a few months before. The only treatment I'm recieving is for a symptom, migranes.
I posted this video on facebook, for my classmates to finally understand why i cant do what they can with my severe case of POTS, and thanks to you they take me seriously. :)
@2010NurseMom aww thank you soo much! You guys are definitely not alone. It is unusual to see it in boys but it does happen and there is a youtube site called TheManlyPotsies you should check it out. That one is a guy channel with pots and there are 2 others teenpotsieproductions and 5awesomepotsies where they talk about pots syndrome too.
Thanks so much for this/these vids,my 15 year old daughter has been unwell for a long time now.She got the flu and tested positive for Glandular fever and ever since then she has had so many of these symptoms.
Wonderful, poignant video. We love horses, too. Thank you so much for posting this video. I have Fav'd it and am looking for your colorful compression stockings...just Love this Video! It really says 'how it is'...I'm going to send this vid over to the Virtual Medical School for education, too.
Contest for dysautonomia awareness is on Deliver Me Ministries Dot Organism
Please do consider a submission for song, essay, or educational video.
I am 18, and had all of those symptoms since I was 14. I was 14 when I first fell to the ground (blacked out). I have blacked out many times...Recently I was diagnosed by a cardiologist that I have POTS. I was on a heart monitor/event monitor for a month before they made the diagnosis. Have POTS made me get severe anxiety, and since I am on anxiety medicine, my doctor won't prescribe me anything to help POTS. One of the side effects of the anxiety medicine I am taking now, helps with POTS.
hippypancake 1 month ago
@Lev8mysoul and @ncantu2011 Thank you so much! I am so glad this video was so helpful! Hopefully it helped your friends and family understand more about this not very well known illness.
Keep spreading awareness!
- Caroline :)
Potsgirl22 3 months ago
I am 46 and was recently diagnosed with POTS. I shared this video with my friends to help them understand what I am going through. I received emails thanking me for sharing this. Everytime I watch your video, I cry and thank you at the same time for this helpful video.
ncantu2011 3 months ago
You did an excellent job with this. My daughter, age 17 also has pots. To help the rest of the family to understand more about this I'm passing it on. TY very much.
Lev8mysoul 5 months ago
@justind1997 Thank you and I wish all the best to you too!
Potsgirl22 11 months ago
@cobaltgnome23 I'm glad my video helped you! I hope that you find answers and a diagnoses soon!
-Caroline
Potsgirl22 11 months ago
I had mono for about a year and was confined to bed for about six months. After i got over the mono i still felt horrible, so we went to so many doctors until one said i had fibromyaltia. Ive been taking meds for that but they havnt worked. Im hoping now if i tell my docs about POTS (which encompasses all my symtoms) they will finally be able to do something about my dizzyness which has put me in a wheelchair at school and so many other places.
cobaltgnome23 11 months ago
This has been flagged as spam show
potsbecomeaware.blogspot.com
kristennx3 1 year ago
Fantastic video! Thank you from a fellow POTSIE
thehaynes4 1 year ago
@thehaynes4 Thank you!
Potsgirl22 11 months ago
@NeverShoutAlex19 No problem! Thanks for spreading awareness :) Thanks for telling me part of your story! (I only said part because I know most of our stories are o so long!)
- Caroline
Potsgirl22 1 year ago
I was recently diagnosed with POTS after almost 2 years of being misdiagnosed. I was only taken seriously by doctors after fainting in drama class. My family only had started to take me seriously a few months before. The only treatment I'm recieving is for a symptom, migranes.
I posted this video on facebook, for my classmates to finally understand why i cant do what they can with my severe case of POTS, and thanks to you they take me seriously. :)
NeverShoutAlex19 1 year ago
@2010NurseMom aww thank you soo much! You guys are definitely not alone. It is unusual to see it in boys but it does happen and there is a youtube site called TheManlyPotsies you should check it out. That one is a guy channel with pots and there are 2 others teenpotsieproductions and 5awesomepotsies where they talk about pots syndrome too.
Feel free to email
Caroline
Potsgirl22 1 year ago
My son has been diagnosed with this. This video is awe-inspiring. Ty!
2010NurseMom 1 year ago
@GhengisIguanodon Thank you so much! that means a lot! :)
Potsgirl22 1 year ago
beautiful :)
GhengisIguanodon 1 year ago
this is such an amazing video caroline! It sums up POTS sooo well!!! (unfortunately.... ~sigh~) ;-)
xxx
ihavepots 1 year ago
Thanks so much for this/these vids,my 15 year old daughter has been unwell for a long time now.She got the flu and tested positive for Glandular fever and ever since then she has had so many of these symptoms.
JParoro 1 year ago
awww This is Kristin. I hope u get better caroline
LilCityGirls 1 year ago
i got pots too it soo hard to deal with
samanthajhoblacksher 1 year ago
:' (
shadowmaster995 1 year ago
Very Good Video! I was diagnosed 4 months ago with POTS. It is so hard to deal with. Im glad to see that im not alone :(
TheAMANDA1004 1 year ago
Great Job!
sarahdionna 1 year ago
Wonderful, poignant video. We love horses, too. Thank you so much for posting this video. I have Fav'd it and am looking for your colorful compression stockings...just Love this Video! It really says 'how it is'...I'm going to send this vid over to the Virtual Medical School for education, too.
Contest for dysautonomia awareness is on Deliver Me Ministries Dot Organism
Please do consider a submission for song, essay, or educational video.
You keep on keepin' on, my friend.
DysautonomiaMD 1 year ago