She describes ME, everything I have gone through too. Sadly few friends take time to understand it. I had many aches as a child, shingles twice & glandular fever, then as my marriage fell apart, I was finally diagnosed. No information though, had to look for that for myself, no pain killers, I'm allergic to Apsrin & Paracetamol, so can't take anything other than Codine & Morphine, which are baaad drugs :(
I have fought it back & hidden it for years and will continue to do so, it is the only way.
I suggest you see an LLMD (Lyme Literate Doctor). You may actually suffer from Lyme Disase (lots of Lyme patients get misdiagnosed with Fibromyalgia). Lyme Disease can NOT be ruled out with a negative blood test. It's a clinical diagnosis - the symptoms count, not the test. I know whereof I speak - I have Lyme Disease (and my Western Blot blood test was negative)
Its amazing how we find our hero's in the strangest of places, I found mine watching this video. I am 51 and was diagnosed in 1995, but the pain started long before that I started searching for an answer in 1978. You are an amazing young woman and I wish you all the best in life!!!
I just found out that I have FM 3 days ago so im still in the crying at the drop of a hat phase! lol! Its been over a year and a half of testing and docs and im relieved and scared right now. I loved your video though! You really got me when you started talking about how all the test were neg... I just started crying! It just such a hard road to figuring out that its FM. TY for putting this out... it warms my heart to know that there are others out there like me and who understand! ♥
@NoX1313 You may have Lyme Disease. Lots of Lyme patients get misdiagnosed with fibromyalgia. A negative blood test can NOT rule out Lyme disease. It's a clinical diagnosis and needs to be diagnosed by a specialist (LLMD = Lyme Literate Doctor). I suggest you watch the award-winning Lyme Disease documentary "Under Our Skin". Excerpts are here on YouTube.
hi i just wanted to say that i loved your video and it made me feel better cuz i have fibro too and i have such a hard time sleeping but my family always think i sleep good but i never feel rested even when i do get a lil sleep! :o( my pain is somewhat under control at the moment even though i sometimes have flare ups on my arm, its just that i'm not sure if its the fibro or if its becuz when i broke it earlier this year... so whats the worst part of your fibro?
I as well suffer from fibromyalgia and have for so many years. Sometimes the pain is so unbearable I can't imagine going on another day like this. But then I found a comforting scripture in the Bible that gave me hope to keep going. Revelation 21:4 says: And he will wipe out every tear from their eyes and death will be no more neither will mourning nor outcry nor pain be anymore. The former things have passed away." I look forward to this promise from Jehovah God.
I actually started crying and wanted to laugh when it said 'three advil three times a day'. My mum has been suffering with fibromyalgia for some time now. So many doctors have turned her away because they say it 'isn't real'. It's hard for the people who care about her, so I can only imagine just how hard it is for the folks who are diagnosed with it. Thank you for making this; it is so important for more people to be aware of the disease.
prt 4) apnea. Those who have the machines and masks have more energy and have had improvements with what I call fibro fog. New studies are looking into the link of the central nervous system and fibro and the connection to sleep, real sleep vrs the sleep people with fibro experience. Most of us don't go through the proper stages and and lengths to produce a substance that repairs the micro tears in our connective tissues and restore rest. I have sleep apnea and never new it....
I am 20 years old. I was diagnosed with fibromyalgia when I was 9 years old. My grandmother has as well. They are testing me for all these other things. I have had an mri of my brain when I was 17 and they said I just have vertigo. I get really bad headaches as well as many other symptoms. I feel like I am pregnant a lot but I always am not. I used to be very active. I was a cheerleader when I was younger and I love to run. It is hard to do so with all this pain. :(
Hi Lizzie. I wanna thank you for sharing this video. I am doing a presentation for my Nursing School and we chose Fibromyalgia. I came across to your video and all I can think about is how strong you are. May God continue to bless you with more love and support from your family and friends.
Wow...I watched your video. Very moving. I can relate to all the medical tests, variety of specialists., but newly married, starting over at 41, the HAPPIEST in my life and struck with Fibromyalgia.Career woman, mom of 3, Nana of 3, BUSY, BUSY Life, now halted like a brick wall. Thank you for sharing your story, mine is just beginning and hopefully one day I will be able to handle the agonizing pain, Fatique & foggy thinking, to somewhat normal. Hugs from San Diego
pt 5) University and they scheduled me with a neurophysiologist for 10/19/2011. I am 46 now and very excited to possibly get the proper diagnosis and treatment!!
Maybe I will at least be able to get out of bed, shower, go outside and sit in a chair, and cook for myself!!
I will update after my visit to Baylor. Maybe they can help some of y'all as well.
pt 4) noise, and very little touch for 3 years. My primary care doc tried to help, but didn't know what to do. I went to a neurologist and he did a nerve block at about C-7. It helped for a little while, but then I became uninsured. No treatment for several years. When I was 42, I finally blew out my shoulder. I then applied for disability. Two years later I was approved, but have had to wait another two years for Medicare. It begins on 10/5/2011, thank God!! I have called Baylor.....
Respond to this video... I hope you are able to fulfill your dreams. You may have to adjust them now and then, I was in Ballet and had Ford Foundation Scholarships. I was always very active. At 19 I decided to get married instead of following my dream to be a dancer. I aced my audition for a professional company only to be told I was too short, I even lied about my height. Another company made me offers but I wanted to stay in Classical Ballet. The fibro may have begun sooner.
Respond to this video... But it got really bad when I was 30, now I am 56. It took me many doctors and over 10 years to get proper treatment.. I saw an ad for a hospital and rehabilitation center that treated fibro in the newspaper, Casa Colina hospital. They had a 6 week program. I started pool therapy. Which helps and gives me a chance to escape some of gravities pull on my body decreasing pain. They keep the pool around 98 degrees which really helps. I have a Neurologist ... cont....
Respond to this video... Pt 3) a rheumatologist. I am in a small support group for fibro. It helps to have someone who "gets it". None of the medications work for me. Others in my group have had great success with the medications. I hoped to teach dance or be a choreographer, but at 56 I am still holding on to that dream. I make jewelry now at home and hope to start a business selling it. The neurologists are looking into sleep studies and have found many with fibro also have sleep....
{I am small. My clothes are a size 12 in Little Girls (sz 7-14)}
I worked many heavy lifting jobs, as I could never type. Pain, pain, pain..... When I was 30 yrs old, I started nursing school. I graduated and began working. Again a lot of heavy lifting. Finally, my L shoulder (trapezius) "blew out" while moving a patient. I could no longer use my L arm. Some days were bad, others are worse. Layed in bed, in the dark, with no...
pt 2) and it was hard to bend over to do my job. But there was really no choice in the matter. I had to work. At 17, I began working at a health club. I had pain, but I thought it was just my posture. I worked out with free weights for about 12 hours/wk (with the help of a very good chiropractor) until I was 22. I moved to another state and rarely worked out after that but the pain steadily increased. I began to slept a lot just to escape the pain. All of my jobs were heavy lifting, ...but
Pt.1) Hi, I have also had chronic pain since about the same time I started getting my period. At age 12, I had a pinched nerve between my shoulder blade and my spine and was flat on my back for three days. A visit to a chiropractor help it loosen up. When I was 15, I had mononucleosis. I didn't feel bad. Just tired and my liver enzymes were abnormal. After that the pain pain in my back and sacrum, which made it difficult to stand at work. The pain in my neck and upper back began.....cont
Hi. I have been living with chronic pain all of my adult life. Looking back the fatigue seemed to start in childhood and am wondering if anyone else thinks this may have begun when mentration started. Mine began early at the age of ten, was uber heavy and painful.Having tried everything including Lyrica that made me feel drunk and almost put my truck into a ditch when I had to leave work. That drug is dangerous. Anyone trying it please be careful. Wishing you more good days than bad. xo
Your video could have been talking about me. I was in training working out 5 times a week when I was slammed with fibromyalgia and could barely get out of bed for 3 months. I've just learned that I have to do things at my own pace - things still get done but just a little slower. Thank you for making your video, it really touched me, and I do hope it causes people to appreciate their good health and have more understanding for others. You rock girl!!!
Food is such a controvercial subject. I have found eliminating certain foods, makes an enoromous difference to me. Have you considered this as a treatment option?
I too have been dealing with chronic pain since childhood. Then at 28 I got a weird viral infection that left me with full-blown fibromyalgia, so I relate to you deeply. I just want to make one point tho: have you ever been screened for lupus also? Light sensitivity and facial rash on nose/cheeks are very typical of that condition. A friend of mine has it. If you haven't been assessed for lupus, suggest you do. Take care, be good to yourself.
@mercybay yeah, I've been screened many times for lupus. I have the elevated ANA level (have since at least when I was diagnosed with FM) but the secondary lupus tests have come back negative, so they don't wanna put me on treatment for if those secondary ones are negative since the treatment is more extreme. They even took a biopsy on my face years ago and it came back negative, so they don't know exactly what I have, but they don't think it's lupus.
@NewL30 I definately feel for you! This battle you went through is something Im in the middle of myself. I have seen so many doctors and thankfully it has been covered by the military, but I have also had a blood test that came back with a high ANA, high sed rate and an abnormal C-Reactive. I went to the neurologist for second time and did the second lupus tests which came back negative. I've had colonoscopy, hysteroscopy for pelvic pain. Have seen an ENT, Dentist for facial pain, had brain MRI
Hi my name is Holly I'm 19 and have had Fibromyalgia since I was 12. I have not been able to find anyone my age or anyone who has had it since they were in their teens like me. I would really appreciate if you would contact me. I have a lot of questions about just normal things like having a job or going to college. Every one I know who has fm isn't able to work and are at least 20 years older than me.
@hollyxdear Hey, I'd be happy to talk to you. A lot has changed since I made this video (I'm working on an update) and I've actually since had to switch colleges cause being away from home was too hard. But I know what you mean. When I was first diagnosed there was like no info out there about younger people, and it's not much better now. But yeah, feel free to message me with questions or whatever!
@NewL30 I too have had fibro since I was a teenager symptoms began around 10/11 yrs old. All I knew is that I was not like other people, bone tired constant pain &sore muscles all the time, all over, headaches everyday, Doctors however, since all of my blood work and test usually came back negative, became my enemy. Its all in your head, or your faking for attention they told me. I feel my life and choices would have been different if I would have known then that I would not be able to
@hollyxdear I know this has been awhile since you posted this, but I am 20 years old with fibromyalgia and I was diagnosed with it when I was 11 years old. the thing is, I was most likely born with it. My mother has it and all my sisters do. There are people your age who have it, they just don't know!
Ehi, my name's Ester, I'm from Italy, I'm 22. I know you're situation. Arnold Chiari and FM, that's what I've got. And my sister too.
Now I'm doing a Representative Cultural Program here in the USA at Epcto in WaltDisneywORLD and I'm discovering that here in the USA the FM is more popular that in Italy. In Italy NO ONE knows what it is.
I HATE IT. I HATE THAT I CAN'T SPEND MY LIFE HOW I'D LIKE TO SPEND IT.
...Now, I'm just trying. Trying to do what I want, even if it's hard, very hard.
Love your video! You have taken such a terrible disease and explained it in such a perfect way. I am 33 and have been fighting this disease for three years now, on meds and try other tactics but I live day to day with pain. I teach the fifth grade and have been teaching for nine years now. It gets more difficult each year but I strive to do my best even though I miss a lot of work. I have two beautiful children and a wonderful husband who have all helped me to adapt to my "our" new life!
I'm glad people are sharing these stories. I'm 47 an can't really remember when pain wasn't a normal state for me. I was also very athletic growing up...skateboards, tackle football, track and field, avid dancer, US Navy....etc. I was used to being sore.20 years ago, I had an emergency C-section and about 7 years ago a burst appendix.The past 10 years have sucked beyond the telling of it....(personal traumas). I'm starting to see patterns. I'm going to try EFT (emotional freedom technique)
I'm glad people are sharing these stories. I'm 47 an can't really remember when pain wasn't a normal state for me. I was also very athletic growing up...skateboards, tackle football, track and field, avid dancer, US Navy....etc. I was used to being sore.20 years ago, I had an emergency C-section and about 7 years ago a burst appendix.The past 10 years have sucked beyond the telling of it....(personal traumas). I'm starting to see patterns. I'm going to try EFT (emotional freedom technique)
hi. thanks for makin the most touhing video about are illness i have seen. you have managed to explain your story in a way that most of us understand. well done. i was diagnosed 6mths ago. i have had a brain hemorrage, three tumors removed, mild form of meningitus. i thought all that was hell but now this, fibromyalgia worse pain ever. people dont believe, they think its all made up cause i dont look ill. sorry im not going to lose my smile or laughter for others. once again well done.
OMG! ?? the pleople still buying the pharmacy that is loaded with unnecessary side effects. I know a product that really helps the problem of fibromyalgia. Contact me for I can help you. I have a friend who was sick with Fibromyalgia and saw the whole process step by wheelchair, then using a cane and now drives his own car and speaks fluently. I can contacts for my pain de youtube searches: aaopr33 HAVE A GREAT DAY!!!!
Check out your Oxytocin levels (a hormone that reduce pain in the body). Look up Dr Jorge Fletcher on U tubes for more information of the role of oxytocin.
Check out your Oxytocin levels (a hormone that reduce pain in the body). Loook up Dr Jorge Fletcher on U tubes for more information of the role of oxytocin.
Check out your Oxytocin levels (a hormone that reduce pain in the body). Loook up Dr Jorge Fletcther on U tubes for more information of the role of oxytocin.
I was diagnosed with FM 15 yrs ago, and seeing others that are going through similar things helps... Not that I would ever wish this on ANYONE, knowing that there are people that understand helps.
I am planning on posting this on Facebook, to help more people understand.
In many cases, fibromyalgia is actually untreated hypothyroidism. Check your thyroid. Some desiccated thyroid hormone could change your life. Take the Barnes Basal Temperature Test, google it. It's very simple.
I suffer with pain that moved all over my body. I have 5 different types of pains. That puzzled all the doctors. My mom took me to different specilaist and did different kinds of test on me and found nothing. At one point I thought I had some unknow illness that was uncureable. I really thought I was going to die. Till finally I was sent to a pain specialist. He examined me and said I have Fyromalgia. I was shocked and relieved that finally a doctor diagnosed me. He was truely my last hope.
Im 36 yrs old and I been sick since I was around 7yrs old. I just took a trip to the Dominican Republic and he change all the meds they were giving me here n change my diet u know vegetable salads and fruit. No meats, fish or grease he want to clear my system no juices just water four 6 weeks his giving me tramadol for pain and prednisone 5mg 3x day for 7 days, 2x day for 14day and 1 a day 21 day close shoes alot of rest limit walking until I see him again and im not using my cane i feel better
What an EXCELLENT video! It saddens me to hear about how young you were when 1st struggling with aches & pains. I was 44 yrs when diagnosed with FMS. My mom, aunt & cousin had been diagnosed with FMS, too. For the past 10 yrs, both of my daughter's complain of many symptoms associated with fibro. My fear is both my daughter's having to live with this life-changing disorder. I highly doubt doctors will acknowledge FMS in young teenage? We're taking one day at a time & staying positive!
Thankyou for sharing this Lizzie my heart goes out to you I'm going to be 48 next week and have seen every Dr, tried to deal with the fact that they basically could never understand, all my MRIs blah blah blah showed inconclusive, my Dr just diagnosed me today, it all makes some weird kind of sense now. You are an inspiration.
Im so sorry that you have so much pain. You're too young to have to deal with so much adversity. I am 46 and know this is what I have and it's unbearable for me on most days. I want to fight to keep the life I have as normal as possible and your story gives me even more will to do this. I look at each day as a gift that I am able to be around the people I love and the kids I teach in my classroom and I will do it as long as I can physically manage it! Keep strong:)
@cindykron I'm a little late replying to this, but I want you to know that your comment really means a lot to me. I wanna work with kids for a living either in social work or as a teacher, and sometimes I worry that I won't be able to physically. So to know that you are a teacher with FM really gives me hope. So thank you!
Thank you for sharing Lizzie.. I know how tough it is to have your whole life changed. I was diagnosed 5 years ago. My daughter was only 11 and couldn't even hug her Mom or cuddle and watch a movie without me being in pain.
My now ex wouldn't believe I was sick, said I was just lazy!
I was diagnosed with Cancer last year so we have been through a lot. Sadly many Fibromites will be diagnosed with a "life threatening" disease in their lives. Like Fibro doesn't "threaten" your life!! Stay strong!
Thanks NewL30 4 sharing what we are going through, the pains, fatigue, the looks of others (family,friends,docs.) i'v been diagnosed with FM about 2 y ago but i had the hurts and symp. for a good 10 years i think. In 05 my doc found a cervical hernia , it shrunk but , they found 2 more. Beginning of dec 2010 i had a car accident hurt my back and i may have a hernia @ L5 S1..i do physio , osteo , masso + meds . We need to push for research, i'm 43 & i want 2 enjoy life. Josee from Que. Canada
hey i was diagnosed at 16, i have never tried reaching out until recently because i met someone else who has it in one of my classes at school and im glad i found your video because not many people were diagnosed this young, its a feeling of having your youth robbed from you and no one understands it. ive become very isolated from it over the past 7 years it has been extremely difficult. i was wondering if there is a way we can talk outside of youtube maybe? my name is sarah btw =)
AAAAWWWWW sweetheart I have to tell you I absolutely cried my eyes out watching your video tonight...I have been sitting here researching all night looking for hope that my pain will end some day soon...I was diagnosed with FM 2 years ago and have not had a pain free day in over 5 years and like you, i have my good days and my bad days but I try so hard to keep my chin up. I sit here and look at your sweet face and pray that a cause and cure is found soon for FM...Stay sweet and stay strong hun.
Thank you so much for posting your story. I am touched and my heart goes out to you for having such fortitude and resolve. There are two women friends in my life that suffer from fibromyalgia and one of them I am so in love with. Now that I am becoming aware of FM, I have a better understanding of why Erica (the girl I love) acts in certain ways and does things differently. Thank you once again and I will keep you in mind in my conversations with both my female friends and in my prayers.
My 13 yo daughter was just diagnosed with juvenile fibromyalgia. I've had difficulty finding information and support. Your video is encouraging and hope giving as we begin this journey. Thanks.
when i watched your video all i could think about was how that sounded almost like my story. I have Fibro too, I was diagnosed with it when i was 15 but i'm sure that i had it long then that it just did not get that bad till then. it has made me stronger and changed my life too. your video is great!
as i watch this i got a bad feeling in the pit of my stomach,those symptoms feel a lot like how i feel. i could not graduate from high school because i felt always tiered,pain in my skin like a bad sun burn, and i could not pay attention at school,and i felt frustrated because of my inability to do what i use to do so well, .i haven't bin diagnosed yet but i have a bad feeling.
Wonderfully done. My heart goes out to all with FM. I was diagnosed in the mid-90's and still feel shame admitting it. Although many health professionals try to 'say' the right thing, their non-verbals tell a different story. I see questions of my psychological well-being in their expressions. It is maddening enough to be in constant pain, but to be wrongly judged makes it all the more painful. S0, today I am home from work due to increased pain. So it goes!
i suffer with FM and in australia there is even less awareness of it then in the US it drives me mad but i am so impressed with your sucess in life and your education keep going as long as u can!
Beautiful Clip, cried to know you suffer the same pain I do, but I am 50. I was diagnosed 2 years ago but have FM for around 5 years, This I know because of the symptoms as you would know too. I have had several 'traumas' one being an emergency cesarean. Glandular Fever, Shingles but fortunate to catch that within 72 hours so had the injection to cure it!! Also my mother died of lung cancer in 2000. Yes, I believe trauma can cause serious illness, but think there's maybe more? Bless you♥♥♥
@jodyfarquhar absolutely. I believe there's a genetic link for FM as well and the traumas can trigger it or something. We think that my grandmother had FM but since it was so long ago and she died in '96, FM wasn't really a diagnosis yet. My mom often comments that things i say remind her of things my grandma said. She suffered with pain and fatigue and all kinda of things. so i think i had the genes or whatever and the trauma just caused the onset.
@jodyfarquhar HI JODY I AM 48 THIS AUGUST AND I HAVE HAD THE CONDITION ALL MY LIFE I GUESS I JUST DEALT WITH IT ...JUST KEEP TRYING EVERYTHING TRY MSM AND APPLE CIDER VINEGAR ONE BANANA A DAY WILL HELP WITH THE IBS
I think that it's ignorance and sexism that makes docs and others think this stuff is "in patients' heads" cuz it's mostly women affected with FMS, and the medical system is very sexist so no shock there; females gotta stick together and not let the medical "experts" bully or silence the REAL experts, which are those in pain! p.s this is a personal Q so u may want to email me the answer, but I was just wondering, had there been some sexual abuse or trauma when you were little?
@superotter77 hey, i don't mind answering here simply because there wasn't. I know sometimes abuse can trigger things like this, but while my childhood wasn't always happy i was lucky enough that it was essentially normal. I actually had very little experience with pain prior to getting FM, which was why it was such a shock. I was an athlete so of course i had some pain here and there but i really was kinda a wimp before haha cause nothing had ever really happened to me.
@NewL30 Hey there, thanx so much for answering that question. I recently studied FMS for a psychology degree i'm doing, & the word "trauma" kept coming up around FMS, which is why I asked. Of course, there are other types of body trauma like surgeries (very hard on the body) & car accidents, etc., but it sounds from your video that it all got triggered by that bad flu you had at age 10 huh? I know it's a complicated disease, I hope u are managing 2 cope with it & that ur pain is well managed!
@superotter77 yeah i mean i had signs i guess when i was younger. like i always had really bad growing pains which are apparently an early sign, but a lot of kids have those and grow out of them. The flu was the first definitive thing we can link it to, but the real trigger was the arm injury i got when I was 13. The pain really started after that. it was like the injury never got better and then spread.
I'm FMaware and applaud your courage; it takes strength to live with what you're living with. I know cuz my wife has bad FMS & RSD, so I see her suffer all the time. She was sick from a young age too and now that she's 40 she is on the right pain meds which is OPIOIDS -- do you take them? they are the safest and most effective painkillers but there's so much mass hysteria and ignorance around them but that's a whole other story. hang in there and thanx for sharing! you're a warrior!
I love your video! I had long suspected I had FM, but like you had to run the gauntlet of doctors, tests, more doctors and tests ect. I was "officially" diagnosed this last november and it does alter your life! I spent 20 years in the military and loved to do all sorts of outdoor activity, especially volleyball. Now I just get to sit on the sidelines but I still try and enjoy what I can.
You did a great job on this video. I cried through it as I can relate so well. I was the most athletic girl I knew..distant runner for 18 years and long distant biker. I have had fibro since age 32 and I am now 52. Suicide has been on my plate for the last 15 of those 20 years. It is absolutely horrible to live with. I am sorry for you and all the others here and everywhere that have this debilitating disease. It yanks the life right out of you. Thank you for this video.
I was diagnosed 20 years ago, at the age of 10. I feel bad for you that it took so long to find out what was wrong..
But even being diagnosed so early, there was no treatment plan for someone that young.. I didn't start treatment until a few years ago and even though still in pain, it has helped some..
Sucks that most people have no way to comprehend what you are going through.
i have been in pain for 15 years im 26 now doctors don't know what's wrong with me the pain is now everywhere i feel so tried all the time i work 8 hours a day on my legs and that kills me i think i might have this fibromyalgia but i know my doctors said to me when i was 15 years old that all the pain im in is in my head im sick and tried of people say that my friends and family think im putting it on and im not people just dont understand x
I have almost all the symptoms of fibromyalgia, I was diagnosed in 2007. My pain is rediculous and I want to send love to those suffering. Because we do hurt and I don't care if no one believes me...my life is an example of how fibromyalgia can wear a person down. I can't really call it living with fibromyalgia as much as surviving a life with fibromyalgia.
I am 14 and for the past 5 months I have been in so much pain!I have had many test and eveything is fine!I keep gettin pain all over somedays worst then others it hurts eveyone is sleeping and I am awake! I keep getting sinus and ear infection and I think I have another one. I feel like I ran 6 miles! My fingers hurt while I am typing! I am going to a ENT on the 19th so I am telling him my 20th doctor I am going to tell about my pain! Could I have Fibromyalgia I have always had knee pain at 7.
yes we my wife and me are aware you sound like a fighter, i no my wife is a big fighter she is tough but the pain will bring her down, she does have alot of bad days but like i said shes a fighter, god bless ya and lets hope fm gets a cure soon! thanks for posting
Got "fibro"? Do yourself a favor and check your medical records to see if you'd taken Cipro, Levaquin, Avelox or any other quinolone antibiotics in the weeks or months prior to your symptoms arising. Doctors give out these terribly poisonous drugs like they're candy, and they are known to cause DELAYED REACTIONS that mimic fibro symptoms nearly perfectly. Because of this delay in reaction time, many people never make the connection between the drugs and their new mysterious health problems.
OMG THIS VIDEO IS SO SAD! I STARTED CRYING AS SOON AS THEY STARTED TALKING ABOUT WHAT HER SICKNESS WAS! :'( I FEEL REALLY SAD FOR THIS GIRL! NO ONE DESERVES A LIFE LIKE THIS!
I want to thank you for making and posting this video. My FM started when I was 16 and docs didn't know much. I went doc to doc as a teen, was homeschooled (which was fun), had tests, etc. They eventually brought it to Lupus then yrs. went by, I'm now 24, and I'm now hesistantly told (I think docs like to keep people in the dark bout FM so they can make more money. Big story behind that.) No meds help, but your vid gave me hope. Thank you very much. God Bless.
This touched me so much yesterday I had to share it with my husband this morning. God bless you Lizzie & all those who are alive today with fibromyalgia. We are survivors! If anyone needs some encouragement please post and I'll do my best to help any way I can :-)
This touched me so much yesterday I had to share it with my husband this morning. God bless you Lizzie & all those who are alive today with fibromyalgia. We are survivors! If anyone needs some encouragement please post and I'll do my best to help any way I can :-)
I watched the entire video & it made me cry at the end when you said the girl is you! Oh my goodness. I'm a survivor of about 25 yrs now and through my journey I've discovered conventional doctors don't see the whole picture of this illness. Alternative medicine has benefited me the most. Being wheelchair free now since 2006 is great but because of an accident Oct of 2009 I'm spiraling downwards. I have a lot of knowledge of what can help patients. I used to work with an alternative doctor.
I am glad you got checked out! Thanks for your response.
I hope you continue to advocate for Fibromyalgia awareness. What you are doing is great! I wish you all the best, from the bottom of my heart. I got sick with fibro when I was about 23 or 24. I got a diagnosis in 2007, and I think that was the same year the first drug was FDA-approved for fibromyalgia (Lyrica). In just 3 short years, we already have 3 FDA-approved drugs. There is hope for our future! Hang in there!
Have you been checked for Lupus, too? The rash and skin sensitivity to light has me wondering. I have fibromyalgia, too, and they're watching me for lupus. They did a biopsy on a rash and it came back suggestive of an early connective tissue abnormality problem (something like that). Lupus was high on their list of possibilities. They can do bloodtests, but it can often be inconclusive or negative for a long time. Thank you for making this video! It was one of the best I've seen!
@greybeh14 yeah, there was a whole thing about that. for like 2 years i had elevated ANA so w/ the skin rash they were concerned but the secondary Lupus tests were negative. They sent me to another specialist who did a skin biopsy on my face. which came back negative. they're hesitant to diagnose Lupus w/o other positive test results cause lots of teen girls have elevated ANA so it could be a coincidence. i have no idea if they're still elevated either. so no one really knows haha. And thanks!
This almost made me cry. Every time I find someone who has FM too it makes my heart ache and soar at the same time. Kindred spirits are hard to find. I started with my symptoms 2 and a half years ago, and I finally got diagnosed at the beginning of this year. It's hard to live with this so young (I was 17 when it started), especially when people accuse you of being 'sick' for attention or what not. Pain every day puts a bit of a hold on life, but know that you are loved from another FM victim.
@crazy7house - those are both symptoms. Research good docs in your area and get checked out. :-)
I have had FM since I was 15... diagnosed when 17... I am now 37. Despite the pain i have a great life. It can be done... just find your limits and don't overdo it.
@crazy7house hey. do you mean burning in the muscles? I don't get those too much, but i have gotten them in my shoulder muscles mainly. mostly my muscle pain is aching or sharp. i do have sensitivity to light on my face which causes burning. i get it bad when i'm flaring. it's the first sign. it's mainly florescent lighting but when it's bad it's all light. they don't know for sure if it's the FM causing it. i think it is. i suggest going to a doctor as well though. Good luck!
very inspirational...and made me cry at the same time..I feel ashamed Im so upset about getting FM in my 40's and struggling to raise my son by myself...at least I had my youth before this took over my life..you made a beautiful video and you are a beautiful strong girl..Ive long wished for a cure for FM but after seeing this video they cant find one soon enough as far as Im concerned. God bless
I loved you video I'm trying to fiqure out if I have this. I'm always tired and My back is always stiff since I was 11. I get sad most of the time on a very deep level and panic when things dont work out for me. Maybe you can help me?
@carene711 - please go see a doc... research online for good FM docs... you may want to go see a therapist also... if for nothing else, but to work through the effects of chronic pain on your emotions. It's important to take care of yourself physically and emotionally. :-)
Someone I love so much suffers from this...She is in America and I am in OZ..I cant hold her hand when she cries. It upsets me more knowing her partner of 10 years left her for someone else when she was diagnosed. Thankyou for sharing this with us. I hope more and more people view this and think about how lucky they just might be in their own lives.
Hi, I'm 52 and was diagnosed in1989 after having the same mysterious flu you mentioned. Neither my husband nor my 2 small children at the time, became ill. I was left with pain in my hands and feet immediately but now, all these years later, I can't remember what it feels like to be pain free anywhere on my body. Thankfully at least some of my family is supportive. Thank you for sharing your story and bless you in your journey with this disease.
thank you Lizzie for sharing this story may God bless you. I have a friend with FM and i wasn't even close to knowing what it was and this video really touched my heart and i feel horrible that you, her or anyone should have to go through this . Much LOVE to you God bless you.
Have you tested positive on 11 of the 18 pressure points for Fibro. Fairly easy to be pain free in 5 sessions of Rife. I have not encountered anyone with Fibro who has not responded. Fibro is a fungal infection of your blood, get rid of the fungus and you get rid of the pain! You do not have to suffer or take cortisone and pain medication that have wonderful side affects. Treat the disease not the pain! Think out of the BOX!
I have M.E./Fybromyalgia. I have had it for nearly 6 years now. I am 36 now and it is such a hard illness to deal with and I agree people don't understand. I used to instruct martial arts, skate, swim, trampoline and I too now feel like I'm on the side lines. I am a cheerful person and try to live as normal a life as I can like you,. I am starting up my own business so I can choose my own hours after loosing my job due to sickness. Can't imagine how you felt at 14? God bless Mel U.K x
I have M.E./Fybromyalgia. I have had it for nearly 6 years now. I am 36 now and it is such a hard illness to deal with and I agree people don't understand. I used to instruct martial arts, skate, swim, trampoline and I too now feel like I'm on the side lines. I am a cheerful person and try to live as normal a life as I can like you,. I am starting up my own business so I can choose my own hours after loosing my job due to sickness. Can't imagine how you felt at 14? God bless Mel U.K x
I have fibromyalgia 20 years and your lucky to have such a supportive family mine never understood and I had to move away.... but after moving over 10 times running from it I now accept that it,s here to stay. AND I gave up trying to hide it or be pulled down by the negative response from others... and I AM ME.......
if anyone hasn't tried a Wheat, sugar, Carb's ie rice/potato, red meat , caffine, egg yolk, citrus fruit, MSG's, all junk junk food, cig's, booze FREE DIET? you should give it a go!! if you cheat it won't work! it's not easy finding foods you can eat, u need to plan in advance & cook more meals and just use your imagination, sweet potato's are ok ,wheat free pasta, bread from spelt flour..buy organic food..it''s easier if your family eat the same food, there are FMS cook books on sale..try it
@FreedmFightr not alot if your lazy or live in the US or both??? otherwise wheat free Flour (ie spelt flour) wheat free pasta wheat free anything!!! oat cerials, sweet potato's, Veg (lots of, you know veg right????) brown rice, dairy prod's are ok, cheese, egg's but not many!! the yolk aint so good!!! buy lean mince and make pie's, or veg pie's, fish, fish pie's, use fruit sugar if you must have sugar!!! stay away from addative's!!! MSG's!!!!...lots of tined organic foods about.. END OF PART ONE
@FreedmFightr PART TWO.... eat little and often!!! not after 6pm if you can help it, FMC sufferers gain weight easily and are less likely to lose weight!!! once you get your head around whats good and whats not it'll get easier!!! buy nut's for treats, or bake oat cookies, carob (like chocolate) before fast foods & appart from bread & potato's, what did people eat? there never used to be addative's (chemicals) in food...it's not a cure but will help...i am a sufferer!! 100% of me...
I too have FM Diagnosed 16 years ago - not much has changed in the medical field as far as attitude. The biggest thing that I have learned along the way, all the tests, all the Dr.'s, all the treatments - DO NOT GIVE UP-LIFE IS WHAT YOU MAKE IT!!!! You can have the life you want, we just have to be stronger. I give the greatest of praise to my PT assistant, Carla. Took me 15 years to find her but she showed me the technique strain/counter strain. This has helped me more than anything!!!!
My name is Anne I have struggled with fibromalyia for 15 years the pain often keeps me awake. It is a very deliberating chronic disease and misunderstood by alot of family and friends.
My name is Jenn and I have been diagnosed for 17 years now. They recently discovered I also have Ankylosing Spondylitis. I had trouble with the kids at school, the principal and the guidance councilor were overheard discussing my "hypochondria." You are a very brave girl and so very lucky to have had friends to stand beside you and to try to understand. I never had that. Your video was wonderful and I wish more kids could see it so that future kids can avoid the emotional pain we felt.
@jjoywinter i had trouble with kids at school too. i was bullied anyway in middle school so it was just another excuse and I lost a lot of friends. and truthfully i only really have one friend now who knew me before I had FM. My schools weren't too good about it either. I mean certain teachers were but in general I felt I was going at it alone. but i've found it's all about finding the right people who accept you for all you are and that includes the FM.
@jjoywinter I was always a sickly child with frequent sore throats and flu like symptoms, sickness and earache. At 47 I got a diagnosis of Ankylosing Spondylitis. I am now 50 and believe I also have FM (probably had it for years, I am sun, noise and smell sensitive, have a rash on my nose and cheeks, widespread pain and fatigue) but have not yet got a diagnosis on that.
@jjoywinter I was always a sickly child with frequent sore throats and flu like symptoms, sickness and earache. At 47 I got a diagnosis of Ankylosing Spondylitis. I am now 50 and believe I also have FM (probably had it for years, I am sun, noise and smell sensitive, have a rash on my nose and cheeks, widespread pain and fatigue) but have not yet got a diagnosis on that.
@jjoywinter I was always a sickly child with frequent sore throats and flu like symptoms, sickness and earache. At 47 I got a diagnosis of Ankylosing Spondylitis. I am now 50 and believe I also have FM (probably had it for years, I am sun, noise and smell sensitive, have a rash on my nose and cheeks, widespread pain and fatigue) but have not yet got a diagnosis on that.
Wonderful that you have found a way to treat this illness that offers hope. Good luck to you and my best wishes for your renewed health and prosperity! Valerie Lumley
Thank you for sharing your story with us. I have had FM for the last 15 years, and 2 weeks ago I was told I have MS also. Good luck to you. You are a wonderful beautiful girl.
Thank you so much for uploading this - I've had Fibromyalgia since I was 9, such a tough road. Stay strong - this video brought me to tears a few times, not gunna lie!
@xSOPHIE2DOPE I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
I'm also a FMS survivor. Stay positive & keep fighting, never lose hope!
Alter my path but still following my dreams, just have faith. Maybe your destiny is to bring awareness and you're making a difference. I would have never gotten into "causes", video & performance art (bellydancing, gentle exercise) if this didn't happen. I'm still a tattoo/visual artist but had to focus on getting well. Made me slow down, I needed that. Still have severe pain but feel blessed. Good Luck & God Bless.
@DebbieDivine I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
I'm also a survivor of FMS. Stay positive & keep fighting, never lose hope!
Alter my path but still following my dreams, just have faith. Maybe your destiny is to bring awareness and you're making a difference. I would have never gotten into "causes", video & performance art (bellydancing, gentle exercise) if this didn't happen. I'm still a tattoo/visual artist but had to focus on getting well. Made me slow down, I needed that. Still have severe pain but feel blessed. Good Luck & God Bless.
I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific disease after 15 years of failed treatments. I understand this illness completely from the inside and back out again. Symptoms are often mistaken as a cause and what can help does not cure. Please, do not give up and keep going. See my You Tube video "Curing Chronic Fibromyalgia - Choosing What Works" and my best wishes to you all!!!
I am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure of this horrific condition without drugs, and am living proof you can cure this and take back your life. Symptoms are mistaken for the cause and treatments that help do not cure. Please, do not be discouraged by failed hope and keep going!!!
Valerie Lumley, Recovered Fibromyalgic and author of
"Curing Chronic Fibromyalgia - Choosing What Works"
This is a very sensitive and truthful video. I am a recovered fibromyalgic who know this illness from the inside and out again. I know one thing. Never give up until you are well again!!! Keep going and you will find a way to cure this and get your life back!!!!
@redthor60 I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
Hi,My names Bobbi, Im 25.Today I was finally diagnosed with fibromyalgia.Ive spent years in pain,my legs are the worse.I dont dear stretch in fear of the pain because if they pull & spasm, I spend days unable to walk & that just cant happen with my little 6year old daughter who is full of life & way too understanding of 'mummys pains' for any child her age.I have found antiflame rub helps me,I apply it to my feet & legs every night before bed so that I can sleep.Maybe this could help others too
@IceMaidenShh I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
Hi, My names Bobbi, Im 25.Today I was finally diagnosed with fibromyalgia.Ive spent years in pain,my legs are the worse.I dont dear stretch in fear of the pain because if they pull & spasm, I spend days unable to walk & that just cant happen with my little 6year old daughter who is full of life & way too understanding of 'mummys pains' for any child her age.I have found antiflame rub helps me,I apply it to my feet & legs every night before bed so that I can sleep.Maybe this could help others too
My name is Melonie. I have fibromyalgia and systemic lupus. I was wondering if the docs have tested you for lupus with you having the rashes and sun sensitivity? Just curious. Great video. Very touching. Thanks for making it:)
@MyDisabilityInfo yeah, it was actually a long thing. My ANA was elevated for a long time (i don't know if it still is actually) so they were a little concerned. But all the other tests were inconclusive so they were hesitant to diagnose Lupus since apparently a lot of teenage girls have elevated ANA levels. I went to a special dermatologist/rheumatologist and he did a skin biopsy on my face but it came back negative so they just left it alone i guess. and thanks!
@NewL30 I hope you get some answers soon sweetie. You and your parents keep on those doctors when you have any issues. You are your best advocate. I suffered for years starting as a teen and was ignored. Hopefully the docs are better now at listening when we say somethings wrong.
@MyDisabilityInfo I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
@NewL30 I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific disease after 15 years of failed treatments. I understand this illness completely from the inside and back out again. Symptoms are often mistaken as a cause and what can help does not cure. Please, do not give up and keep going. See my You Tube video "Curing Chronic Fibromyalgia - Choosing What Works" and my best wishes to you all!!!
Respond to this video... I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
@MyDisabilityInfo I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
Lizzie! I was diagnosed 2 years ago. I am now 45 yrs old and I truely believe I've had this disease for the past 15...maybe 20 years. My pain began in my wrist also, Dr.'s believed it was carpal tunnel, it didn't help, and like you spread to the same exact parts you described. I would have bouts of pain through the yrs but in the last 2 yrs I can no long deal with the constant pain. I wish I had your courage and optimism. Thanks for the great video. :)
@IHATEfibropain I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
Wow Lizzie! you are an amazing person! i also have FM, just diagnosed 2 wks ago, and i am 36 yrs old! i had no idea what it was until now and i am still learning. that's how i found ur video. and what an outstanding video it is :) great job explaining ur difficult teenage yrs ♥
@TrentIsNotAvailable I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
It took 'm 12 years to diagnose me. Which means it took 'm 12 years to take me serious. It took 12 years of loneliness for finally having someone who came up to me and said 'We know what you've got, I'm sorry' and give me a hug, and the worst part of it all was. That most magnificent doctor in the world who finally helped me, hurted me like hell just by touching me. While actually a hug was everything I craved for.
@JojoHabibati I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
Great job Lizzie!! It gave me a little bit of a shock when you said you made this video! That is very cool! I came accross this not knowing what it was. You are soo couragious, and strong. I had to become a member just so I could comment on your video.. Thank you soo much for your efforts... WELL DONE..
@leajo10 I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
@hiodr I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
Is the painful points when when pressure is added the only way to diagnose FM? I still think I have FM after years of suffering these kind of symptoms and seeing numerous specialists and GPs. Trying different pain meds and horrible anti depressants. I think I might have been tested for FM with the pressure points method several years ago and was told I do not have it. But is this the only way to diagnose?
@GregOBehave as far as i know, the diagnostic criteria is not exclusively the tender points but that they are a vital part of it. I believe the criteria for a fibromyalgia diagnosis is tenderness in at least 11 out of the 18 tender points when pressure is applied and pain in all four quadrants of the body for a duration of at least 3 months. I'm not a doctor though, that is just the information from the National Fibromyalgia Association.
@NewL30 I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
@GregOBehave I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
In the same boat sister. It took about 5 years for them to figure it out for me. I also had a surgeon tell me "some people just have pain" It's going on 12 years now since I've been told I have FM. Nothing has changed. I've tried the meds, which only made me gain weight, I've tried different diets, nothing. I take either Alleve or Tylenol, 3, twice a day. But not even sure that makes much difference. My dreams have also been altered. I just can't wait for the day to get out of this body!
@1king4ever I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
@amandaspatch I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed
She describes ME, everything I have gone through too. Sadly few friends take time to understand it. I had many aches as a child, shingles twice & glandular fever, then as my marriage fell apart, I was finally diagnosed. No information though, had to look for that for myself, no pain killers, I'm allergic to Apsrin & Paracetamol, so can't take anything other than Codine & Morphine, which are baaad drugs :(
I have fought it back & hidden it for years and will continue to do so, it is the only way.
zitakilleen 1 month ago
Why do people think fibro is fake?
01fastrace 1 month ago
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I suggest you see an LLMD (Lyme Literate Doctor). You may actually suffer from Lyme Disase (lots of Lyme patients get misdiagnosed with Fibromyalgia). Lyme Disease can NOT be ruled out with a negative blood test. It's a clinical diagnosis - the symptoms count, not the test. I know whereof I speak - I have Lyme Disease (and my Western Blot blood test was negative)
nula1998 1 month ago
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nula1998 1 month ago
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nula1998 1 month ago
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nula1998 1 month ago
Its amazing how we find our hero's in the strangest of places, I found mine watching this video. I am 51 and was diagnosed in 1995, but the pain started long before that I started searching for an answer in 1978. You are an amazing young woman and I wish you all the best in life!!!
luvinmarywana 2 months ago
I just found out that I have FM 3 days ago so im still in the crying at the drop of a hat phase! lol! Its been over a year and a half of testing and docs and im relieved and scared right now. I loved your video though! You really got me when you started talking about how all the test were neg... I just started crying! It just such a hard road to figuring out that its FM. TY for putting this out... it warms my heart to know that there are others out there like me and who understand! ♥
NoX1313 2 months ago
@NoX1313 You may have Lyme Disease. Lots of Lyme patients get misdiagnosed with fibromyalgia. A negative blood test can NOT rule out Lyme disease. It's a clinical diagnosis and needs to be diagnosed by a specialist (LLMD = Lyme Literate Doctor). I suggest you watch the award-winning Lyme Disease documentary "Under Our Skin". Excerpts are here on YouTube.
nula1998 1 month ago
hi i just wanted to say that i loved your video and it made me feel better cuz i have fibro too and i have such a hard time sleeping but my family always think i sleep good but i never feel rested even when i do get a lil sleep! :o( my pain is somewhat under control at the moment even though i sometimes have flare ups on my arm, its just that i'm not sure if its the fibro or if its becuz when i broke it earlier this year... so whats the worst part of your fibro?
honeydip1871 2 months ago
I as well suffer from fibromyalgia and have for so many years. Sometimes the pain is so unbearable I can't imagine going on another day like this. But then I found a comforting scripture in the Bible that gave me hope to keep going. Revelation 21:4 says: And he will wipe out every tear from their eyes and death will be no more neither will mourning nor outcry nor pain be anymore. The former things have passed away." I look forward to this promise from Jehovah God.
charliebelson 2 months ago
I actually started crying and wanted to laugh when it said 'three advil three times a day'. My mum has been suffering with fibromyalgia for some time now. So many doctors have turned her away because they say it 'isn't real'. It's hard for the people who care about her, so I can only imagine just how hard it is for the folks who are diagnosed with it. Thank you for making this; it is so important for more people to be aware of the disease.
MonochromeHyena 2 months ago
prt 4) apnea. Those who have the machines and masks have more energy and have had improvements with what I call fibro fog. New studies are looking into the link of the central nervous system and fibro and the connection to sleep, real sleep vrs the sleep people with fibro experience. Most of us don't go through the proper stages and and lengths to produce a substance that repairs the micro tears in our connective tissues and restore rest. I have sleep apnea and never new it....
merlin711oregon 2 months ago
keep in touch please! I would love to talk to you.
trishlovesjason 3 months ago
I am 20 years old. I was diagnosed with fibromyalgia when I was 9 years old. My grandmother has as well. They are testing me for all these other things. I have had an mri of my brain when I was 17 and they said I just have vertigo. I get really bad headaches as well as many other symptoms. I feel like I am pregnant a lot but I always am not. I used to be very active. I was a cheerleader when I was younger and I love to run. It is hard to do so with all this pain. :(
trishlovesjason 3 months ago
Hi Lizzie. I wanna thank you for sharing this video. I am doing a presentation for my Nursing School and we chose Fibromyalgia. I came across to your video and all I can think about is how strong you are. May God continue to bless you with more love and support from your family and friends.
jeskaiazify 3 months ago
Wow...I watched your video. Very moving. I can relate to all the medical tests, variety of specialists., but newly married, starting over at 41, the HAPPIEST in my life and struck with Fibromyalgia.Career woman, mom of 3, Nana of 3, BUSY, BUSY Life, now halted like a brick wall. Thank you for sharing your story, mine is just beginning and hopefully one day I will be able to handle the agonizing pain, Fatique & foggy thinking, to somewhat normal. Hugs from San Diego
MsSanDiego1000 3 months ago
pt 5) University and they scheduled me with a neurophysiologist for 10/19/2011. I am 46 now and very excited to possibly get the proper diagnosis and treatment!!
Maybe I will at least be able to get out of bed, shower, go outside and sit in a chair, and cook for myself!!
I will update after my visit to Baylor. Maybe they can help some of y'all as well.
Good Wishes to all of you Fibro Warriors!!
jaxrwld2 4 months ago
pt 4) noise, and very little touch for 3 years. My primary care doc tried to help, but didn't know what to do. I went to a neurologist and he did a nerve block at about C-7. It helped for a little while, but then I became uninsured. No treatment for several years. When I was 42, I finally blew out my shoulder. I then applied for disability. Two years later I was approved, but have had to wait another two years for Medicare. It begins on 10/5/2011, thank God!! I have called Baylor.....
jaxrwld2 4 months ago
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merlin711oregon 2 months ago
Respond to this video... I hope you are able to fulfill your dreams. You may have to adjust them now and then, I was in Ballet and had Ford Foundation Scholarships. I was always very active. At 19 I decided to get married instead of following my dream to be a dancer. I aced my audition for a professional company only to be told I was too short, I even lied about my height. Another company made me offers but I wanted to stay in Classical Ballet. The fibro may have begun sooner.
merlin711oregon 2 months ago
Respond to this video... But it got really bad when I was 30, now I am 56. It took me many doctors and over 10 years to get proper treatment.. I saw an ad for a hospital and rehabilitation center that treated fibro in the newspaper, Casa Colina hospital. They had a 6 week program. I started pool therapy. Which helps and gives me a chance to escape some of gravities pull on my body decreasing pain. They keep the pool around 98 degrees which really helps. I have a Neurologist ... cont....
merlin711oregon 2 months ago
Respond to this video... Pt 3) a rheumatologist. I am in a small support group for fibro. It helps to have someone who "gets it". None of the medications work for me. Others in my group have had great success with the medications. I hoped to teach dance or be a choreographer, but at 56 I am still holding on to that dream. I make jewelry now at home and hope to start a business selling it. The neurologists are looking into sleep studies and have found many with fibro also have sleep....
merlin711oregon 2 months ago
pt 3) I was strong from working out
{I am small. My clothes are a size 12 in Little Girls (sz 7-14)}
I worked many heavy lifting jobs, as I could never type. Pain, pain, pain..... When I was 30 yrs old, I started nursing school. I graduated and began working. Again a lot of heavy lifting. Finally, my L shoulder (trapezius) "blew out" while moving a patient. I could no longer use my L arm. Some days were bad, others are worse. Layed in bed, in the dark, with no...
jaxrwld2 4 months ago
pt 2) and it was hard to bend over to do my job. But there was really no choice in the matter. I had to work. At 17, I began working at a health club. I had pain, but I thought it was just my posture. I worked out with free weights for about 12 hours/wk (with the help of a very good chiropractor) until I was 22. I moved to another state and rarely worked out after that but the pain steadily increased. I began to slept a lot just to escape the pain. All of my jobs were heavy lifting, ...but
jaxrwld2 4 months ago
Pt.1) Hi, I have also had chronic pain since about the same time I started getting my period. At age 12, I had a pinched nerve between my shoulder blade and my spine and was flat on my back for three days. A visit to a chiropractor help it loosen up. When I was 15, I had mononucleosis. I didn't feel bad. Just tired and my liver enzymes were abnormal. After that the pain pain in my back and sacrum, which made it difficult to stand at work. The pain in my neck and upper back began.....cont
jaxrwld2 4 months ago
Hi. I have been living with chronic pain all of my adult life. Looking back the fatigue seemed to start in childhood and am wondering if anyone else thinks this may have begun when mentration started. Mine began early at the age of ten, was uber heavy and painful.Having tried everything including Lyrica that made me feel drunk and almost put my truck into a ditch when I had to leave work. That drug is dangerous. Anyone trying it please be careful. Wishing you more good days than bad. xo
dawnten 4 months ago
Your video could have been talking about me. I was in training working out 5 times a week when I was slammed with fibromyalgia and could barely get out of bed for 3 months. I've just learned that I have to do things at my own pace - things still get done but just a little slower. Thank you for making your video, it really touched me, and I do hope it causes people to appreciate their good health and have more understanding for others. You rock girl!!!
Xenia0natop 5 months ago
Food is such a controvercial subject. I have found eliminating certain foods, makes an enoromous difference to me. Have you considered this as a treatment option?
veronica0831 5 months ago
I too have been dealing with chronic pain since childhood. Then at 28 I got a weird viral infection that left me with full-blown fibromyalgia, so I relate to you deeply. I just want to make one point tho: have you ever been screened for lupus also? Light sensitivity and facial rash on nose/cheeks are very typical of that condition. A friend of mine has it. If you haven't been assessed for lupus, suggest you do. Take care, be good to yourself.
mercybay 6 months ago
@mercybay yeah, I've been screened many times for lupus. I have the elevated ANA level (have since at least when I was diagnosed with FM) but the secondary lupus tests have come back negative, so they don't wanna put me on treatment for if those secondary ones are negative since the treatment is more extreme. They even took a biopsy on my face years ago and it came back negative, so they don't know exactly what I have, but they don't think it's lupus.
Thanks!
NewL30 6 months ago
@NewL30 I definately feel for you! This battle you went through is something Im in the middle of myself. I have seen so many doctors and thankfully it has been covered by the military, but I have also had a blood test that came back with a high ANA, high sed rate and an abnormal C-Reactive. I went to the neurologist for second time and did the second lupus tests which came back negative. I've had colonoscopy, hysteroscopy for pelvic pain. Have seen an ENT, Dentist for facial pain, had brain MRI
RayNic4 2 months ago
you need to know, the flu and the constant nasal drip is connect, antibiotics might be the answer to your fibromylagia
THEnoaliens 6 months ago
Hi my name is Holly I'm 19 and have had Fibromyalgia since I was 12. I have not been able to find anyone my age or anyone who has had it since they were in their teens like me. I would really appreciate if you would contact me. I have a lot of questions about just normal things like having a job or going to college. Every one I know who has fm isn't able to work and are at least 20 years older than me.
message me please
hollyxdear 6 months ago
@hollyxdear Hey, I'd be happy to talk to you. A lot has changed since I made this video (I'm working on an update) and I've actually since had to switch colleges cause being away from home was too hard. But I know what you mean. When I was first diagnosed there was like no info out there about younger people, and it's not much better now. But yeah, feel free to message me with questions or whatever!
NewL30 6 months ago
@NewL30 I too have had fibro since I was a teenager symptoms began around 10/11 yrs old. All I knew is that I was not like other people, bone tired constant pain &sore muscles all the time, all over, headaches everyday, Doctors however, since all of my blood work and test usually came back negative, became my enemy. Its all in your head, or your faking for attention they told me. I feel my life and choices would have been different if I would have known then that I would not be able to
7655kitten 2 weeks ago
@hollyxdear I know this has been awhile since you posted this, but I am 20 years old with fibromyalgia and I was diagnosed with it when I was 11 years old. the thing is, I was most likely born with it. My mother has it and all my sisters do. There are people your age who have it, they just don't know!
susiethequietgirl 2 months ago
Ehi, my name's Ester, I'm from Italy, I'm 22. I know you're situation. Arnold Chiari and FM, that's what I've got. And my sister too.
Now I'm doing a Representative Cultural Program here in the USA at Epcto in WaltDisneywORLD and I'm discovering that here in the USA the FM is more popular that in Italy. In Italy NO ONE knows what it is.
I HATE IT. I HATE THAT I CAN'T SPEND MY LIFE HOW I'D LIKE TO SPEND IT.
...Now, I'm just trying. Trying to do what I want, even if it's hard, very hard.
UnMusical 6 months ago
Love your video! You have taken such a terrible disease and explained it in such a perfect way. I am 33 and have been fighting this disease for three years now, on meds and try other tactics but I live day to day with pain. I teach the fifth grade and have been teaching for nine years now. It gets more difficult each year but I strive to do my best even though I miss a lot of work. I have two beautiful children and a wonderful husband who have all helped me to adapt to my "our" new life!
sist1127 6 months ago
I think EFT will help because it's clear that stress magnified my symptoms.
muzebl 6 months ago
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I'm glad people are sharing these stories. I'm 47 an can't really remember when pain wasn't a normal state for me. I was also very athletic growing up...skateboards, tackle football, track and field, avid dancer, US Navy....etc. I was used to being sore.20 years ago, I had an emergency C-section and about 7 years ago a burst appendix.The past 10 years have sucked beyond the telling of it....(personal traumas). I'm starting to see patterns. I'm going to try EFT (emotional freedom technique)
muzebl 6 months ago
I'm glad people are sharing these stories. I'm 47 an can't really remember when pain wasn't a normal state for me. I was also very athletic growing up...skateboards, tackle football, track and field, avid dancer, US Navy....etc. I was used to being sore.20 years ago, I had an emergency C-section and about 7 years ago a burst appendix.The past 10 years have sucked beyond the telling of it....(personal traumas). I'm starting to see patterns. I'm going to try EFT (emotional freedom technique)
muzebl 6 months ago
hi. thanks for makin the most touhing video about are illness i have seen. you have managed to explain your story in a way that most of us understand. well done. i was diagnosed 6mths ago. i have had a brain hemorrage, three tumors removed, mild form of meningitus. i thought all that was hell but now this, fibromyalgia worse pain ever. people dont believe, they think its all made up cause i dont look ill. sorry im not going to lose my smile or laughter for others. once again well done.
sarahbaileychuck 6 months ago
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OMG! ?? the pleople still buying the pharmacy that is loaded with unnecessary side effects. I know a product that really helps the problem of fibromyalgia. Contact me for I can help you. I have a friend who was sick with Fibromyalgia and saw the whole process step by wheelchair, then using a cane and now drives his own car and speaks fluently. I can contacts for my pain de youtube searches: aaopr33 HAVE A GREAT DAY!!!!
aaopr33 7 months ago
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I would like to know if people who suffers Fibromyalgia lives close by the water for example, lake, river, ocean etc. Please let me know. Thanks.....
88monalisa 7 months ago
I would like to know if people who suffers Fibromyalgia lives close by the water for example, lake, river, ocean etc. Please let me know. Thanks.
88monalisa 7 months ago
@88monalisa I live in the bay area in California and have Fibromyalgia
hollyxdear 6 months ago
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Check out your Oxytocin levels (a hormone that reduce pain in the body). Look up Dr Jorge Fletcher on U tubes for more information of the role of oxytocin.
MyMac2011 7 months ago
This has been flagged as spam show
Check out your Oxytocin levels (a hormone that reduce pain in the body). Loook up Dr Jorge Fletcher on U tubes for more information of the role of oxytocin.
MyMac2011 7 months ago
Check out your Oxytocin levels (a hormone that reduce pain in the body). Loook up Dr Jorge Fletcther on U tubes for more information of the role of oxytocin.
MyMac2011 7 months ago
Thank you so much for posting this video.
I was diagnosed with FM 15 yrs ago, and seeing others that are going through similar things helps... Not that I would ever wish this on ANYONE, knowing that there are people that understand helps.
I am planning on posting this on Facebook, to help more people understand.
Thanks again,
Taunna
snowflower3935 7 months ago
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In many cases, fibromyalgia is actually untreated hypothyroidism. Check your thyroid. Some desiccated thyroid hormone could change your life. Take the Barnes Basal Temperature Test, google it. It's very simple.
Soralella71 7 months ago
I suffer with pain that moved all over my body. I have 5 different types of pains. That puzzled all the doctors. My mom took me to different specilaist and did different kinds of test on me and found nothing. At one point I thought I had some unknow illness that was uncureable. I really thought I was going to die. Till finally I was sent to a pain specialist. He examined me and said I have Fyromalgia. I was shocked and relieved that finally a doctor diagnosed me. He was truely my last hope.
Anime2NIght 7 months ago
Im 36 yrs old and I been sick since I was around 7yrs old. I just took a trip to the Dominican Republic and he change all the meds they were giving me here n change my diet u know vegetable salads and fruit. No meats, fish or grease he want to clear my system no juices just water four 6 weeks his giving me tramadol for pain and prednisone 5mg 3x day for 7 days, 2x day for 14day and 1 a day 21 day close shoes alot of rest limit walking until I see him again and im not using my cane i feel better
ashryan1012 8 months ago
Thank you so much for posting this video. Even at 43 yrs old it's still inspiring to me.
tyc1016 8 months ago 5
this sounds like the Anorexic anthem ??
plutoplatters 8 months ago
What an EXCELLENT video! It saddens me to hear about how young you were when 1st struggling with aches & pains. I was 44 yrs when diagnosed with FMS. My mom, aunt & cousin had been diagnosed with FMS, too. For the past 10 yrs, both of my daughter's complain of many symptoms associated with fibro. My fear is both my daughter's having to live with this life-changing disorder. I highly doubt doctors will acknowledge FMS in young teenage? We're taking one day at a time & staying positive!
FaithInspiredWriter 8 months ago
Thankyou for sharing this Lizzie my heart goes out to you I'm going to be 48 next week and have seen every Dr, tried to deal with the fact that they basically could never understand, all my MRIs blah blah blah showed inconclusive, my Dr just diagnosed me today, it all makes some weird kind of sense now. You are an inspiration.
Dmarwitz100 8 months ago
Im so sorry that you have so much pain. You're too young to have to deal with so much adversity. I am 46 and know this is what I have and it's unbearable for me on most days. I want to fight to keep the life I have as normal as possible and your story gives me even more will to do this. I look at each day as a gift that I am able to be around the people I love and the kids I teach in my classroom and I will do it as long as I can physically manage it! Keep strong:)
cindykron 9 months ago
@cindykron I'm a little late replying to this, but I want you to know that your comment really means a lot to me. I wanna work with kids for a living either in social work or as a teacher, and sometimes I worry that I won't be able to physically. So to know that you are a teacher with FM really gives me hope. So thank you!
NewL30 8 months ago
Thank you for sharing Lizzie.. I know how tough it is to have your whole life changed. I was diagnosed 5 years ago. My daughter was only 11 and couldn't even hug her Mom or cuddle and watch a movie without me being in pain.
My now ex wouldn't believe I was sick, said I was just lazy!
I was diagnosed with Cancer last year so we have been through a lot. Sadly many Fibromites will be diagnosed with a "life threatening" disease in their lives. Like Fibro doesn't "threaten" your life!! Stay strong!
72missilebabe 9 months ago
Thanks NewL30 4 sharing what we are going through, the pains, fatigue, the looks of others (family,friends,docs.) i'v been diagnosed with FM about 2 y ago but i had the hurts and symp. for a good 10 years i think. In 05 my doc found a cervical hernia , it shrunk but , they found 2 more. Beginning of dec 2010 i had a car accident hurt my back and i may have a hernia @ L5 S1..i do physio , osteo , masso + meds . We need to push for research, i'm 43 & i want 2 enjoy life. Josee from Que. Canada
miaou1967 9 months ago
hey i was diagnosed at 16, i have never tried reaching out until recently because i met someone else who has it in one of my classes at school and im glad i found your video because not many people were diagnosed this young, its a feeling of having your youth robbed from you and no one understands it. ive become very isolated from it over the past 7 years it has been extremely difficult. i was wondering if there is a way we can talk outside of youtube maybe? my name is sarah btw =)
TheYerMoma 9 months ago
@TheYerMoma hey, yeah, if you message me we could talk there maybe? or did u want to do it completely off of youtube?
NewL30 9 months ago
AAAAWWWWW sweetheart I have to tell you I absolutely cried my eyes out watching your video tonight...I have been sitting here researching all night looking for hope that my pain will end some day soon...I was diagnosed with FM 2 years ago and have not had a pain free day in over 5 years and like you, i have my good days and my bad days but I try so hard to keep my chin up. I sit here and look at your sweet face and pray that a cause and cure is found soon for FM...Stay sweet and stay strong hun.
goinforthegold2 9 months ago
Thank you so much for posting your story. I am touched and my heart goes out to you for having such fortitude and resolve. There are two women friends in my life that suffer from fibromyalgia and one of them I am so in love with. Now that I am becoming aware of FM, I have a better understanding of why Erica (the girl I love) acts in certain ways and does things differently. Thank you once again and I will keep you in mind in my conversations with both my female friends and in my prayers.
spyderblu 9 months ago
My 13 yo daughter was just diagnosed with juvenile fibromyalgia. I've had difficulty finding information and support. Your video is encouraging and hope giving as we begin this journey. Thanks.
Teacherricks 10 months ago
when i watched your video all i could think about was how that sounded almost like my story. I have Fibro too, I was diagnosed with it when i was 15 but i'm sure that i had it long then that it just did not get that bad till then. it has made me stronger and changed my life too. your video is great!
mertyle05 10 months ago
as i watch this i got a bad feeling in the pit of my stomach,those symptoms feel a lot like how i feel. i could not graduate from high school because i felt always tiered,pain in my skin like a bad sun burn, and i could not pay attention at school,and i felt frustrated because of my inability to do what i use to do so well, .i haven't bin diagnosed yet but i have a bad feeling.
Eliseo202 10 months ago
Wonderfully done. My heart goes out to all with FM. I was diagnosed in the mid-90's and still feel shame admitting it. Although many health professionals try to 'say' the right thing, their non-verbals tell a different story. I see questions of my psychological well-being in their expressions. It is maddening enough to be in constant pain, but to be wrongly judged makes it all the more painful. S0, today I am home from work due to increased pain. So it goes!
lleemcdo 10 months ago 2
i suffer with FM and in australia there is even less awareness of it then in the US it drives me mad but i am so impressed with your sucess in life and your education keep going as long as u can!
Sabb84 10 months ago
Beautiful Clip, cried to know you suffer the same pain I do, but I am 50. I was diagnosed 2 years ago but have FM for around 5 years, This I know because of the symptoms as you would know too. I have had several 'traumas' one being an emergency cesarean. Glandular Fever, Shingles but fortunate to catch that within 72 hours so had the injection to cure it!! Also my mother died of lung cancer in 2000. Yes, I believe trauma can cause serious illness, but think there's maybe more? Bless you♥♥♥
jodyfarquhar 10 months ago 4
@jodyfarquhar absolutely. I believe there's a genetic link for FM as well and the traumas can trigger it or something. We think that my grandmother had FM but since it was so long ago and she died in '96, FM wasn't really a diagnosis yet. My mom often comments that things i say remind her of things my grandma said. She suffered with pain and fatigue and all kinda of things. so i think i had the genes or whatever and the trauma just caused the onset.
NewL30 10 months ago
@jodyfarquhar HI JODY I AM 48 THIS AUGUST AND I HAVE HAD THE CONDITION ALL MY LIFE I GUESS I JUST DEALT WITH IT ...JUST KEEP TRYING EVERYTHING TRY MSM AND APPLE CIDER VINEGAR ONE BANANA A DAY WILL HELP WITH THE IBS
salanjo 6 months ago
I think that it's ignorance and sexism that makes docs and others think this stuff is "in patients' heads" cuz it's mostly women affected with FMS, and the medical system is very sexist so no shock there; females gotta stick together and not let the medical "experts" bully or silence the REAL experts, which are those in pain! p.s this is a personal Q so u may want to email me the answer, but I was just wondering, had there been some sexual abuse or trauma when you were little?
superotter77 11 months ago 2
@superotter77 hey, i don't mind answering here simply because there wasn't. I know sometimes abuse can trigger things like this, but while my childhood wasn't always happy i was lucky enough that it was essentially normal. I actually had very little experience with pain prior to getting FM, which was why it was such a shock. I was an athlete so of course i had some pain here and there but i really was kinda a wimp before haha cause nothing had ever really happened to me.
NewL30 11 months ago
@NewL30 Hey there, thanx so much for answering that question. I recently studied FMS for a psychology degree i'm doing, & the word "trauma" kept coming up around FMS, which is why I asked. Of course, there are other types of body trauma like surgeries (very hard on the body) & car accidents, etc., but it sounds from your video that it all got triggered by that bad flu you had at age 10 huh? I know it's a complicated disease, I hope u are managing 2 cope with it & that ur pain is well managed!
superotter77 11 months ago
@superotter77 yeah i mean i had signs i guess when i was younger. like i always had really bad growing pains which are apparently an early sign, but a lot of kids have those and grow out of them. The flu was the first definitive thing we can link it to, but the real trigger was the arm injury i got when I was 13. The pain really started after that. it was like the injury never got better and then spread.
NewL30 11 months ago
I'm FMaware and applaud your courage; it takes strength to live with what you're living with. I know cuz my wife has bad FMS & RSD, so I see her suffer all the time. She was sick from a young age too and now that she's 40 she is on the right pain meds which is OPIOIDS -- do you take them? they are the safest and most effective painkillers but there's so much mass hysteria and ignorance around them but that's a whole other story. hang in there and thanx for sharing! you're a warrior!
superotter77 11 months ago
I love your video! I had long suspected I had FM, but like you had to run the gauntlet of doctors, tests, more doctors and tests ect. I was "officially" diagnosed this last november and it does alter your life! I spent 20 years in the military and loved to do all sorts of outdoor activity, especially volleyball. Now I just get to sit on the sidelines but I still try and enjoy what I can.
dlharwood 11 months ago
You did a great job on this video. I cried through it as I can relate so well. I was the most athletic girl I knew..distant runner for 18 years and long distant biker. I have had fibro since age 32 and I am now 52. Suicide has been on my plate for the last 15 of those 20 years. It is absolutely horrible to live with. I am sorry for you and all the others here and everywhere that have this debilitating disease. It yanks the life right out of you. Thank you for this video.
TIGSHAD 11 months ago
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join the U.K.yahoo group CFSrelief to support medical Marajuana for Chronic Fatigue Syndrom, M.E. and Fibrymyalgia!
SweetMaiya 11 months ago
I was diagnosed 20 years ago, at the age of 10. I feel bad for you that it took so long to find out what was wrong..
But even being diagnosed so early, there was no treatment plan for someone that young.. I didn't start treatment until a few years ago and even though still in pain, it has helped some..
Sucks that most people have no way to comprehend what you are going through.
*hugs*
CandiceLMoore 11 months ago
i have been in pain for 15 years im 26 now doctors don't know what's wrong with me the pain is now everywhere i feel so tried all the time i work 8 hours a day on my legs and that kills me i think i might have this fibromyalgia but i know my doctors said to me when i was 15 years old that all the pain im in is in my head im sick and tried of people say that my friends and family think im putting it on and im not people just dont understand x
xxseximissthingxx 1 year ago
NewL30- Please let me know you're general location. You can be helped......seriously. I will find you a doctor that may be able to fix this.
skinner1104 1 year ago
I have almost all the symptoms of fibromyalgia, I was diagnosed in 2007. My pain is rediculous and I want to send love to those suffering. Because we do hurt and I don't care if no one believes me...my life is an example of how fibromyalgia can wear a person down. I can't really call it living with fibromyalgia as much as surviving a life with fibromyalgia.
Bersuit0077 1 year ago
I am 14 and for the past 5 months I have been in so much pain!I have had many test and eveything is fine!I keep gettin pain all over somedays worst then others it hurts eveyone is sleeping and I am awake! I keep getting sinus and ear infection and I think I have another one. I feel like I ran 6 miles! My fingers hurt while I am typing! I am going to a ENT on the 19th so I am telling him my 20th doctor I am going to tell about my pain! Could I have Fibromyalgia I have always had knee pain at 7.
Jessica141996 1 year ago
yes we my wife and me are aware you sound like a fighter, i no my wife is a big fighter she is tough but the pain will bring her down, she does have alot of bad days but like i said shes a fighter, god bless ya and lets hope fm gets a cure soon! thanks for posting
Mickeym1a2n3 1 year ago
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Got "fibro"? Do yourself a favor and check your medical records to see if you'd taken Cipro, Levaquin, Avelox or any other quinolone antibiotics in the weeks or months prior to your symptoms arising. Doctors give out these terribly poisonous drugs like they're candy, and they are known to cause DELAYED REACTIONS that mimic fibro symptoms nearly perfectly. Because of this delay in reaction time, many people never make the connection between the drugs and their new mysterious health problems.
papatoony 1 year ago
I am 51, diagnosed when I was 25, while pregnant with my 1st child. You are so brave.... God Bless YOU!!!
{{gentle hugs}}Lynn
lovstormyweather 1 year ago
OMG THIS VIDEO IS SO SAD! I STARTED CRYING AS SOON AS THEY STARTED TALKING ABOUT WHAT HER SICKNESS WAS! :'( I FEEL REALLY SAD FOR THIS GIRL! NO ONE DESERVES A LIFE LIKE THIS!
disneyrocks38 1 year ago
I want to thank you for making and posting this video. My FM started when I was 16 and docs didn't know much. I went doc to doc as a teen, was homeschooled (which was fun), had tests, etc. They eventually brought it to Lupus then yrs. went by, I'm now 24, and I'm now hesistantly told (I think docs like to keep people in the dark bout FM so they can make more money. Big story behind that.) No meds help, but your vid gave me hope. Thank you very much. God Bless.
MissMegara 1 year ago
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This touched me so much yesterday I had to share it with my husband this morning. God bless you Lizzie & all those who are alive today with fibromyalgia. We are survivors! If anyone needs some encouragement please post and I'll do my best to help any way I can :-)
FibroSurvivor 1 year ago
This touched me so much yesterday I had to share it with my husband this morning. God bless you Lizzie & all those who are alive today with fibromyalgia. We are survivors! If anyone needs some encouragement please post and I'll do my best to help any way I can :-)
FibroSurvivor 1 year ago
I watched the entire video & it made me cry at the end when you said the girl is you! Oh my goodness. I'm a survivor of about 25 yrs now and through my journey I've discovered conventional doctors don't see the whole picture of this illness. Alternative medicine has benefited me the most. Being wheelchair free now since 2006 is great but because of an accident Oct of 2009 I'm spiraling downwards. I have a lot of knowledge of what can help patients. I used to work with an alternative doctor.
FibroSurvivor 1 year ago
I am glad you got checked out! Thanks for your response.
I hope you continue to advocate for Fibromyalgia awareness. What you are doing is great! I wish you all the best, from the bottom of my heart. I got sick with fibro when I was about 23 or 24. I got a diagnosis in 2007, and I think that was the same year the first drug was FDA-approved for fibromyalgia (Lyrica). In just 3 short years, we already have 3 FDA-approved drugs. There is hope for our future! Hang in there!
greybeh14 1 year ago
Have you been checked for Lupus, too? The rash and skin sensitivity to light has me wondering. I have fibromyalgia, too, and they're watching me for lupus. They did a biopsy on a rash and it came back suggestive of an early connective tissue abnormality problem (something like that). Lupus was high on their list of possibilities. They can do bloodtests, but it can often be inconclusive or negative for a long time. Thank you for making this video! It was one of the best I've seen!
greybeh14 1 year ago
@greybeh14 yeah, there was a whole thing about that. for like 2 years i had elevated ANA so w/ the skin rash they were concerned but the secondary Lupus tests were negative. They sent me to another specialist who did a skin biopsy on my face. which came back negative. they're hesitant to diagnose Lupus w/o other positive test results cause lots of teen girls have elevated ANA so it could be a coincidence. i have no idea if they're still elevated either. so no one really knows haha. And thanks!
NewL30 1 year ago
This almost made me cry. Every time I find someone who has FM too it makes my heart ache and soar at the same time. Kindred spirits are hard to find. I started with my symptoms 2 and a half years ago, and I finally got diagnosed at the beginning of this year. It's hard to live with this so young (I was 17 when it started), especially when people accuse you of being 'sick' for attention or what not. Pain every day puts a bit of a hold on life, but know that you are loved from another FM victim.
horsieperson13 1 year ago
I like your video, I think I may have Fibro. Did she have burning pains?
Sensitivity to light?
Thank you.
crazy7house 1 year ago
@crazy7house - those are both symptoms. Research good docs in your area and get checked out. :-)
I have had FM since I was 15... diagnosed when 17... I am now 37. Despite the pain i have a great life. It can be done... just find your limits and don't overdo it.
jbjz1girl 1 year ago
@crazy7house hey. do you mean burning in the muscles? I don't get those too much, but i have gotten them in my shoulder muscles mainly. mostly my muscle pain is aching or sharp. i do have sensitivity to light on my face which causes burning. i get it bad when i'm flaring. it's the first sign. it's mainly florescent lighting but when it's bad it's all light. they don't know for sure if it's the FM causing it. i think it is. i suggest going to a doctor as well though. Good luck!
NewL30 1 year ago
very inspirational...and made me cry at the same time..I feel ashamed Im so upset about getting FM in my 40's and struggling to raise my son by myself...at least I had my youth before this took over my life..you made a beautiful video and you are a beautiful strong girl..Ive long wished for a cure for FM but after seeing this video they cant find one soon enough as far as Im concerned. God bless
MyLPhillips 1 year ago
I loved you video I'm trying to fiqure out if I have this. I'm always tired and My back is always stiff since I was 11. I get sad most of the time on a very deep level and panic when things dont work out for me. Maybe you can help me?
Thanks so much Carene
carene711 1 year ago
@carene711 - please go see a doc... research online for good FM docs... you may want to go see a therapist also... if for nothing else, but to work through the effects of chronic pain on your emotions. It's important to take care of yourself physically and emotionally. :-)
jbjz1girl 1 year ago
Someone I love so much suffers from this...She is in America and I am in OZ..I cant hold her hand when she cries. It upsets me more knowing her partner of 10 years left her for someone else when she was diagnosed. Thankyou for sharing this with us. I hope more and more people view this and think about how lucky they just might be in their own lives.
MsShadowbite 1 year ago
Hi, I'm 52 and was diagnosed in1989 after having the same mysterious flu you mentioned. Neither my husband nor my 2 small children at the time, became ill. I was left with pain in my hands and feet immediately but now, all these years later, I can't remember what it feels like to be pain free anywhere on my body. Thankfully at least some of my family is supportive. Thank you for sharing your story and bless you in your journey with this disease.
realwoman50 1 year ago
thank you Lizzie for sharing this story may God bless you. I have a friend with FM and i wasn't even close to knowing what it was and this video really touched my heart and i feel horrible that you, her or anyone should have to go through this . Much LOVE to you God bless you.
h2ogynger76 1 year ago
Have you ever considered the MUA procedure?
muacertification 1 year ago
Have you tested positive on 11 of the 18 pressure points for Fibro. Fairly easy to be pain free in 5 sessions of Rife. I have not encountered anyone with Fibro who has not responded. Fibro is a fungal infection of your blood, get rid of the fungus and you get rid of the pain! You do not have to suffer or take cortisone and pain medication that have wonderful side affects. Treat the disease not the pain! Think out of the BOX!
fredgill2 1 year ago
I have M.E./Fybromyalgia. I have had it for nearly 6 years now. I am 36 now and it is such a hard illness to deal with and I agree people don't understand. I used to instruct martial arts, skate, swim, trampoline and I too now feel like I'm on the side lines. I am a cheerful person and try to live as normal a life as I can like you,. I am starting up my own business so I can choose my own hours after loosing my job due to sickness. Can't imagine how you felt at 14? God bless Mel U.K x
mjsmudger 1 year ago
I have M.E./Fybromyalgia. I have had it for nearly 6 years now. I am 36 now and it is such a hard illness to deal with and I agree people don't understand. I used to instruct martial arts, skate, swim, trampoline and I too now feel like I'm on the side lines. I am a cheerful person and try to live as normal a life as I can like you,. I am starting up my own business so I can choose my own hours after loosing my job due to sickness. Can't imagine how you felt at 14? God bless Mel U.K x
mjsmudger 1 year ago
I have fibromyalgia 20 years and your lucky to have such a supportive family mine never understood and I had to move away.... but after moving over 10 times running from it I now accept that it,s here to stay. AND I gave up trying to hide it or be pulled down by the negative response from others... and I AM ME.......
wonerfulcarmel 1 year ago
if anyone hasn't tried a Wheat, sugar, Carb's ie rice/potato, red meat , caffine, egg yolk, citrus fruit, MSG's, all junk junk food, cig's, booze FREE DIET? you should give it a go!! if you cheat it won't work! it's not easy finding foods you can eat, u need to plan in advance & cook more meals and just use your imagination, sweet potato's are ok ,wheat free pasta, bread from spelt flour..buy organic food..it''s easier if your family eat the same food, there are FMS cook books on sale..try it
ilovemywah 1 year ago
@ilovemywah lol wtf is left to eat then? :P
FreedmFightr 1 year ago
@FreedmFightr not alot if your lazy or live in the US or both??? otherwise wheat free Flour (ie spelt flour) wheat free pasta wheat free anything!!! oat cerials, sweet potato's, Veg (lots of, you know veg right????) brown rice, dairy prod's are ok, cheese, egg's but not many!! the yolk aint so good!!! buy lean mince and make pie's, or veg pie's, fish, fish pie's, use fruit sugar if you must have sugar!!! stay away from addative's!!! MSG's!!!!...lots of tined organic foods about.. END OF PART ONE
ilovemywah 1 year ago
@FreedmFightr PART TWO.... eat little and often!!! not after 6pm if you can help it, FMC sufferers gain weight easily and are less likely to lose weight!!! once you get your head around whats good and whats not it'll get easier!!! buy nut's for treats, or bake oat cookies, carob (like chocolate) before fast foods & appart from bread & potato's, what did people eat? there never used to be addative's (chemicals) in food...it's not a cure but will help...i am a sufferer!! 100% of me...
ilovemywah 1 year ago
you don't have to except it......it all comes form the mouth.swallowing bateria
PEB979 1 year ago
I too have FM Diagnosed 16 years ago - not much has changed in the medical field as far as attitude. The biggest thing that I have learned along the way, all the tests, all the Dr.'s, all the treatments - DO NOT GIVE UP-LIFE IS WHAT YOU MAKE IT!!!! You can have the life you want, we just have to be stronger. I give the greatest of praise to my PT assistant, Carla. Took me 15 years to find her but she showed me the technique strain/counter strain. This has helped me more than anything!!!!
suzannemm1 1 year ago
My name is Anne I have struggled with fibromalyia for 15 years the pain often keeps me awake. It is a very deliberating chronic disease and misunderstood by alot of family and friends.
MsSocialone 1 year ago
My name is Jenn and I have been diagnosed for 17 years now. They recently discovered I also have Ankylosing Spondylitis. I had trouble with the kids at school, the principal and the guidance councilor were overheard discussing my "hypochondria." You are a very brave girl and so very lucky to have had friends to stand beside you and to try to understand. I never had that. Your video was wonderful and I wish more kids could see it so that future kids can avoid the emotional pain we felt.
jjoywinter 1 year ago
@jjoywinter i had trouble with kids at school too. i was bullied anyway in middle school so it was just another excuse and I lost a lot of friends. and truthfully i only really have one friend now who knew me before I had FM. My schools weren't too good about it either. I mean certain teachers were but in general I felt I was going at it alone. but i've found it's all about finding the right people who accept you for all you are and that includes the FM.
NewL30 1 year ago
@jjoywinter I was always a sickly child with frequent sore throats and flu like symptoms, sickness and earache. At 47 I got a diagnosis of Ankylosing Spondylitis. I am now 50 and believe I also have FM (probably had it for years, I am sun, noise and smell sensitive, have a rash on my nose and cheeks, widespread pain and fatigue) but have not yet got a diagnosis on that.
Artym1ss 1 year ago
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@jjoywinter I was always a sickly child with frequent sore throats and flu like symptoms, sickness and earache. At 47 I got a diagnosis of Ankylosing Spondylitis. I am now 50 and believe I also have FM (probably had it for years, I am sun, noise and smell sensitive, have a rash on my nose and cheeks, widespread pain and fatigue) but have not yet got a diagnosis on that.
Artym1ss 1 year ago
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@jjoywinter I was always a sickly child with frequent sore throats and flu like symptoms, sickness and earache. At 47 I got a diagnosis of Ankylosing Spondylitis. I am now 50 and believe I also have FM (probably had it for years, I am sun, noise and smell sensitive, have a rash on my nose and cheeks, widespread pain and fatigue) but have not yet got a diagnosis on that.
Artym1ss 1 year ago
Wonderful that you have found a way to treat this illness that offers hope. Good luck to you and my best wishes for your renewed health and prosperity! Valerie Lumley
ValerieLumley 1 year ago
Thank you for sharing your story with us. I have had FM for the last 15 years, and 2 weeks ago I was told I have MS also. Good luck to you. You are a wonderful beautiful girl.
artlady75 1 year ago
Thank you so much for uploading this - I've had Fibromyalgia since I was 9, such a tough road. Stay strong - this video brought me to tears a few times, not gunna lie!
xSOPHIE2DOPE 1 year ago
@xSOPHIE2DOPE I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
I'm also a FMS survivor. Stay positive & keep fighting, never lose hope!
Alter my path but still following my dreams, just have faith. Maybe your destiny is to bring awareness and you're making a difference. I would have never gotten into "causes", video & performance art (bellydancing, gentle exercise) if this didn't happen. I'm still a tattoo/visual artist but had to focus on getting well. Made me slow down, I needed that. Still have severe pain but feel blessed. Good Luck & God Bless.
DebbieDivine 1 year ago
@DebbieDivine I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
I'm also a survivor of FMS. Stay positive & keep fighting, never lose hope!
Alter my path but still following my dreams, just have faith. Maybe your destiny is to bring awareness and you're making a difference. I would have never gotten into "causes", video & performance art (bellydancing, gentle exercise) if this didn't happen. I'm still a tattoo/visual artist but had to focus on getting well. Made me slow down, I needed that. Still have severe pain but feel blessed. Good Luck & God Bless.
DebbieDivine 1 year ago
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I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific disease after 15 years of failed treatments. I understand this illness completely from the inside and back out again. Symptoms are often mistaken as a cause and what can help does not cure. Please, do not give up and keep going. See my You Tube video "Curing Chronic Fibromyalgia - Choosing What Works" and my best wishes to you all!!!
ValerieLumley 1 year ago
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I am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure of this horrific condition without drugs, and am living proof you can cure this and take back your life. Symptoms are mistaken for the cause and treatments that help do not cure. Please, do not be discouraged by failed hope and keep going!!!
Valerie Lumley, Recovered Fibromyalgic and author of
"Curing Chronic Fibromyalgia - Choosing What Works"
ValerieLumley 1 year ago
This is a very sensitive and truthful video. I am a recovered fibromyalgic who know this illness from the inside and out again. I know one thing. Never give up until you are well again!!! Keep going and you will find a way to cure this and get your life back!!!!
Valerie Lumley, Author of
"Curing Chronic Fibromyalgia - Choosing What Works"
ValerieLumley 1 year ago
I believe that fuits and vegetables can reduce inflammation in joints!
I started taking Mona Vie Active for my shoulder pain and now I don't have to take Vicodin before I go to bed!
My wife has fibromyalgia, she feels a lot better when she drinks it as well!
If you seriously want the Monavie Active, go to juiceberg's channel! They will hook you up!
redthor60 1 year ago
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@redthor60 I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
Hi,My names Bobbi, Im 25.Today I was finally diagnosed with fibromyalgia.Ive spent years in pain,my legs are the worse.I dont dear stretch in fear of the pain because if they pull & spasm, I spend days unable to walk & that just cant happen with my little 6year old daughter who is full of life & way too understanding of 'mummys pains' for any child her age.I have found antiflame rub helps me,I apply it to my feet & legs every night before bed so that I can sleep.Maybe this could help others too
IceMaidenShh 1 year ago
@IceMaidenShh I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
Hi, My names Bobbi, Im 25.Today I was finally diagnosed with fibromyalgia.Ive spent years in pain,my legs are the worse.I dont dear stretch in fear of the pain because if they pull & spasm, I spend days unable to walk & that just cant happen with my little 6year old daughter who is full of life & way too understanding of 'mummys pains' for any child her age.I have found antiflame rub helps me,I apply it to my feet & legs every night before bed so that I can sleep.Maybe this could help others too
IceMaidenShh 1 year ago
My name is Melonie. I have fibromyalgia and systemic lupus. I was wondering if the docs have tested you for lupus with you having the rashes and sun sensitivity? Just curious. Great video. Very touching. Thanks for making it:)
MyDisabilityInfo 1 year ago
@MyDisabilityInfo yeah, it was actually a long thing. My ANA was elevated for a long time (i don't know if it still is actually) so they were a little concerned. But all the other tests were inconclusive so they were hesitant to diagnose Lupus since apparently a lot of teenage girls have elevated ANA levels. I went to a special dermatologist/rheumatologist and he did a skin biopsy on my face but it came back negative so they just left it alone i guess. and thanks!
NewL30 1 year ago
@NewL30 I hope you get some answers soon sweetie. You and your parents keep on those doctors when you have any issues. You are your best advocate. I suffered for years starting as a teen and was ignored. Hopefully the docs are better now at listening when we say somethings wrong.
MyDisabilityInfo 1 year ago
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@MyDisabilityInfo I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
This has been flagged as spam show
@NewL30 I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific disease after 15 years of failed treatments. I understand this illness completely from the inside and back out again. Symptoms are often mistaken as a cause and what can help does not cure. Please, do not give up and keep going. See my You Tube video "Curing Chronic Fibromyalgia - Choosing What Works" and my best wishes to you all!!!
ValerieLumley 1 year ago
Respond to this video... I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
@MyDisabilityInfo I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
Lizzie! I was diagnosed 2 years ago. I am now 45 yrs old and I truely believe I've had this disease for the past 15...maybe 20 years. My pain began in my wrist also, Dr.'s believed it was carpal tunnel, it didn't help, and like you spread to the same exact parts you described. I would have bouts of pain through the yrs but in the last 2 yrs I can no long deal with the constant pain. I wish I had your courage and optimism. Thanks for the great video. :)
IHATEfibropain 1 year ago
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@IHATEfibropain I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
Wow Lizzie! you are an amazing person! i also have FM, just diagnosed 2 wks ago, and i am 36 yrs old! i had no idea what it was until now and i am still learning. that's how i found ur video. and what an outstanding video it is :) great job explaining ur difficult teenage yrs ♥
TrentIsNotAvailable 1 year ago
@TrentIsNotAvailable I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
It took 'm 12 years to diagnose me. Which means it took 'm 12 years to take me serious. It took 12 years of loneliness for finally having someone who came up to me and said 'We know what you've got, I'm sorry' and give me a hug, and the worst part of it all was. That most magnificent doctor in the world who finally helped me, hurted me like hell just by touching me. While actually a hug was everything I craved for.
JojoHabibati 1 year ago
@JojoHabibati I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
Great job Lizzie!! It gave me a little bit of a shock when you said you made this video! That is very cool! I came accross this not knowing what it was. You are soo couragious, and strong. I had to become a member just so I could comment on your video.. Thank you soo much for your efforts... WELL DONE..
leajo10 1 year ago
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@leajo10 I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
it is a syndrome of thyroid dysfunction often due to nerve interference, a correctable cause.
hiodr 1 year ago
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@hiodr I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
Is the painful points when when pressure is added the only way to diagnose FM? I still think I have FM after years of suffering these kind of symptoms and seeing numerous specialists and GPs. Trying different pain meds and horrible anti depressants. I think I might have been tested for FM with the pressure points method several years ago and was told I do not have it. But is this the only way to diagnose?
GregOBehave 1 year ago
@GregOBehave as far as i know, the diagnostic criteria is not exclusively the tender points but that they are a vital part of it. I believe the criteria for a fibromyalgia diagnosis is tenderness in at least 11 out of the 18 tender points when pressure is applied and pain in all four quadrants of the body for a duration of at least 3 months. I'm not a doctor though, that is just the information from the National Fibromyalgia Association.
NewL30 1 year ago
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@NewL30 I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
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@GregOBehave I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
In the same boat sister. It took about 5 years for them to figure it out for me. I also had a surgeon tell me "some people just have pain" It's going on 12 years now since I've been told I have FM. Nothing has changed. I've tried the meds, which only made me gain weight, I've tried different diets, nothing. I take either Alleve or Tylenol, 3, twice a day. But not even sure that makes much difference. My dreams have also been altered. I just can't wait for the day to get out of this body!
1king4ever 1 year ago
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@1king4ever I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed hope and check out my video "Curing Chronic Fibromyalgia - Choosing What Works", follow it to my website and keep going!!! Best wishes!
ValerieLumley 1 year ago
This is a beautifully powerful video - thank you for sharing it x
amandaspatch 1 year ago
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@amandaspatch I am a recovered fibromyalgic who left the medical profession to discover the cause and cure for this horrific illness, and I am living proof that FMS can be cured. After 15 years of failed treatment, I finally found my way back to health in alternative treatment. Please do not give up from failed