I would think the substantia nigra in the brain located behind the eyes would come into play with this. It's depletion in melanin is what causes Parkinson's. Being that the pupil is letting in light without any melanin buffers in the body and eye of a person with Albinism, I'd think that could be part of what causes the tremor there in the eyes. I've heard of eye drops that increase melanin. I wonder if that could help.
I am 14 and have albinism + the nystagnus, did this surgery help his vision, for some reason my eye doctor has never mentioned this surgery... what are the risks?
The surgery does not stop the nystagmus entirely but for many (including Hank) it reduces the amount of movement and slows that movement down as well. We haven't gotten back to Pittsburgh for an official follow up measurement but to me, it's clear he can see better especially when trying to read, color etc.
Also meant to say as with any surgery, there are risks to consider. Any surgery can have a bad outcome. We weighed the info we had and the dr we used has a stellar reputation (Dr Hertle Pittsburgh Childrens Hosp) It was tough because this was an elective surgery, ie not something his health depended on. On the other side of it now, I am very happy with the improvement Hank has had and feel we made the right choice.
How is he doing now?
ShadowShqiponja 1 week ago
How are his eyes now
ForeverBabies11 1 month ago
HE IS THE CUTEST THING IN THE WORLD!!!!!
JaydAlexIngram 4 months ago
How old is he?
Kindergarten666 1 year ago
@Kindergarten666 He was 7 at the time, he's 9 1/2 now
hoolym 1 year ago
Wath daa... I'm so fuck...g admired with this and with the results of the operation... =) Greetings
denysk8r 2 years ago
=] ABSOLUTELY ADORABLE!
weepingturtle 2 years ago
I wonder if this surgery is offered in Canada. I haven't done any research in years on this. I too have albinism and Nystagmus.
lue1975lue 3 years ago
he is so adorable!
i love this kid! =)
mysterygrl012 3 years ago 6
aaww hes so cute god bless him is he alright now i cant beleive he said Schools boaring its fun
freacls 3 years ago
We were just told our 5 year old will have surgery for this. I am nervous.
packgirl4 3 years ago
I would think the substantia nigra in the brain located behind the eyes would come into play with this. It's depletion in melanin is what causes Parkinson's. Being that the pupil is letting in light without any melanin buffers in the body and eye of a person with Albinism, I'd think that could be part of what causes the tremor there in the eyes. I've heard of eye drops that increase melanin. I wonder if that could help.
fancifelle 3 years ago
I am 14 and have albinism + the nystagnus, did this surgery help his vision, for some reason my eye doctor has never mentioned this surgery... what are the risks?
buddyu11 3 years ago
I have it too so does my sister and my mam and my nephew, my nephe gets picked on like I did so I hope this little chap doesn't, he's cute.
we have that crane thing at work it does my head in.
judgejudyslover 4 years ago
I have albinism, and I was always told that nystagmus cannot be corrected via surgery because of the potential damage to the eyes.
This is quite interesting...
Regards,
Am
LuminolBlue 4 years ago
The surgery does not stop the nystagmus entirely but for many (including Hank) it reduces the amount of movement and slows that movement down as well. We haven't gotten back to Pittsburgh for an official follow up measurement but to me, it's clear he can see better especially when trying to read, color etc.
hoolym 4 years ago
Also meant to say as with any surgery, there are risks to consider. Any surgery can have a bad outcome. We weighed the info we had and the dr we used has a stellar reputation (Dr Hertle Pittsburgh Childrens Hosp) It was tough because this was an elective surgery, ie not something his health depended on. On the other side of it now, I am very happy with the improvement Hank has had and feel we made the right choice.
hoolym 4 years ago
Is Nystagmus cured through surgery?
redscorpionx1 4 years ago