Dear family, I informed all my contacts about the broadcast of the film about Payton, we also have a son with EB, but not as severe as Payton. This summer there will be a cycletour in The Netherlands for gathering money to cure EB. I will also cycle a part of the tour, I am training for that. Thank you for sharing your care about the cure of EB, by giving up a part of your familylife.
My name is Naomi and I'm from The Netherlands. I just watched a documentary about Payton and it really made me cry. What a handsome little boy you have. I wish you all the best.
My friend, the subject watched the Discovery Home & Healt.
We may have a case in Brazil, a girl of 2 months.
How can I do to put the parents of this baby, in contact with you? I wish, if possible, could you help us with information exchange. Is it possible? So far, several doctors in Brazil (Campinas - São Paulo) were unable to diagnose it.
My name is Gustavo Puget. If possible, you can reach me on Facebook.
Dear family, I informed all my contacts about the broadcast of the film about Payton, we also have a son with EB, but not as severe as Payton. This summer there will be a cycletour in The Netherlands for gathering money to cure EB. I will also cycle a part of the tour, I am training for that. Thank you for sharing your care about the cure of EB, by giving up a part of your familylife.
lkoehorst 2 days ago
This has been flagged as spam show
Hello Joy,
My name is Naomi and I'm from The Netherlands. I just watched a documentary about Payton and it really made me cry. What a handsome little boy you have. I wish you all the best.
Naomi
Naoomsterrr 2 days ago
My friend, the subject watched the Discovery Home & Healt.
We may have a case in Brazil, a girl of 2 months.
How can I do to put the parents of this baby, in contact with you? I wish, if possible, could you help us with information exchange. Is it possible? So far, several doctors in Brazil (Campinas - São Paulo) were unable to diagnose it.
My name is Gustavo Puget. If possible, you can reach me on Facebook.
I greatly appreciate any help.
May God protect you.
gpuget 2 months ago
Hi Joy, I would like to know how is Payton now? I hope he is already cured. God bless him
anapedere 2 months ago
This is a video I want to share with everyone in honor of EB Awareness Week.
joythornton1 4 months ago