My Life With CPAP

[CentralDotty]

Hi. Thank You for posting this video. I've just been diagnosed (shockingly, the Hospital told me by post), and I've been very worried in what to expect when I have to go there for my mask fitting appointment in 3 weeks time. Do you get a choice on the mask they give you? I guess I've got a lot to carry back on the train then. Please post where you bought the tube cover from, as by the sound of it, I'm gonna need to get one too...P.S: I've signed the petition as requested, so I hope it helps....

[FailedMuso]

@CentralDotty The tube cover was from a seller on eBay called cpap_tubewrap. Do a search for them on eBay directly as YouTube won't allow me to post links here. Thanks for signing the petition and good luck! :-)

[rtvddomrd]

I got diagnosed with this problem and thanks to God and my local state laws provide it to me for free and the free study. Now I am using it. The solution of this problem for me is loosing weight. AAHHHHHHHHH!!!!!!!!!

[howlingserenity]

i love your video :) very informative, i just got diagnosed myself at the age of 20 and have barely any knowledge if not none to the equipment used. so i thank you. do u know if they have the funding in the us to help people with the cost?

[FailedMuso]

@howlingserenity Thanks :-) Sadly, being from the UK, I have no idea about funding in America. I would assume that most medical insurance would cover it, and would hope that things like Medicare do too. That's why the National Health Service we have here is so good. Whilst it does depend on which NHS authority you come under, CPAP is becoming more widely available. And as OSA becomes more recognised, more authorities are making CPAP a standard treatment. Good luck :-)

[TheCPAPZone]

@howlingserenity -If you want to learn about all your options to treat your sleep apnea, visit cpapandbeyond. com

[89Kitri]

I love my cpap the first one was charged 3500 dollars to medicare.After Igot mine I have found inside of A couple of years six more in second hand stores. They were almost free. All of them are good. Onehad only 70 hours on it .It is the best one made I paid 40 dollars for it including accessories. The stores that sell them dont even know what they are.Any one wanting one cheap try 2hand stores.good luck.

[ufozmankato]

They wont even give prescribe one here to me in the United States of Fascism. I think its a conspiracy. I'm going to the hardwarestore to get the parts to fassion one. See I'm so tired I I cant remember how to spell fassion. Shit.

[dandybear1]

Hello again, well I finally got my cpap machine, an Australian Resmed S9 which is superbly made and very easy to use. I am about to go to sleep and this will be my 5th night. I got to say, the first night was not so successful as I was not used to the mask yet. The 2nd night was incredible and I actually dreamt for the first time in a very long time. I actually got up at 7.30am and lasted all day until 2am the next morning and I was full of beans all that day !! I must have overdone it as I was

[tequnuki]

@dandybear1

Thats good to hear, I haven't had any real dreams, since I was young, and my

OSA makes daily life completely draining. I'm going to get a Resmed S9 Auto

soon, hopefully. Hope yours is going well, it would be nice to hear about the costs

involved in running and maintaining it, as I have had to save an entire year for one.

[cutseypoo777]

Thanks for such an informative video. I just got diagnosed with sleep apnea/hypopnea, & am waiting for my new CPAP to be delivered. How long did it take for you to adjust to this machine, & do you have to wear it if you're just lying in bed while sick? Thanks so much.

Peace to you,

Angie

[FailedMuso]

@cutseypoo777 Surprisingly, I took to my CPAP very quickly but even now, many years later, I still have the odd night or too where it's a pain in the ass! ;-)

I would always recommend that you wear it whenever you think you are going to go to sleep. It won't matter if you don't, but you will really notice the difference :-) I've had to say goodbye to naps on the sofa and stuff like that, simply because it's too much bother bringing all the gear downstairs but I sleep so well at night now :-)

[cutseypoo777]

@FailedMuso Ahh, thanks for your feedback. I reckon I'm just a little apprehensive about the idea of having to depend on such a machine every time I go to bed, but it's something I have to accept. Thanks again! :)

[sab82100]

thanks for the vid,,ive just been diagnosed with severe sleep apnea ,stopping breathing just under 600 times in 6 1/2 hours,,luckily i will get the cpap on the nhs,,but u gave me an idea on how it works thanks

[FailedMuso]

@sab82100 Good luck :-) I hope you feel better soon :-)

[TheCPAPZone]

@sab82100 -If you want to learn about all your options to treat your sleep apnea, visit cpapandbeyond. com

[drloye]

We offer an alterative to the CPAP and our patients are so HAPPY. They don't ever have to wear a CPAP again.

[Anyamehpempo]

Dandybear1: I'm sure it does! You will have a new quality life!

[dandybear1]

Thanks for the demo. I have just been diagnosed with sleep apnea & awaiting another test at hospital. I did not know I had to contact dvla (but I do now). I am still having to sleep during the day, lethargic all the time etc, I hope the cpap (if I get it) will help. Hope it works for everyone else as well :)

[gutopmc]

Expensive device but worth every money you pay on it. I have been using for a week now I and Its amazing how your daytime quality becomes better! Its scary at first look but If you need it, go for it! I pad something around U$ 2.300 for my one.

[puggster]

i just got diagnosed with OSA and also a mild central SA too due to medication etc etc, got the cpap machine 4 days ago and blimey, what a difrence already, im currently using the resmed S8 escape II with clip on humidifyer with the pressure cranked up at 11 i think if i remember right, the breath easy thing helps breath past the force of the cpap, i also have to wear the full mask cos i normaly breath with my mouth open during sleep.. i got my cpap on the nhs as lent conditions

[charvelgtrs]

It looks like a fetish mask to me.

[Kenzly99]

I am 12 and have a cpap mask! It is very hard to deal with sometimes I wish it could just all be gone!!! But it helps alot I have more energy and don't take naps every 5 hours now!

[reperpero]

Thank you for that video.... I was just diagnosed with sleep apnea and now I know what to look forward to...

[Mattisebastian]

how much does the machine cost?

[FailedMuso]

@Mattisebastian I'm not sure on the cost of these machines because I get mine for free on the UK's National Health Service but I believe that the pumps alone cost something in the region of £200-£500 GBP

[CanadianPatriot86]

I guess im getting one of these, I thought I was getting oxygen but apparently not ._. doesn't look so bad, wish we had some sort of funding for these though.

[nzigen31]

I'm getting one of these,

But go to a doctor, loose wight if you're fat, it'll help.

CPAP won't cure you, it's a tool only.

[ACERAMGAD]

what's funny...is.... here in Alabama USA ...I can't go out and buy my own cpap..I have to go through my insurance company..and if i don't have insurance...i can't go out and buy one for myself..THAT IS ABSURD!... The way it works is ,one goes through an overnight test and then if you need it the insurance company will pay for it.. at least that is what i am told..I shall dive deeper into this and find out 100%.. Everyone tells me I can't just go buy one myself.. I believe I can and will!

[rcflex]

@ACERAMGAD Unfortunatley the reason why you can't go out and buy your own is because you need a prescription for it from a Dr. After you get a prescription you can then go buy one yourself if you don't have health insurance to cover it...

[ACERAMGAD]

@rcflex It'sLikeScubaDiving!Cool!

[DancingSpiderman]

I am a fellow Snorkle Klown. I use the CPAP because the inside of my nek is flabby. I used to hallucinate hearing things during my waking hours before the sleep study revealed my sleep apnea. I am OK now due to the use of CPAP.

If you want a much more comfortable than the mask, look into CPAP Pro. It is excellent compared to the mask that comes with your machine. I've been using CPAP Pro for going on 8 years and I have to say even if I didn't need it I wouldn't want to sleep without it.

[djfirkins]

Thanks for sharing your video. I was diagnosed with OSA 2 years ago (70+ interruptions/hour) and using a CPAP device since then. Nasal mask, no humidifier. My girlfriend and I call it The Darth! Not sexy, but better than my snoring! I have much lower fatigue levels but I prefer to sleep on my stomach, so find it uncomfortable; often remove it in my sleep! Docs have recommended surgery - straighten deviated septum and push jaw forward. Have u considered surgery, or already tried it?

[FailedMuso]

@djfirkins I had an operation to correct a deviated septum a few years ago, and that alleviated my persistent acute rhinitis and helped with my day to day breathing, but the CPAP remains, and I was never under the illusion that it would be "cured" :-)

Surgery might help, but I'm no doctor. CPAP isn't curable, but certain procedures can lessen it's impact. Take good medical advice and make your choices based on that :-)

As for your mask, it maybe just a case of re-learning to sleep another way.

[djfirkins]

@FailedMuso Thanks for advice. I've had lots of medical advice here in Brussels from an ENT specialist, dental & orthodontic surgeon and lung specialist with experience in sleep disorders. After 2 years of limited success with the CPAP, they all say I'm an ideal candidate for the jaw and septum surgery (I'm 39, in good physical shape, non-smoker).

Going in for a sleep test tonight to see if recent osteopathy treatment has helped (although unconventional, I wanted to give it a try b4 surgery).

[thisispeace]

@djfirkins Maxomandibular advancement is the surgery to push your jaw forward. The problem with OSA is that, as humans, our big fat tongues are frequently liable to lean on our epiglottis when we really, really relax. CPAP blows us up like balloons, which does the trick if you can tolerate the feeling. Maxomandibular advancement is basically a permanent fix.

[FailedMuso]

@thisispeace There really is no permanent fix for any form of sleep apnoea I'm afraid, at least not in the sense of "one fix for all". There are many causes of OSA, floppy tongues only being one of them. There are only remedies and therapies, CPAP being the most common and most widely successful. If you are fortunate enough to have a cause that can be remedied by surgery, then that's a good thing, but it won't work for everyone.

[hippyable]

Hey I have sleep apnea and I think you are the coolest. having fun at the same time. My lovely mask leaks from time to time. I have moderate sleep apnea. How bad is yours? Although alot of people are very uncomfortable with the machine. I took to it like a duck to water. Sometimes my nose dries out with the humidifier sometimes. that's something like my machine! My water goes in my machine. Not outside like yours.

[FailedMuso]

@hippyable Thanks for your kind words. I think I'm classed as moderate too, but can't remember! I too got used to it very quickly. Since making this video, I've been upgraded to a newer device with a built in humidifier. It's MUCH easier to use and cart around with me :-)

Here's a tip for your dried out nose... Do a Google for a practice called Jala Neti. It's saline nasal irrigation and REALLY helps. I've been doing it for years :-)

All the best! :-)

[hippyable]

@FailedMuso you are welcome. I might go and see if I can get nasal irrigation. I don't think I would like the feel of water draining in one nostril out through the other! I won't like that too much. Ewwww. Guess I can try it. I find my nose is always stuffy in the morning with or without cpap thanks though. Add me as a friend if you like okay thanks,.

[GirlCat82]

My husband has been subspected of having sleep apneia im alittle scaried of all the things that can come with it, Is it loud? he has to go for a sleep study to see if he has sleep apnia we're waiting to see the doctor.. I'm alittle Mad with the doctor trying to scair us with (all the things that you can possible get with sleep apnia) thank you for sharing us your masks) My Question to you is has it helped with snoring???

[FailedMuso]

@GirlCat82 Don't be scared. It's not particularly noisy, no and the benefits are almost instant. Yes, Sleep Apnoea can make existing conditions worse and contribute to things like cardio and respiratory problems, but as long as you are on the treatment, it's all ok. It's good that doctors tell you the truth though. It will encourage your hubby to stick with it if he needs it. And yes, I don't snore anymore at all :-)

[wickedninja108]

ive had a CPAP for several yrs now..... it took a bit of getting used to but i absolutely love it!!! if i know im staying out overnight anywhere i make sure to take it.

[Bowyerma]

I lol'ed when you rasberried

[FailedMuso]

@Bowyerma :-)

[lceman8]

@cpapadvice. Who u test on b4 u make or sell?

[lceman8]

@jo20042008. Same ere m8.ive got same problem as u lol.am trying but i rip it off in middle ov my sleep bcoz d airflow tooooo! Strong.keep trying ive been told:-(

[jo20042008]

I have sleep apnea too. I use nasal pillows for my CPAP. I am still trying to get confortable with the air flow. I tend to feel a conflict in my breathing in the middle of the night as I sleep so I take it off after a few hours. Oh by the way, you look cute! LOL Anyways thanks for your informative video!

[FailedMuso]

@Adamnickrodrigues Central Sleep Apnoea is where the basic neurological controls for breathing rate malfunction and fail to give the signal to inhale, causing the individual to miss one or more cycles of breathing. This is potentially more dangerous and can be life threatening, but this is the much rarer form of Sleep Apnoea. Most people suffer from OSA. As long as your mum has been diagnosed, her doctor will recommend the best course of treatment.

[FailedMuso]

@Adamnickrodrigues No, you can't die directly from Obstructive Sleep Apnoea. What *can* happen is that it can exacerbate or cause other conditions that may eventually become life threatening, such as blood pressure and other heart related conditions. There are 3 types of Sleep Apnoea: Obstructive, Central and Mixed (a combination of the first two. Central can be quite dangerous as this isn't like Obstructive where a blockage occurs.

[bathal1]

30/09/2010

Hi, thanks for this video! I'm going to sign the petition now. Btw, which type/make your machine is? Would you recommend it? I'm in the UK and have been offered to buy a CPAP machine 'Trend II Auto'. Apparently it's very good (but also rather expensive: £966!). Do you have any view on this? Am I being ripped off? Also, any suggestions/recommendations, re: purchasing a CPAP would really help (I’ll have to buy a CPAP machine until the authorities are persuaded otherwise). Thanks a lot!

[FailedMuso]

@bathal1 Hi! Glad you like the video. My machine is a Respironics M Series BiPAP which is supplied to me and maintained by Papworth NHS Trust at £0 cost to me. Because I get it free on the NHS, I wouldn't know what the true cost of these machines are, but I do know they're not cheap. Purchasing CPAP on your own is not recommended as it will have to be calibrated by your consultant. All I can advise is to speak to your local Primary Care Trust. Good luck :o)

[cpapadvice]

@bathal1 

[cpapadvice]

but it depends on budget and the list of models in between henry

[cpapadvice]

@bathal1 hi saw your message and thought i respond i sell cpap and apap and the Trend II for this particular machine it is a fair price yes its expensive and you do not need to chose this machine this is one of the best auto cpap machines its a fair price for the Trend II and it well made and has some very advanced features but at the same time you do not have to spend this amount of money if your not comfortable

[cpapadvice]

@sleeptight the is sliding scale of price and quality starting from around 150 pounds up the lots of decent models in-between as well i gess i would equate it to buying a car 1 being the fiesta the other a rolls rouce they will both work as cars one is better frankly then the other but it depends on budget and the list of models in between henry

[SamsEdition]

Great video man! Really very informative!

[FailedMuso]

@SamsEdition Thank you :o)

[JillyB55]

it's interesting to see how other people manage. Just to let you know this is not just a male condition.. I have been using cpap for 10 years now and I am a 55 year old female... it's not easy for me or my partner but is an essential piece of equipment. Thanks for demonstrating it so well.. I have signed the petition.

[FailedMuso]

@JillyB55 Thanks Jilly, I'm glad that you're getting the treatment you need and yes, it affects women as much as men too. All the best! :o)

[gerard7622]

My uncle gave me an old machine of his for me to use. Becouse i don't have health insurance, and it very clear that i have sleep apnea. Im still trying to get used to wearing it its very difficult. can you give my some pointers on getting used to it, for a biginer.?

[FailedMuso]

@gerard7622 The only person who can diagnose and ultimately prescribe a CPAP device is a qualified doctor. Using a CPAP without proper diagnosis and prescription can do more harm than good. I am no medical expert and therefore couldn't give you any advice on an undiagnosed condition, I'm afraid.

[DancingSpiderman]

@gerard7622 If you want a comfortable headgear for your CPAP, Google "CPAP Pro". CPAP Pro is excellent been using it for about 8 years now; I wouldn't want to do without it.

[CreatedOnEarth]

Signed petition, thanks for the information, really useful and answered a lot of my questions.

[krakpatsboem]

Thanks for fast reply ;-p

[krakpatsboem]

Thanks for the video!!Could it be that the pressure of my CPAP must be adjust to more pressure?Because i still snore al litle bit says my girlfriend.

I had apnea to but that 's over now.

Greetz,

Peter from Belgium.

[FailedMuso]

@krakpatsboem Well, from my experience, I still occasionally make a snoring sound. I'm not sure why though. It might just be a natural snore or it may be that I have an air leak from my mask, therefore reducing the pressure slightly.

If you are in anyway concerned, do consult your doctor. They're the experts, not me ;o)

[nikkinphil]

Hey I would just like to say thankyou for a very informative video. I got Diagnosed with OSA 3 days ago and I am awaiting to see a specialist in cambridge. I was aware of what Sleep Apnoea was but wasn't completely sure of the treatment and what equipment is involved. So Thankyou very much for helping me and my Family understand this better.

[FailedMuso]

@nikkinphil Glad it was of some help to you. If you're off to Papworth, you're in great hands. It's where I go too and they're really good.

Good luck and here's to many nights of good sleep from now on ;o)

[vtwinbreed]

I'm surprised that REM STAR has a separate humidifier, the ones we have got it built in.

[FailedMuso]

@vtwinbreed The humidifier I had in this video was a Fisher & Paykel model. REMStar do indeed make humidifiers that bolt on to their CPAP/BiPAP devices effectively making them one single unit. I am expecting an upgrade to this shortly :o)

[precious121279]

signed!:)GOD BLESS

[davyramone]

signed it.... good effort, good to hear someone talking bout this subject. im collecting my machine tomorrow will see how we get on

[batyadeb]

signed :-)

[batyadeb]

Signed :-)

[FlipMartian]

Signed - all the best with the petition.

[bob4jjjj]

Well explained young man.

[mickydireland]

Signed! :-)