@w4wxp, I am prone to migraines ,and last week when i had to drink contrast fluid in juice for my ct scan the next dayand the morning of i woke with a migraine and the last scan they injected dye.by the time i got home my head felt like it was going to explode., i started throwing up alot and then fainted woke up in a puddle of vomit.it was scary. i was weak for a couple days after with a anxiety attacks and chills for hours after.a friend suggested meniere's, i don't think it is.what do u say?
I remember back when I was around 23, I started getting dizzy spells out of nowhere. I was bedridden for weeks because I couldn't stand up without vomiting. I would sometimes be sitting in a chair minding my own business and I would feel like I was falling but I wasn't. It was so bad I was even considering sucide for a while. Caffine seems to trigger it.
I awoke one day in Feb2000 with a bad ear infection. The doctor on call prescribed antibiotics and although the infection had diminished the tinnitus plus the fullness sensation remained. It feels sort of like a mass dangling inside my head. With every step I take it sways...WING! WANG! So naturally I went back to see the doctor but he insist that there's no sign of infection. Yet the condition remains to this day. My symptoms include vertigo, dizziness, mental fog, memory loss and hyperacusis.
I am going threw the exact same thing since 2009.Now Im totally disabled from this and cant hold a job because of it.People just dont understand this disease.This is a very good video.
Thank you so much for this vid ivebeen haveing all these problems for a while now but more intense recently ill be bringing this up to my dr. Tomorrow its been so scary not having any idea what's could be going on with me esp since my sister has m.s. so I've been thibking the worst this was a great vid thankkkkyouuuu so much
It feels like my body is moving up and down and I feel like I AM sleeping on a rocking boat. it's that bad sometimes. I get an up and down feeling, or sensation. Then I feel like fainting, then the whole rooms spins.. i never know when this is going to get really bad, or not. like now it's bad again.
I wonder if I have this..I am always dizzy and light headed almost all day, but some days a little better than others, but things spin and I feel faint a lot. I get ringing in my ears, or a shh sound, or a ringing sound. Sometimes I can't read because the words spin in circles. The last 3 months it's been almost like this all the time. Where I feel real light headed and dizzy. I almost fell, while walking outside..I can stumble and bump into things. This is a nightmare.
@rattqueen6969 I was told that I most likely had Meniere's and I was miserable and very sick with vertigo and nausea. Life was barely worth living. Out of the blue I was referred to a Physiotherapist who has had considerable experience treating patients like us. In my case she identified spasmed muscles in the neck and upper back which were pinching and inflaming one of the cranial nerves thus causing the symptoms. Her treatment has helped. You might similarly benefit. Good luck.
I could never explain to my family how I feel in words. But you nailed it. When you talked about walking into a supermarket and high pitch noises and screaming. I cried! And I'm a grown man.
I could never explain to my family how I feel in words. But you nailed it. When you talked about walking into a supermarket and high pitch noises and screaming. I cried! And I'm a grown man.
You are right on with the brain fog.....sometimes I wish I had a plunger to pop my head clear, ,but list just not he simplistic . Thanks for the post.
I was diagnosed with MD and am now having surgery to check for fistula. All the symptoms were there. If it is one they can patch it. I was thrown from doc to doc with the MD diagnosis until I went to a hearing institute. The load noises being unbearable are indicative of perilymph fistula. Could hurt to get it checked out.
thank you for sharing this. I have meniere's about 2 years now, have been to many tests and in hospital few times, but the doctors can't find anything, even I have ALL the symptoms! I guess the doctors here (queensland/australia) are too stupid!!
Thanks for posting this. This is what the doc is suspecting I have after dealing with random bouts of vertigo (which caused me to have panic attacks) over the course of about 11 months now. The dizziness started picking up, the anxiety over the possibility of another attack, the earing ringing and sense of fullness... It's helping me listening to others experiences so I can better prepare myself for what's to come. Thanks, man. Hope you're feeling better now.
Heroes comes in many ways.... You are a hero for all the people who can relate to this, you light up the burden of sufferers with this depressing disease .... Thanks dude
I have been dealing with Meniere's for 3 years for sure, but I belive I have Hade it my whole life. Before it went full blone vertigo, tinnitus and hearing loss. I have found that low salt diet is the only real treatment that worked for me!!! That ment a drastic life chang for me and my family. No more fast food for me and try to find something that tastes good with no salt added! Cook all your foods fresh, better for you yes but hard. No vertigo attacks for 9 months.
I was discharged from the Army b/c of meniere's and I know where you're coming from buddy. It is a very hard thing to describe to a person who doesn't have it. You did a pretty good job though.
My issue is also with my right ear. I haven't actually been told I have Meniere's yet but that is what they seem to be treating me for as far as medically. I've been to the ENT specialist once already and had the hearing tests but I'm due to go back in November for more diagnosis. My vertigo has been really bad the last few days, the ringing in my ears, whoosing sound in ear and bad balance issues...making me more clumsey than I usually am. Getting so sick of being sick!
Last few weeks I been feeling dizzy and light headed all the time. I think I might pass out, like the floor is moving under me. My body moves back and forth on it's own. I do get pressure in my ears sometimes, sometimes ringing, but it's the the light headeness i can't stand, like most of the day. Sometimes it seems like the room is weaving in and out..im not sure if i have this though, but it's scaring me..
Your description of this disease is spot on! I couldn't have done better myself.
I've had MM for over 11yrs and I'm in my early 30's.
I'm glad to hear that you still am able to live a semi normal life. I've been riddled with MM. I have to take a day at a time and put on a brave face when all I want to do is curl up in a ball and cry!
wow this soundz just like me. Except mines always kicks off when ive been sitting for a long time a few minutes after i stand up if i hold something slightly heavy in my right arm (and only my right arm) i get this sensation that all the blood in my legs suddenly rushed super fast to my feet, then i can no longer move my legs, my ears start ringing and my vision grows darker until im totally blind. I have to just stand there and wait for it to pass and pray i dont fall down, but i do anyway
good to know there are normal people out there who seem to be functioning well, im 16 and ive been having alot of meniere's symptoms, in particular vertigo, as well as tinnitus and hearing loss that comes and goes in bouts, not fun :\
I see rhe ENT in 2 days and will now know the 2 episodes I had were these drop attacks,I somehow manage to saty standing though and also like many thought was stroke.Does anyone hear a low hum noise? I had high pitch hissing for 17yrs the low hum started 3 weeks ago about 8 days before the 2nd drop attack,the hum is driven me insane, i can handle the hiss even vertigo but this hum omg!
I remember my first "drop" attack, I thought I was having a stroke! I was aslleep in bed and it woke me up but was unable to balance to get up, it was horrible, the room was moving and made me throw up! my hearing is 75 percent gone now in one ear. but pleased to say I have only had 3 drop attacks, but as you say it is there every day. driving is a no, no. my best wishes to you.
hey i just sent some vids tell me what u think im new tp this il;lness and am trying to cope best and try to get some relief please me some adive or jus point me to the direction thnk you soo much good luck on your journeyhey emily i just sent some vids tell me what u think im new tp this il;lness and am trying to cope best and try to get some relief please me some adive or jus point me to the direction thnk you soo much good luck on your journey
I was referred to this video via the menieres website on facebook. You explain everything so well. I have had Menieres Disease for 16 years and had to leave my job in law and at times was house bound. I have in recent years found a new lease of life but just to say its so nice your sharing it, as people dont really understand what we go through
Thank you for this! You have expalined so well my life! I have had MD for just over 3yrs now, although I haven't had am attack for around 18months now, everything else still happens. Its hard to know if symptoms are because of MD, but I know from people like you that it is!
Taken my medication now and attack is over so excuse the ramblings prior lol some of it made no sense, but atleast you can see what the brain fog can do to you and how the most simpliest task can turn into a mountain..
Md is a really rare disease and alot of you people that think you have it actually wont.... You could just have some fluid trapped in yr inner ear... An ent will be able to install grommits and yr virtigo will be over... However if you have 3 or 4 of they symptons discribed in this video, go to your doctors asap.. As they will need to run an mri scan to rule out a brain tumor, as they symptons are the same..
Excuse last post im kinda in a semi state right now and even simple tasks like this takes all my effort... Ive been so worried about my brain fog that allmost convinced myself that i had alzheimers.. I hate looking at people, knowing i know them, but just cant get there name to pop out of my mouth... Also the way im unable to string sentences together... I was even in town one day in a middle of an attack and was refused on the bus because the drive thought i was drunk... And without the abil
Ive sufferd for 9yrs, last 5yrs have been getting worse, to the point now i have in both ears and spend most of my days hidden in my house as the attacks get triggered from the most supidest this.. Ie police siren, loud bangs ect... One thing i have noticed is alot of peo
I had sever vertigo in 1998 woke up and feel out of bed and could not even crawl the entire world was spinning round n round. I vomitted uncontrolably for hours; scarriest thing I have ever experienced.
At the time I did not know what was wrong. I have been diagnosed with tinittus and other issues. I am retired military and have horrifying nightmares that involve many different scenarios of military experiences .
I am going to see a neurologist tomorrow at the VA hospital.
my boyfriend has meniere's disease but apparently it won't get REALLY bad until he's about 35 or so. he sometimes has vertigo & I, never having had it before, cannot begin to imagine what it's like. he says it's a horrible thing & doesn't wish it on anyone. I wish I could help him.
i had my first attack when i was 6-7 but it wasnt as bad as now. i never had the brain fogg. i dont like to talk about it cause its scary to me (im 14), and my friends dont even know what it is. it kind of makes writing for me hard after a drop attack but i learn to live with it the best way i can. i guess thats all i can do (:
hey, im 23 now and i have menieres disease. i had my first attack when i was about 15-16 years old.I missed well over 70 days of school every year, and that was hard being a good student athlete. I still have mild attacks and try to watch my diet trying not to intake to much sodium or caffeine. when i was 17 i couldnt take it anymore, i was in and out of the doctors, testing and not being able to move, so i finally had the endolymphatic sac operation and i still have minor attacks
i did have the endolymphatic sac operation and it has helped my life out tremendously. I do still have minor attacks here and there, but nothing like the 8 hour bathroom floor puking my guts out feeling and bed ridden for the next 4 days, i still have the loud roaring at times and hearing does vary day to day, i do still have hearing tests every now and then. I recommend to anyone talking to a doctor about diets or surgery like mine, it helped me and may help you. Doctors listen, let them.
This is one of the many things that i am being tested for. Vertigo is very very scary. My biggest fear is to have a vertigo spell while driving. I want to take something that will hopefully prevent them from happening.
And NO ONE understands- its the hardest thing to explain to a person. Even my fiance doesn't get it sometimes. How something he is doing- like typing loudly on the computer can mess with my head or moving in bed too much when I feel a dizzy spell coming on. I haven't been diagnosed with Meniere's yet but I took the BPPV test and it came back negative- so this is my next stop. I miss being able to drive, work out, be outdoors, play sports....its terrible.
Your video made me cry. Everything I've been going through- to the sensitivity to sight and sound to the exact way the spinning feels- you hit the nail on the head. I'm 23 and my life has been almost ruined by this. Ive always had symptoms, ever since I was little. But in the past year they have gotten tremendously worse. It effects how I do in my classes to if I can even get out of bed. Everything sets it off from bending over to brushing my hair. The attacks are totally random.
ive had menieres disease since the age of 3, at the age of 12 the ENT specialists put me on the medicine Betahistine which i take three times a day. that really helped but what made the biggest difference was the low salt diet. everything i eat is fresh, it makes a massive difference.but its also a bit dangerous to just cut salt out of your diet so i have to see dietican/doctors regularly.
I would LoVe to be able to share an alternative treatment which has worked like MaGiC for my dad he has been "attack free" for years and years now - I was diagnosed with this Dis.....ease just over a year ago and also take this, I too feel better and better as each week goes by - HIghly recommend taking Ginkgo Biloba extract....
I also recommend reading the book or watching the movie - You Can Heal Your Life by Louise Hay :)))))) Enjoy :)))))
I would LoVe to be able to share an alternative treatment which has worked like MaGiC for my dad he has been "attack free" for years and years now - I was diagnosed with this Dis.....ease just over a year ago and also take this, I too feel better and better as each week goes by - HIghly recommend taking Ginkgo Biloba extract....
I also recommend reading the book or watching the movie - You Can Heal Your Life by Louise Hay :)))))) Enjoy :)))))
I with you all. I have been formally diagnosed with Menieres after a year and a half. I love playing the piano but I find my quality of life suffering because of this. I'm 33 years old, very fit. I've fallen in the shower once and other times I feel like I'm drunk or high. I hate this. Anyone suffering from this needs to know that you are not alone. My outlook is positive and I think this is one of the most important things.
Yep, I got this stupid disease 8 yrs ago at age 39, but luckily the vertigo attacks stopped 5 yrs ago, although the tinitis is constant and I'm practically tone deaf in the left ear. People look at me funny when I tell them to speak up because I can hardly hear them. Frustrating but part of a Meniere's sufferer's life, I guess.
My doctor thinks i have Viral Labyrinthitis, but i have what seems like those "drop attacks" also. I am currently waiting to see ENT dept at local hospital for an official diagnosis. But its reassuring to know that i`m not alone in suffering with this, as i have done for 6 months now and i`ve even lost my job due to sickness. Keep up the support guys, and good luck :-)
My dad was just diagnosed with Menieres. I showed him this video and he said you nailed it right on the head. We are devastated, but I'm glad my dad isn't alone. Thanks for the video.
(continued)...I have taken these two tablets for about 7 years now and this seems to control it. Maybe I'm lucky as I know Meniere's can lay dormant or even go away but after 16 years I can say I lead a normal life. I do all the things you shouldn't, I smoke 10 a day,drink espresso coffee, a little salt on my food and work late. You might want to ask your doctor about Betahistine and Hygroton because it works for me. Don't give up and good luck everyone.
I've had Meniere's since 1994 in the left ear and it was at it's worst in the first 4 years. I still have my hearing in my left ear despite the dotors saying I would lose ittotally within 8 years. I'm an audio engineer and have tested the frequencies I can hear. My hearing would be about 80 to 90% left and 100% right.
I haven't had an attack for about 4 years now and I believe it's controlled by the tablets I take each day: Hygroton (diuretic) and Betahistine.
I just had my 1st drop attack it was very severe last week i was brought to A&E by ambulance,i am worried about getting another attack wondering how should i prepare for another? will i have to call an ambulance next time or deal with it on my own?
@colmranger its best not to call an ambulance because the hospital can do nothing for you. the best thing to do is have someone who knows whats wrong with you sit with you, go to bed and wait for it to pass. For me i have to sit in a room with the light on (because the darkness drives my dissnyness crazy) and try and concentrate on something , like a dvd playing. but the thing you have to concentrate most on, and it is really hard, is NOT TO PANIC, the more you panic the worse it will get. xx
ive had it for like 6 years now, and ive had like several different diagnosis but was originally misdiagnosed as labyrinthitis
i have also had several knee operations and now when i get an atack i always fall,
i have now damaged nerves in my back causing neuropathy "nerve problems" and other issues to limbs, a doc once told me that you have sensors in your joints to tell your brain what your dong and they think i fall because if this and menires
Thanks for this video. I am going to post my Menier's Disease experience and what has worked for me soon. I know I will NEVER be cured of this, but hopefully there is something for everyone with MD out there that will help you live with it. You probably can read my comments from other MD video comments. But again I strongly suggest to everyone out there suffering with MD to try every possible alternative treatment or therapy before you undergo any permanent treatments - no matter how off or
@blinkyreadsbooks Gentamycin is ototoxic, but more so taken systemically. There is minimal risk when administered transtympanically and works to kill the cells responsible for the vertigo.
i got this POS disease as well. seems to be getting worse with time. trying a low-sodium diet now. must have lost 10lbs already. keep fighting, brother!
Thank you for sharing your Meniere's story. I was finally diagnosed after 2.5 years of symptoms.....the last 9 months of it being solid symptoms vs intermittent before the 9 months. As crazy as it sounds....it is comforting to know other people have experienced the same things I have with this disease. The first time I had a drop attack I thought I was having an aneurysm or a stroke.
I take meclizine; an anticholinergic and antihistine....this blocks the transmission of vertigo to the brain which makes the disease manageable. It has some funky side effects though and some are psychological for me.
I think I have this, I've been feeling very weird since a year, like an elevator feeling. I had a labyrintitis before, only lasted a couple weeks, but this is different. Like I have presyncopes, sensations I'm going to fall down. Stress relieving, like a hot bubble bath and a brand of Passiflor + Valerian herb tea, seems to help. I have to constantly tell myself "ok, tomorrow I'll be better, don't worry", and then I have good days. It's like psychology plays a big role.
i am new to Miniere's disease, im 19 yea ive been sick for bout a week then outta nowhere i get the weird ringing noise in my left ear, my legs feel weak at times but i can walk normally, but im just scared ima lose my hearing in both ears im seriously freaking out but tryna remain calm, i was just wondering if there is anyway of getting rid of the ringing and also to prevent it from happening to my right ear
If I didn't know differently, I'd think you were reading a script I wrote. I am scheduled for my second surgery (first a shunt, now labyrinthectomy) on Wednesday. My hearing is so bad in my left ear that losing it won't matter. I have the same sensation with a loud noise. Good luck to you.
If I didn't know differently, I'd think you were writing a script I wrote. I am scheduled for my second surgery (first a shunt, now labyrinthectomy) on Wednesday. My hearing is so bad in my left ear that losing it won't matter. I have the same sensation with a loud noise. Good luck to you.
I'm glad I found your video. I can relate to everything you said. I was recently diagnosed with Menieres...although I've had the symptoms for some time. Flourescent lights are especially bad for me also and can trigger an attack.
Thank you for sharing this, and I wish you all the best! :)
Wow i can so relate to your video :( I have thought i was going crazy for the last two years. The memory fog, tiredness, dizziness etc.... I have just started seeing a ENT specialist to work on getting these problems under control. I hope things get better soon, cause i can't take much more. Thank you so much for sharing your story, and I hope things get better for you :) Take care and thanks for letting me know that i am NOT crazy !!!!!!
You sound just like me! I have labrynthitis also......I have been dealing with it since Jan 2010. Been hospitalized for a week and still feel the pressure in my ear and very off balance. I stutter, loss my train of thought easily and have been very depressed!!! Seeing your video gave me hope that I am not alone in the world with this horrible disease!! Thank you!!
Just wondering if you ever had a hearing test or ENG balance test done and what the resutls were. I have the tinnitus and dizziness but no hearing loss so they say I cant have Menieres.....
@w4wxp yes gentamicin is ototoxic.. although sometimes people might be prescribed antivert that can help with vertigo... and of course diet changes/nutritional needs. or in severe cases they can put i believe its called an endolymphatic shunt of some sort to drain some of the built up fluid
w4wxp-I just swa your video,and am new to Meniere's,haven't been diagnosed yet,but I've been on the internet for days now,trying to figure out what this is.The first attack happened while I was driving.I thought I was having a stroke.The vertigo and nausea hit me like a bomb.I haven't had a drop attack yet,but they've happened to the point of going to bed and staying there till it's over.Will be going to an ENT to get the official diagnosis,but your video and others have helped.Best wishes.
Your video is great! I have recurrent viral neuritis and share some of your symptoms. Thanks for getting the word out in regards to Meniere's disease. Wishing you symptom free days in 2010!
Im 31 and had this disease for 2 yrs. I can relate. It sucks. I work at a grocery store and that sometimes makes it all the worse. I just got put on diuretics hopefully it will help. My very first attack was a drop attack. I know the feeling.
thanks for this...I haven't had drop attacks yet...just the vertigo and ear problems..."just"...sucks as I'm a musician and it really interferes, particularly with my singing.
I was diagnosed with Meniere's disease four years ago and it has been a nightmare! I got so bad I had the vestibular nerve section on my left ear. After a successful recovery and learning to walk again the Meniere's has now started on my right ear. It's not as bad, I don't spin when I am still or lying down. The visual bit (like the Matrix film) is not as bad as well but the tinnitus is now really bad. Sleeping is not good when you have two jet engines in your ears.
Very, very well worded, from the beginning to the end. Thank you so much for your honesty. Many of your symptoms are in line with chronic fatigue syndrome or one of the other main invisible diseases... I have such severe vertigo as well. Thank you for giving comfort to people, and letting them know that they are not alone. You are not either my friend.
wow i have been feeling like everything is spinning for a very long time not to mention the ringing, fullness,and muffled hearing at times. and my doc did not know what was wrong. But now i have a new doc and he told me i have menieres disease. and the meds he gave me does not help at all :0 and its getting worst and sometimes effects my driving. so any ways i am going to the E.N.T on the 26 of feb, wow i thought i was tripping until i saw your video, thanks lotts
You did a wonderful job explaining it! Was the vertigo something that showed up later in life? That's my biggest fear right now. I have the 24/7 "off" feeling, but do not suffer from vertigo. I hope it doesn't just show up someday. Well, good job! And I hope you find something that will at least help with the symptoms. One thing we all have in common with this disorder is we're all fighters! :)
wow i think i got this problem i got it checked they told me that my equilibrium was swollen i have a hell of a time hearing and i cant walk sometimes in a sober manner hope i dont got it
@w4wxp, I am prone to migraines ,and last week when i had to drink contrast fluid in juice for my ct scan the next dayand the morning of i woke with a migraine and the last scan they injected dye.by the time i got home my head felt like it was going to explode., i started throwing up alot and then fainted woke up in a puddle of vomit.it was scary. i was weak for a couple days after with a anxiety attacks and chills for hours after.a friend suggested meniere's, i don't think it is.what do u say?
AutismLivesHere 2 days ago
I remember back when I was around 23, I started getting dizzy spells out of nowhere. I was bedridden for weeks because I couldn't stand up without vomiting. I would sometimes be sitting in a chair minding my own business and I would feel like I was falling but I wasn't. It was so bad I was even considering sucide for a while. Caffine seems to trigger it.
misspinkpunkykat 1 week ago
Have you tried the Epley Manuever? Research it man !
sebs2306live2 3 weeks ago
Thanks for posting this video. Your experience gave me some valuable insight to what I am going through. Thank you!!!
digitaldetoxx 1 month ago
I awoke one day in Feb2000 with a bad ear infection. The doctor on call prescribed antibiotics and although the infection had diminished the tinnitus plus the fullness sensation remained. It feels sort of like a mass dangling inside my head. With every step I take it sways...WING! WANG! So naturally I went back to see the doctor but he insist that there's no sign of infection. Yet the condition remains to this day. My symptoms include vertigo, dizziness, mental fog, memory loss and hyperacusis.
digitaldetoxx 1 month ago
I am going threw the exact same thing since 2009.Now Im totally disabled from this and cant hold a job because of it.People just dont understand this disease.This is a very good video.
HDMann292 1 month ago
Thank you so much for this vid ivebeen haveing all these problems for a while now but more intense recently ill be bringing this up to my dr. Tomorrow its been so scary not having any idea what's could be going on with me esp since my sister has m.s. so I've been thibking the worst this was a great vid thankkkkyouuuu so much
inmyeyesinmyheart 1 month ago
It feels like my body is moving up and down and I feel like I AM sleeping on a rocking boat. it's that bad sometimes. I get an up and down feeling, or sensation. Then I feel like fainting, then the whole rooms spins.. i never know when this is going to get really bad, or not. like now it's bad again.
rattqueen6969 2 months ago
I wonder if I have this..I am always dizzy and light headed almost all day, but some days a little better than others, but things spin and I feel faint a lot. I get ringing in my ears, or a shh sound, or a ringing sound. Sometimes I can't read because the words spin in circles. The last 3 months it's been almost like this all the time. Where I feel real light headed and dizzy. I almost fell, while walking outside..I can stumble and bump into things. This is a nightmare.
rattqueen6969 2 months ago
@rattqueen6969 I was told that I most likely had Meniere's and I was miserable and very sick with vertigo and nausea. Life was barely worth living. Out of the blue I was referred to a Physiotherapist who has had considerable experience treating patients like us. In my case she identified spasmed muscles in the neck and upper back which were pinching and inflaming one of the cranial nerves thus causing the symptoms. Her treatment has helped. You might similarly benefit. Good luck.
MrGoblin60 2 months ago
This has been flagged as spam show
I could never explain to my family how I feel in words. But you nailed it. When you talked about walking into a supermarket and high pitch noises and screaming. I cried! And I'm a grown man.
chrishawkcarter 2 months ago
I could never explain to my family how I feel in words. But you nailed it. When you talked about walking into a supermarket and high pitch noises and screaming. I cried! And I'm a grown man.
chrishawkcarter 2 months ago
Man you pretty much explained what I cou
chrishawkcarter 2 months ago
You are right on with the brain fog.....sometimes I wish I had a plunger to pop my head clear, ,but list just not he simplistic . Thanks for the post.
7777shayna 2 months ago
Could not hurt that is.... It's been seven years of hell and this is the first glimpse of hope.
eefort01 2 months ago
I was diagnosed with MD and am now having surgery to check for fistula. All the symptoms were there. If it is one they can patch it. I was thrown from doc to doc with the MD diagnosis until I went to a hearing institute. The load noises being unbearable are indicative of perilymph fistula. Could hurt to get it checked out.
eefort01 2 months ago
thank you for sharing this. I have meniere's about 2 years now, have been to many tests and in hospital few times, but the doctors can't find anything, even I have ALL the symptoms! I guess the doctors here (queensland/australia) are too stupid!!
heykuckma 2 months ago
Thanks for posting this. This is what the doc is suspecting I have after dealing with random bouts of vertigo (which caused me to have panic attacks) over the course of about 11 months now. The dizziness started picking up, the anxiety over the possibility of another attack, the earing ringing and sense of fullness... It's helping me listening to others experiences so I can better prepare myself for what's to come. Thanks, man. Hope you're feeling better now.
EzrysMom 3 months ago
my vertigo is gone thaxz to this recipe
baselinez 3 months ago
Heroes comes in many ways.... You are a hero for all the people who can relate to this, you light up the burden of sufferers with this depressing disease .... Thanks dude
joseph71406 3 months ago
I have been dealing with Meniere's for 3 years for sure, but I belive I have Hade it my whole life. Before it went full blone vertigo, tinnitus and hearing loss. I have found that low salt diet is the only real treatment that worked for me!!! That ment a drastic life chang for me and my family. No more fast food for me and try to find something that tastes good with no salt added! Cook all your foods fresh, better for you yes but hard. No vertigo attacks for 9 months.
MANU2SLO 3 months ago
yes gentamicin is ototoxic....
mzJbug07 4 months ago
I was discharged from the Army b/c of meniere's and I know where you're coming from buddy. It is a very hard thing to describe to a person who doesn't have it. You did a pretty good job though.
rockman0809 4 months ago
You have a very positive attitude! I have Meniere's and it can be very depressing.
SouthernRedneckWoman 4 months ago
This has been flagged as spam show
There's a social network for Meniere's Disease sufferers, their family and friends. It has forums, groups, video, chatrooms, games and loads more.
Just Google menieresworld
menieresworld 4 months ago
My issue is also with my right ear. I haven't actually been told I have Meniere's yet but that is what they seem to be treating me for as far as medically. I've been to the ENT specialist once already and had the hearing tests but I'm due to go back in November for more diagnosis. My vertigo has been really bad the last few days, the ringing in my ears, whoosing sound in ear and bad balance issues...making me more clumsey than I usually am. Getting so sick of being sick!
CatastrophyPawpad 4 months ago
thanks for posting this video ,it helps me a bit to understand my symptoms !!!
unilostwhiteunicorn 4 months ago
Last few weeks I been feeling dizzy and light headed all the time. I think I might pass out, like the floor is moving under me. My body moves back and forth on it's own. I do get pressure in my ears sometimes, sometimes ringing, but it's the the light headeness i can't stand, like most of the day. Sometimes it seems like the room is weaving in and out..im not sure if i have this though, but it's scaring me..
rattqueen6969 5 months ago
Your description of this disease is spot on! I couldn't have done better myself.
I've had MM for over 11yrs and I'm in my early 30's.
I'm glad to hear that you still am able to live a semi normal life. I've been riddled with MM. I have to take a day at a time and put on a brave face when all I want to do is curl up in a ball and cry!
Aabuzahn 5 months ago
wow this soundz just like me. Except mines always kicks off when ive been sitting for a long time a few minutes after i stand up if i hold something slightly heavy in my right arm (and only my right arm) i get this sensation that all the blood in my legs suddenly rushed super fast to my feet, then i can no longer move my legs, my ears start ringing and my vision grows darker until im totally blind. I have to just stand there and wait for it to pass and pray i dont fall down, but i do anyway
lilfreeway21 5 months ago
good to know there are normal people out there who seem to be functioning well, im 16 and ive been having alot of meniere's symptoms, in particular vertigo, as well as tinnitus and hearing loss that comes and goes in bouts, not fun :\
arhoptt 5 months ago
I see rhe ENT in 2 days and will now know the 2 episodes I had were these drop attacks,I somehow manage to saty standing though and also like many thought was stroke.Does anyone hear a low hum noise? I had high pitch hissing for 17yrs the low hum started 3 weeks ago about 8 days before the 2nd drop attack,the hum is driven me insane, i can handle the hiss even vertigo but this hum omg!
Flutterbyzz147 5 months ago
Your symptoms also sound a lot like Migraine Associated Vertigo.
ichbindarren 5 months ago
I remember my first "drop" attack, I thought I was having a stroke! I was aslleep in bed and it woke me up but was unable to balance to get up, it was horrible, the room was moving and made me throw up! my hearing is 75 percent gone now in one ear. but pleased to say I have only had 3 drop attacks, but as you say it is there every day. driving is a no, no. my best wishes to you.
brackenmagicstar 6 months ago
I had a test I have MD. I hate it but I have to deal with it. I've had it for 4 years. I get very bad attacks. Been to hospital twice.
Thecoolgirl324 7 months ago
hey i just sent some vids tell me what u think im new tp this il;lness and am trying to cope best and try to get some relief please me some adive or jus point me to the direction thnk you soo much good luck on your journeyhey emily i just sent some vids tell me what u think im new tp this il;lness and am trying to cope best and try to get some relief please me some adive or jus point me to the direction thnk you soo much good luck on your journey
jascarboro 7 months ago
I was referred to this video via the menieres website on facebook. You explain everything so well. I have had Menieres Disease for 16 years and had to leave my job in law and at times was house bound. I have in recent years found a new lease of life but just to say its so nice your sharing it, as people dont really understand what we go through
rocker26a 7 months ago
Thank you for this! You have expalined so well my life! I have had MD for just over 3yrs now, although I haven't had am attack for around 18months now, everything else still happens. Its hard to know if symptoms are because of MD, but I know from people like you that it is!
suzysues 7 months ago
Diagnosed in 2009 and know exactly how you feel thanks for sharing
sleprock929 8 months ago
Taken my medication now and attack is over so excuse the ramblings prior lol some of it made no sense, but atleast you can see what the brain fog can do to you and how the most simpliest task can turn into a mountain..
Ratheki1 8 months ago
Md is a really rare disease and alot of you people that think you have it actually wont.... You could just have some fluid trapped in yr inner ear... An ent will be able to install grommits and yr virtigo will be over... However if you have 3 or 4 of they symptons discribed in this video, go to your doctors asap.. As they will need to run an mri scan to rule out a brain tumor, as they symptons are the same..
Ratheki1 8 months ago
Md is a really rare disease and alot of you people that think you have it actually wont... You could have just some f
Ratheki1 8 months ago
Excuse last post im kinda in a semi state right now and even simple tasks like this takes all my effort... Ive been so worried about my brain fog that allmost convinced myself that i had alzheimers.. I hate looking at people, knowing i know them, but just cant get there name to pop out of my mouth... Also the way im unable to string sentences together... I was even in town one day in a middle of an attack and was refused on the bus because the drive thought i was drunk... And without the abil
Ratheki1 8 months ago
Ive sufferd for 9yrs, last 5yrs have been getting worse, to the point now i have in both ears and spend most of my days hidden in my house as the attacks get triggered from the most supidest this.. Ie police siren, loud bangs ect... One thing i have noticed is alot of peo
Ratheki1 8 months ago
I had sever vertigo in 1998 woke up and feel out of bed and could not even crawl the entire world was spinning round n round. I vomitted uncontrolably for hours; scarriest thing I have ever experienced.
At the time I did not know what was wrong. I have been diagnosed with tinittus and other issues. I am retired military and have horrifying nightmares that involve many different scenarios of military experiences .
I am going to see a neurologist tomorrow at the VA hospital.
t445577o 8 months ago
Thank you for sharing this information.
rumit99 8 months ago
I think I have that desease, is there a treatment for it????
helenita05 9 months ago
i have the same exact thing!
finally someone who can understand what happens to me
JillyBean1001 9 months ago
my boyfriend has meniere's disease but apparently it won't get REALLY bad until he's about 35 or so. he sometimes has vertigo & I, never having had it before, cannot begin to imagine what it's like. he says it's a horrible thing & doesn't wish it on anyone. I wish I could help him.
dommmx0x 9 months ago
i had my first attack when i was 6-7 but it wasnt as bad as now. i never had the brain fogg. i dont like to talk about it cause its scary to me (im 14), and my friends dont even know what it is. it kind of makes writing for me hard after a drop attack but i learn to live with it the best way i can. i guess thats all i can do (:
xxbabybxx53 9 months ago
hey, im 23 now and i have menieres disease. i had my first attack when i was about 15-16 years old.I missed well over 70 days of school every year, and that was hard being a good student athlete. I still have mild attacks and try to watch my diet trying not to intake to much sodium or caffeine. when i was 17 i couldnt take it anymore, i was in and out of the doctors, testing and not being able to move, so i finally had the endolymphatic sac operation and i still have minor attacks
styl1n101 9 months ago
i did have the endolymphatic sac operation and it has helped my life out tremendously. I do still have minor attacks here and there, but nothing like the 8 hour bathroom floor puking my guts out feeling and bed ridden for the next 4 days, i still have the loud roaring at times and hearing does vary day to day, i do still have hearing tests every now and then. I recommend to anyone talking to a doctor about diets or surgery like mine, it helped me and may help you. Doctors listen, let them.
styl1n101 9 months ago
i had it for a year now I guess not that bad compare to some of this stories
SrRAFAGAS 9 months ago
Thanks for sharing your story
Wolfdale11 10 months ago
This is one of the many things that i am being tested for. Vertigo is very very scary. My biggest fear is to have a vertigo spell while driving. I want to take something that will hopefully prevent them from happening.
pris72 10 months ago
And NO ONE understands- its the hardest thing to explain to a person. Even my fiance doesn't get it sometimes. How something he is doing- like typing loudly on the computer can mess with my head or moving in bed too much when I feel a dizzy spell coming on. I haven't been diagnosed with Meniere's yet but I took the BPPV test and it came back negative- so this is my next stop. I miss being able to drive, work out, be outdoors, play sports....its terrible.
LivTheFuzz 10 months ago
Your video made me cry. Everything I've been going through- to the sensitivity to sight and sound to the exact way the spinning feels- you hit the nail on the head. I'm 23 and my life has been almost ruined by this. Ive always had symptoms, ever since I was little. But in the past year they have gotten tremendously worse. It effects how I do in my classes to if I can even get out of bed. Everything sets it off from bending over to brushing my hair. The attacks are totally random.
LivTheFuzz 10 months ago
ive had menieres disease since the age of 3, at the age of 12 the ENT specialists put me on the medicine Betahistine which i take three times a day. that really helped but what made the biggest difference was the low salt diet. everything i eat is fresh, it makes a massive difference.but its also a bit dangerous to just cut salt out of your diet so i have to see dietican/doctors regularly.
twilightfan6689 10 months ago
I would LoVe to be able to share an alternative treatment which has worked like MaGiC for my dad he has been "attack free" for years and years now - I was diagnosed with this Dis.....ease just over a year ago and also take this, I too feel better and better as each week goes by - HIghly recommend taking Ginkgo Biloba extract....
I also recommend reading the book or watching the movie - You Can Heal Your Life by Louise Hay :)))))) Enjoy :)))))
liveyourdreammentors 11 months ago
I would LoVe to be able to share an alternative treatment which has worked like MaGiC for my dad he has been "attack free" for years and years now - I was diagnosed with this Dis.....ease just over a year ago and also take this, I too feel better and better as each week goes by - HIghly recommend taking Ginkgo Biloba extract....
I also recommend reading the book or watching the movie - You Can Heal Your Life by Louise Hay :)))))) Enjoy :)))))
liveyourdreammentors 11 months ago
I with you all. I have been formally diagnosed with Menieres after a year and a half. I love playing the piano but I find my quality of life suffering because of this. I'm 33 years old, very fit. I've fallen in the shower once and other times I feel like I'm drunk or high. I hate this. Anyone suffering from this needs to know that you are not alone. My outlook is positive and I think this is one of the most important things.
ElDiegoSlim 11 months ago
Yep, I got this stupid disease 8 yrs ago at age 39, but luckily the vertigo attacks stopped 5 yrs ago, although the tinitis is constant and I'm practically tone deaf in the left ear. People look at me funny when I tell them to speak up because I can hardly hear them. Frustrating but part of a Meniere's sufferer's life, I guess.
varsity3111 11 months ago
My doctor thinks i have Viral Labyrinthitis, but i have what seems like those "drop attacks" also. I am currently waiting to see ENT dept at local hospital for an official diagnosis. But its reassuring to know that i`m not alone in suffering with this, as i have done for 6 months now and i`ve even lost my job due to sickness. Keep up the support guys, and good luck :-)
minxybo 1 year ago
My dad was just diagnosed with Menieres. I showed him this video and he said you nailed it right on the head. We are devastated, but I'm glad my dad isn't alone. Thanks for the video.
qu1z 1 year ago
OMG ! you are living my life !!!!
jennstar1970 1 year ago
(continued)...I have taken these two tablets for about 7 years now and this seems to control it. Maybe I'm lucky as I know Meniere's can lay dormant or even go away but after 16 years I can say I lead a normal life. I do all the things you shouldn't, I smoke 10 a day,drink espresso coffee, a little salt on my food and work late. You might want to ask your doctor about Betahistine and Hygroton because it works for me. Don't give up and good luck everyone.
Cowbananas 1 year ago
I've had Meniere's since 1994 in the left ear and it was at it's worst in the first 4 years. I still have my hearing in my left ear despite the dotors saying I would lose ittotally within 8 years. I'm an audio engineer and have tested the frequencies I can hear. My hearing would be about 80 to 90% left and 100% right.
I haven't had an attack for about 4 years now and I believe it's controlled by the tablets I take each day: Hygroton (diuretic) and Betahistine.
Cowbananas 1 year ago
Great video thanks so much for sharing.
I just had my 1st drop attack it was very severe last week i was brought to A&E by ambulance,i am worried about getting another attack wondering how should i prepare for another? will i have to call an ambulance next time or deal with it on my own?
colmranger 1 year ago
@colmranger its best not to call an ambulance because the hospital can do nothing for you. the best thing to do is have someone who knows whats wrong with you sit with you, go to bed and wait for it to pass. For me i have to sit in a room with the light on (because the darkness drives my dissnyness crazy) and try and concentrate on something , like a dvd playing. but the thing you have to concentrate most on, and it is really hard, is NOT TO PANIC, the more you panic the worse it will get. xx
twilightfan6689 10 months ago
ive had it for like 6 years now, and ive had like several different diagnosis but was originally misdiagnosed as labyrinthitis
i have also had several knee operations and now when i get an atack i always fall,
i have now damaged nerves in my back causing neuropathy "nerve problems" and other issues to limbs, a doc once told me that you have sensors in your joints to tell your brain what your dong and they think i fall because if this and menires
puggster 1 year ago
Thanks for this video. I am going to post my Menier's Disease experience and what has worked for me soon. I know I will NEVER be cured of this, but hopefully there is something for everyone with MD out there that will help you live with it. You probably can read my comments from other MD video comments. But again I strongly suggest to everyone out there suffering with MD to try every possible alternative treatment or therapy before you undergo any permanent treatments - no matter how off or
123456fasted 1 year ago
@blinkyreadsbooks Gentamycin is ototoxic, but more so taken systemically. There is minimal risk when administered transtympanically and works to kill the cells responsible for the vertigo.
TheDeAnnaLyn 1 year ago
I suffer from MD also.... I just tell people -
No, I don't look sick. You don't look stupid either.
Hang in there, you are not alone!
michele38pa 1 year ago
i got this POS disease as well. seems to be getting worse with time. trying a low-sodium diet now. must have lost 10lbs already. keep fighting, brother!
casualtimmy 1 year ago
Thank you for sharing your Meniere's story. I was finally diagnosed after 2.5 years of symptoms.....the last 9 months of it being solid symptoms vs intermittent before the 9 months. As crazy as it sounds....it is comforting to know other people have experienced the same things I have with this disease. The first time I had a drop attack I thought I was having an aneurysm or a stroke.
blueinukshuk1 1 year ago
I take meclizine; an anticholinergic and antihistine....this blocks the transmission of vertigo to the brain which makes the disease manageable. It has some funky side effects though and some are psychological for me.
devosooner 1 year ago
Do you know what caused you to have Ménière’s?
idonotneedanidforyou 1 year ago
I think I have this, I've been feeling very weird since a year, like an elevator feeling. I had a labyrintitis before, only lasted a couple weeks, but this is different. Like I have presyncopes, sensations I'm going to fall down. Stress relieving, like a hot bubble bath and a brand of Passiflor + Valerian herb tea, seems to help. I have to constantly tell myself "ok, tomorrow I'll be better, don't worry", and then I have good days. It's like psychology plays a big role.
Neurozumim 1 year ago
I'm not crazy, I had two drop episodes, and I thought the worst. Now I feel I'm not alone with this.
meztisa16 1 year ago
wow very well sir, great video
i am new to Miniere's disease, im 19 yea ive been sick for bout a week then outta nowhere i get the weird ringing noise in my left ear, my legs feel weak at times but i can walk normally, but im just scared ima lose my hearing in both ears im seriously freaking out but tryna remain calm, i was just wondering if there is anyway of getting rid of the ringing and also to prevent it from happening to my right ear
Mikey1724 1 year ago
If I didn't know differently, I'd think you were reading a script I wrote. I am scheduled for my second surgery (first a shunt, now labyrinthectomy) on Wednesday. My hearing is so bad in my left ear that losing it won't matter. I have the same sensation with a loud noise. Good luck to you.
jdrtsn 1 year ago
If I didn't know differently, I'd think you were writing a script I wrote. I am scheduled for my second surgery (first a shunt, now labyrinthectomy) on Wednesday. My hearing is so bad in my left ear that losing it won't matter. I have the same sensation with a loud noise. Good luck to you.
jdrtsn 1 year ago
I'm glad I found your video. I can relate to everything you said. I was recently diagnosed with Menieres...although I've had the symptoms for some time. Flourescent lights are especially bad for me also and can trigger an attack.
Thank you for sharing this, and I wish you all the best! :)
Boudiicca 1 year ago
Wow i can so relate to your video :( I have thought i was going crazy for the last two years. The memory fog, tiredness, dizziness etc.... I have just started seeing a ENT specialist to work on getting these problems under control. I hope things get better soon, cause i can't take much more. Thank you so much for sharing your story, and I hope things get better for you :) Take care and thanks for letting me know that i am NOT crazy !!!!!!
WMTait5 1 year ago
You sound just like me! I have labrynthitis also......I have been dealing with it since Jan 2010. Been hospitalized for a week and still feel the pressure in my ear and very off balance. I stutter, loss my train of thought easily and have been very depressed!!! Seeing your video gave me hope that I am not alone in the world with this horrible disease!! Thank you!!
gina12516 1 year ago
Just wondering if you ever had a hearing test or ENG balance test done and what the resutls were. I have the tinnitus and dizziness but no hearing loss so they say I cant have Menieres.....
Jackieluvskeith 1 year ago
As you may know gentamicin is used to correct Meneire's Disease, read up on it.
DixieGeezer 1 year ago
It's destructive though, isnt it?
w4wxp 1 year ago
@w4wxp It´s used as a kind of chemical type of destruction of the Labyrinth to reduce the vertigo.
Colts0fan 1 year ago
@w4wxp yes gentamicin is ototoxic.. although sometimes people might be prescribed antivert that can help with vertigo... and of course diet changes/nutritional needs. or in severe cases they can put i believe its called an endolymphatic shunt of some sort to drain some of the built up fluid
mzJbug07 4 months ago
@DixieGeezer It's used to "correct" vertigo, not MD. And the trade off is you are likely to lose hearing.
Sir2Fiable 1 year ago
this sounds like me....i wish u well in our mutual struggle!!!!
arlichar11 2 years ago
w4wxp-I just swa your video,and am new to Meniere's,haven't been diagnosed yet,but I've been on the internet for days now,trying to figure out what this is.The first attack happened while I was driving.I thought I was having a stroke.The vertigo and nausea hit me like a bomb.I haven't had a drop attack yet,but they've happened to the point of going to bed and staying there till it's over.Will be going to an ENT to get the official diagnosis,but your video and others have helped.Best wishes.
idahopunk1965 2 years ago
Sounds familiar, first attack, I thought that I was having a stroke or a heart attack or something akin! Didn't know WHAT was going on with me.
w4wxp 1 year ago
*I like how u can have humor with this craziness...Positivity is a gOoOd thing to surround yourself with...
zynfia 2 years ago 5
Your video is great! I have recurrent viral neuritis and share some of your symptoms. Thanks for getting the word out in regards to Meniere's disease. Wishing you symptom free days in 2010!
cendrillon0803 2 years ago
Im 31 and had this disease for 2 yrs. I can relate. It sucks. I work at a grocery store and that sometimes makes it all the worse. I just got put on diuretics hopefully it will help. My very first attack was a drop attack. I know the feeling.
onefastv8s10 2 years ago
I can relate also, its horrible.
julz35 2 years ago
thanks for this...I haven't had drop attacks yet...just the vertigo and ear problems..."just"...sucks as I'm a musician and it really interferes, particularly with my singing.
beaglemusic 2 years ago 2
I was diagnosed with Meniere's disease four years ago and it has been a nightmare! I got so bad I had the vestibular nerve section on my left ear. After a successful recovery and learning to walk again the Meniere's has now started on my right ear. It's not as bad, I don't spin when I am still or lying down. The visual bit (like the Matrix film) is not as bad as well but the tinnitus is now really bad. Sleeping is not good when you have two jet engines in your ears.
Treboreno 2 years ago
Very, very well worded, from the beginning to the end. Thank you so much for your honesty. Many of your symptoms are in line with chronic fatigue syndrome or one of the other main invisible diseases... I have such severe vertigo as well. Thank you for giving comfort to people, and letting them know that they are not alone. You are not either my friend.
Wishing you, truly, well...
DrFrankyDolan 2 years ago
wow i have been feeling like everything is spinning for a very long time not to mention the ringing, fullness,and muffled hearing at times. and my doc did not know what was wrong. But now i have a new doc and he told me i have menieres disease. and the meds he gave me does not help at all :0 and its getting worst and sometimes effects my driving. so any ways i am going to the E.N.T on the 26 of feb, wow i thought i was tripping until i saw your video, thanks lotts
Charmzya 2 years ago
You did a wonderful job explaining it! Was the vertigo something that showed up later in life? That's my biggest fear right now. I have the 24/7 "off" feeling, but do not suffer from vertigo. I hope it doesn't just show up someday. Well, good job! And I hope you find something that will at least help with the symptoms. One thing we all have in common with this disorder is we're all fighters! :)
MilkNCereal394 2 years ago
wow i think i got this problem i got it checked they told me that my equilibrium was swollen i have a hell of a time hearing and i cant walk sometimes in a sober manner hope i dont got it
slashysmasher 2 years ago