Added: 2 years ago
From: EosMom
Views: 1,543
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  • does he use a G tube or a J tube? I have both of those I also get fed elecare but I eat just cant keep it down or digest it. it is very hard I understand how he feels you want to be normal so bad! but cant. anyways I also use my G tube to drain food out of my stomach that is causing me pain.

  • My son does not have this disorder but he has a condition where he cannot chew and it is so hard for him as well. Uhhggg....as a parent it rips your heart out. You cannot do anything but cry when they are not looking. This sucks...I am so sorry...

    Cindy

  • How do you get nutrients?

  • @Ninjabeast22 feeding tube with special formula

  • smart but it is sad

  • Part II

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