hi my name is patricia my daughter is 12 yrs old and has had 2 surgeries in the past and her dr believes with consulting other drs my daughter has fibrous dysplasia ! her left maxillary has a 2cm poylp and the bone is so calcified he couldnt break through with lasers that surgery was done on dec 30 2011 she goes to endocrinologist in 2 weeks so my question is what are the test to determine FD what do i need to expect how do i help ? please any info would really help
Love all your videos. Gonna try to find the one you were talking about. I feel so alone having struggled with fd because even the doctors dont know about it. Your videos help me understand that I am not alone. Thank you.
I watched all your vids. I'm sorry you have FD in your leg. I have it in my skull, but you can't tell I have it either. I've had a headache for 5 years now. Has anyone prescribed you bisphosphonates?
Hi kramsey I am a 37 year old woman with pfd I have 4 children but was not diagnosed until after the birth of my 4th child I got through the pregnancies and so will you i had some problems with pelvic pain in labour but nothing i couldn't get over email me if you want to know more. I live in the uk and i'm the first my doctor has seen too but i live every day in terrible pain and would love a friend who understands keep your chin up girl your little boy is going to be beautiful and healthy.
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hi my name is patricia my daughter is 12 yrs old and has had 2 surgeries in the past and her dr believes with consulting other drs my daughter has fibrous dysplasia ! her left maxillary has a 2cm poylp and the bone is so calcified he couldnt break through with lasers that surgery was done on dec 30 2011 she goes to endocrinologist in 2 weeks so my question is what are the test to determine FD what do i need to expect how do i help ? please any info would really help
flossysmartt2010 1 month ago
Love all your videos. Gonna try to find the one you were talking about. I feel so alone having struggled with fd because even the doctors dont know about it. Your videos help me understand that I am not alone. Thank you.
mistresscharlie 2 months ago
I watched all your vids. I'm sorry you have FD in your leg. I have it in my skull, but you can't tell I have it either. I've had a headache for 5 years now. Has anyone prescribed you bisphosphonates?
rob205rob 2 years ago
Hi kramsey I am a 37 year old woman with pfd I have 4 children but was not diagnosed until after the birth of my 4th child I got through the pregnancies and so will you i had some problems with pelvic pain in labour but nothing i couldn't get over email me if you want to know more. I live in the uk and i'm the first my doctor has seen too but i live every day in terrible pain and would love a friend who understands keep your chin up girl your little boy is going to be beautiful and healthy.
siobhandfd 2 years ago
I'll be sure to check out that video if I can't find it do you think you could send me the link? I hope you and Cole are doing well!
BlueFirefly010 2 years ago