are you freaking kidding me? obviously you know nothing about late-stage neurological lyme disease and how debilitating it is. carey cannot just 'get out of bed' and be fine. she deals with severe pain and neurological symptoms 24/7. as far as her seizures are concerned, she's explained numerous times that she doesn't have typical epileptic-like seizures; instead, she experiences limbic seizures which are directly caused by the lyme bacteria in her CNS.
Just wanted to say HI! It's always nice to meet new people on Youtube from CLOSE! You're not far away from me. I'm in Albemarle... like.. 30-ish minutes east of Charlotte... so HI!!!
i travel to charlotte a lot but i actually live closer to greensboro/high point. i've heard of your name around, we must watch a lot of the same people. but it's nice to 'meet' you.
Do your muscles go into spasm and stay there like mine? Had huge spasm in upper back muscles that lasted the whole 5 years of misdiagnosis, plus the first 2 years of lyme treatment.. 7 yrs.
Even tho spasms eased up, horrific pain still remains and I still have to be very careful about setting them back off again.
Yes.. your eyes do look a lot brighter!
When I flare up, lymph nodes on my collar bones get huge..
i get muscle spasms but they are all over and there are times when the muscles lock up but only for a few days. i found that flexiril helped with this.
check out some of my older videos. long story short i was bitten by a tick and infected with a bacteria called Borrelia burgdorferi. we know for sure i was bitten in 2000 and possibly before. the lyme disease slowly invaded my immune system and eventually broke the blood brain barrier which gave me all of my neurological symptoms. eventually i ended up in a wheelchair. i saw 15 doctors before i was finally diagnosed from my symptoms and a accurate blood test. now i'm on IV antibiotic treatment.
i try my best to keep checking in. you can always check my channel page which i try to update with little posts if i haven't made a video in awhile. or you can keep an eye on me over at twitter.
I am so glad that your pain is better. I am no 50 mcg's, and daersets, But now that I have moved I can't find a Dr. that will give me my meds. They tell me that I don't have proof that I am in pain, and that they will not take out of state records. I am sure now that your pain is controlled you will now be able to heal.
Oh, and I haven't posted in a while because I'm having some problems with the USB ports on my laptop. It's cantakerous, but I'm gonna try to get something up on here sometime soon.
So very glad to hear that you're feeling better and that the pain medicine helps you when you need it. Listen, I'm just really glad that you do these. You have been a great source of encouragement and information since I first started watching you last year. I am such a "yo-yo" these days. Swinging back and forth between feeling almost normal and then totally lymed out with back pain, muscle pain, joint pain, ringing in the ears. Gets me down sometimes but friends like you help me.
are you freaking kidding me? obviously you know nothing about late-stage neurological lyme disease and how debilitating it is. carey cannot just 'get out of bed' and be fine. she deals with severe pain and neurological symptoms 24/7. as far as her seizures are concerned, she's explained numerous times that she doesn't have typical epileptic-like seizures; instead, she experiences limbic seizures which are directly caused by the lyme bacteria in her CNS.
heiwalove 2 years ago
Just wanted to say HI! It's always nice to meet new people on Youtube from CLOSE! You're not far away from me. I'm in Albemarle... like.. 30-ish minutes east of Charlotte... so HI!!!
DanielSayWhat 3 years ago
i travel to charlotte a lot but i actually live closer to greensboro/high point. i've heard of your name around, we must watch a lot of the same people. but it's nice to 'meet' you.
peterpauliepan 3 years ago
As far as weird anomalies go, you are one of my favorites.
mickmusing 3 years ago
that's because you are lucky to know a person like me, who is the 1% of society.
peterpauliepan 3 years ago
Do your muscles go into spasm and stay there like mine? Had huge spasm in upper back muscles that lasted the whole 5 years of misdiagnosis, plus the first 2 years of lyme treatment.. 7 yrs.
Even tho spasms eased up, horrific pain still remains and I still have to be very careful about setting them back off again.
Yes.. your eyes do look a lot brighter!
When I flare up, lymph nodes on my collar bones get huge..
Crazy disease....
Keep pushing Carey...its a rough road..
LymeKerry 3 years ago
i get muscle spasms but they are all over and there are times when the muscles lock up but only for a few days. i found that flexiril helped with this.
peterpauliepan 3 years ago
You definitely are looking better! I'm really glad!
chesterroo 3 years ago
thanks.
peterpauliepan 3 years ago
how did you get sick?
Tehart1988 3 years ago
check out some of my older videos. long story short i was bitten by a tick and infected with a bacteria called Borrelia burgdorferi. we know for sure i was bitten in 2000 and possibly before. the lyme disease slowly invaded my immune system and eventually broke the blood brain barrier which gave me all of my neurological symptoms. eventually i ended up in a wheelchair. i saw 15 doctors before i was finally diagnosed from my symptoms and a accurate blood test. now i'm on IV antibiotic treatment.
peterpauliepan 3 years ago
whats wrong with you?
Tehart1988 3 years ago
I have chronic Lyme Disease.
peterpauliepan 3 years ago
I made you a very small horse out of paper... but then I sat on him by accident, and I think I crushed all his little papery horsey bones...
higheelkiller 3 years ago
aw. poor horse. i guess he can fly now, off into the universe. atleast i'll get to see you soon.
peterpauliepan 3 years ago
Thanks for the update, Carey. I am always wondering how you are.
genmama1955 3 years ago
i try my best to keep checking in. you can always check my channel page which i try to update with little posts if i haven't made a video in awhile. or you can keep an eye on me over at twitter.
peterpauliepan 3 years ago
I am so glad that your pain is better. I am no 50 mcg's, and daersets, But now that I have moved I can't find a Dr. that will give me my meds. They tell me that I don't have proof that I am in pain, and that they will not take out of state records. I am sure now that your pain is controlled you will now be able to heal.
Always
Hartrose33
hartrose33 3 years ago
you look perky in this video. so glad you're catching a break! are you still having seizures?
Suzanne42 3 years ago
you look great right now! you're strong and you'll ride the waves of the lyme's and win!
so glad they gave you what you need for pain. get some rest.
javgirl 3 years ago
Oh, and I haven't posted in a while because I'm having some problems with the USB ports on my laptop. It's cantakerous, but I'm gonna try to get something up on here sometime soon.
cleric1104 3 years ago
Hey Carey,
So very glad to hear that you're feeling better and that the pain medicine helps you when you need it. Listen, I'm just really glad that you do these. You have been a great source of encouragement and information since I first started watching you last year. I am such a "yo-yo" these days. Swinging back and forth between feeling almost normal and then totally lymed out with back pain, muscle pain, joint pain, ringing in the ears. Gets me down sometimes but friends like you help me.
cleric1104 3 years ago