Added: 3 years ago
From: ilovemycraniokid
Views: 4,776
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  • aww luke is adorible!!! (just a queston but why is his hair so long?) I find that so cute! I also think that you are wonder full parent(s) and a great family. Very supporitve and GREAT!! XOXO LUKE!!

  • Such a beautiful child & a lovely family!

  • i have a son also born with this and he had surgery at 5 months old on 4-12-05 and he was born 9-2504

  • was born with Craniosynostosis and i had an operation with a Zig-Zag scar on the side of my head from ear to ear. The surgeons had to lift parts of my skull off and pu them back together in a more fitting shape. I suffered from Mental Retardation before the op. where i could only say 3 words . . ma, da and no. Now im 14 and in a Grammer School with straight A's

    Luke is Adorable and very nice vid . . i dont know the doctor who operated on me but i want to know him and im searching for him :-)

  • I was born with Craniosynostosis also and was operate at 2 months. I'm now 24 years old, studying in dentistry, applying in the Speciality Oral and Maxillofacial surgery, developping a program for fast 3D interfaces and working to make a company that develop medic tools.

  • What a lucky boy Luke is to have a mother like you! I know how hard it is to see your child go through such extensive surgery. My daughter will have her eye surgery this coming spring so our journey isn't over yet. Happy New Year to you and your family!

  • Hi Norma,

    It's John Kimura from fremont & AHS. I can't even imagine what you went through. I started to cry at the hospital point & I am still crying as I am writing this. God sure does come through as he always does. Luke is awesome and so are you.

  • Thanks for the posting. It is amazing what doctors can you.

    I was born with Craniosynostosis 41 years ago. I also have two children that have it. Now my kids are grown up and my daughter is pregnant with her first child. My wife and I are very concerned about the baby having it.

  • Hey hows the baby? i had craniosynostosis im 14 now

  • that is a amazing journey!im glad that god was watching over Luke!good luck Mr. Luke..your future is very bright!!

  • Luke is adorable, your family is an inspiration.

  • HI Nina,

    I was very touched by luke's story! I love you and miss you all very much!!!!

    YOUR AMAZING

    XOXOX

    CARO

  • Hi Norma!

    It's Arlene...your son is so amazing and adorable! I am happy to see that he is healthy and happy! Thank you for posting this touching story of your son's journey.

  • Luke is an AMAZING kid! He is very loving and extremely smart! I know because I am his auntie!

  • I love you too auntie Trish. You are my favorite auntie by marriage :) R U still taking me to te movies this weekend?

  • Yes Luke. We are going to the movies on Saturday (matinee show). I will pick you up by 11:00 after I go to Joann's :-)

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