CJD Brain Killer Documentary

[pinkb20]

Holy crap!!! I used to live in Indianapolis...up until 2005. I am learning about this in my Microbiology class right now.

[teresaj336]

Hi everyone -- I just launched a campaign and this video in regards to CJD. Anyone who would like to send me their story please check out the video on my page and send to the email address mentioned in the video. Together we can raise awareness!

[MedievalAmbient]

I just learned today that one of my mother's old work friends was diagnosed with CJD and probably won't make it until Christmas. It all sounds so horrible and I declined visiting her because I'm frightened of seeing her this way and I know she won't recognize my mother or me. I'm so sorry that you had to go through that.

[OldLadyUU]

My best friends father died of CJD, and today I read in the paper someone died of this. It seems a lot more common than what the media is telling us.

[pandapopxoxo]

I'm so sorry for your loss. Thank you for sharing your experience. I hope your family has found peace since this tragedy. Wishing you all the best.

[theporksicle]

It's a terrifying thought that it could be passed on by prions being inhaled- as I read in Scientific American. Living in England, where CJD is linked to polluted beef, I was told the only people who got it were people who ate cheap beef in the 1980s and that it only surfaced later because of the time it took to develop- apparently that isn't true.

[tkdterp8]

Thank you to the 32,000 plus viewers that have taken the time to view this documentary since I first posted it in 2008. I have all comments that are posted by viewers "pending" until I can screen them as it is not my desire to allow bickering, negative or personal attacks to be posted here. This is not only my brother Zane's story but the story of so many loved ones. Let us be respectful of REAL lives and the pain felt by those left to live without them. Pray for the cure of CJD.

[SmithRoseMarie]

my son Billy Smith Died of vC.J.D  aged 21 years, on 13.01.2010

[bigdaddycuba]

Thanks for this

[pratt123]

Some general information on prions, malignant forms of proteins. Prions self-replicate by taking healthy proteins (usually in the brain and nervous system) and turning them into more prions. Enough prions build up to form complexes that form holes in the brain.

This is a dreadful disease that does just not kill quickly but also slowly and progressively wipes the victim's skills, knowledge, personality, and even memories.

[returnoftheramble3]

that is truly terrible.

[Svittidiu]

Is insomnia a symptom of Kreutzfeldt-Jakob disease?

[LoanCougar]

My condolences to the families. I have a dear friend (Kerrville, TX) who is on her last days as I write this. She was diagnosed with the disease May 4, 2010.

[leeroynaggins]

Why do you know it's NOT coming from cows??

Not many cows are tested in the US.

[bridget2695]

@leeroynaggins a-men!

[Phenom7896]

Is this transferred by non-organic beef?

[Lobos222]

How can they say its not coming from cows, or similar meat? Its supposedly have a incubation time of up to 50 years... How are you going to link that to meat you ate 50 years ago? Kuru is something similar to BSE (mad cow decease) and CJD that human cannibals have gotten (Kuru field studies in Papua New Guinea). Its logical to think that if cows are forced to be cannibals that there is a link.

[shtfprepared]

@Lobos222 EXACTLY RIGHT! The fees of cows has meat by products in them and they are not supposed to eat meat. That is what creates MAd cow disease and it takes 8 years for the cow to develop the disease after being infected with the virus. That's why they now slaughter cows at the age of 7 so that they can't develop it but they are still carrying the virus and we are still eating it too.

[pratt123]

@shtfprepared To be exact, it is not the cows eating byproducts of earlier cows causing the problem but rather, this is the mechanism by which prions spread. Obviously, I and everyone here agrees with you that cows should not eat other animals but just as an academic point, the prions must have either spread from a reservior of carriers or developed randomly.

Both are horrible scenarios. But yes, not giving cows and other bovines animal by-products in their feed is a excellent first step.

[Ataia13]

My dad was diagnosed with this 3-4 weeks ago....now he's just a body, scared and confused,,and the worst part is he doesn't really even remember me. This is the hardest thing seeing and i hope nobody else has to go trough what me and my family are going through. I hope they find a cure.

[theAG1RL]

I am NOT kidding when I tell you this. They do NOT test the cows for madcow that go down the line intended for human consumption. It can hit fast with lots of exposure or build up and incubate for decades. Estimated 80% of alzheimers diagnosed in the USA is actually our commercial beef industry killing us.

[bcabmac]

ther r many pathogens into the U.S. Many different products of canned meat like pork, corned beef, that came from europe and UK,b4 bans, and for anyone with military service outside of U.S. in 70sn80s anywhere in world because those countries food imports from suspect countries and blood trans in lifetime.while they say it not related to food source pathogen, exposure can turn on a deficient gene in those who are at risk and may have never developed the diease as CJD. my heart goes out to u.

[Titouc76]

It's really horrible how people who were cheerful, dynamic, sociable become the mere shadow of their former self that's why I'd rather die quickly than to make suffer my family by watching me slowly losing my autonomy, becoming a burden for them.

[tkdterp8]

Titouc, it was an honor to serve my brother Zane during his illness and I know if it had been me that had CJD, he would've served me in the same manner until I too drew my final breath. I never saw my brother as a "burden." Our entire family came together to support and love him. It was truly an honor to serve him. Again, he would've done it for any one of us.

[Titouc76]

It's really horrible how people who were cheerful, dynamic, sociable become the mere shadow of their former self that's why I'd rather die quickly than to make suffer my family by watching me slowly losing my autonomy, becoming a burden for them.

[srcutrider]

My sweet sister died of CJD just a month after diagnosis. She was only 39. I will miss her to my last moment. I am writing a book about her life, death, and the hope we have as Christians , to see her again.

God's comfort was real for us, may you feel the same comfort, as you walk through this valley.

[shtfprepared]

@srcutrider AMEN

[cpeakeruk]

hi my name is colin my brother died of this we need to find some way of stoping this i miss him so dam much we need to more people no about this

[tamtam1207]

Mom diagnosed with CJD Jan09, died Feb 7,09. CJD flys under the radar. Took 3 neurologists to diagnose her. After a 4 hour EEG the 3rd dr found cjd pattern, had only seen 3 cases in 23 yrs. Donated moms brain to Prion Center Cleveland, OH. Only accurate diagnosis for CJD is by brain tissue autopsy. My mother had "sporadic" CJD. 3 people in same county in TN died 3 months apart. Read "Deadly Feasts" from Amazon. Mom was only 69 and very healthy. Email me if you want to talk or need help.

[EBTerriers]

My uncle has just been told he has it :(

Hes only 56 and its been a huge shock to all of us ...its such bad luck for our family as my uncles wife... my mums sister we lost 8 yrs ago to cancer ...what are the odds of that !? we are all having trouble dealing with this terrible news :(

[JackHoang14]

This is very scary. Today I found out my grandma has it. Seeing her suffering from this disease hurts me a lot, and I wish that i can be there for her 24/7.

[chaddervonpancake]

my grandmother and great aunt died from this and i am frightened to die from it...i don't want my loved ones to watch me and suffer like i had to!!!

[harriv60]

This is so sad. I'm very sorry to all who have lost their loved-ones to CJD.

[BobbyProFilms]

im scared

[javkhlanbold]

I want to say that you are not alone and we are all with you!!! to those who are suffering from the horror of the disease that took their loved ones.

[javkhlanbold]

But soon after she became unconscious. We took care of her at home for a year. Every day we would wake up wondering what was going wrong with my mom and hoping she would be conscious again. But later on after relentless research we found out it was CJD and was irreversible. I really wanted to share my feelings about this and I think it's the best place to share. Only few people know the torture and horror of this disease.

[javkhlanbold]

I hope scientists will come out with a solution to it. Because CJD is rare doesn't mean we don't really have to worry about it. I am very afraid of this disease getting spread. My mom had this disease. She was unconscious for a year till she died at age 45 on 9/11/01. At the time no doctor in my country ever heard about this disease. First doctors assumed she was gone crazy when the early symptoms occured.

[280az]

thats sad it happened to your mother

[moniqued57]

my mom is cjd patient and is not expected to last the weekend. i will investigate and find out the lies that has been told to us. i will look and look till i find it.

[madaboutanimals09]

my grand dad died of cjd he was the 2nd person to die from in in england to any one how has had a relative die of it then you will know how it feels if you want to talk about it just arsk me email me i promis i will help you

[tkdterp8]

Dear Viewers: I have restriction placed on ALL comments posted here. I view them before approval. This video is made available for the sole purpose of educating the public on CJD.

My brother Zane Mingus and others who have passed away from the disease cannot speak out, but I can and will for as long as I have life! He would do the same thing for me if I were the one who died. This is the least I can do for him.

[bpwee12206]

it's very sad. I am taking Surgical classes and have recently learned about his prion based disease. Because prions basically cannot be destroyed the instruments used on patients who have CJD must in destroyed, all measure of sterilization in hospitals are useless. Not to mention the havoc it causes learning later a patient had this particular disease and having to contact those who possibly have undergone other brains surgeries that potentially could have used infected instruments.

[mightycowhero]

man. this thing makes AIDS look like the common cold.

[FANTASTICKISS]

You are right the government is lying to us. I have found out that many of the people who died on so called clinically diagnosed with Alzheimer's where later diagnosed with CJD at autopsy !! So basically Americans have died on this since along time!!

[tkdterp8]

Fantastic,

You are right that there are people who were incorrectly diagnosed with Alzheimers who actually had CJD. Many family physicians are ignorant to the symptoms of CJD and simply do not know. The scariest part is, of those who are wrongly diagnosed become bone and tissue donors upon death??? My family believes that my brother Zane died as a result of receiving a contaminated cadaver bone.

[CVKent317]

Entirely possible, cadavers have a higher probability of carrying prions than say do muscle-tissue and blood.

[returnoftheramble3]

@FANTASTICKISS yeah, they won't inspect the cattle for it as rigorously as they should. I guess they assume it's OK since it's not contageous, but it could become so.

[wef4656rosen]

My father died from this horrible desease Dec. 07. We live in NW suburbs of Chicago. I believe my father contracted CJD from meat (he was a big beef eater) I believe our government and the meat industry are covering up what is going on. 2 of the hospitals my father was in said they see 2-3 cases of CJD per year. If every hospital in the U.S. is seeing 1-3 cases per year, that adds up to thousands or more cases in the US per year. I wish I could do something more to warn people.

[eddysacat]

It's from mad cow! The government is lying to us. Believe me, there was a case a few years ago where a husband and wife died in the us a few years apart. The odds of that happening were over 1 in a trillion. But again, the official explanation was CJD. Bullshit! It's varient CJD and the meat industry would be crippled if the truth got out. Thankfully, I've never liked Red meat. Lastly, in order to get it from infected meat you must have a recessive gene and most do not.

[McWheeler93030]

What happened to the rest of the video? My condolences, my father also had CJD

[montoyabiz]

God, free us from this terrible disease... my god is horrible.

[willkenplace]

oh wow how sad:(:( but thanks for this vital information...

[jaxkipi]

My patient has this. Thank you for this video. It explains a lot.

[etcrisis]

Thank you for uploading! I am always interested in CJD and prions, but they don't really make a lot of videos about them.

[McWheeler93030]

I am sorry to hear about your brother, my father also had CJD. What happened to the last portion of the video?

[McWheeler93030]

I and my family still can't believe that this disease took my fathers life. This disease is the reason I am a Molecular-Cell Biology major

[tkdterp8]

Dear Viewers: I realize the audio and video are not in sync. I am guessing it is related to the conversion from the dvd to my pc. Please view this video with compassion and respect. CJD is here, it is real, it is killing and we've only seen the very tip of the ugly iceberg. If you've lost a loved one or friend to CJD, my heart and tears are with you. May God bless you.