Added: 1 year ago
From: shinnpick
Views: 9,746
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  • omg he is so adorable!! 

  • What a cute child! The video made me smile. Adorable kid!!

    I was searching for the fenomen Marcus Gunn.

    Greetings,

    Linda (the Netherlands)

  • Awwwwww he sooo cute :) poor guy some kids have jaw wink too god bless him :)

  • I have this same thing! When I was his age I had to wear a patch! Anyways I made a video showing my "jaw wink"! I hope you have good luck and it's good to know im not the only on!

  • @dobbsie235 Yeah, we have been patching Julian for three years now. So, how long did you have to patch?

  • There is a surgery to help with the drooping of the eye. It's called a Bi-lateral sling. Check out Dr.Nicholas Iliff (no joke thats his name)Johns Hopkins Wilmers Eye Inst. He did my surgery in 1979. I was his 1st patient with Marcus Gunn ,at the time there were no surgeries so he came up with one. It worked great on the drooping & the winking decreases. Its a correction not a cure though and the surgery must be repeated every so often bcuz the sling looses it's elasticity.

  • Thank you for posting this video. My son is 2 and he shows the same cute eye wink. We call it his winking eye. He gets lots of girl attention. I am going to my doctor and we are going to finally have something to go on. Thanks again and what a CUTIE!!!!!!

  • @trin251 He does grow on you:) thanks! Good luck with your son!

  • He is so RIDICULOUSLY cute.

  • @spidaminida Oh, if you only knew! ;)

  • Also just looked at your profile and we have more in common lol i use to be a jockey and have ridden in a few races :)

  • @cardiffguy85 Too cool! So are you still in the thoroughbred business?

  • @shinnpick no not anymore i got out of it after 6 years i was sick of the people and the treatment from others and what people are like in racing is just not my thing !!!

  • @cardiffguy85 Yeah, it's a tough game! I've been out of it for 3 years now staying home as Mr. Mom with Julian. Plan on getting back in soon.

  • not as bad as his tho

  • @cardiffguy85  Did you ever have surgery on yours? Patching?

  • @shinnpick  nope it eased as i got older im more than happy to show im happy with it some times it gets frustrating when ppl talk about it but yeh i think its up to to your child what they want done!!!

  • @cardiffguy85 Great to hear you survived childhood with MG! LOL! Yeah, we are really avoiding any surgeries right now. If Julian opts for it later in life, so be it. Our main concern is his vision which is great at the moment. He get's patched 4 hrs a day. He's a tiny little guy, he's going to be my jockey!

  • @shinnpick No surgery, but we have been patching since he was three weeks old. He will be three this July, and we patch 4 hrs a day. Sorry about the late response.

  • @shinnpick I'm Nikki 35yrs old. I was diagnosed with Marcus Gunn when I was a few months old. There were no surgeries in for it but in 1979 when i was 3 I was lucky enough to find an amazing surgeon at Johns Hopkins(Dr.Nicholas Iliff,check him out) who created a surgery called a Bi-lateral Sling to help correct(not cure) my condition . The sling helps with the drooping of the eye.

  • haha same eye as me and im 25 :)

  • Dont get rid of it. ITS TOTALLY AWESOMEEEEEE

  • he is so cute

    hi iam guada from Argentina i have Marcus Gunn too

    i have been operated when i was 8 years old. and since then my eye is much better

    it is not as evident as before.if you want information about the cirjury i give you my email guada_lafu@hotmail.com

    o you can contact me if you want by facebook.

    iam from Argentina so i don't speak well english

  • @guadissss Very cool Guada! Thanks for your input. Very busy now moving, but will be in touch with you!

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