Hi, I'm Carl from Quebec city, I have MS and will start the new Tisabri treatment soon (was on Rebif before) and I wanted to tell you that it's fun to see you smiling and be happy. I know it's not always like this but it's super fun. Thank you. (sorry for my english I'm a french guy)
You are a very ( much younger) great role model! I was just to Upmc yesterday and my dr told me he thought I should switch medications from copaxone to tysabri... My heart dropped! I had an MRI earlier in the summer and didn't even know how many lesions I had I was shocked when I saw them. So here I am looking for some reassurance to switch. I'm so glad to see how upbeat you are! Because i have bren on copaxone since the study and thought it was working ( i guess it's not working when
hi, I am Scott,, I have CP, but many people think I have MS.. I just found out a person I know just found out he has MS. Its good to see you smiling in this video, You are Awesome,,
@TheSlvanderhoef Hello! I've never been on Rebif so I'm sorry, I can't realte. Are you taking a different medication now? I also have relapsing remitting MS.
That's good!! Be happy!! Dont ever stress it will relapse again!! I was just told I hand ms!! Or 2nd progressive something!!! I'm always stress!! No matter what happens it's my fault!! Always be happy!! I can't remember the last time I was happy!!
CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
High Saturated Fat diet -> young age (active thymus) -> exposure to herpesviridea or other neurovirus -> high permeability of BBB caused by poor, brittle structure from high saturated fat diet, low levels of vitamin D -> T cells in CNS -> sensitization of T Cells -> later onset of MS -> recovery -> anything that can cause a proper situation for episodes (stress, Epstein Barr, etc.) -> disability
High Saturated Fat diet -> young age (active thymus) -> exposure to herpesviridea or other neurovirus -> high permeability of BBB caused by poor, brittle structure from high saturated fat diet, low levels of vitamin D -> T cells in CNS -> sensitization of T Cells -> later onset of MS -> recovery -> anything that can cause a proper situation for episodes (stress, Epstein Barr, etc.) -> disablitiy
Just to give you a progress report my wife has been back on TYSABRI for three infusions after a gap of four months through a move to Indiana from California. Prior to the infusions Sharain became very sick loosing balance body strength
and effected with depression. It is now two months since the first infusion and there is a little improvement with balance and a little with body strength being able to climb a staircase,
ohk is u r comforatble in talking on phone please mail me... i can call u or skype if u have skype.... and god bless u !!! i will pray to god that u keep smiling like tht.....u have a beautiful beautiful smille.keep smiling always!!!!!! and please take care.....and keep it up!!!
laurenn u r beautiful! god bless u! ohk i m 20! my dads suffering from ms from last 17 years..hes on avonex form last 30 months.....he started amypre (dalfampridine) a month ago! thank fully he didnt have replased from last 30 monthz and since last 1 month hes walking and balnce is 5% better .n my doc said tysabri will b good to him...i m very confused and looking and reseaching..... thnx alot for ur video!!! i would love to talk with u on skype or phone...u can email me at mudassir@hotmail.my
My wife was taking the Tysabri treatments for one year, her Dr. has hoped to see improvements but there wasn't any. after 12 months it was decided that the expense of the Tysabri treatments didn't make sense to continue. Two weeks ago she had a nurse come to our home to give her a Steroid infusion and the next day she was able to walk around the house a little. : )
@1967wf I've had reactions with hot and cold weather regardless of what medication I'm taking. That is an MS symptom, not necessarily a side effect from Tysabri. But I would have her talk to her doctor just to be sure. I wish you both the best!
@1967wf: There is a naturopathic approach for MS. The problem with Tysabri is that no long term study was done, plus 10% of the subjects experience negative effects. Plus keep in mind that all this drugs does is reduce the amount of immune cells that cross the CNS, there are herbs that can do that. In addition remember that the study was a monotherapy - which creates a huge red flag.
After many tests done for stealth pathogens like lyme,mycoplasma, i now know i dont really have ms i have lymes disease..
My lyme dr said to me that neally all of his clients he see's who were diagnoised with ms,just has lyme,mycoplasma ect, or just active forms of viruses like ebv or hhv6.. L FORM bacteria is another cause
I have been taking samento and some other stuff for the last year & im so much better
After many tests done for stealth pathogens like lyme,mycoplasma, i now know i dont really have ms i have lymes disease..
My lyme dr said to me that neally all of his clients he see's who were diagnoised with ms,just has lyme,mycoplasma ect, or just active forms of viruses like ebv or hhv6.. L FORM bacteria is another cause
I have been taking samento and some other stuff for the last year & im so much better
@laurenvparrott , Thanks lauren, have you ever been tested for lyme disease and other co infection? Igenex in america are the best for these tests.,but still not 100% reliable..Alot of false negatives..
Or you could try samento for several months and see if you feel better..
I had brain lesions on my mri, and lyme can cause this..
I booked myself a private mri, i bet my lesions are now gone..
After many tests done for stealth pathogens like lyme,mycoplasma, i now know i dont really have ms i have lymes disease..
My lyme dr said to me that neally all of his clients he see's who were diagnoised with ms,just has lyme,mycoplasma ect, or just active forms of viruses like ebv or hhv6.. L FORM bacteria is another cause
I have been taking samento and some other stuff for the last year & im so much better..
Ounce of prevention worth pound of cure. What's cause of MS? Aspartame. Mercury amalgams. I believe biggest cause is vaccinations. In fact Montel had adverse reaction 2 a vaccination- (went temp blind in one eye & spastic in one leg) 30 years ago & was 20 years before diagnosed MS. Dr. Ted Spence in book Vaccination Deception has Dr Mendelsohn & others 11 times that vaccinations cause MS. Myself- had adverse reaction 2 allergy shot years ago & now have MS. Thanks Drs & nurses. Hippocratic oath.
I don't have ms but I heard that Glutathione (Immunical) + vitamin D is helpful, and if you combine them with ubiquitol + alpha lipoic acid the effects could be improved. I would also suggest reducing inflammation with lots of raw veggies, tumeric, tulsi, etc
To take immuno suppressants for this without uaddressing the underlying causes of imbalance doesn't make sense to me.
@imnotabear Hello - I've had MS for almost 10 years and I eat very healthy and take Vitamin D every day. The immunosuppressant drugs help to slow the progression of the disease. Thank you for your concern :)
After many tests done for stealth pathogens like lyme,mycoplasma, i now know i dont really have ms i have lymes disease..
My lyme dr said to me that neally all of his clients he see's who were diagnoised with ms,just has lyme,mycoplasma ect, or just active forms of viruses like ebv or hhv6.. L FORM bacteria is another cause
I have been taking samento and some other stuff for the last year & im so much better
Thank you for writing! I'm so glad that Tysabri has worked so well for you! Haha that is so funny about your keyboard - the same thing happens to me! I'm at my 28th infusion and I feel great too!
Hi... Iam so glad that u r doing better! I also have been in Tysabri for about 19 months! that is about 19 infusions and about 12 years with MS! I also have very good feedbacks with tysabri! It is not a cure but it did work with me to slow down the progression and made me so much better!! I wish u well and ur video will help many! take care!...:)
Intensive aerobic exercise as soon as possible after your Tysabri infusion will help mobilize even more stem cells into your blood. While Tysabri helps loosen the stem cells it takes some hard pumping blood flow to help break them loose from the bone marrow. But check with your doctor first.
Hai Lauren thank you for all your films i also have ms for 4 years now and i hope that zamboni is write keep up the good work,because i am scared to take tisabri,good luck from Laura sier from holland
Hi Laura! Thank you for writing to me! I hope that Dr. Zamboni is right too! Tysabri has been wonderful for me (for over 2 years) but I can understand why you're scared. Please keep in touch!
Please look at a site I'm involved with, ms taking action, this may explain me a bit. I have lived ms & understand quite a bit, but love hearing people like you comment so positively.
You are a great advocatcor.
Keep up your enthusiasm & positive work, we need more like you!!!!!!!!
Thanks for sharing Lauren. Your attitude is certainly in the right place! Very inspirational to see you smile and be enthusiastic in the shadow of this infliction. I am a rebif guy myself and my last MRI showed 'no new lesions' after a year. My body feels the creeping effects but I'm hanging in there! Keep on smiling.. it's beautiful to see :)
I was browsing youtube and stumbled on this video and i happy to see how far and how much you have improved in your recent videos and with the word's out on CCSVI i think we will soon put an end to MS. i m very hopefull, Alittle scared as i am going to take my second brake from TY because i am at 32 infusions so far, Anyway or mabe i 'll just start taking Remeron to help me get over the fear. i am sure you heard abt Remeron
hi how are you and your healthy speciaaly i hope all going fine stay positive also my husband passed and he will be starting work soon thanks foe you prays take care of you health.dont worry we will be visting american onece i move out my parents home god bless you always and be with you. geeta and mouli
Lauren I need to talk with you like some sort of email my computer wiont do the email you gave out but I have myspace under the name Sav I have a close up picture of me the flash was on I think its real bright looking... well just mail me there or friend request me plese its important to me... thanks
Hey! I don't have a myspace account but you can send me a message right here on YouTube! Just click, "Send Message" and we can communicate through there!
Hey Lauren I wanted to talk to you more about MS but I'm not to handy about youtube but I have a myspace if you do you can send a friends request or something please... I'm in the same boat as you so please... Just need someone who understands what I go through too.. I was also on Copaxone and it didnt work for me either now I'll be going in 2-3 months to do Tysabri... :(
Hi Lauren, I work for Elan Pharmaceuticals, I am glad that youre making videos about Tysabri. We have been getting a lot of bad reputation on this, especially with the PML issue. Thank you for making this video and putting it on YouTube for other MS patients to see.
I watched you videos and I actually can put a face to patient that is being helped by our medication. I do hope the Tysabri is doing its job and is making your life better.
Hello! Thank you so much for writing to me! I think it's awesome that you work for Elan - I LOVE Tysabri and I'm just about to get my 24th infusion. 2 years and it's been amazing!! Thanks again for writing!
Please show some respect, It is probably a waste to time to replay to your message. But just for the record and to answer that vain question.. YES, because it shows you to be grateful and teaches you a lesson of strength, which looks like you really need one. Your comment clearly reflects how sad and pathetic you must be. Good luck with your perfect health. I hope it last you enough to realize no one has it guaranteed, and that we are all valuable just for whom we are.
The eye shaking was from optic neuritis, and I experienced tremors (shaking) all over my body but especially in my head and my hands. All of that has improved and I don't shake anymore.
you is a star a fookin superstar.... diagnosed on june the 3rd this year... and knowing i've been carrying ms for god knows how long....it was a good day diagnosis... cos it explained a lot of shit thay happenened before......
Lauren HI!! i was DX with MS in 2003 age 35. I'm on Rebif so far so good. I also take Baclofen,Gabapentin,seriqual,zoloft lots od depression & i've gained to much weight. Do u take other meds? i would love to hear back from u take care & God bless.
Hello! I'm so glad Rebif is working for you! Gaining weight is the worst!! I try to be really careful about what I eat. The only other medication I take is "Klonopin" to calm my tremors. Take care and God Bless!
Just wanted to add that immunoglobolin is not approved by the FDA as a treatment for MS but most importantly is that u totally forget about it and try to live ur life normally and hopefully your health will be much better.
This kind of disease is very rare here in the gulf.
ok , what if the small risk happen to my sister , I think I will tell her to keep using the antirebeef or something,thanks alot for keeping in touch , this is Fahad from Saudi Arabia
Thank u lauren for ur video, I was diagnosed with ms 5 years ago when i was 17 and was treated with interferon for a year however, it wasnt much of a use as the numbness, burning and walking didnt really improve and so ive been on immunoglobolin for almost a year now. Im much better now, however i thought of taking tysabri but my doctor didnt recommend it. i just hope in the coming years that there would be a cure for ms.
Hello! I'm so glad you're better! Some doctors are apprehensive to prescribe Tysabri...inderstandibly so...but things could always change. I'm hoping for a cure too!
Thank you so much, Lauren, for making this video! I watched it in Feb., and it helped me so much!! In 10 days, I am switching to Tysabri too! I am so glad to know that you were about the same age as me when u went on Tysabri! Many people on Tysabri seem to be a lot older than us!! Maybe we r the brave young ones :P
I have a two week "washout" period between my copaxone injections and the start of Tysabri. Could you please tell me how long your "washout" period was?
Hi Anna! I'm so glad this video helped you! And yes, we are the brave young ones. My "washout" period was 2 weeks as well. Tysabri infusions are SO MUCH BETTER than Copaxone injections...I really hope your body responds to Tysabri as well as mine. Please keep me posted and let me know how everything goes!
I do have a few questions actually. I live in the US, and was wondering if it is something I can get here, and have you heard of anyone having problems with switching from Rebif to this stuff? Thanks for any info, you and your fam are in my prayers :) ... D
You shouldn't have any problems switching medications. I would talk to your neurologist and discuss all the options. I will keep you in my prayers as well!
I switched from Rebif too last month (last month was my first injection) and my second is coming up this week. Had to wait 2.5 weeks after my last injection before getting the infusion. Much better than Rebif. does cost about 3 hours a month.
I have thought about this video all day. I really want to try Tysabri because I don't think Rebif is really working out for me. But, I'm keeping my hopes up and look forward to talking to my Dr. about it. Thanks again....... D
I was just diagnosed with MS about 6 months ago (at 31) and just wanted to tell you that I think its sweet that you took the time to post, comment and let us know how your doing with this med. I hope it continues to work for you... D.
Thank you for sharing your story & experiences. I was Dx with RRMS in 2005, but probably had it long before that. I have been on copaxone, avonex and now am on rebif. I had a bad exacerbation a few weeks ago, 5 days on solumedrol, 7 on taper steroids. Thinking about Tysabri, but just not sure. I am a Sp. Ed. teacher, still working and hoping I don't have anymore attacks. Thank you for sharing info. and being brave enough to talk about your MS. Take care. Melissa Barlow. Oswego, NY
Hi Melissa! Thank you for writing! Wow, I give you so much credit for being a Special Ed teacher. My Mom taught high school for 10 years and now she's a substitute for special ed classes - I can't believe the stories she tells me.
I hope you don't have any more attacks either and I hope the steroids helped you. I love Tysabri because it's working extremely well for me.
hi lauran i have ms from 1995 got after 1 yrs betaferon hypodermic injection and 2 yrs later i get avonex use it till now may 2009 but i get prenison because it go bad after no progres then mine neuroloog say we can try new medicine tysabri
i will have in take at juli hope is googn better then with me
Hi Lauren... you are such a beautiful girl... and not just cause of your smile, but you truely care for others I can tell.
I'm 25, and my almost 30 years old sweet heart husband is in the begining stages of MS. He has chosen to deal with this naturally, very strict with his diet and so on. Lots of natural suppliments... as he has done so much research.
It's so scary to see all the changes, ... but your enthusiasm helps so much!
Lauren, OMG! You are so incredibly inspiring & enlightening darling!
I'm in Durban, South Africa & sending you loads of love, LIGHT & healing from down here. Your family & especially God, must ALL be so very proud of you.
Hi, Lauren :) I'm in the middle of my initial onset of MS (optic neuritis, ftw!) and I've watched every single one of your videos. You're such an inspiration, you have me starting to do videos on how MS can affect your looks and your self-esteem, and your self-esteem affects your looks (vicious cycle). And also about being 36 with an autistic daughter, and how MS mixes with that. But anyway, thank you so much for your videos, you've made this so much easier and, well, positive ^_^
Thank you so much for this comment! It is very touching, and I wish you and your daughter the very best! Stay positive and I'm sure everything is going to be fine!
i'm on copaxone right now i go up and down but i'm worried about steriods when the first diagnosed me they put me on steriods and it made me gain a lot of weight.....so i'm ify about that
I've only been on steroids once - I was worried about it at first, but I think everything is ok as long as you're not getting steroids every day. If you're worried I'd talk to your neurologist. I hope you're feeling well!
I have been taking Betaseron for a long time but I'm afraid it is begininning to lose its's effectiveness. Tysabri maybe an option. Thank you for doing these videos. You are incredibily beautiful. Never let anyon tell you otherwise.
Thank you so much, you are very sweet! I would definitely talk to your neurologist about Tysabri if you're interested! I love it and many others are seeing great results!
thank you for the info. my wife goes on the consult for Tysabri tomorrow. Hopefully everything will go ok. You videos really help and I am rooting for you and I hope it works for my wife as well. If I have any questions I will let you know.
My name is Preston and I was given a Dx on Christmas Eve last year. I am about to start treatments soon and I am wondering if you could send any info about ones you tried. Thank you for any help. I am looking at starting a clinical trial for an oral med, alemtuzumab (?)
by the way your pushing ldn so vehemently are you sure your not being paid by a drugs company to promote ldn. i never comment on videos but i have watched lauren for over a year and a half and seen the benefits that tysabri has given her. i know everyone is entitled to their opinion but when its as moronic as yours maybe you should keep it to yourself you fucking jackass
I want you to know that the drug company does NOT pay for my medication. I have insurance and I pay over $200/month for the co-pay. It's actually $213.66 every month. I would not speak about something with such conviction unless I had total faith in its effectivness. I started these videos before I started taking Tysabri. I just wanted you to have all the facts.
Your putting disabled peoples health and life in danger...Just think what damage drugs will do that suppress the immune system over years... Low dose naltrexone (LDN), is safe and only costs a buck a day.LDN works by letting the patients own immune system work to repair the damage caused by ms.
If you listen to the beginning of my video, I say that someone asked me to talk about how I was before and after taking Tysabri. I'm not telling anyone what to do - I'm talking about my story. Everyone needs to do what they feel is best for them. We're all different and Tysabri is NOT for everyone.
I am not afraid..only concerned on how to support her when she has her next relapse. I care for her so very much my heart fills with love every single time I think about her. I am very concerned for her health and I want to handle my emotions properly when she does relapse. Any words of wisdom you may have for me it would be appreciated.
You are such a sweet person! I hope your girlfriend knows how lucky she is to have you! I'm sure she's an amazing person as well. The best advice I can give is to take it one day at a time. My first relapse was incredibly scary, but my boyfriend was very supportive and understanding and that's all he could do - I felt so fortunate just to have his support. I wouldn't worry about the future because we don't know what's going to happen to any of us! I hope this was helpful - write anytime!
I have recently started a relationship with a friend of mine that I have known for 2+ years. I feel very lucky that we have decided to take our relationship to the next level. She is an incredible person and I believe we are falling in love. She was diagnosed with MS years before I met her. I am in the medical field but have never had any exposure to MS. She has not had a relapse since before I met her and she is currently on an experimental medication for her MS. (cont.)
Hi lauren, my name is Dana Sears I am 20 years old, and I live in Wisconsin. My mom has had MS for 21 years. It has been hard on both of us. Although your symptoms are different, they are they same. The doctors have her on about 15 medications, and I don't think that they are doing very well. We go to visi her MS doctor in March, she doesnt like to tell him anything, because she doesn't want him to know anything. I tell him everything that I know. Any suggestions on questions to ask him? Thanks
Hi Dana! You are so sweet to be helping your Mom like this. Doctors really need to know everything so they can give the best medications possible, but it worries me that she's on about 15 medications? What are they for? Before I can say what questions to ask, I would need to know her symptoms. Feel free to send me a message anytime! I'll be out of town this weekend, but feel free to write!
I just subscribed. I find your video about Tysabri very interesting. I am glad that I found you and I plan to watch more of your videos. I have been on Avonex since May of 1997 and I have not taken any of the other injection medications. I have just one question about Tysabri. Does it help with bladder function problems due to MS?
Hi Bill! My bladder issues didn't get started until 7 years into my disease when I had my first relapse. I started Tysabri because of my relapse and I still have bladder issues. However, I know there are pills you can take to help with these problems. Perhaps you can talk to your neurologist about it?!
I have tried both Detrol and Ditropan (not sure about the spelling) for bladder problems, but they did not make any difference for me. I have also heard from doctors that those medicines won't really work for me.
You are great. I just found out my boyfriend has MS and he's not the one that told me... I was snooping, but he doesnt take meds and I was wondering, shouldn't he be concerned that something could progress, he doesnt want to discuss it with me, so researching is my only hope. any info would be good =)
Hi Trish! You are an amazing girlfriend. Not only are you understanding, but you're trying to help your boyfriend - he is such a lucky guy! I have noticed that sometimes, it's harder for men to except and talk about than women, but it's incredcibly important to get on medication because it will stop further progression of the disease. Please write to me anytume if you have questions!!
So I arrive on YouTube, and now the software offers me this video among today's selections!
And I see why, 10000 views and counting - not all of them MSers I am sure but you will have helped many think of options and also in terms of attitude.
And, compared to now, its so obvious, back then you were quivering like jelly on screen.
Hey Steve! Oh my gosh! I can't believe it! Yeah, I don't watch the older videos because it's hard to see how bad I was - but it's also encouraging to know that I've improved.
I'm pretty sure there was another Tysabri-related death in August 08. Thanks for putting all this out there for the world to see. I recently had a bout of marburg MS, but I haven't had to do any disease-modifying therapy, but it's not out of the question that I would end up with regular ol' RRMS in the future. (I'm your age, female, basically healthy)
I haven't heard of another death in 2008 - where did you hear that from? I hope you're feeling well, and if you ever do get diagnosed with RRMS, you'll be fine :)
I lost my vision in my right eye last Nov.I was told I had ms.I have got 95percent of it back now and I am on copaxone.I had a mri and it showed alot of lession.But except for my vision,I feel great.The doctor said it was called rrms.I just hope I picked the right treament .
While Tysabri has shown the best efficacy for most people, it may not work for you......BUT....consider that if your doctor is NOT TOUCH certified.....he may CHOOSE NOT to prescribe TY....because medical regulations may not permit him to.
TIME IS BRAIN & if your MS drug ISN'T working....YOU must choose to change it.....even if you have to change your doctor, too.
Please look into lyme disease. I was misdiagnosed with MS and so were many, many people. I am not trying to say t hat your diagnosis are inaccurate, but simply that it can't hurt to look into it.
No problem. However, since it seems you are responding so well to medications for MS, I would imagine your diagnosis is accurate. Still, it never hurts to check it out :) I hope you keep making great improvements!!
Hi Lauren! Just thought i'd tell you i think what you're doing is really great and its reeeaally helping me out :) I've got another appointment at the neuro to determine what is wrong but with the twitching/tremors, eye problems, pins and needles, memory problems, fatigue and anxiety i'm not optimistic lol :(
It's great though to see that its still possible to live like everyone else.. you look FANTASTIC!!
Thank you! I'm so glad this is helping you!! No matter what your neuro says, I promise you're going to be ok!! Thank you for your message and please keep in touch!
My friend was just diagnosed with MS recently. It's awesome that you're making these videos to help people learn more about what living with MS is like. I make videos of my health condition too. That's why I have this youtube account. It really helps. I get messages from people all the time telling me how much they appreciate my videos. Yours is amazing and thank you agian for helping me understand this more :)
Hi, I'm Carl from Quebec city, I have MS and will start the new Tisabri treatment soon (was on Rebif before) and I wanted to tell you that it's fun to see you smiling and be happy. I know it's not always like this but it's super fun. Thank you. (sorry for my english I'm a french guy)
fortincarlos 1 week ago
@fortincarlos Je sais francais un petit peu!! Thank you for writing to me! Merci beaucoup!! Bonne chance avec Tysabri!!
laurenvparrott 4 days ago
Lauren
You are a very ( much younger) great role model! I was just to Upmc yesterday and my dr told me he thought I should switch medications from copaxone to tysabri... My heart dropped! I had an MRI earlier in the summer and didn't even know how many lesions I had I was shocked when I saw them. So here I am looking for some reassurance to switch. I'm so glad to see how upbeat you are! Because i have bren on copaxone since the study and thought it was working ( i guess it's not working when
Betsy7760 1 month ago
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Have you looked into natural cures?
4470mike 2 months ago
hi, I am Scott,, I have CP, but many people think I have MS.. I just found out a person I know just found out he has MS. Its good to see you smiling in this video, You are Awesome,,
Duddie82 5 months ago
@Duddie82 Hi Scott! You are so sweet, thank you for your comment! I hope you and the person you know are doing well!!
laurenvparrott 5 months ago
@laurenvparrott Lauren, have you tried the hyperbaric oxygen chamber?
jewel791 2 months ago
Thank you.
edwardschlosser1 6 months ago
Hi Lauren, I was taking Rebif and I felt horrible. But my main question for you is, what type of MS do you have? I have relapsing remitting.
TheSlvanderhoef 8 months ago
@TheSlvanderhoef Hello! I've never been on Rebif so I'm sorry, I can't realte. Are you taking a different medication now? I also have relapsing remitting MS.
laurenvparrott 8 months ago
oh yea!! i forgot!! aint u a cutie
LuckJustBad 9 months ago
hey!!!!! i posted my first shot of copaxone
it sting then kinda burns a little but with in 5 min
its gone
copaxone
LuckJustBad 9 months ago
@LuckJustBad Yes, Copaxone was like that for me too. I with you the very best!!
laurenvparrott 9 months ago
That's good!! Be happy!! Dont ever stress it will relapse again!! I was just told I hand ms!! Or 2nd progressive something!!! I'm always stress!! No matter what happens it's my fault!! Always be happy!! I can't remember the last time I was happy!!
ninamyhua 9 months ago
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CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
Gregmills007 10 months ago
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High Saturated Fat diet -> young age (active thymus) -> exposure to herpesviridea or other neurovirus -> high permeability of BBB caused by poor, brittle structure from high saturated fat diet, low levels of vitamin D -> T cells in CNS -> sensitization of T Cells -> later onset of MS -> recovery -> anything that can cause a proper situation for episodes (stress, Epstein Barr, etc.) -> disability
seekirk 1 year ago
High Saturated Fat diet -> young age (active thymus) -> exposure to herpesviridea or other neurovirus -> high permeability of BBB caused by poor, brittle structure from high saturated fat diet, low levels of vitamin D -> T cells in CNS -> sensitization of T Cells -> later onset of MS -> recovery -> anything that can cause a proper situation for episodes (stress, Epstein Barr, etc.) -> disablitiy
seekirk 1 year ago
Hi Lauren,
Just to give you a progress report my wife has been back on TYSABRI for three infusions after a gap of four months through a move to Indiana from California. Prior to the infusions Sharain became very sick loosing balance body strength
and effected with depression. It is now two months since the first infusion and there is a little improvement with balance and a little with body strength being able to climb a staircase,
All the best, Wayne & Sharain.
1967wf 1 year ago
@1967wf Hi Wayne and Sharain! I'm so glad there is improvement! I hope it continues! I wish you both the best!!
laurenvparrott 1 year ago
Hi there.
I have done ccsvi surgery but unfortunately it failed.
npiltan 1 year ago
@npiltan I'm so sorry - are you on any medication?
laurenvparrott 1 year ago
ohk is u r comforatble in talking on phone please mail me... i can call u or skype if u have skype.... and god bless u !!! i will pray to god that u keep smiling like tht.....u have a beautiful beautiful smille.keep smiling always!!!!!! and please take care.....and keep it up!!!
god bless u
mudassir shakil
mudassir@hotmail.my
funk2hunk 1 year ago
laurenn u r beautiful! god bless u! ohk i m 20! my dads suffering from ms from last 17 years..hes on avonex form last 30 months.....he started amypre (dalfampridine) a month ago! thank fully he didnt have replased from last 30 monthz and since last 1 month hes walking and balnce is 5% better .n my doc said tysabri will b good to him...i m very confused and looking and reseaching..... thnx alot for ur video!!! i would love to talk with u on skype or phone...u can email me at mudassir@hotmail.my
funk2hunk 1 year ago
This has been flagged as spam show
call me if you need a good death bed fuck;)
ChocolateFacedMan 1 year ago
Hi there! Could you please put me in touch with your friend that is doing well on Tysabri? I'm on Copaxone now & not overly happy with it. :( Thanks!
equusential 1 year ago
@equusential Hello!! I've actually been on Tysabri for 3 years!! I'm donig great! If you have any questions please let me know!
laurenvparrott 1 year ago
My wife was taking the Tysabri treatments for one year, her Dr. has hoped to see improvements but there wasn't any. after 12 months it was decided that the expense of the Tysabri treatments didn't make sense to continue. Two weeks ago she had a nurse come to our home to give her a Steroid infusion and the next day she was able to walk around the house a little. : )
63Heber 1 year ago
@63Heber Oh my gosh that's amazing!!
laurenvparrott 1 year ago
Thanks Very much Lauren for replying Lauren that was most helpful.
Wayne x
1967wf 1 year ago
@1967wf I'm so glad Wayne! Write anytime!
laurenvparrott 1 year ago
My wife has been on Tysabri for 6 infusions she is gradually gaining strength but has reactions to hot and cold weather,does this improve?
1967wf 1 year ago
@1967wf I've had reactions with hot and cold weather regardless of what medication I'm taking. That is an MS symptom, not necessarily a side effect from Tysabri. But I would have her talk to her doctor just to be sure. I wish you both the best!
laurenvparrott 1 year ago
@1967wf: There is a naturopathic approach for MS. The problem with Tysabri is that no long term study was done, plus 10% of the subjects experience negative effects. Plus keep in mind that all this drugs does is reduce the amount of immune cells that cross the CNS, there are herbs that can do that. In addition remember that the study was a monotherapy - which creates a huge red flag.
4chango 1 year ago
This has been flagged as spam show
I was diagnoised with ms 2 years ago,
After many tests done for stealth pathogens like lyme,mycoplasma, i now know i dont really have ms i have lymes disease..
My lyme dr said to me that neally all of his clients he see's who were diagnoised with ms,just has lyme,mycoplasma ect, or just active forms of viruses like ebv or hhv6.. L FORM bacteria is another cause
I have been taking samento and some other stuff for the last year & im so much better
bamptonbred 1 year ago
I was diagnoised with ms 2 years ago,
After many tests done for stealth pathogens like lyme,mycoplasma, i now know i dont really have ms i have lymes disease..
My lyme dr said to me that neally all of his clients he see's who were diagnoised with ms,just has lyme,mycoplasma ect, or just active forms of viruses like ebv or hhv6.. L FORM bacteria is another cause
I have been taking samento and some other stuff for the last year & im so much better
bamptonbred 1 year ago
@bamptonbred I'm so glad you're feeling much better!
laurenvparrott 1 year ago
@laurenvparrott , Thanks lauren, have you ever been tested for lyme disease and other co infection? Igenex in america are the best for these tests.,but still not 100% reliable..Alot of false negatives..
Or you could try samento for several months and see if you feel better..
I had brain lesions on my mri, and lyme can cause this..
I booked myself a private mri, i bet my lesions are now gone..
Best wishes
bamptonbred 1 year ago
@bamptonbred: There is a naturopathic approach for lyme disease.
4chango 1 year ago
I was diagnoised with ms 2 years ago,
After many tests done for stealth pathogens like lyme,mycoplasma, i now know i dont really have ms i have lymes disease..
My lyme dr said to me that neally all of his clients he see's who were diagnoised with ms,just has lyme,mycoplasma ect, or just active forms of viruses like ebv or hhv6.. L FORM bacteria is another cause
I have been taking samento and some other stuff for the last year & im so much better..
bamptonbred 1 year ago
Ounce of prevention worth pound of cure. What's cause of MS? Aspartame. Mercury amalgams. I believe biggest cause is vaccinations. In fact Montel had adverse reaction 2 a vaccination- (went temp blind in one eye & spastic in one leg) 30 years ago & was 20 years before diagnosed MS. Dr. Ted Spence in book Vaccination Deception has Dr Mendelsohn & others 11 times that vaccinations cause MS. Myself- had adverse reaction 2 allergy shot years ago & now have MS. Thanks Drs & nurses. Hippocratic oath.
2ndSamuel710 1 year ago
I don't have ms but I heard that Glutathione (Immunical) + vitamin D is helpful, and if you combine them with ubiquitol + alpha lipoic acid the effects could be improved. I would also suggest reducing inflammation with lots of raw veggies, tumeric, tulsi, etc
To take immuno suppressants for this without uaddressing the underlying causes of imbalance doesn't make sense to me.
just mho
imnotabear 1 year ago
@imnotabear Hello - I've had MS for almost 10 years and I eat very healthy and take Vitamin D every day. The immunosuppressant drugs help to slow the progression of the disease. Thank you for your concern :)
laurenvparrott 1 year ago
This has been flagged as spam show
I was diagnoised with ms 2 years ago,
After many tests done for stealth pathogens like lyme,mycoplasma, i now know i dont really have ms i have lymes disease..
My lyme dr said to me that neally all of his clients he see's who were diagnoised with ms,just has lyme,mycoplasma ect, or just active forms of viruses like ebv or hhv6.. L FORM bacteria is another cause
I have been taking samento and some other stuff for the last year & im so much better
bamptonbred 1 year ago
I meant 29 infusions not 19! 1 and 2 are just too close to each other on my keyboard! just kidding!!
allaboutdetail 1 year ago
Thank you for writing! I'm so glad that Tysabri has worked so well for you! Haha that is so funny about your keyboard - the same thing happens to me! I'm at my 28th infusion and I feel great too!
laurenvparrott 1 year ago
Hi... Iam so glad that u r doing better! I also have been in Tysabri for about 19 months! that is about 19 infusions and about 12 years with MS! I also have very good feedbacks with tysabri! It is not a cure but it did work with me to slow down the progression and made me so much better!! I wish u well and ur video will help many! take care!...:)
allaboutdetail 1 year ago
Intensive aerobic exercise as soon as possible after your Tysabri infusion will help mobilize even more stem cells into your blood. While Tysabri helps loosen the stem cells it takes some hard pumping blood flow to help break them loose from the bone marrow. But check with your doctor first.
wendell3308 1 year ago
Interesting - thanks for the information!
laurenvparrott 1 year ago
Hai Lauren thank you for all your films i also have ms for 4 years now and i hope that zamboni is write keep up the good work,because i am scared to take tisabri,good luck from Laura sier from holland
laurasier 2 years ago
Hi Laura! Thank you for writing to me! I hope that Dr. Zamboni is right too! Tysabri has been wonderful for me (for over 2 years) but I can understand why you're scared. Please keep in touch!
laurenvparrott 2 years ago
This has been flagged as spam show
Hello Lauren,
I watched Irish bear, this is great stuff.
Please look at a site I'm involved with, ms taking action, this may explain me a bit. I have lived ms & understand quite a bit, but love hearing people like you comment so positively.
You are a great advocatcor.
Keep up your enthusiasm & positive work, we need more like you!!!!!!!!
Regards
Mark a Fisher (Australia)
MrMarkafisher 2 years ago
Thanks for sharing Lauren. Your attitude is certainly in the right place! Very inspirational to see you smile and be enthusiastic in the shadow of this infliction. I am a rebif guy myself and my last MRI showed 'no new lesions' after a year. My body feels the creeping effects but I'm hanging in there! Keep on smiling.. it's beautiful to see :)
worktosser 2 years ago
Thank you so much for your kind message!! I'm so glad your MRI shows no new lesions! I wish you the very best!!
laurenvparrott 2 years ago
Hi Lauren,
I was browsing youtube and stumbled on this video and i happy to see how far and how much you have improved in your recent videos and with the word's out on CCSVI i think we will soon put an end to MS. i m very hopefull, Alittle scared as i am going to take my second brake from TY because i am at 32 infusions so far, Anyway or mabe i 'll just start taking Remeron to help me get over the fear. i am sure you heard abt Remeron
good luck to you.
Bill
astronautsandwitch 2 years ago
Hi Bill! Thank you so much! I sure hope we can put an end to MS too! Good luck to you!!
laurenvparrott 2 years ago
hi how are you and your healthy speciaaly i hope all going fine stay positive also my husband passed and he will be starting work soon thanks foe you prays take care of you health.dont worry we will be visting american onece i move out my parents home god bless you always and be with you. geeta and mouli
drgovindarajulu 2 years ago
Hello! I'm doing really well and I'm so glad because it sounds like you both are as well! God Bless You!!
laurenvparrott 2 years ago
Lauren I need to talk with you like some sort of email my computer wiont do the email you gave out but I have myspace under the name Sav I have a close up picture of me the flash was on I think its real bright looking... well just mail me there or friend request me plese its important to me... thanks
Sav7158 2 years ago
Hey! I don't have a myspace account but you can send me a message right here on YouTube! Just click, "Send Message" and we can communicate through there!
laurenvparrott 2 years ago
Hey Lauren I wanted to talk to you more about MS but I'm not to handy about youtube but I have a myspace if you do you can send a friends request or something please... I'm in the same boat as you so please... Just need someone who understands what I go through too.. I was also on Copaxone and it didnt work for me either now I'll be going in 2-3 months to do Tysabri... :(
Sav7158 2 years ago
Hi Lauren, I work for Elan Pharmaceuticals, I am glad that youre making videos about Tysabri. We have been getting a lot of bad reputation on this, especially with the PML issue. Thank you for making this video and putting it on YouTube for other MS patients to see.
I watched you videos and I actually can put a face to patient that is being helped by our medication. I do hope the Tysabri is doing its job and is making your life better.
Jmonzy1 2 years ago
Hello! Thank you so much for writing to me! I think it's awesome that you work for Elan - I LOVE Tysabri and I'm just about to get my 24th infusion. 2 years and it's been amazing!! Thanks again for writing!
laurenvparrott 2 years ago
This comment has received too many negative votes show
diseased people, do we need them?
plevnei141 2 years ago
Please show some respect, It is probably a waste to time to replay to your message. But just for the record and to answer that vain question.. YES, because it shows you to be grateful and teaches you a lesson of strength, which looks like you really need one. Your comment clearly reflects how sad and pathetic you must be. Good luck with your perfect health. I hope it last you enough to realize no one has it guaranteed, and that we are all valuable just for whom we are.
DJmauro24 2 years ago
Wow! Thank you for your insightful and kind reply! Everyone should be like you!!
laurenvparrott 2 years ago
i think you've watched too much soap operas. Try to think about what you say more before you give out such a cliche answer
plevnei141 2 years ago
Haters, Mothefuckers like plevnei141 whitout values , do we need them ??
Luen04 2 years ago
oh, i have values, they're just different than yours
plevnei141 2 years ago
Thank you so much! I wish you the very best as well!
laurenvparrott 2 years ago
Wait, what was the optic eye shaking called that you mentioned? And the head shaking? What exactly do you experience with those symptoms?
mjdispensaries 2 years ago
The eye shaking was from optic neuritis, and I experienced tremors (shaking) all over my body but especially in my head and my hands. All of that has improved and I don't shake anymore.
laurenvparrott 2 years ago
This has been flagged as spam show
New miracle treatment for multiple sclerosis!
Search Youtube for HOW WEED WON THE WEST
watch?v=MzT1a1NKoKM
SacredCowProductions 2 years ago
Thank you for the video! I am newly diagnosed (April 09) and am encouraged by your video! Good luck!
SKTR1315 2 years ago
Hello! Thank you so much for writing! I wish you the best of luck!
laurenvparrott 2 years ago
God bless you I will pray for you dont give up keep the faith in God and you will see the diference
eri9390 2 years ago
God bless you too! Thank you very much for your messge and I will keep the faith!
laurenvparrott 2 years ago
thanks
eri9390 2 years ago
you are beauitfil brave and positive keep going
drgovindarajulu 2 years ago
Thank you so much! You are so sweet!!
laurenvparrott 2 years ago
yer a star kid....i was diagnosed on june 3rd....and it is fucking hard
mark9873 2 years ago
you is a star a fookin superstar.... diagnosed on june the 3rd this year... and knowing i've been carrying ms for god knows how long....it was a good day diagnosis... cos it explained a lot of shit thay happenened before......
mark9873 2 years ago
Oh you are so sweet! I'm so glad that the diagnosis explained a lot that's been going on...the same thing happened to me. I wish you the best!
laurenvparrott 2 years ago
Lauren HI!! i was DX with MS in 2003 age 35. I'm on Rebif so far so good. I also take Baclofen,Gabapentin,seriqual,zoloft lots od depression & i've gained to much weight. Do u take other meds? i would love to hear back from u take care & God bless.
Godsgrace12345 2 years ago
Hello! I'm so glad Rebif is working for you! Gaining weight is the worst!! I try to be really careful about what I eat. The only other medication I take is "Klonopin" to calm my tremors. Take care and God Bless!
laurenvparrott 2 years ago
I'm on alot of stuff for pain and, severe stiffness so bad i once was bedridden but, thanks to Baclofen i am out of bed.
Depression was huge with me but, better now.
Take care
Godsgrace12345 2 years ago
@Godsgrace12345: I placed a naturopathic approach on my channel in the comment section For MS. It will remain posted for only a few days.
4chango 1 year ago
Just wanted to add that immunoglobolin is not approved by the FDA as a treatment for MS but most importantly is that u totally forget about it and try to live ur life normally and hopefully your health will be much better.
This kind of disease is very rare here in the gulf.
HM414 2 years ago
Thanks for your comment.
laurenvparrott 2 years ago
ok , what if the small risk happen to my sister , I think I will tell her to keep using the antirebeef or something,thanks alot for keeping in touch , this is Fahad from Saudi Arabia
alareem9 2 years ago
Hi Fahad! That's totally fine - as long as she is taking medication that's the most important thing! I wish you both the best.
laurenvparrott 2 years ago
Thank u lauren for ur video, I was diagnosed with ms 5 years ago when i was 17 and was treated with interferon for a year however, it wasnt much of a use as the numbness, burning and walking didnt really improve and so ive been on immunoglobolin for almost a year now. Im much better now, however i thought of taking tysabri but my doctor didnt recommend it. i just hope in the coming years that there would be a cure for ms.
HM414 2 years ago
Hello! I'm so glad you're better! Some doctors are apprehensive to prescribe Tysabri...inderstandibly so...but things could always change. I'm hoping for a cure too!
laurenvparrott 2 years ago
the qustion is , is Tysabri save ?
my sister's doctor told her to use it
is it save ?
alareem9 2 years ago
Yes, Tysabri is safe. There is a risk of getting a brain infection but the chance is very small. I've been on it for 1 1/2 years and I feel great!
laurenvparrott 2 years ago
My dr told me they can treat that virus now! I told him if the rebif is not going too work for me i will switch to Tysabri.
FerrariDMC 2 years ago
sorry so straight to the point, my hands are garbage lol.
FerrariDMC 2 years ago
i have ms...and im 16. i was diagnosised at 15. i'm actually going through a relapse right now. good luck with everything!!!!!! :)
sillypiggyelbow 2 years ago
Wow, you're a really strong person. Good luck to you and keep in touch!
laurenvparrott 2 years ago
NAM MIOJO RENGUE KIÓ
barracafernandez 2 years ago
I'm sorry I don't know what that means.
laurenvparrott 2 years ago
My name is Anna! I'm 21
Thank you so much, Lauren, for making this video! I watched it in Feb., and it helped me so much!! In 10 days, I am switching to Tysabri too! I am so glad to know that you were about the same age as me when u went on Tysabri! Many people on Tysabri seem to be a lot older than us!! Maybe we r the brave young ones :P
I have a two week "washout" period between my copaxone injections and the start of Tysabri. Could you please tell me how long your "washout" period was?
WithCourage2008 2 years ago
Hi Anna! I'm so glad this video helped you! And yes, we are the brave young ones. My "washout" period was 2 weeks as well. Tysabri infusions are SO MUCH BETTER than Copaxone injections...I really hope your body responds to Tysabri as well as mine. Please keep me posted and let me know how everything goes!
laurenvparrott 2 years ago
Thank you for the information! I will definately let you know how it is going with Tysabri! I can't wait! Next week is my 1st injection! ttys!
WithCourage2008 2 years ago
Great!
laurenvparrott 2 years ago
I do have a few questions actually. I live in the US, and was wondering if it is something I can get here, and have you heard of anyone having problems with switching from Rebif to this stuff? Thanks for any info, you and your fam are in my prayers :) ... D
FerrariDMC 2 years ago
You shouldn't have any problems switching medications. I would talk to your neurologist and discuss all the options. I will keep you in my prayers as well!
laurenvparrott 2 years ago
I switched from Rebif too last month (last month was my first injection) and my second is coming up this week. Had to wait 2.5 weeks after my last injection before getting the infusion. Much better than Rebif. does cost about 3 hours a month.
AirstreamAdventure 2 years ago
I have thought about this video all day. I really want to try Tysabri because I don't think Rebif is really working out for me. But, I'm keeping my hopes up and look forward to talking to my Dr. about it. Thanks again....... D
FerrariDMC 2 years ago
That's great! I hope everything goes well with your doctor and you can try Tysabri! If you ever have any questions please let me know.
laurenvparrott 2 years ago
I was just diagnosed with MS about 6 months ago (at 31) and just wanted to tell you that I think its sweet that you took the time to post, comment and let us know how your doing with this med. I hope it continues to work for you... D.
FerrariDMC 2 years ago
Thank you so much! I wish you the very best!
laurenvparrott 2 years ago
Hi Lauren,
Thank you for sharing your story & experiences. I was Dx with RRMS in 2005, but probably had it long before that. I have been on copaxone, avonex and now am on rebif. I had a bad exacerbation a few weeks ago, 5 days on solumedrol, 7 on taper steroids. Thinking about Tysabri, but just not sure. I am a Sp. Ed. teacher, still working and hoping I don't have anymore attacks. Thank you for sharing info. and being brave enough to talk about your MS. Take care. Melissa Barlow. Oswego, NY
melissabg1965 2 years ago
Hi Melissa! Thank you for writing! Wow, I give you so much credit for being a Special Ed teacher. My Mom taught high school for 10 years and now she's a substitute for special ed classes - I can't believe the stories she tells me.
I hope you don't have any more attacks either and I hope the steroids helped you. I love Tysabri because it's working extremely well for me.
I wish you the very best! Please keep in touch.
Lauren :)
laurenvparrott 2 years ago
DIOS QUIERA !!!!
barracafernandez 2 years ago
Gracias que convengo!
laurenvparrott 2 years ago
Hi Lauren,
What an amazing Video. I am also on Tysabri and you are 100% right, it is an amazing drug.
It is so exciting to see that you are doing so well and others are having positive effects. It is exciting!
You will be in my prayers for continued health and happiness!
Lisa
aflaclisa98 2 years ago
Hi Lisa! Thank you so much! I'm so glad you're doing well on Tysabri - that's wonderful. You will be in my prayers as well!!
Lauren :)
laurenvparrott 2 years ago
hi lauran i have ms from 1995 got after 1 yrs betaferon hypodermic injection and 2 yrs later i get avonex use it till now may 2009 but i get prenison because it go bad after no progres then mine neuroloog say we can try new medicine tysabri
i will have in take at juli hope is googn better then with me
thnks lauren for video i saw from you
god bless you
paul weber
paultje56 2 years ago
Hi Paul! Oh I hope Tysabri works for you. Good luck and keep in touch!
laurenvparrott 2 years ago
Hi Lauren... you are such a beautiful girl... and not just cause of your smile, but you truely care for others I can tell.
I'm 25, and my almost 30 years old sweet heart husband is in the begining stages of MS. He has chosen to deal with this naturally, very strict with his diet and so on. Lots of natural suppliments... as he has done so much research.
It's so scary to see all the changes, ... but your enthusiasm helps so much!
hang in there!
joeygirlmb 2 years ago 2
Thank you so much! You are so sweet! I wish you and your husband the very best!
Lauren :)
laurenvparrott 2 years ago
Lauren, OMG! You are so incredibly inspiring & enlightening darling!
I'm in Durban, South Africa & sending you loads of love, LIGHT & healing from down here. Your family & especially God, must ALL be so very proud of you.
Don't ever lose your vibrant spirit & enthusiasm.
Love & abundant LIGHT,
@nnie :)
annie46664 2 years ago
Hello! Wow, thank you for writing from South Africa!! You are very kind and I really appreciate everything you said! Sending you love from America!
Lauren :)
laurenvparrott 2 years ago
Hi, Lauren :) I'm in the middle of my initial onset of MS (optic neuritis, ftw!) and I've watched every single one of your videos. You're such an inspiration, you have me starting to do videos on how MS can affect your looks and your self-esteem, and your self-esteem affects your looks (vicious cycle). And also about being 36 with an autistic daughter, and how MS mixes with that. But anyway, thank you so much for your videos, you've made this so much easier and, well, positive ^_^
fuzzybluelogic 2 years ago
Thank you so much for this comment! It is very touching, and I wish you and your daughter the very best! Stay positive and I'm sure everything is going to be fine!
laurenvparrott 2 years ago
hi i too hav this dought..can anybody tell about this...
pradeepvk33 2 years ago
To all moms: happy mother's day
Thanks Lauren
Mody
medad1 2 years ago
Mody, you're so sweet!
laurenvparrott 2 years ago
Not for me, but everyone is different.
laurenvparrott 2 years ago
i'm on copaxone right now i go up and down but i'm worried about steriods when the first diagnosed me they put me on steriods and it made me gain a lot of weight.....so i'm ify about that
erikahilton 2 years ago
I've only been on steroids once - I was worried about it at first, but I think everything is ok as long as you're not getting steroids every day. If you're worried I'd talk to your neurologist. I hope you're feeling well!
laurenvparrott 2 years ago
hey i just wanted to say thanks for the info, im starting tysabri in 2 weeks! so im so nervous...but take it easy and thank you again
lilstap12 2 years ago
Thank you for writing! I was nervous at first too, but I know you're going to do great! Let me know how your first infusion goes...Good luck!
laurenvparrott 2 years ago
I have been taking Betaseron for a long time but I'm afraid it is begininning to lose its's effectiveness. Tysabri maybe an option. Thank you for doing these videos. You are incredibily beautiful. Never let anyon tell you otherwise.
HutchDesigner 2 years ago
Thank you so much, you are very sweet! I would definitely talk to your neurologist about Tysabri if you're interested! I love it and many others are seeing great results!
laurenvparrott 2 years ago
thank you for the info. my wife goes on the consult for Tysabri tomorrow. Hopefully everything will go ok. You videos really help and I am rooting for you and I hope it works for my wife as well. If I have any questions I will let you know.
simv2000 2 years ago
Thank you so much! I really hope everything goes well for your wife. Please keep me posted!
laurenvparrott 2 years ago
Hi Lauren
My name is Preston and I was given a Dx on Christmas Eve last year. I am about to start treatments soon and I am wondering if you could send any info about ones you tried. Thank you for any help. I am looking at starting a clinical trial for an oral med, alemtuzumab (?)
PeteStryker 2 years ago
by the way your pushing ldn so vehemently are you sure your not being paid by a drugs company to promote ldn. i never comment on videos but i have watched lauren for over a year and a half and seen the benefits that tysabri has given her. i know everyone is entitled to their opinion but when its as moronic as yours maybe you should keep it to yourself you fucking jackass
fuckyougreaseball 2 years ago
Thank you for defending me - I was thinking it but you said it!
laurenvparrott 2 years ago
This laurenvparrott fool ges her Tysabri payed for by a big drug company.Dont' take her word for anything!.
sploggon 2 years ago
I want you to know that the drug company does NOT pay for my medication. I have insurance and I pay over $200/month for the co-pay. It's actually $213.66 every month. I would not speak about something with such conviction unless I had total faith in its effectivness. I started these videos before I started taking Tysabri. I just wanted you to have all the facts.
laurenvparrott 2 years ago
Your putting disabled peoples health and life in danger...Just think what damage drugs will do that suppress the immune system over years... Low dose naltrexone (LDN), is safe and only costs a buck a day.LDN works by letting the patients own immune system work to repair the damage caused by ms.
sploggon 2 years ago
If you listen to the beginning of my video, I say that someone asked me to talk about how I was before and after taking Tysabri. I'm not telling anyone what to do - I'm talking about my story. Everyone needs to do what they feel is best for them. We're all different and Tysabri is NOT for everyone.
laurenvparrott 2 years ago
I am not afraid..only concerned on how to support her when she has her next relapse. I care for her so very much my heart fills with love every single time I think about her. I am very concerned for her health and I want to handle my emotions properly when she does relapse. Any words of wisdom you may have for me it would be appreciated.
DocMinster 2 years ago
You are such a sweet person! I hope your girlfriend knows how lucky she is to have you! I'm sure she's an amazing person as well. The best advice I can give is to take it one day at a time. My first relapse was incredibly scary, but my boyfriend was very supportive and understanding and that's all he could do - I felt so fortunate just to have his support. I wouldn't worry about the future because we don't know what's going to happen to any of us! I hope this was helpful - write anytime!
laurenvparrott 2 years ago
Hi Lauren,
I have recently started a relationship with a friend of mine that I have known for 2+ years. I feel very lucky that we have decided to take our relationship to the next level. She is an incredible person and I believe we are falling in love. She was diagnosed with MS years before I met her. I am in the medical field but have never had any exposure to MS. She has not had a relapse since before I met her and she is currently on an experimental medication for her MS. (cont.)
DocMinster 2 years ago
Hi lauren, my name is Dana Sears I am 20 years old, and I live in Wisconsin. My mom has had MS for 21 years. It has been hard on both of us. Although your symptoms are different, they are they same. The doctors have her on about 15 medications, and I don't think that they are doing very well. We go to visi her MS doctor in March, she doesnt like to tell him anything, because she doesn't want him to know anything. I tell him everything that I know. Any suggestions on questions to ask him? Thanks
danamarie1988 2 years ago
Hi Dana! You are so sweet to be helping your Mom like this. Doctors really need to know everything so they can give the best medications possible, but it worries me that she's on about 15 medications? What are they for? Before I can say what questions to ask, I would need to know her symptoms. Feel free to send me a message anytime! I'll be out of town this weekend, but feel free to write!
laurenvparrott 2 years ago
Lauren, you have a tell-tale tremor in your voice. Keep well darling.
Alexknobsob 2 years ago
Yes, I was still getting over my relapse at this point. Thank God it's a lot better now!
laurenvparrott 2 years ago
Hello Lauren,
I just subscribed. I find your video about Tysabri very interesting. I am glad that I found you and I plan to watch more of your videos. I have been on Avonex since May of 1997 and I have not taken any of the other injection medications. I have just one question about Tysabri. Does it help with bladder function problems due to MS?
Take care,
Bill
tazscott14 2 years ago
Hi Bill! My bladder issues didn't get started until 7 years into my disease when I had my first relapse. I started Tysabri because of my relapse and I still have bladder issues. However, I know there are pills you can take to help with these problems. Perhaps you can talk to your neurologist about it?!
I hope you are well!
laurenvparrott 2 years ago
Hi Lauren,
I have tried both Detrol and Ditropan (not sure about the spelling) for bladder problems, but they did not make any difference for me. I have also heard from doctors that those medicines won't really work for me.
Thanks for writing,
Bill
tazscott14 2 years ago
Hello,
You are great. I just found out my boyfriend has MS and he's not the one that told me... I was snooping, but he doesnt take meds and I was wondering, shouldn't he be concerned that something could progress, he doesnt want to discuss it with me, so researching is my only hope. any info would be good =)
Take care!
Trish
foxxytrish09 3 years ago
Hi Trish! You are an amazing girlfriend. Not only are you understanding, but you're trying to help your boyfriend - he is such a lucky guy! I have noticed that sometimes, it's harder for men to except and talk about than women, but it's incredcibly important to get on medication because it will stop further progression of the disease. Please write to me anytume if you have questions!!
laurenvparrott 3 years ago
I know someone who 95% that they've found a cure for MS. ^_^
sillysia63377 3 years ago
Really? Who?
laurenvparrott 3 years ago
I kinda can't say. :x I probably shouldn't have even said that.
sillysia63377 3 years ago
So I arrive on YouTube, and now the software offers me this video among today's selections!
And I see why, 10000 views and counting - not all of them MSers I am sure but you will have helped many think of options and also in terms of attitude.
And, compared to now, its so obvious, back then you were quivering like jelly on screen.
OK, just saying hello from the cold northeast....
Steve
7mumfred7 3 years ago
Hey Steve! Oh my gosh! I can't believe it! Yeah, I don't watch the older videos because it's hard to see how bad I was - but it's also encouraging to know that I've improved.
Thanks for writing - I'll talk to you soon!
laurenvparrott 3 years ago
I'm pretty sure there was another Tysabri-related death in August 08. Thanks for putting all this out there for the world to see. I recently had a bout of marburg MS, but I haven't had to do any disease-modifying therapy, but it's not out of the question that I would end up with regular ol' RRMS in the future. (I'm your age, female, basically healthy)
saraeanderson 3 years ago
I haven't heard of another death in 2008 - where did you hear that from? I hope you're feeling well, and if you ever do get diagnosed with RRMS, you'll be fine :)
laurenvparrott 3 years ago
I lost my vision in my right eye last Nov.I was told I had ms.I have got 95percent of it back now and I am on copaxone.I had a mri and it showed alot of lession.But except for my vision,I feel great.The doctor said it was called rrms.I just hope I picked the right treament .
michellemoodie47 3 years ago
Everybody is different, because their genes are.
Here's hoping that Copaxone works for you.
While Tysabri has shown the best efficacy for most people, it may not work for you......BUT....consider that if your doctor is NOT TOUCH certified.....he may CHOOSE NOT to prescribe TY....because medical regulations may not permit him to.
TIME IS BRAIN & if your MS drug ISN'T working....YOU must choose to change it.....even if you have to change your doctor, too.
wendell3308 2 years ago
Please look into lyme disease. I was misdiagnosed with MS and so were many, many people. I am not trying to say t hat your diagnosis are inaccurate, but simply that it can't hurt to look into it.
sarakeeton 3 years ago
Thank you - no one has ever told me that. I will definitely look into it!
laurenvparrott 3 years ago
No problem. However, since it seems you are responding so well to medications for MS, I would imagine your diagnosis is accurate. Still, it never hurts to check it out :) I hope you keep making great improvements!!
sarakeeton 3 years ago
hi Lauren hope you're feeling well
sarakeeton 3 years ago
Thank you, I'm feeling great! How are you?
laurenvparrott 3 years ago
Thank You for sharing this dreaded M.S.? I would be the opposite of your position of medical experience by learning to help others?
Hospitals are sad.
sans15 3 years ago
Thank YOU for writing. Hospitals can definitely be sad but I love the doctors and nurses that help me! They sure make it easier!
laurenvparrott 3 years ago
Hi Lauren! Just thought i'd tell you i think what you're doing is really great and its reeeaally helping me out :) I've got another appointment at the neuro to determine what is wrong but with the twitching/tremors, eye problems, pins and needles, memory problems, fatigue and anxiety i'm not optimistic lol :(
It's great though to see that its still possible to live like everyone else.. you look FANTASTIC!!
marcwilliamUK 3 years ago
Thank you! I'm so glad this is helping you!! No matter what your neuro says, I promise you're going to be ok!! Thank you for your message and please keep in touch!
laurenvparrott 3 years ago
My friend was just diagnosed with MS recently. It's awesome that you're making these videos to help people learn more about what living with MS is like. I make videos of my health condition too. That's why I have this youtube account. It really helps. I get messages from people all the time telling me how much they appreciate my videos. Yours is amazing and thank you agian for helping me understand this more :)
gurglez 3 years ago