Coalition for Pulmonary Fibrosis 2009 PSA

[HENRYROCKS911]

PIRFENIDONE WILL BE APPROVE IN GERMANY IN SEPT 2011 AND IN 4 OTHER COUNTRYS IN EUROPE THIS THE FIRST DRUG FOR PULMONARY FIBROSIS IN JAPAN IS HAS BEEN ON THE MARKET SINCE 2010 THIS DRUG IS STILL IN CLINICAL TRIALS HERE IN THE US ,BUT MY MOTHER IS SICK IM GIVING HER ALOE VERA IS ANTI CANCER NAC TO CLEAR THE LUNGS BUT WE ARE GOING OVER SEAS TO GET IT . GOD BLESS

[louloulove787]

Hi there, I was diagnosed in 2007, age 27 after 7 years of misdiagnosis. I was very lucky to receive my transplant a year later. As I was so poorly pre transplant the new lung now only has 22% function and I have developed heart failure and PTLD(Post Transplant Lymphoproliferative Disease). I'm still here and I am very grateful to my donot for that! With more research into PF I am sure that people like myself would have been diagnosed earlier and have a longer and more successful life.

[mhshotti3]

My dad was diagnosed with PF in Sept. 07 and passed 6 moa later. Although 81, he was still full of life when this debilitating disease took hold. He most likely had PF for quite a long time before being diagnosed. If you have warning signs - shortness of breath after usual activity, constant difficulty w/ throat clearing, seemingly allergic cough, recurrent bronchitis - get x-rayed. My dad was active, walked a mi. or > daily, was physically strong. PF lurks, robbing precious time. Thanks.

[thinkorbdumb]

I was just dianosed with PF at 35 and I hate my life like this. I have no family I have to get in a support group. Even then let me tell ya you suffer bad with this.

[thinkorbdumb]

Thank you for posting. I just was dianosed at 35 years old I have had it for 4 years and have been through hell. I dont have and family so I have to find a support group. I hate my life like this

[thinkorbdumb]

I was just going to make myself a public service announcment because I felt and still do feel so alone I was dianosed at only 35. I hate life like this. I have no parnets its tuff on my own.

Thanks

[AtheistInspector]

Thank you for making a video for making people aware of this disease.

[Aoteabird]

there is dirty produckt that causes lung fibrosis its called bactur a btk insecticide

[nascr2]

Great video for awareness. I also posted it on my facebook page. My dad was 67 when he lost the battle. Getting the word out is key to research. lets all spread this around!

[linsaficianado]

Has anyone seen the posting on the supplement Immunocal and its success with the PF patient that was well-documented by Canadian doctors?

Dr. Larry Lands was head of pediatric-pulmonary dept. at Mcgill and was using it to improve lung-function in Cystic Fibrosis also.

[LYAL650]

Just had a x-ray that showed P/F in lungs,

waiting for my Pulmonary Dr. to return form vacation to formulate a treatment. Ive

had sarcoidosis since 99. Thanks for posting info.

[Godanddi]

Thanks for the video to help make people more aware of this disease. I was diagnosed some years ago. I too am a fighter and also a person that belive in God and that He is still working miracles. Those of you out there with this never give up and keep the Faith

[roalafa]

My mother was 60 when she died. I also have had other aunts and uncles (4 others) who have had this disease and died from it or other complications. For my family it may be genetic. Please pray that they find a cure before we lose anyone else.  My mother only lived 3 years from her diagnosis but we believe she had the disease for at least 3-4 yrs but was misdiagnosed. Doctor said she has allergies because of her cronic cough. If you have a cough you can't get rid of get an x-ray!

[browneyeskad]

I posted that comment yesterday - my aunt died today. I'm kinda numb. She held on for about 7 years (lung transplant - failed) and the longer she lived, the more hope I had for my mom living longer. Now I have to face the fact that - mom is gonna die (more likey sooner than later) and I can't do a thing to stop it or predict when.

Sorry to ramble.

RIP Gayle Fisher

[Jennifermikelle]

Yes, thanks for bringing this PSA to our attention. Posting on Facebook. I lost my dad in 2005; he was only 66.

[amy11169]

My mom died of this disease in 2002 when she was only 62. Thank you for bringing more attention to pulmonary fibrosis.

[Pinkyplus2]

Thank you for making a video to make more people aware of this disease. My boyfriend was diagnosed 3 years ago but he is a fighter and I know in my heart that a cure will be found so no more people have to die.

Thanks again!

[browneyeskad]

My mom and my aunt both have this disease. It's painful to watch them suffer. More painful knowing, at any time on any given day, they can die. I hope and pray for a cure soon.

Thank you for this video.