Thank you for your videos, I have very similar conditions to you POTS, EDS, Chiari 1 and I suffer from chronic migraine. I had Chairi decompression surgery 2 in 2009. I also twitch occasionally since being on Midodrine for my POTS I have been a lot better. I also have restless legs, probably more like a restless body and never stay still. Its really nice to know other people out there have the same conditions as me.
well I've never tried using a bar of soap, lol! ....I don't think I technically have restless leg syndrome... it's more like restless body syndrome. my sleep doc told me that it's because I never get into the deep levels of sleep (you know, that period of sleep when your muscles finally fully relax) even when my sleep apnea is treated because my Heart rate spikes really high during sleep and wakes my brian up (I guess it's from the pots) ..he suggested taking a beta blocker right before bed
@lostinperception thanks. I already take a beta blocker, but I will try taking it at night, because right now I take it in the morning. Thanks bunches I really appreciate it!!!!
Thank you for your videos, I have very similar conditions to you POTS, EDS, Chiari 1 and I suffer from chronic migraine. I had Chairi decompression surgery 2 in 2009. I also twitch occasionally since being on Midodrine for my POTS I have been a lot better. I also have restless legs, probably more like a restless body and never stay still. Its really nice to know other people out there have the same conditions as me.
natalie1088 7 months ago
well I've never tried using a bar of soap, lol! ....I don't think I technically have restless leg syndrome... it's more like restless body syndrome. my sleep doc told me that it's because I never get into the deep levels of sleep (you know, that period of sleep when your muscles finally fully relax) even when my sleep apnea is treated because my Heart rate spikes really high during sleep and wakes my brian up (I guess it's from the pots) ..he suggested taking a beta blocker right before bed
lostinperception 1 year ago
@lostinperception thanks. I already take a beta blocker, but I will try taking it at night, because right now I take it in the morning. Thanks bunches I really appreciate it!!!!
hartjesr 1 year ago