In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
She was a beautiful lady and she produced a handsom intelligent son. Does she qualify to have someone come and cook a balnce diet for her. As a person who have studied neurons and made significant contributions to the National Institue of Health, I can tell you that I am still impress with the way she responded to the questions that she was asked. She answered them all inteligently through the limitations of her physical condition.
Thank you for this video. It is invaluble for researcher that want to make a contribution to finding a cure for this disease, however, are limited in seeing the actual effects on patients. I would suggest, however, that you not be afraid by running away, and view every moment with her as an opportunity to learn and accumulate knowledge that will help yourself and others.
Remember diet , exercise, and taking control will play a vital role in controlling this disease.
this guy arri shirt and the fact that he can't pronounce huntington properly makes me question the genuineness of his testimony, I think it's just some creative editing of an huntington's disease patient stock footage mix with a crew member fake testimony and a lot sentimentalism to fool unaware viewers, the fact that he ask for money up front makes me very uneasy, beware peeps, it's easy to give in to that kind of manipulation...
My neice was diagnosed with Juvenile Huntingtons a couple of years ago..... shes 17 now...and a very brave girl...her video is on my link xx Love to you all
First, thank God for everything. My heart is with you and your family in such suffering is something that really breaks the heart. But hope remains in God.
That he will compensate you for all of this in paradise. .... Mohammed from Saudi Arabia
This is so hard for me to watch -- we were shown it in biology class last year. I work in a hospital for Huntington's and other diseases like it, and the reactions of family members are almost worse than the patients themselves.
I can't imagine what it must of been like for you. You are a very strong person to be able just to tell your side of things. God bless you and i hope some day real soon they find a cure.
my mom has this disease.. I have been tested and thankfully, I am okay along with my brother.. sadly, my oldest brother tested positive.. he has three kids of his own as do I.. hope for a cure..
I just wanted to let you know I greatly admire your strength. I saw the CBS special and was touched by your video. I will soon be a physician and will view people with your mother's disease with a greater understanding. Thank you for doing this. God bless.
aw man... i know what you mean. My mom has it and it's hard cuz they just arent the same person that you used to be. Ur silence said more than ur words did to me. its kinda funny that u use the analogy of a dance.
i too had to take care of my mother with huntington;s disease a lot of my life. my dad worked 3rd shift at gm wich left me and my brother home alone to take care of her. it takes a lot of strength and bravery to grow up just knowing its in the back of your mind. is this gona be me by the time im 25
thank you for sharing... your mother is still beautiful, especially if you remember her how she was. be strong. you are an amazing person for supporting her and loving her through this disease. be well.
I have lost my father, sister & brother to HD. My 24 yr old neice has juvenile HD. This is a very sad disease to watch and live threw. just the thought of what they went threw..What I went threw. what my family has suffereed threw. all i can say is god bless everyone with this disease, who suffer from it or from caring for someone with it. It is a very difficult disease to live with. very sad, very painful. my heart just aches for anyone who has to live with huntingtons.
Your Mother is beautiful! Thank you so much for your story. I read these Stories to learn more about HD. I was so touched that I had to join You Tube so I could comment. PLEASE keep posting.I will pray every day for a cure and start supporting that cause. God bless you!
I cared for a woman with Huntingdons chorea and I was so moved by the experience. Nobody can deserve such a fate. God bless you and all strength to you to cope.
Good luck Chris ..our family has been affected by the disease from my daughter in law...only those of us who are affected and hopefully not inflicted with this horrible disease can understand what we are going thru..
According to my non-english nationality i have right to make mistakes, coz in my language i wouldnt have any chance to be understood by people like you, who as i think know not more than 2 foreign languages.
Like I said, you cocky peice of shit. Besides, our univerisities in North America are much better than those of the Middle East, especially in terms of genetics.
Likewise. Action over prayer - we can all do our part to raise awareness of the disease and help push funds and research efforts etc. in the direction of curing this. Every little bit helps. A cure could come from anywhere, let's not argue about middle east vs. not, time/money is wasted on conflict that could cure diseases and destroys economic activity which funds cures.
Thanks for sharing your very difficult journey. I am a nursing student studying this disease and came here to get more realistic info then what is in my textbook. Thanks for sharing and God bless you!
I know a young teenager with Juvenile Huntington's, and, even without the close family connection, I understand what you mean by just not being able to watch it and handle it. The most beautiful child, and one of the cruelest diseases imaginable.
My mother-in-law has HD and my wife is setting the stage for her to move in with us. I figured I better learn about the disease. It was a real eye opener.
I thought I would post a link to my research for anyone that wants to read more about it. It's free, or course.
it is very true. the more people know about this, hopefully the sooner it will come to an end. i am 18 years old and my mother is currently suffering from HD. my uncle and my nana both suffered and died from the disease. thank you for posting this and letting people like me as well as others know that we are not alone in fighting this. thank you so much.
Chris - I lost my grandmother, aunt, and mom to HD. I have a 3rd aunt suffering. My oldest brother and 2 cousins have tested positive. I've tested negative but am passionate about this, and will be forever a caretaker. I can't run anymore. Thank you for doing this. The world needs to know the horrors of this monster disease.
Hi , I have a brother and sister with HD and two nieces who have tested positive. I am trying to get on Oprah to raise awareness and $ for research. Can you email too? We have to get the word out. I know we can find a cure with $ for research.
Chris I have huntingtond diease I too took care of my family in my 20-30 who all it. Now there is no one to take care of me. Your video helped me explain what its like to have to go through it!!!!sherry CAlifornia
Hello bud My Father also had this DAMN Disease!!! Yer not alone. I lived it for ten years .....So far Im Doing good And also too scared to get tested...Best wishes Friend
Please email Oprah. I am trying to get on her show to raise awareness and $. We need help from all of you. I know a cure can be found ,we just need $.
I wonder how Chris is making out these days.I am a husband/caregiver of 27 yr old wife w/Huntington's.She,unfortunately inherited the gene from her Dad,which means she is mid-stages already and quite disabled,i.e. falls,choking,chorea,speech.Her older bro died at age 30 in 2002, and her sister at 28 this past October.Thanks for posting this whoever you are....
um.. my mum has this... im 18...
katysullivan1993 2 days ago
This has been flagged as spam show
In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
swhitt21 1 year ago
She was a beautiful lady and she produced a handsom intelligent son. Does she qualify to have someone come and cook a balnce diet for her. As a person who have studied neurons and made significant contributions to the National Institue of Health, I can tell you that I am still impress with the way she responded to the questions that she was asked. She answered them all inteligently through the limitations of her physical condition.
Good she is active, it helps nourish the brain.
alz123alz 1 year ago
Thank you for this video. It is invaluble for researcher that want to make a contribution to finding a cure for this disease, however, are limited in seeing the actual effects on patients. I would suggest, however, that you not be afraid by running away, and view every moment with her as an opportunity to learn and accumulate knowledge that will help yourself and others.
Remember diet , exercise, and taking control will play a vital role in controlling this disease.
alz123alz 1 year ago
this guy arri shirt and the fact that he can't pronounce huntington properly makes me question the genuineness of his testimony, I think it's just some creative editing of an huntington's disease patient stock footage mix with a crew member fake testimony and a lot sentimentalism to fool unaware viewers, the fact that he ask for money up front makes me very uneasy, beware peeps, it's easy to give in to that kind of manipulation...
quaxk 1 year ago
My neice was diagnosed with Juvenile Huntingtons a couple of years ago..... shes 17 now...and a very brave girl...her video is on my link xx Love to you all
TwittyWhit07 1 year ago
First, thank God for everything. My heart is with you and your family in such suffering is something that really breaks the heart. But hope remains in God.
That he will compensate you for all of this in paradise. .... Mohammed from Saudi Arabia
talak56 1 year ago
God be with all huntington's patients. I really hope a cure will be discovered soon
kheffah 1 year ago
This is so hard for me to watch -- we were shown it in biology class last year. I work in a hospital for Huntington's and other diseases like it, and the reactions of family members are almost worse than the patients themselves.
On another note, what is the song called?
Blackhorse83 1 year ago
Your mom looks like a model at 4:40
I can't imagine what it must of been like for you. You are a very strong person to be able just to tell your side of things. God bless you and i hope some day real soon they find a cure.
keenandwhat009 2 years ago
my mom has this disease.. I have been tested and thankfully, I am okay along with my brother.. sadly, my oldest brother tested positive.. he has three kids of his own as do I.. hope for a cure..
XENTELBOY 2 years ago 3
Chris,
I just wanted to let you know I greatly admire your strength. I saw the CBS special and was touched by your video. I will soon be a physician and will view people with your mother's disease with a greater understanding. Thank you for doing this. God bless.
11BlueCopper 2 years ago 10
Hang in there Chris.
I Know how tough it is.
Our Prayers are with you to have the Courage you need.
Mike Anthony
madrywallmike10 2 years ago
aw man... i know what you mean. My mom has it and it's hard cuz they just arent the same person that you used to be. Ur silence said more than ur words did to me. its kinda funny that u use the analogy of a dance.
TheAshRox 2 years ago
Thanks for showing this to us Chris. Stay strong. Id do my best to educate people about this disease.
trampleking83 2 years ago
Very powerful and moving stay strong and God Bless
sabraelluver 2 years ago
This is extremely difficult to watch, and I'm on youtube... I can't even fathom how difficult it is to see it in real life. You are very strong.
Crazee108 3 years ago 7
i'm so scared i have this disease... my dad has it and he's pretty sure i do too. god please no.
drebob5 3 years ago
Why don't you get tested? I think it's better than waiting for the symptoms.
krzymorek 2 years ago
i too had to take care of my mother with huntington;s disease a lot of my life. my dad worked 3rd shift at gm wich left me and my brother home alone to take care of her. it takes a lot of strength and bravery to grow up just knowing its in the back of your mind. is this gona be me by the time im 25
chaosad999 3 years ago
thank you for sharing... your mother is still beautiful, especially if you remember her how she was. be strong. you are an amazing person for supporting her and loving her through this disease. be well.
i8bean 3 years ago 2
I have lost my father, sister & brother to HD. My 24 yr old neice has juvenile HD. This is a very sad disease to watch and live threw. just the thought of what they went threw..What I went threw. what my family has suffereed threw. all i can say is god bless everyone with this disease, who suffer from it or from caring for someone with it. It is a very difficult disease to live with. very sad, very painful. my heart just aches for anyone who has to live with huntingtons.
mdw315 3 years ago
Your Mother is beautiful! Thank you so much for your story. I read these Stories to learn more about HD. I was so touched that I had to join You Tube so I could comment. PLEASE keep posting.I will pray every day for a cure and start supporting that cause. God bless you!
pray4HDcure 4 years ago
I cared for a woman with Huntingdons chorea and I was so moved by the experience. Nobody can deserve such a fate. God bless you and all strength to you to cope.
humanityfirstnow 4 years ago
Peace to all the members of the HD family.
From a brother
Blueslide 4 years ago
Good luck Chris ..our family has been affected by the disease from my daughter in law...only those of us who are affected and hopefully not inflicted with this horrible disease can understand what we are going thru..
tonisurman 4 years ago
I pray everyday for a cure...my family is affected by HD...and alot of my family memebers have it, or at risk...iam at risk!
Cure HD!!
tammy12345678910 4 years ago
Dont prey but pay taxes and then we will have money to work on that. I am molecular biology student and all genetic diseases will extinct soon.
konfolut 4 years ago
This comment has received too many negative votes show
You cocky peice of shit. Key word is student. How many muntant genes does it take to make four grammitcal errors in two sentances?
250M 4 years ago
According to my non-english nationality i have right to make mistakes, coz in my language i wouldnt have any chance to be understood by people like you, who as i think know not more than 2 foreign languages.
konfolut 4 years ago
This has been flagged as spam show
Like I said, you cocky peice of shit. Besides, our univerisities in North America are much better than those of the Middle East, especially in terms of genetics.
250M 4 years ago
This has been flagged as spam show
Oh wait Konfolut is NOT Middle Eastern?! lol well who the fuck would know.
250M 4 years ago
Likewise. Action over prayer - we can all do our part to raise awareness of the disease and help push funds and research efforts etc. in the direction of curing this. Every little bit helps. A cure could come from anywhere, let's not argue about middle east vs. not, time/money is wasted on conflict that could cure diseases and destroys economic activity which funds cures.
woodworm76 4 years ago 3
Praying is one thing - acting is another. Do both and hopefully we can find a cure.
Crazee108 3 years ago
i'm so sorry, i feel overwhelmed very touching.god bless
younaughtydevil 4 years ago
Thanks for sharing your very difficult journey. I am a nursing student studying this disease and came here to get more realistic info then what is in my textbook. Thanks for sharing and God bless you!
sassyjoey 4 years ago
Bless the families who battle this horrible disease.
batmancubfan 4 years ago
Can this be forwarded to Oprah (along with all the comments) I am trying to get on her show to raise awareness and $ for HD research. Please try.
momskippers 4 years ago
I know a young teenager with Juvenile Huntington's, and, even without the close family connection, I understand what you mean by just not being able to watch it and handle it. The most beautiful child, and one of the cruelest diseases imaginable.
elje84 4 years ago
My mother-in-law has HD and my wife is setting the stage for her to move in with us. I figured I better learn about the disease. It was a real eye opener.
I thought I would post a link to my research for anyone that wants to read more about it. It's free, or course.
helium dot com/tm/554418/huntingtons-disease-known-huntington
REMOVE THE WORD "DOT" AND REPLACE WITH A PERIOD TO GET TO THE WEBSITE
MultiModality 4 years ago
it is very true. the more people know about this, hopefully the sooner it will come to an end. i am 18 years old and my mother is currently suffering from HD. my uncle and my nana both suffered and died from the disease. thank you for posting this and letting people like me as well as others know that we are not alone in fighting this. thank you so much.
sceps32 4 years ago
Chris - I lost my grandmother, aunt, and mom to HD. I have a 3rd aunt suffering. My oldest brother and 2 cousins have tested positive. I've tested negative but am passionate about this, and will be forever a caretaker. I can't run anymore. Thank you for doing this. The world needs to know the horrors of this monster disease.
circekitty 4 years ago
Hi , I have a brother and sister with HD and two nieces who have tested positive. I am trying to get on Oprah to raise awareness and $ for research. Can you email too? We have to get the word out. I know we can find a cure with $ for research.
momskippers 4 years ago
Chris I have huntingtond diease I too took care of my family in my 20-30 who all it. Now there is no one to take care of me. Your video helped me explain what its like to have to go through it!!!!sherry CAlifornia
highindesert 4 years ago
Be strong Chris my prayers are with you!
maaafe 4 years ago
this is sad
KIRA310 4 years ago
Hello bud My Father also had this DAMN Disease!!! Yer not alone. I lived it for ten years .....So far Im Doing good And also too scared to get tested...Best wishes Friend
DRUMS1234 4 years ago
Please email Oprah. I am trying to get on her show to raise awareness and $. We need help from all of you. I know a cure can be found ,we just need $.
momskippers 4 years ago
hey jo3r3, dry your eyes, keep struming on your bagpipes, sorry guitar
braveharty 4 years ago
I wish the entire documentary was posted for all to see. The more people know about this, the sooner it will end.
jo3r33d333 4 years ago
i am a caregiver to my wife with HD as well- its never fun times- she is not near as bad off as Chris' mom- it can rip you apart
Undrtkr686 4 years ago
I wonder how Chris is making out these days.I am a husband/caregiver of 27 yr old wife w/Huntington's.She,unfortunately inherited the gene from her Dad,which means she is mid-stages already and quite disabled,i.e. falls,choking,chorea,speech.Her older bro died at age 30 in 2002, and her sister at 28 this past October.Thanks for posting this whoever you are....
joshuaace 5 years ago
So sad!!!
Thanks Chris!!
willemien,..netherlands
willemiene 5 years ago