Hi there! I was just wondering where you got that EDS bracelet from?? I'd love to wear one myself, as I have the type 3 version and no one in my area here in Norway has EDS! Awareness is the key!
Hi, I have EDS. £ out of 9 in my family have it. I like what you are doing with this video. I have experience so much discomfort and pain with it plus many miscarriages. However I have 4 lovely kids and grateful for that.
It is a difficult condition to explain even to GP's. At least in Ireland it is. Keep up what your doing
ive been told i may have EDS. im 13, and super scared. anyway, ive seen videos from people like you, who seem to be pretty okay, and then videos from people who cant stand up on their own without help, and who cant walk anymore
Hello yes ihave EDS as well i like what you are doing keep up the good work can you please tell us all where you gotyour band and shirt from i have type 2&3 so i have been told i have a mother and a twin sister who suffer from it as well if you could help find out some info on more or less what are te dangers of pregnancy for all who have eds that mite help outas well i now that there is 50/50% chance with most things to do with EDS and haveing a child but i think moreneeds to be know about it
You are right alot of people dont know nothing about EDS i didnt even know about it until I had my son he is now 4 yrs old , I love ur shirt where did u get it, im hoping i can get one myself !!
nice work. i am a 22 yo from new zealand and waiting on results sent away 6 months ago to confirm i have eds type 4 which has hit my family hard over the years but only recognised now after my bad run of health over the past year and a half
Hello there my name is megan and i have eds type 3&4 i have 2 myspace pages that i use for eds awaerness and i have even had my own wrist bands made for it ... i hope we can get to be friends
Hi there! I was just wondering where you got that EDS bracelet from?? I'd love to wear one myself, as I have the type 3 version and no one in my area here in Norway has EDS! Awareness is the key!
Charoke 9 months ago
THANK YOU SO MUICH!
Jazzyteach65 1 year ago
I meant 3 out of 9 members of my family inherited this syndrome.
beanmadrarua 1 year ago
Hi, I have EDS. £ out of 9 in my family have it. I like what you are doing with this video. I have experience so much discomfort and pain with it plus many miscarriages. However I have 4 lovely kids and grateful for that.
It is a difficult condition to explain even to GP's. At least in Ireland it is. Keep up what your doing
beanmadrarua 1 year ago
Nice. Where do I get the shirts/bracelets??
pamhoag 1 year ago
spam
roozie11 1 year ago
This makes me happy, I remember when there wasn't a single video clip about EDS on you-tube, this is exactly what we need.
Glitchfacade 1 year ago
ive been told i may have EDS. im 13, and super scared. anyway, ive seen videos from people like you, who seem to be pretty okay, and then videos from people who cant stand up on their own without help, and who cant walk anymore
eileens5 2 years ago
Hello yes ihave EDS as well i like what you are doing keep up the good work can you please tell us all where you gotyour band and shirt from i have type 2&3 so i have been told i have a mother and a twin sister who suffer from it as well if you could help find out some info on more or less what are te dangers of pregnancy for all who have eds that mite help outas well i now that there is 50/50% chance with most things to do with EDS and haveing a child but i think moreneeds to be know about it
aunexsiss 2 years ago
You are right alot of people dont know nothing about EDS i didnt even know about it until I had my son he is now 4 yrs old , I love ur shirt where did u get it, im hoping i can get one myself !!
marthamoreno6628 2 years ago
great job! keep up the good work! xo dani
vegandanielle 2 years ago
i have eds thanks for the vid it will help people undersand it more
flyinggoatman 2 years ago
Thanks for the video... I also have EDS type 3 and from stumbling across your vid I fell in love with the song I don't do sadness/Blue Rain.
Good Luck on raising awareness and I will be looking forward to more videos from you!
77095070 2 years ago
Im from Spain, and i have EDS (III). Nice work
roxedam 3 years ago
where did you get the T-shirt????
wernhead60 3 years ago
nice work. i am a 22 yo from new zealand and waiting on results sent away 6 months ago to confirm i have eds type 4 which has hit my family hard over the years but only recognised now after my bad run of health over the past year and a half
kickass021 3 years ago
Hello there my name is megan and i have eds type 3&4 i have 2 myspace pages that i use for eds awaerness and i have even had my own wrist bands made for it ... i hope we can get to be friends
EDSGIRL021 3 years ago
I have EDS, where'd u get the bracelet?
audrey999 3 years ago
*hi-5!*
ufo8mykat 3 years ago
Have you met any doctors with EDS?
m0b1liz3 3 years ago
ps:
were did you get the EDS bracelet and t-shirt.
very cool !
remedy5678 3 years ago
GREAT video!!!
can't wait for the next...
remedy5678 3 years ago