Limb-Girdle Muscular Dystrophy 2A: Stair Climbing Part 2

[GDragonSword53128]

I just texted him and he has the more offset and common one known as cmt charcot marie tooth disease not labeled as a MD straight up but is on the MDA website and so forth so im guessing its an MD case, but its unbelievable to see how common this is in the world.....36 in 100k...why haven't they started looking into this more it looks like it causes many hardships on your life and its not uncommon.

[GDragonSword53128]

im sorry not his bones.....geez, I meant his tissue

[GDragonSword53128]

I remember when my cousin got surgery for MD....i never asked him what kind but all I know is that the bones in his knees are deteriorating and before the surgery he used to walk only on his tippy toes it was really funky. After then surgery he had both knees in casts so he walked around like a baby....not sure how long though he will be able to walk he will though eventually be in a wheel chair these videos more or less help me on what to expect to come with my cousin, thanks John

[Coerdelchen]

Your videos are brilliant!

You are a big help for people having MD and for people trying to understand it! Hopefully, your work is leading to a rising interest in research and finding a method of curing! Good luck!

[jaquot7]

I'd like to get to know you John! You sure are my inspiration! I'm sure I'm not the only one who sees you as an INSPIRATION. Blessings, JJ

[jaquot7]

You do such a good work John, not only to you and your condition, but to all others including medical students and even scientits!!! You are just AMAZING and do STUNNING JOB my friend!!! May God bless you always John for helping others!

HUGGZ, JJ

[nicoletta339]

:) :) :)

[birdhouse345]

awesome dude

[samsig84]

John thank you for helping me understand how your life has changed due to your disease. I am a medical student and learning how different conditions affect peoples lives. I am going to show this video to some of my classmates so that they too will be for empathetic and understanding. Thank you!

[netfreehost]

Good video. Problem is when hands too gets week.

[zaction]

You are doing a great job with these videos. I know you are helping people John. I am a scientist and do research on LGMD.. mainly LGMD2I. Keep up the good work.