I am thankful for you and what you do for cystic fibrosis. I have CF and received a double lung transplant from a loving family, I am doing great, thanks to the Lord. I will be 28 yrs old this year. Prayers for all!!!!
Great video,I'm a parent of a lovely little girl called Mia,age 2,she has cf.As she's my 3rd,I never heard of cf till I was 35.These's story's make us fell that bit better,so thank you and all the best to anyone who's affected by cystic fibrosis!!
My best friend has cf. He's been in the hospital since before thanksgiving. Last night his o2 dropped to below 70 they can't get it back up. He's in his mid 20's this was all out if nowhere an breaks my heart. I started a page on fb. Cystic fibrosis awareness. I only have 20 like so far. But im trying to spread awareness my posting this as ur status. Purple (65 Roses) can u help out? And like the page too? I wish u ling health and happiness. Thanks for the video
Really like your video.My niece Tiffiny has cf and she is a blessing to our family.God bless you for making this video and showing people your story.May you have many healthy years ahead of you!
I appreciate the encouragement this has brought to me,my daughter of only a three weeks old is carrying the gene of this horrible disease....i just ask thar in your daily life that u remember my liliana in your prayers..thanx
i Had CF For A Week,The People In The Hospital Found It A Miracle It Affected Me For A Week,The Goverment Says That They Dont Care About It Theres More Serious Diseasous,The Hospital People Asked The Goverment If They Can Try Because If I Was Cured They Must Have Done Something To Cure Me That They Would Try To Find
@vegansean1 That Was My Sister Who Wrote That Comment,And No She Doesnt She Likes To Watch Videos and Have The Same Thing,If It Was True Shed Have Dyslexia or Other diseases
In September 2012, 4 friends will try to defy all odds in a unique cycling challenge. Cycling from Hastings to Barcelona and Back! 2000 Miles, 7 days, Non-Stop! All to raise £50.000 for Cystic Fibrosis Trust.
I am 21 and also have CF and made a video like yours :) I love seeing others who are spreading awareness and making the best of this disease! Stay Strong <3
I'm just like you, though I'm younger. I had a pretty serious condition when I was born because I had CF.
I was only about 2 or less, I was really small. I didn't have any vitamins, I couldn't even move my mouth pretty well when I cry. But I thank god that now, I'm still alive and living better.
my name is Dorene and i am 32 i found out that my daughter Tiffiny now 10 hade it befor she was even born the day she was born she had to do surgery on her intestines b-cuz they ruptuerd, she was just in for only a week for a tune up from a spot on the lung that llooked calapsed but she is good now god bless u all
CF Kids a special, and this shows it completely. They are so burdened in life but they achieve so much from what life they have. I can only hope our daughter becomes the person you are. Best Wishes in you next 23 years and many more to come after that.
Heya, im a person from ireland with CF and were doing a facebook event to raise awarness of Cystic Fibrosis and also to get a Guinness World Record, if ye all could join and spread the word it would be great. just type into facebook "make cystic fibrosis aware by trying to break a world record". All support would be very greatful
Has anyone looked into peptide shots? Since CF omits one protein in the 1480 amino acids a peptide shot could possibly help your body function better. It is always worth a try. Peptide shots are widely used Europe to treat cancer and other auto immune disorders.
i have it too and let me tell you it is not fun it can be tough but takeing all my meds every day i know that it helps me out .
my mom found out that i had it when i was 2 and from there on i have been in and out of the hosptail iam now 14 and hopefully one day they will find a cure for cf
@cfkid123 Look at getting a peptide shot. Don't know how much it will help. They are used in treatments and auto immune diseases in Europe. It is a battle to get them here in the states. They give your body the amino acids that it can't produce. For example, in CF the genetic mutation omits one protein of the 1480 amino acids. A tiny glitch but devastating. God Bless!!
I have cf too - just done a video about it actually - if you get a chance, click on my channel and have a look - it's an 18 year old english girl's perspective.
ahh this made me cry! so much respect for you katy!
PLZ SUBSCRIBE TO MY CHANEL MY BABY GIRL HAS IT TO AND LOVES WATCHING THESE VIDEOS OF OTHERS WHO DO SO SHE DOESN'T FEEL SO ALONE IN IT THANK YOU CHECKOUT MY CHANEL IM DITALYDO ON HERE
I just feel the need to write, I wanna thank you very much for Your video, My daughter has had problems with breathing for a while, and the subject of CF came up at the drs.. I was scared and truly do not know which way to turn! You give me hope, of which i need to feel. i would love to know more but im so scared to hear what I need to.. .Yes I will do what we need to. and I have to give kudos to your parents for their support and endurance! Keep on keeping on
My name is Hailey and i have Cystic Fibrosis i was diagnosed at 6 months old the doctors had told my mom that i was going to die at 9months and then later again told her i was going to pass on when i was 7years old and here i am. I will be 16years old this month and is doing great i have not been hospitalized in 6years and still going strong i get sick now and then but its nothing that can bring me down I try and stay involved in the CF foundation and will hopefully be fundraising later this yr!
My friend had CF but she died a few weeks ago so this video really made me feel like i wan tto stand up and do something, she was a big part of my life, we were like sisters, i really hope a cure is found! I miss you Lucy, i'll be strong for you. xoxox
Katy you are a beautiful person and an inspiration!! I congratulate you on your dream of becoming an RN and letting everyone aware about CF!! I wish you all the best towards your future and dreams. Live strong and love EVERY SECOND of it!! :D
nice vid, but cystic fibrosis affects the whole body rather than just being a "lung disease". it's just most well known for its effect on the lungs (thick mucus causes bacterial proliferation > frequent infections).
Hey Katy,I am Jessica and I have CF.I just want u 2 kno that it was so beautiful & refreshing to c a cf video that was happy & had a positive outcome.We ALL kno the horrible outcomes but its rare that we get a wonderful happy outcome.I am proud of u 4 accomplishing the things other cfers like myself couldnt.Keep taking very good care of yourself.You are so goreous gurl and seem like a sweet person.God Bless You! Much love,live life to the fullest for me,for all cfers who r 2 sick 2 do it nemore
@twiztedsweetness21 well i saw in a commercial, they said that people with CF is like having theyre face shoved in water for a few seconds. is it true?
I hope you keep strong your a beautiful girl and i hope you can help others like you were helped when you were little. I hope the best of the best for you!
the treatments for this as come a very long way. over 20 years ago, when my sister was diagnosed with CF, there was not that many treatments around. My sister actually died when she was 17. So years ago, you COULD die from this. now with advances in research, people with CF can actually live alot longer than before.
My name i KayLin. I'm 16 and i have Cystic Fibrosis. It's kinda cool to know there are people out there fighting like i am that have made it far. Everyone keep fighting. I know i will.
I'm a computational scientist and CF researcher. There is a reason CF hasn't been cured yet, it's the inability to compute complex biomolecular systems. To understand why we haven't been able to do that, what's being done about it, and how CF WILL BE CURED, visit my channel. Its time for change in the world of science. Links to papers and my website can be found on my channel. I am working dawn to dusk on this problem with everything I have. Help by linking to spread the word! God bless.
Every day I was mad on my life.... untill I saw this videos about CF! Thank's God I'm not sick of Cf! Thank you all 4 beeing around the other people and 4 helping us understand how important is this life!Thank's foe showing us how strong you are! God bless You ALL! Find a Cure!!
I am 25 and will be a nurse this dec 2010....I looked up Cystic Fibrosis because I'm studying for an exam and I came across your video....these stories are the main reason I want to become a nurse. I pray they find a cure soon.
Excellent video! Love how well you are doing. My fiancee also has CF and participates in the Great Strides walk in our area. I was wondering, if you don't mind sharing, what your phenotype is. I'm a bit of a science nut and like looking at stuff like that.
my heart goes out to all you brave people with CF , I will say a speciall prayer for you all, Katy your family must be so proud of you for being so strong. Hell I'm proud of you and I don't even know you...lol , you are giving many young people hope with this video and for that and being so strong you are a true blessing to this world! keep up the fight baby girl , and please update us all once in a while , lots of prayers and love , Val
Im 16 and i cystic fibrosis. stay strong katy.. one day there will be a cure! any of u that have cf feel free to send me an email... i would love to hear from any of you.
wow.. i feel realy bad but i dont have any words all i can say is that u guys are strong and u enjoy life =) i hope they do find a cure becousei think that its bad to lose good people like u guys this is why i hate people that dont enjoy theyr life becouse they dont know what they are missing. well keep going guys =) im sure theyl find a cure soon
FIGHT IT GUYS!!!! WE can do it! Been livin 20 years of my life perfectly, well, I was diagnosed at 16, but been doing well, Family, music, videogames, all are my reasons to not die... CF aint getting us withought a fight!
i was diagnosed wit cystic fibrosis wen i was born it is hard 2 deal wit but u have 2 do it ...........it was hard 4 my family 2 deal wit i was always sick i had my rite middle lung removed, i was always coughing,my eight was always down....... alot of ppl asked me y was i in da hospital alot it was hard 2 tell ppl dat i have cystic fibrosis
Great video, im 21 yrs old and a cf patient.12 months ago i had a double lung transplant and now going great keep fighting the good fight and never let cf win
To respond to someone's answer as to why the lifespan of CF patients is 37. I believe because it is the AVERAGE age of which CF patients live to, which is VERY sad. It obstructs the lung passageways with mucus and often hinders the pancreas causing the patient to be extremely thin. Not all CF patients are this severe. There are more mild cases of it, as stated below. My nephew has a rather serious case of it but he seems to be getting better and stronger.
I'm doing an assignment on C.F for my R.N dregree and came across your story and I think you rock, your outlook is inspirational and I'm sure you'll be an Awesomely Awesome Nurse : )
Hi Kate...My Name is Chelcie, im 16 years old. I have CF also. It got really bad and i was admited to the hospital. On July 13, 2009 I had a Double Lung Transplant. Im doing great now! CF is not easy. Just keep going strong and you will continue to do great. Bless you! :)
I am a young mother ( 23) and my son who is almost 5 months old now was diagnosed at 2 months. watching your video made me feel great. you look great and from your pictures it looks like you have done so much and lived life to the fullest. keep spreading the word and giving people hope! we need it!
My name is Cody and I'm 23 with CF too. I just got listed for transplant 2 weeks ago because my pft's have dropped into the low 20's, been in and out of the hospital all year. I wish you the best of luck!
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
Skillsfornobrain! get a grip, you loser! what do you get out of saying that. your a sad sad person, and what goes around comes back round. you sad sad loser
my aunt had it she lived to be 43 and she was way to nice to die i hope you dont die early. cyctic fibroses is nasty and i hate it. it killed my favorite aunt.
omg i have cf and i was agreeing with every thing u said and then u said ur team works at playland!!! my family donates every year and we usually go there. my dads band was once offered to play there. there name is "No Options" my dad is the drumer.
My 6 year old son and i are a waiting his sweet test, i am so scared!! Watching this video makes me feel better about his out come of having a positive test.
Amber--did your son test positive for CF? I am a 44-yr. old woman with CF--married, and in moderate health. My best advice if he has CF would be to be sure he learns early on to exercise, do therapy, and take his meds! Today's kids have so much more potential for health than I or my friends experienced. Best wishes & be strong!
The good news is he dose not have cf!!! But we still have no answer on what is cause him to have poor health. Thank you for your reply and I wish you the best in your health and hope we can keep in touch . Even tho my son dose not have cf i still would like to continue to learn about it .
I don't get it.... How do people die with CF? What is it that can kill them? Is it the infections that are not treated? If so, does that mean as long as you treat every single infection, that everything will be ok? I sure hope so! I have seen a video in the Mayo clinic website I belive and it said that people in their 80's have CF.... So why does everybody say 37 years old? When those people in their 80's have it? Stay strong everybody and do everything that you can....
There are thousands of different strands of the faulty gene that gives you CF...some people hardly have any problems. I know someone who's been in hospital twice in her whole life, she's now 26 with a baby. I know someone who's on oxygen all the time and in a wheelchair at 21 years old and frightfully thin, despite a feeding tube. A girl in a room next to mine last year died coz she wasn't strong enough to fight an infection anymore. She was 31
Thank you for explaining it to make me understand a little better.....
I am sorry for what all people with CF go through. I have a CF magnet on my car and will help with donations whever I can. I really do care about people with this decesase. I think its not fair for these people to have this while others complain about every day little things, I think they are very ungratfull and should appreciate life more. I pray for you everyday and I hope they will find a cure!
I don't have CF but you have my support anyways. My relation with CF is of the more tragic sort even tho noone really close to me got it. I also know more then most people who don't have it. All I can say is that it makes me proud as a humanist to see how strong you all are. For regular people it's hard just getting up from bed in the morning, but they have no idé what's really hard in life.
Take care you all, and I hope you have good lifes.
i have posted your video on face book, you are so much like my daughter, people should realise what you go through, and just like my daughter you are a hero and an inspiration xx
I'm 25...I was JUST diagnosed with CF four days ago. I've already been to clinic, had tests up the wazoo, and learned so much. I am overwhelmed with information. I have studied CF for years as I planned on being a CF nurse anyways...So I knew all too well what the disease was and what it does...But here I am getting to sympathize with my patients in the most personal way...Their nurse HAS IT!
I Was Born With CF It is Hard But All i Do is Stay Strong And never give Up some times i feel like Giving Up But No No i am not I Cry Sometimes Saying Why Does Have To Be Us with CF!I Am 11 Years Old!But Guys I Am Going to Do Lemonade Stands Ask The Principal At School If We Can Do A fundraiser and Everything I am going to do tests with the hospital i will do what ever i can do to help Find A cure!Icare!
Katy rox!!!! My little boy was born on April 27, 2009, and diagnosed with CF through the newborn screening. Hopefully by the time Nolan is 18, the average years will double again from 37, to 60+++. As soon as he can walk, Nolan will be making Great_Strides!
I'm also 23. I never really had an interest in science until I lost a family member to Cancer. Ever since then I've been learning about more and more diseases that I've always heard of but never really knew anything about.
This was a great video. It really opened up my eyes to what's going on in the world. I'm sure those researchers will find the cure to cystic fibrosis.
I like the music you chose for this video it went perfectly with the message you are trying to get out. I wish you well. :)
Thanks for heliping get the word out. We are capable of anything we put our minds too. I am now 25 living with CF and have a great husband of 6 years by my side. We also have a beatiful and healthy daughter who turns 3 in 5 months. Not easy, but hopefully we can live to help find the cure! Amanda
hey katy awesome video im shane and ive got cf aswell. Ive made a video like this on my double lung transplant its called my transplant story chek it out if you want :)
I just want to say ur amazing for what your doin wit your life...... you see i just lost my cousin who i am realli close to 3 days ago and she had just turned 21 3 weeks ago..... i no what its all lik trust me!!!(not the pain bt everythin else) bt thanks for postin your video..
This video really hit close to home. I happened to stumble upon it while I was searching for my friend, Kim's video. After watching this video, you remind me of Kim. She passed away in September at age 19, and she too, enjoyed skiiing. Stay stong! :]
Lots of strides have been taken in fighting this disease. The most common form comes from a single point mutation @ base 508 on the CFTR gene. Work is ongoing to create a consistently effective genetic therapy for this condition. My best to you and yours, and the search goes on.
HI!!! I have too CF!!!! Im a spanish girl with 18 yearls old. I like so much this video. All of CF are how family. You are my sister in the disease.... One kiss. Life!!!!!!!!!!
my name is amanda and i also have cystic fibrosis. i am 29 years old and had a double lung transplant in 1999 and have been doing great since. you are a beautiful young woman and seem to be doing very well!! if you ever need to talk or need any advise or anything please feel free to contact me.
Keep it up Katy...you are a role model to not only those with CF but to everyone! I am studying CF in A Level Biology, and I find it so interesting, and want to become a Nurse, good luck in everything you do and one day, there will be a cure! :)
P.S. What is the name of the song that is used in the video?
hi my names zach and im 13 and i suffer from c.f your video has really made me think x i lost one on my gratest frends to c.f a little over a year ago now . her name was chloe cotton .... plz search her name and wotch her video .. i wasnt in this video becanse i was in hospital at the time xx THANK YOU xxx
beautiful video. i am 46 with CF and am doing quite well. your story is an inspiration! CF is not a death sentence any longer! living life to the fullest is no longer a dream, but a reality to many of us! just a little harder then most! congrats! and keep it up! God Bless.
Thank you for the video, well done. I wanted to know more about CF and yours was the first video I watched on youtube. It is awesome to learn about it and how it is in your daily life. I now have a much better understanding. Five stars.
thanks for your,s wonderfull video,sure you will be a role model for lots of people who suffers from C.F...sadly i became aware cause a person that i admire a lot pass away from it at the age of 23,fourteen days before is 24 birthday:( since that day i promessed that i would make something.
all together we can make the difference in the fight against C.F...
I thought i'd do a quick youtube search on CF and found your video. I have CF as well. I am 27 and married and lived the best life i can so far with plenty of exercise (since high school), albuterol, pulmozyne, adek, ultrase MT-20. I've been hospitalized only twice so far in my life as a young kid. The last test for my pulmonary function showed my lungs at somewhere between 89-91%. I could go on and on, but i just wanted to say keep on keeping on.
I am thankful for you and what you do for cystic fibrosis. I have CF and received a double lung transplant from a loving family, I am doing great, thanks to the Lord. I will be 28 yrs old this year. Prayers for all!!!!
IXAxeMurdererXI 5 days ago
Great video,I'm a parent of a lovely little girl called Mia,age 2,she has cf.As she's my 3rd,I never heard of cf till I was 35.These's story's make us fell that bit better,so thank you and all the best to anyone who's affected by cystic fibrosis!!
Mrsertania 5 days ago
My best friend has cf. He's been in the hospital since before thanksgiving. Last night his o2 dropped to below 70 they can't get it back up. He's in his mid 20's this was all out if nowhere an breaks my heart. I started a page on fb. Cystic fibrosis awareness. I only have 20 like so far. But im trying to spread awareness my posting this as ur status. Purple (65 Roses) can u help out? And like the page too? I wish u ling health and happiness. Thanks for the video
irishmoomae 1 week ago
Really like your video.My niece Tiffiny has cf and she is a blessing to our family.God bless you for making this video and showing people your story.May you have many healthy years ahead of you!
xboxdude71 3 weeks ago
@vegansean: lol...also, I find it curious that he or she capitalizes every word that he or she types, just like his or her "sister."
tmichellemd111 1 month ago
I appreciate the encouragement this has brought to me,my daughter of only a three weeks old is carrying the gene of this horrible disease....i just ask thar in your daily life that u remember my liliana in your prayers..thanx
lastcml 2 months ago
CF is a son of a bitch,i refuse to let it control my life
triggersprollie 2 months ago
Do you have a twitter? I would love to help you.
OnTheSpotInterviews 2 months ago
i Had CF For A Week,The People In The Hospital Found It A Miracle It Affected Me For A Week,The Goverment Says That They Dont Care About It Theres More Serious Diseasous,The Hospital People Asked The Goverment If They Can Try Because If I Was Cured They Must Have Done Something To Cure Me That They Would Try To Find
MrsYumyumlicious 3 months ago in playlist More videos from lilkate424
@MrsYumyumlicious You "had" CF for a week? You sure about that? CF is Cystic Fibrosis, btw...
vegansean1 1 month ago
@vegansean1 That Was My Sister Who Wrote That Comment,And No She Doesnt She Likes To Watch Videos and Have The Same Thing,If It Was True Shed Have Dyslexia or Other diseases
MrsYumyumlicious 1 month ago
i have cf and when i was little i was in for a month
lola8233 3 months ago
This has been flagged as spam show
In September 2012, 4 friends will try to defy all odds in a unique cycling challenge. Cycling from Hastings to Barcelona and Back! 2000 Miles, 7 days, Non-Stop! All to raise £50.000 for Cystic Fibrosis Trust.
Please visit: Barcelona Boomerang. com Thankyou!
frellaification 3 months ago
My best friend just found out she had cf she is in the hospital for 14 days for a procuduer I am going to vist her this weekend
caseybabyloveful4 3 months ago
I am 21 and also have CF and made a video like yours :) I love seeing others who are spreading awareness and making the best of this disease! Stay Strong <3
amitydawnfurr 4 months ago
I'm just like you, though I'm younger. I had a pretty serious condition when I was born because I had CF.
I was only about 2 or less, I was really small. I didn't have any vitamins, I couldn't even move my mouth pretty well when I cry. But I thank god that now, I'm still alive and living better.
I hope we all get cured.
I hope CF dies. I actually cried watching this.
God bless you (:
Thanks for posting this <3
PPGDFan86 5 months ago
my name is Dorene and i am 32 i found out that my daughter Tiffiny now 10 hade it befor she was even born the day she was born she had to do surgery on her intestines b-cuz they ruptuerd, she was just in for only a week for a tune up from a spot on the lung that llooked calapsed but she is good now god bless u all
espdorene 5 months ago
CF Kids a special, and this shows it completely. They are so burdened in life but they achieve so much from what life they have. I can only hope our daughter becomes the person you are. Best Wishes in you next 23 years and many more to come after that.
12AX7power 5 months ago
u were a very cute baby hehe
theanxiousone1 5 months ago
Nice Video katy
willielt1e39 6 months ago
My best friend has CF...its hard having to see him do all the stuff he has to do to live and servive each day...I pray for all of those with CF
ledfootbabe 6 months ago
God bless you
xxxxx
nice song choice btw
wow lol 2:40 tongue ? lol joke
AaAmInA1998 6 months ago in playlist Living with CF
Heya, im a person from ireland with CF and were doing a facebook event to raise awarness of Cystic Fibrosis and also to get a Guinness World Record, if ye all could join and spread the word it would be great. just type into facebook "make cystic fibrosis aware by trying to break a world record". All support would be very greatful
zackyv08 7 months ago
Has anyone looked into peptide shots? Since CF omits one protein in the 1480 amino acids a peptide shot could possibly help your body function better. It is always worth a try. Peptide shots are widely used Europe to treat cancer and other auto immune disorders.
Ryan1759 7 months ago
i am soo happy for u.im glad u became a nurse...More power to u...
yanners1976 7 months ago
i have it too and let me tell you it is not fun it can be tough but takeing all my meds every day i know that it helps me out .
my mom found out that i had it when i was 2 and from there on i have been in and out of the hosptail iam now 14 and hopefully one day they will find a cure for cf
cfkid123 7 months ago
@cfkid123 Look at getting a peptide shot. Don't know how much it will help. They are used in treatments and auto immune diseases in Europe. It is a battle to get them here in the states. They give your body the amino acids that it can't produce. For example, in CF the genetic mutation omits one protein of the 1480 amino acids. A tiny glitch but devastating. God Bless!!
Ryan1759 7 months ago
I have it too!
sb530ify 7 months ago
damn she hot, im aware!
edvinastox 8 months ago
Hello have you ever heard about inhaling sodium bicarbonate ?
javieryepgarcia 9 months ago
its a lung disease
IPhoneTechnologic 9 months ago
This has been flagged as spam show
I am 13 and have cf and i just got out of the hospital... STANDING STRONG FOR MYSELF AND OTHERSS!!!
CFTori 10 months ago
I am 13 and have cf and i just got out of the hospital... STANDING STRONG FOR MYSELF AND OTHERSS!!!
CFTori 10 months ago
Im 17 and have CF but it hasnt stoped me yet ha
burton1rocks 11 months ago
Woops, sorry! Didn't mean to post twice =)
Tigergir7 11 months ago
I have CF too!!!!!!!!!!!!
Tigergir7 11 months ago
I have CF too!!!!!!
Tigergir7 11 months ago
iam 13 and with cf and only had to stay in the haspital only twce so im standing strong
balana955 11 months ago
I have cf too & im 17.. & i will do everything i can to raise money to help get closer to a cure. dont ever give up
Riley1516 11 months ago
<3
I have cf too - just done a video about it actually - if you get a chance, click on my channel and have a look - it's an 18 year old english girl's perspective.
ahh this made me cry! so much respect for you katy!
YOU GO GIRL :)
CocoMatova 11 months ago
PLZ SUBSCRIBE TO MY CHANEL MY BABY GIRL HAS IT TO AND LOVES WATCHING THESE VIDEOS OF OTHERS WHO DO SO SHE DOESN'T FEEL SO ALONE IN IT THANK YOU CHECKOUT MY CHANEL IM DITALYDO ON HERE
ditalydo 11 months ago
the girl im in love iwth just told me she has it today and i cant stop crying :'( i dont wanna lose her
chewbarf 1 year ago
aww this is sad i am crying :'(
123creekie 1 year ago
Im so so so pleased that some people can keep fighting through CF.
I lost my brother in 2004, He could not fight no more. Its a huge loss.
I miss him so much. </3
LKA8487 1 year ago
Love the video! Anything any of us can do towards a cure is amazing! Im 25, have CF, and had a double lung tx in 07 when I was 22.
Cassgirl01 1 year ago
Katy,
I just feel the need to write, I wanna thank you very much for Your video, My daughter has had problems with breathing for a while, and the subject of CF came up at the drs.. I was scared and truly do not know which way to turn! You give me hope, of which i need to feel. i would love to know more but im so scared to hear what I need to.. .Yes I will do what we need to. and I have to give kudos to your parents for their support and endurance! Keep on keeping on
thanks again
Luanna
cherokeelaydee 1 year ago
My name is Hailey and i have Cystic Fibrosis i was diagnosed at 6 months old the doctors had told my mom that i was going to die at 9months and then later again told her i was going to pass on when i was 7years old and here i am. I will be 16years old this month and is doing great i have not been hospitalized in 6years and still going strong i get sick now and then but its nothing that can bring me down I try and stay involved in the CF foundation and will hopefully be fundraising later this yr!
haileybailey294 1 year ago
Comment removed
haileybailey294 1 year ago
What an amazing young woman you are Katy! Your strength is so admirable, I wish you all the best xoxox
ozmonto 1 year ago
My friend had CF but she died a few weeks ago so this video really made me feel like i wan tto stand up and do something, she was a big part of my life, we were like sisters, i really hope a cure is found! I miss you Lucy, i'll be strong for you. xoxox
snowyangel97 1 year ago
I am a huge fan of Cystic Fibrosis
TatianaSword 1 year ago
Katy you are a beautiful person and an inspiration!! I congratulate you on your dream of becoming an RN and letting everyone aware about CF!! I wish you all the best towards your future and dreams. Live strong and love EVERY SECOND of it!! :D
zippygirlmaina 1 year ago
my cuzzin cf and she 5months
Lilprettygirl640 1 year ago
nice vid, but cystic fibrosis affects the whole body rather than just being a "lung disease". it's just most well known for its effect on the lungs (thick mucus causes bacterial proliferation > frequent infections).
mbbs5000 1 year ago
Comment removed
haileybailey294 1 year ago
Im 17 and have cf :)
mshaleebabyy 1 year ago
Thank you
prokos 1 year ago
Hey Katy,I am Jessica and I have CF.I just want u 2 kno that it was so beautiful & refreshing to c a cf video that was happy & had a positive outcome.We ALL kno the horrible outcomes but its rare that we get a wonderful happy outcome.I am proud of u 4 accomplishing the things other cfers like myself couldnt.Keep taking very good care of yourself.You are so goreous gurl and seem like a sweet person.God Bless You! Much love,live life to the fullest for me,for all cfers who r 2 sick 2 do it nemore
twiztedsweetness21 1 year ago
do people with cf still choke?
eciIa89 1 year ago
@eciIa89 what do u mean choke? I have cf and wondering where n the world u heard this
twiztedsweetness21 1 year ago
@twiztedsweetness21 well i saw in a commercial, they said that people with CF is like having theyre face shoved in water for a few seconds. is it true?
eciIa89 1 year ago
@eciIa89 i kind of cleans out our sinuses, but dont go arount shoving peoples faces in water xD
TomAndJerry87 1 year ago
@eciIa89 Hi, no it's not. It's more like trying to breathe through a couple of tissues, or breathing with a pillow on your face.
Plateaushit 9 months ago
@Plateaushit how do you confirm this?
eciIa89 8 months ago
@eciIa89 I have CF :)
Plateaushit 4 months ago
@Plateaushit oh thanks lol was for my project
eciIa89 4 months ago
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@ecila89 : I have CF :)
Plateaushit 4 months ago
i have C F and im 12 hows your health? hope you are weel :)
discojayjay 1 year ago
pls give us an update of your condition these days.all the best with your health.
inquestFLASH 1 year ago
This has been flagged as spam show
Fuck you and your illness cocksucker. Victory or death! There are no special cases.
djfuzzems 1 year ago
I hope you keep strong your a beautiful girl and i hope you can help others like you were helped when you were little. I hope the best of the best for you!
Coty1044 1 year ago
my name is celest, I am 17 years old lviing with cystic fibrosis and i have been told by so many doctor that i would never make it to see this day.
celestpwll 1 year ago
the treatments for this as come a very long way. over 20 years ago, when my sister was diagnosed with CF, there was not that many treatments around. My sister actually died when she was 17. So years ago, you COULD die from this. now with advances in research, people with CF can actually live alot longer than before.
nishawaters1 1 year ago
Nice tits.
NonfaProfit 1 year ago
@NonfaProfit ur r rude.
twiztedsweetness21 1 year ago
@twiztedsweetness21
It's a compliment bitch
NonfaProfit 1 year ago
@NonfaProfit no really its not.a guy cant say a girl is pretty or beautiful becuz they r too busy looking at the boobs or ass.grow up
twiztedsweetness21 1 year ago
@twiztedsweetness21
Fine, she is pretty and beautiful. She also has nice tits and a bubble butt. You Happy?
NonfaProfit 1 year ago
My name i KayLin. I'm 16 and i have Cystic Fibrosis. It's kinda cool to know there are people out there fighting like i am that have made it far. Everyone keep fighting. I know i will.
cffighter 1 year ago
I'm a computational scientist and CF researcher. There is a reason CF hasn't been cured yet, it's the inability to compute complex biomolecular systems. To understand why we haven't been able to do that, what's being done about it, and how CF WILL BE CURED, visit my channel. Its time for change in the world of science. Links to papers and my website can be found on my channel. I am working dawn to dusk on this problem with everything I have. Help by linking to spread the word! God bless.
bonnarj7 1 year ago
Every day I was mad on my life.... untill I saw this videos about CF! Thank's God I'm not sick of Cf! Thank you all 4 beeing around the other people and 4 helping us understand how important is this life!Thank's foe showing us how strong you are! God bless You ALL! Find a Cure!!
TheRim4ik 1 year ago
people like you can never die. I am sure you will further live 100 years more
from Pakistan
shahidbspmk08 1 year ago
I am 25 and will be a nurse this dec 2010....I looked up Cystic Fibrosis because I'm studying for an exam and I came across your video....these stories are the main reason I want to become a nurse. I pray they find a cure soon.
tweetyclarke 1 year ago
Excellent video! Love how well you are doing. My fiancee also has CF and participates in the Great Strides walk in our area. I was wondering, if you don't mind sharing, what your phenotype is. I'm a bit of a science nut and like looking at stuff like that.
lhvinny 1 year ago
my heart goes out to all you brave people with CF , I will say a speciall prayer for you all, Katy your family must be so proud of you for being so strong. Hell I'm proud of you and I don't even know you...lol , you are giving many young people hope with this video and for that and being so strong you are a true blessing to this world! keep up the fight baby girl , and please update us all once in a while , lots of prayers and love , Val
softnsweeter 1 year ago
I also have CF. I am 14. Feel free to message/add me (that goes to everyone who has CF and reads this)
breakindwn 1 year ago
my 5yr old has cf and there r only 2 such cases in singapore... i hope they come up with a cure soon.
pameanish 1 year ago
I hope you stay healthy and live a long, long life
lp4ju 1 year ago
Im 16 and i cystic fibrosis. stay strong katy.. one day there will be a cure! any of u that have cf feel free to send me an email... i would love to hear from any of you.
Riley1516 1 year ago
wow.. i feel realy bad but i dont have any words all i can say is that u guys are strong and u enjoy life =) i hope they do find a cure becousei think that its bad to lose good people like u guys this is why i hate people that dont enjoy theyr life becouse they dont know what they are missing. well keep going guys =) im sure theyl find a cure soon
tiagoman11 1 year ago
hey im 15 and have cf and i want to be a nurse to!! that is so cool!
iluvwalkerandalex5 1 year ago
FIGHT IT GUYS!!!! WE can do it! Been livin 20 years of my life perfectly, well, I was diagnosed at 16, but been doing well, Family, music, videogames, all are my reasons to not die... CF aint getting us withought a fight!
Zeroprobabilityvids 1 year ago
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i was diagnosed wit cystic fibrosis wen i was born it is hard 2 deal wit but u have 2 do it ...........it was hard 4 my family 2 deal wit i was always sick i had my rite middle lung removed, i was always coughing,my eight was always down....... alot of ppl asked me y was i in da hospital alot it was hard 2 tell ppl dat i have cystic fibrosis
lilshortie107 1 year ago
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bobthebulernowecant 1 year ago
i was diagnosed at birth
airsofter1198 1 year ago
May your knowledge and nursing heart be a blessing to patients to the end...
saudim46 1 year ago
Great video, im 21 yrs old and a cf patient.12 months ago i had a double lung transplant and now going great keep fighting the good fight and never let cf win
luv shane (Mildura, Australia)
brubi1 1 year ago
To respond to someone's answer as to why the lifespan of CF patients is 37. I believe because it is the AVERAGE age of which CF patients live to, which is VERY sad. It obstructs the lung passageways with mucus and often hinders the pancreas causing the patient to be extremely thin. Not all CF patients are this severe. There are more mild cases of it, as stated below. My nephew has a rather serious case of it but he seems to be getting better and stronger.
jimmy4chevy 1 year ago
I'm doing an assignment on C.F for my R.N dregree and came across your story and I think you rock, your outlook is inspirational and I'm sure you'll be an Awesomely Awesome Nurse : )
Paul
psampson23 1 year ago
My Auntie Colette has this horrific disease
........ she has had it since she was like 2 months old...
this video is a inspiration to stay strong and hope for a cure...
(i have c1 estrase inhibitor deficincy)
xx.PaiGe.xx
TheAussiegirl13 1 year ago
Hi Kate...My Name is Chelcie, im 16 years old. I have CF also. It got really bad and i was admited to the hospital. On July 13, 2009 I had a Double Lung Transplant. Im doing great now! CF is not easy. Just keep going strong and you will continue to do great. Bless you! :)
Chelciebugu145 1 year ago
I am a young mother ( 23) and my son who is almost 5 months old now was diagnosed at 2 months. watching your video made me feel great. you look great and from your pictures it looks like you have done so much and lived life to the fullest. keep spreading the word and giving people hope! we need it!
sarahmarshall87 1 year ago
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TheAussiegirl13 1 year ago
My name is Cody and I'm 23 with CF too. I just got listed for transplant 2 weeks ago because my pft's have dropped into the low 20's, been in and out of the hospital all year. I wish you the best of luck!
codysheets 1 year ago
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
wasupitswill 2 years ago
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bmxpacman 2 years ago
This has been flagged as spam show
your probably going to die and god isnt going to help you
what is it like everyday knowing that you will never live as long because your blood is tainted
Also let me pee in your butt
SkullsforKhorne 2 years ago
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bmxpacman 2 years ago
Skillsfornobrain! get a grip, you loser! what do you get out of saying that. your a sad sad person, and what goes around comes back round. you sad sad loser
keenandwhat009 2 years ago
my aunt had it she lived to be 43 and she was way to nice to die i hope you dont die early. cyctic fibroses is nasty and i hate it. it killed my favorite aunt.
rainpebble001 2 years ago 2
omg i have cf and i was agreeing with every thing u said and then u said ur team works at playland!!! my family donates every year and we usually go there. my dads band was once offered to play there. there name is "No Options" my dad is the drumer.
shouldbestormplaya27 2 years ago
My 6 year old son and i are a waiting his sweet test, i am so scared!! Watching this video makes me feel better about his out come of having a positive test.
SuperAmber1115 2 years ago
Amber--did your son test positive for CF? I am a 44-yr. old woman with CF--married, and in moderate health. My best advice if he has CF would be to be sure he learns early on to exercise, do therapy, and take his meds! Today's kids have so much more potential for health than I or my friends experienced. Best wishes & be strong!
catnip824 2 years ago
The good news is he dose not have cf!!! But we still have no answer on what is cause him to have poor health. Thank you for your reply and I wish you the best in your health and hope we can keep in touch . Even tho my son dose not have cf i still would like to continue to learn about it .
SuperAmber1115 2 years ago
my sister has cf and is on life support this video brings hope thank you so much'
nallynails 2 years ago
I'm sorry about your sister :( I hope she can get better!
SportsItUpCards 2 years ago
thank u
nallynails 2 years ago
Had to sit through this in Bioligy with Butterworth today -.-
DannyAC8 2 years ago
wow ur a dick dude if u only knew the pain they go through
nallynails 2 years ago
You're pretty awesome :)
Debigmachine 2 years ago
Very nice video!
I don't get it.... How do people die with CF? What is it that can kill them? Is it the infections that are not treated? If so, does that mean as long as you treat every single infection, that everything will be ok? I sure hope so! I have seen a video in the Mayo clinic website I belive and it said that people in their 80's have CF.... So why does everybody say 37 years old? When those people in their 80's have it? Stay strong everybody and do everything that you can....
SportsItUpCards 2 years ago
There are thousands of different strands of the faulty gene that gives you CF...some people hardly have any problems. I know someone who's been in hospital twice in her whole life, she's now 26 with a baby. I know someone who's on oxygen all the time and in a wheelchair at 21 years old and frightfully thin, despite a feeding tube. A girl in a room next to mine last year died coz she wasn't strong enough to fight an infection anymore. She was 31
aislecheeks 2 years ago
Thank you for explaining it to make me understand a little better.....
I am sorry for what all people with CF go through. I have a CF magnet on my car and will help with donations whever I can. I really do care about people with this decesase. I think its not fair for these people to have this while others complain about every day little things, I think they are very ungratfull and should appreciate life more. I pray for you everyday and I hope they will find a cure!
SportsItUpCards 2 years ago
oh they will =]
aislecheeks 2 years ago
great video!! Im 27 w/CF, "I am not dying because of CF, I have learned to live because of CF!"
ken22482 2 years ago 2
Hey Katy and the rest of you in here with CF.
I don't have CF but you have my support anyways. My relation with CF is of the more tragic sort even tho noone really close to me got it. I also know more then most people who don't have it. All I can say is that it makes me proud as a humanist to see how strong you all are. For regular people it's hard just getting up from bed in the morning, but they have no idé what's really hard in life.
Take care you all, and I hope you have good lifes.
MMAProfessor 2 years ago
thank you Katy. My daughter is 20 and her fiance has CF. Your video brings great hope.
denisewilson724 2 years ago
I am 11 And i Have CF!
And i am Standing Strong!
iamgreengirl123 2 years ago 20
i have posted your video on face book, you are so much like my daughter, people should realise what you go through, and just like my daughter you are a hero and an inspiration xx
123sweetpea1 2 years ago
brave beautiful girl my daughter is 22 and has c.f. god bless you xxxxxxxx
123sweetpea1 2 years ago
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lilpops831 2 years ago
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lilpops831 2 years ago
I'm 25...I was JUST diagnosed with CF four days ago. I've already been to clinic, had tests up the wazoo, and learned so much. I am overwhelmed with information. I have studied CF for years as I planned on being a CF nurse anyways...So I knew all too well what the disease was and what it does...But here I am getting to sympathize with my patients in the most personal way...Their nurse HAS IT!
DJLava85 2 years ago
I Was Born With CF It is Hard But All i Do is Stay Strong And never give Up some times i feel like Giving Up But No No i am not I Cry Sometimes Saying Why Does Have To Be Us with CF!I Am 11 Years Old!But Guys I Am Going to Do Lemonade Stands Ask The Principal At School If We Can Do A fundraiser and Everything I am going to do tests with the hospital i will do what ever i can do to help Find A cure!Icare!
iamgreengirl123 2 years ago
can u be fat and have cf
sara9896 2 years ago
u look very nice to be honest! i got sfb and look little skinny, but u look nice! keep up the good work :D
SSDavyS 2 years ago
Great video, I am 19 from Australia and Have CF.. all the best xx
evilbubble 2 years ago
my sister died of cf and my daughter has it youare a real encoragement
MrKendo1411 2 years ago
I am 14 and i have CF
EmmD 2 years ago
i am 13, i have cystic fibrosis, i hate it but i just have to deal, u inspire me.. i want to be just like you! <3
TheJackie179 2 years ago
mч sister has CF and she is 22 todaч this Just shows чou should never give up :)<3
abbeysimmone 2 years ago
Katy rox!!!! My little boy was born on April 27, 2009, and diagnosed with CF through the newborn screening. Hopefully by the time Nolan is 18, the average years will double again from 37, to 60+++. As soon as he can walk, Nolan will be making Great_Strides!
rrunkle 2 years ago
hi my name is cory i have cf i've had ever since i was 3 months old and i'm almost 26 years old i'm on the lung transpalant list i live in virginia
TheAutomonster 2 years ago
i´m 15 years old and have cf ,too !
i´m from germany and search some peoples with cf too !
ähh ! my icq number is372-809-187
Akator1994 2 years ago
am also 15 and hace cf
sjdjr04 2 years ago
i'm 16 and i have CF
Trigadon65 2 years ago
i'm 13 and i have CF also
Jb4yrsold 2 years ago
keep up the good work..i have CF..i am 42
S888999333 2 years ago 17
@S888999333 i am so happy to know u r 42 and still alive. my brother has it and is 27
xChelleTiAmo 1 year ago
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haileybailey294 1 year ago
Good for you girly unfornally my brother didnt live past 21 due to cystic fibrosis
69Courtnay69 2 years ago
you are so beautiful..
remmpje 2 years ago
KATY!!! I love you!!! I love this video... you are so beautiful girlie... and I am glad to know (cyberly speaking...lol)you!!!
xoxo
SarahJean1976 2 years ago
my freind has cf so i reasearced it your video has helped me a great deal. ps ur r fit
mikechuds 2 years ago
very nice presentaton...
anonpsycho88 2 years ago
i have CF
and im 13 years old
TheBehBehKKShow 2 years ago
I'm also 23. I never really had an interest in science until I lost a family member to Cancer. Ever since then I've been learning about more and more diseases that I've always heard of but never really knew anything about.
This was a great video. It really opened up my eyes to what's going on in the world. I'm sure those researchers will find the cure to cystic fibrosis.
I like the music you chose for this video it went perfectly with the message you are trying to get out. I wish you well. :)
DarkRain9000 2 years ago
13 years old with CF
my brother is 18 with CF
life is just awesome (not sarcastic) :D
disturbed10000andme 2 years ago
Thanks for heliping get the word out. We are capable of anything we put our minds too. I am now 25 living with CF and have a great husband of 6 years by my side. We also have a beatiful and healthy daughter who turns 3 in 5 months. Not easy, but hopefully we can live to help find the cure! Amanda
wood31791 2 years ago
Great music exactly what CF means. well to me anyway.
cannock16 2 years ago
hey katy awesome video im shane and ive got cf aswell. Ive made a video like this on my double lung transplant its called my transplant story chek it out if you want :)
brubi1 2 years ago
hey katy awsome video my name is brett and i am doing my senior project on cf your video is very imformative
i also have cf and ill be 19 in two weeks
brett h
bah4817 2 years ago
good work im 18 with CF too.
cannock16 2 years ago
Hey Katy,
I just want to say ur amazing for what your doin wit your life...... you see i just lost my cousin who i am realli close to 3 days ago and she had just turned 21 3 weeks ago..... i no what its all lik trust me!!!(not the pain bt everythin else) bt thanks for postin your video..
Sarah,,xxxxxxxxxxxxx
ImDaMeaninOfPerfect 2 years ago
Hi Katy, nice video.
like to say hello from the netherlands.
I also have cf, i just did my screening for transplant. I just turned 37 in january. hope your doing well.
regards and lots good health and luck to you and family.
cysticfib 2 years ago
Lovely vid
My boy Joel is 7 and has CF Too
I love to watch vids like this
you're an inspiration!
Lee in Australia
Leelee0z 3 years ago
This video really hit close to home. I happened to stumble upon it while I was searching for my friend, Kim's video. After watching this video, you remind me of Kim. She passed away in September at age 19, and she too, enjoyed skiiing. Stay stong! :]
thammawhat2009 3 years ago
Lovely video fair play to you for putting yourself out there!! Chin up and keep smiling!! :D
soilsigh 3 years ago
Lots of strides have been taken in fighting this disease. The most common form comes from a single point mutation @ base 508 on the CFTR gene. Work is ongoing to create a consistently effective genetic therapy for this condition. My best to you and yours, and the search goes on.
magick205 3 years ago
HI!!! I have too CF!!!! Im a spanish girl with 18 yearls old. I like so much this video. All of CF are how family. You are my sister in the disease.... One kiss. Life!!!!!!!!!!
MantisRubia 3 years ago
my name is amanda and i also have cystic fibrosis. i am 29 years old and had a double lung transplant in 1999 and have been doing great since. you are a beautiful young woman and seem to be doing very well!! if you ever need to talk or need any advise or anything please feel free to contact me.
aahlert112 3 years ago
Keep it up Katy...you are a role model to not only those with CF but to everyone! I am studying CF in A Level Biology, and I find it so interesting, and want to become a Nurse, good luck in everything you do and one day, there will be a cure! :)
P.S. What is the name of the song that is used in the video?
xGemNutx 3 years ago
hi my names zach and im 13 and i suffer from c.f your video has really made me think x i lost one on my gratest frends to c.f a little over a year ago now . her name was chloe cotton .... plz search her name and wotch her video .. i wasnt in this video becanse i was in hospital at the time xx THANK YOU xxx
XZACHXMANX 3 years ago
you are pretty. my bff died. she was perrnounced dead just 1 month ago.
amydiamondfan1212 3 years ago
beautiful video. i am 46 with CF and am doing quite well. your story is an inspiration! CF is not a death sentence any longer! living life to the fullest is no longer a dream, but a reality to many of us! just a little harder then most! congrats! and keep it up! God Bless.
MFHORNS111 3 years ago 3
wow hang in there! i'm 13 and i have CF and know of a 70 year old CFer!!
1moe7 3 years ago
Thank you for the video, well done. I wanted to know more about CF and yours was the first video I watched on youtube. It is awesome to learn about it and how it is in your daily life. I now have a much better understanding. Five stars.
actingchick23 3 years ago
i don,t have C.F but i,am very aware.
thanks for your,s wonderfull video,sure you will be a role model for lots of people who suffers from C.F...sadly i became aware cause a person that i admire a lot pass away from it at the age of 23,fourteen days before is 24 birthday:( since that day i promessed that i would make something.
all together we can make the difference in the fight against C.F...
teiubesc36 3 years ago
I thought i'd do a quick youtube search on CF and found your video. I have CF as well. I am 27 and married and lived the best life i can so far with plenty of exercise (since high school), albuterol, pulmozyne, adek, ultrase MT-20. I've been hospitalized only twice so far in my life as a young kid. The last test for my pulmonary function showed my lungs at somewhere between 89-91%. I could go on and on, but i just wanted to say keep on keeping on.
Matt
afatkidoncrack 3 years ago