Seizures, Epilepsy, Convulsions, Lupus, Rachel Light No Diagnosis April Sun 2011.mpg

[WalburgGirl]

1-18-12 Had a very stressful day leaving me shaking & within an hour had full blown flare up/lapse. Whole body weakness, heaviness, freezing cold-tight feet/legs, R-leg charlie horse cramp that won't go away. Heavy, weak arms, migraines, rapid breathing when relaxed trying to sleep, chest pains, palpitations R-eye droop, left eye sunk in. Feel weak all over, exhausted, pain. I can use crutches but have to take a break every few feet, my feet curve inward while try to walk, wheelchair is better.

[WalburgGirl]

I've been through a roller coaster of being sick. I had 4 days straight where I felt real good & energetic so I was able to get things done. Then got sick & was told to stop Plaquenil til I got better due to vomiting. I got better for about a wk trying to get caught up from being sick then got very sick again.This time Acid Reflux & GI problems it's been 8 days now. I haven't been to Dr. for this yet because I have no med. ins. nor could I make it out of the house due to symptoms this brought.

[Niceboy3377]

this looks really painful

[WalburgGirl]

@Niceboy3377 I wasn't screaming..... I was grasping for air and couldn't breath to talk! My whole body was constricting and felt like my whole insides as well. There are times if I don't try to breathe during them I end up turning blue, my body gets even more tightly constricted with sometimes loosing consciousness!

[WalburgGirl]

Sept. 12th went into another Lupus and RA Flare that I'm still no totally over but feel much better now. This last one landed on me VERY HARD landing me in the wheelchair. Today is day 4 without wheelchair day 2 without crutches. Although I haven't tried to walk far just to my throughout my house. I'll get out of the house today and see how much weaker my body will get the further I walk or if it will. I'm still very tired & weak but it's been over a month I'm tired of not being able to be me!

[WalburgGirl]

Batistamaniac1 No seizures since July. I haven't been back on Plaquenil either like I was suppose to.... I've been going full force & really pushing myself to the limit these past 2 months & so far no lapses, seizures, but at times I do feel like "this could be the day that I have a flare due to how I start to feel." Everyday is a question as to how the day will end because the onset of these flares & seizures are so much a like in the beginning of exhaustion, excretion, and fatigue nausea ect.

[Niceboy3377]

@WalburgGirl WHY WERE U SCREAMING !

[Batistamaniac1]

r u ok  now?

[msmulerider]

howdy rachel,, vinny here,,i didnt know you were having such difficulties,, i will pray and fast for you and i have a friend whos daughter had lupas so i studied a bit with him,,i do know that your immune system is compromised and that mega doses of vitamin c twic daily help that,, also msm helps all cells to be more pliable and reduce imflammation,, alpha lipoic acid also helps our body fight free radicals,,, check these out and know that we are here for you and send good happy vibes your way,,

[WalburgGirl]

What a long night it was, constant cold sweats, insomnia, whole body pain.Called Dr. & these were the start of another Lupus flare. As to no surprise by afternoon throat tightened, body jerks like beginning of seizure, & legs collapsing. Oral steroids are helping with making my seizure not so intense, but I still feel like crap!

[WalburgGirl]

I get better, then I get bad again, in 6 months we should have it under control.... with the new med. just a waiting game till then. I have an appointment Thurs. am with an Eye specialist/surgeon for my test before I can start my Lupus ...and Rheumatoid medicine, Plaquenil. The medicine in rare cases causes blindness so check ups are needed during treatment. It takes 1-2 months for the medicine to start to work then 6 months for the full effect, so steroids are suppose to be taken up to then.

[WalburgGirl]

She without a doubt thinks I do in-fact have Lupus & is NOW treating me for Lupus & Rheumatoid Arthritis. My Primary Dr. upped my Xanax from .25 to 1mg( for anxiety, stress and relaxing muscles & seizures), Codine300-30mg(for Rheumatoid Arthritis and Migraines), Metoprolol for ...heart palpitations), Temazepam(for sleep) I'm on oral steroids(which will call tomorrow and see if they can give me the shot, because it seems to work better).

[WalburgGirl]

UPDATE: My Rheumatoid Dr. Booth found yet again my Rheumatoid factor is yet more than double high & says this is very dangerous especially since I'm having physical & very noticeable symptoms. This could turn into a more serious matter since I have been & still having these lapses. She said that even though my test aren't showing for Lupus just yet, at any given time the labs could spike up & show what we have been looking for all this time.

[slaughterrocket]

please,please don't listen to the ER doc's they don't know there ass from a whole in the ground. and yes but after all that is said and done I'm in a coma

[slaughterrocket]

that looks like a tonic clonic seizure. the doctors don't know about all the types of tonic clonic seizures. I've been dealing with tonic clonic seizures for 11yrs know

[WalburgGirl]

@slaughterrocket Thank you so much for your reply! This gives me something to look into. Do you have any other symptoms or diagnoses with it? I started out NOT loosing consiouness w/them & was told by the ER & Neuro that it's not a seizure because of that. I've been free of them & lapses for 2 yrs. They have come back full force, this time loosing consiousness in some as well as not knowing who, where I am or what's going on. I just spent $983 on lab wk for Lupus & still awaiting the results.

[WalburgGirl]

My A.N.A.(antibodies in the blood) also tested "positive" along w/Rheumatoid Factor being more than double. My purpose for this post is to get this out there in hopes to find others that have endured, dealt with or are struggling w finding a diagnosis. I can't be the only one out there suffering from this. I don't want people to feel sorry for me... My purpose for posting this video in hopes of finding answers. Thank for viewing!