I don't understand quite what he had.. But I am so sorry for your loss... The best words I can tell you are that you now have a beautiful guardian angel watching over you and waiting for you when its your time to leave this place... This was a beautiful tribute, thank you for sharing it with the world... I hope for peace for your family now..
i to have ACM 1 your little angel will will not go thru alot of pain which certainly comes with this awfull condition, he must have had ACM 2. with the large herniation he had he must have had allot of complcations. god bless you and jacob he is now with the angels and will not suffer the effects of this miserable condition.
R. I. P May God bless u all i'm soooo sorry for your lost. I want 2 thanu frm the bottom of my heart. I am a sufferer of this disease i still battle every day. Surgery after surgey so i know the struggles u face. He truly is a bright light that will remain 2 shine. I will fwd this video to allow others 2 learn more about this rare disease. JACOB gone but NEVER forgotten.
I am so sorry for your loss. He is smiling I am sure, looks like he was very loved and had great times in his short life. He is looking down on you and will forever be with you. I pray for your strength and faith that he is in great hands. Rest in Peace Prince Jacob! Shine baby boy, shine!!
im really sorry to hear and see this but i feel so bad he is in good hands now he is back to his maker say a prayer for him if u ever see him in ur dreams may he rip
Also, there was a post saying that my dad did not approve that stated that Jacob having ACM was my fault because only people who do drugs have children with it...and that is completely false. Arnold Chiari is a birth defect and has absolutely nothing to do with what a mother does or does not due while she is pregnant. Some people can have Chiari and never know because they have no symptoms, others, like Jacob are unfortunate and lose their lives because of this horrible disease. continued....
I would just like to say to everyone who sees this...there have apparantly been some different views as to how Jacob died, but I am writing this as Jacob's mother. Jacob was a happy, loving child and did die from Arnold Chiari Malformation. The primary cause of death was central apnea due to Arnold Chiari Malformation II, related to Myelomeningocele(Spina Bifida). In my opinion ACM did kill my son because without it, he would not have had any of the other issues that he had. to be continued....
its all that nuclear crap/chemical and everythin shit. it just aint natural, and we breath it everyday we just dont know it. einstein made a big mistake.
I'm so sorry Jacob! I have ACM too, but I live as a normal person. Last year I've got some photos of my brain, unfortunately I don't understand them. I'm 20 and I knew about my disease for one year. I have symptoms, for example headache and my hand are trembeling a lot.
God shall wipe all tears from eyes and there will be no death nor sorrow for the former things will passed away. Praise God for that hope inside all those who believe.
I'm soo sorry for your loss.. its' hard as a family to deal with the problems of this condition can cause. I found your video as it was related to mine, my son also has ACM. God Bless you and thank you for having the courage to post this. Awareness is the key. My heart goes out to you.
I am also terribly sorry for your loss. What a lovely tribute to your little ((Jacob)). I've had 3 surgeries due to Arnold Chiari Malformation. Bless your family, and may Jacob's smile live forever in your hearts.
Hi, I am so sorry 2 hear about ur loss. I was diagnosed with Arnold Chiari Malformation with Syringomyelia at this tym last year. However I was luckier than Jacob n managed to survive afta extensive brain surgery last Nov. This video touched my heart as I understand some of wat it feels like 2 b in the position of havin a life threatening condition. I felt I should say something 2 explain how sorry I am 4 your family. You will be in my thoughts...
My granddaughter has this.....she is 8 now...Blessings to you and your family
RIP Jacob.
fulloffaith100 5 months ago
RIP =(
cestrc 1 year ago
RIP =(
cestrc 1 year ago
I don't understand quite what he had.. But I am so sorry for your loss... The best words I can tell you are that you now have a beautiful guardian angel watching over you and waiting for you when its your time to leave this place... This was a beautiful tribute, thank you for sharing it with the world... I hope for peace for your family now..
honorofsnow 1 year ago
My son has chiari 1 aswell.
asherah20 2 years ago
RIP
XVOOM2 2 years ago
R.I.P. Jacob! God hold Jacob in his hands... I believe He needed this little soul to help others. Bless You All!!!!!! R.I.P.
mickykrovo 2 years ago
i to have ACM 1 your little angel will will not go thru alot of pain which certainly comes with this awfull condition, he must have had ACM 2. with the large herniation he had he must have had allot of complcations. god bless you and jacob he is now with the angels and will not suffer the effects of this miserable condition.
tamara50ish 2 years ago
Chiari,it is tragic-- all neurosurgeons need to be informed about this disease. Sorry for your loss.
PtAltmVansanTarr 2 years ago
R.I.P. ...WE LOVE YOU...FROM ITALY
cumasch76 2 years ago
R. I. P May God bless u all i'm soooo sorry for your lost. I want 2 thanu frm the bottom of my heart. I am a sufferer of this disease i still battle every day. Surgery after surgey so i know the struggles u face. He truly is a bright light that will remain 2 shine. I will fwd this video to allow others 2 learn more about this rare disease. JACOB gone but NEVER forgotten.
OmizTee 2 years ago
GOD NEED HIM!
RIP
aztekamx87 3 years ago
wonderful video. I am sorry for your loss.
kikigabriel1 3 years ago
R.I.P
asiansofamerica 3 years ago
I am so sorry for your loss. He is smiling I am sure, looks like he was very loved and had great times in his short life. He is looking down on you and will forever be with you. I pray for your strength and faith that he is in great hands. Rest in Peace Prince Jacob! Shine baby boy, shine!!
LAA1997 3 years ago
Beautiful baby. God bless you and your family.
lolomartin25 3 years ago
im really sorry to hear and see this but i feel so bad he is in good hands now he is back to his maker say a prayer for him if u ever see him in ur dreams may he rip
love,
Coleybabey1201
coleybabey1201 3 years ago
o my god im so sorry im sure that god is taking great care of him but always say a prayer for him if u ever see him in ur dreams
so sorry,
coleeybabey1201
coleybabey1201 3 years ago
that is sad!!butjust think he is healthy in gods place!!
cuttiepie1996 3 years ago
RIP.
duegully 3 years ago
oh my that is a awful thing to lost you son. But don't worry because he's in god's hands & he will bless him & your family.
tazmania419 3 years ago
I'm so sorry Jacob!Monica, Italy.
monikacap 3 years ago
Rest In Peace Jacob
f1273b8 3 years ago
So sorry for the lost of your beautiful child, Jacob is home now, no pain, no sorrow, only love and chasing butterflies.
jmc3535 3 years ago
beautiful boy, looks like your time here was happy, so sorry for your family's loss - but you will meet them again
closingtime77 3 years ago
hes a cute kid
pinkslip1533 3 years ago
:(rip
0643242008 3 years ago
Also, there was a post saying that my dad did not approve that stated that Jacob having ACM was my fault because only people who do drugs have children with it...and that is completely false. Arnold Chiari is a birth defect and has absolutely nothing to do with what a mother does or does not due while she is pregnant. Some people can have Chiari and never know because they have no symptoms, others, like Jacob are unfortunate and lose their lives because of this horrible disease. continued....
monkeybiz85 3 years ago
I would just like to say to everyone who sees this...there have apparantly been some different views as to how Jacob died, but I am writing this as Jacob's mother. Jacob was a happy, loving child and did die from Arnold Chiari Malformation. The primary cause of death was central apnea due to Arnold Chiari Malformation II, related to Myelomeningocele(Spina Bifida). In my opinion ACM did kill my son because without it, he would not have had any of the other issues that he had. to be continued....
monkeybiz85 3 years ago
RIP little dude...an isperation to all with difficulties...keep fighting.
R3MiXxX3 4 years ago
new forum:
arnold - chiari . com
JaviExAmandi 4 years ago
its all that nuclear crap/chemical and everythin shit. it just aint natural, and we breath it everyday we just dont know it. einstein made a big mistake.
punisher77phuq 4 years ago 2
Rest In Peace little Jacob
kingbusta420 4 years ago
Poor puppy ... I am so sorry for your loss (Francesca,Italy)
francella1985 4 years ago
i'm so sorry for you..
warrock186 4 years ago
my kids name is tyler jacob! i like their taste in names... :)
wickedkewlmommy 4 years ago
I'm so sorry Jacob! I have ACM too, but I live as a normal person. Last year I've got some photos of my brain, unfortunately I don't understand them. I'm 20 and I knew about my disease for one year. I have symptoms, for example headache and my hand are trembeling a lot.
Well, deepest sympathy!
Krisztina
xtichan 4 years ago
God shall wipe all tears from eyes and there will be no death nor sorrow for the former things will passed away. Praise God for that hope inside all those who believe.
soulseeker95 4 years ago
Just for your info you dont die from Chiari you die from the complications surrounding it. What other problems did he have. So sorry
razzle5150 4 years ago
I dont care who you are that is very rude to say to anyone...she lost her child...you do die from the complication from ACm.
KekeC1031 4 years ago
How dare you!!! Your rude.
tazmania419 3 years ago
i had arnold chiari malformation too and thanks god nothing happened to me... im sorry
alejoroca5 4 years ago
That's what is on the death certificate for cause of death. I think the MD. probably meant complications associated with ACM. Thanks.
willierooster 4 years ago
i am so sorry:(
whiskers212 4 years ago
i am sorry for your loss, you will be reunited with jacob in heaven.
timothyjcarr 4 years ago
my condolence by Cristian (Italy)
spankyz83 4 years ago
children are so sweet *_*
knuff
Emoleichen 4 years ago
I'm soo sorry for your loss.. its' hard as a family to deal with the problems of this condition can cause. I found your video as it was related to mine, my son also has ACM. God Bless you and thank you for having the courage to post this. Awareness is the key. My heart goes out to you.
Sincerely,
Rhonda and Alex
Lollipop12104 4 years ago
God Bless
dreamingok 4 years ago
Our thoughts and prayers are with you and your family. May God bring you the peace and comfort that only he can bring.
ljdrawdy 4 years ago
my condolence such a cute boy
awwwbordel 4 years ago
You have my condolences and my upmost sympathy. My friend suffered the same thing, and I know how it must feel. My prayers are with you and Jacob...
Shana007 4 years ago
c'est un ange.. et les anges vivent au ciel..
bichouh 4 years ago 2
Sorry for your loss. Always keep his memory alive. God Bless
Fishman6007 4 years ago
heart-breaking
laredofreak 4 years ago
lindo homenaje.....saludos y mucho apoyo desde chile
marzelaw 4 years ago
Im sorry for your loss.you have my condolence.
Ellypssia24 4 years ago
What a beautiful little boy! There are no words....
SkylineTime 4 years ago
I am also terribly sorry for your loss. What a lovely tribute to your little ((Jacob)). I've had 3 surgeries due to Arnold Chiari Malformation. Bless your family, and may Jacob's smile live forever in your hearts.
AlohaBec 4 years ago
Thanks so much for your kind thoughts.
willierooster 4 years ago
Hi, I am so sorry 2 hear about ur loss. I was diagnosed with Arnold Chiari Malformation with Syringomyelia at this tym last year. However I was luckier than Jacob n managed to survive afta extensive brain surgery last Nov. This video touched my heart as I understand some of wat it feels like 2 b in the position of havin a life threatening condition. I felt I should say something 2 explain how sorry I am 4 your family. You will be in my thoughts...
.x.x.x.
.x.x.
.x.
XxXAbbyXxX456 4 years ago
Thanks for your kind words and I wish you well.
Peace,
David
willierooster 4 years ago