Added: 4 years ago
From: willierooster
Views: 77,374
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  • My granddaughter has this.....she is 8 now...Blessings to you and your family

    RIP Jacob.

  • RIP =(

  • RIP =(

  • I don't understand quite what he had.. But I am so sorry for your loss... The best words I can tell you are that you now have a beautiful guardian angel watching over you and waiting for you when its your time to leave this place... This was a beautiful tribute, thank you for sharing it with the world... I hope for peace for your family now..

  • My son has chiari 1 aswell.

  • RIP

  • R.I.P. Jacob! God hold Jacob in his hands... I believe He needed this little soul to help others. Bless You All!!!!!! R.I.P.

  • i to have ACM 1 your little angel will will not go thru alot of pain which certainly comes with this awfull condition, he must have had ACM 2. with the large herniation he had he must have had allot of complcations. god bless you and jacob he is now with the angels and will not suffer the effects of this miserable condition.

  • Chiari,it is tragic-- all neurosurgeons need to be informed about this disease. Sorry for your loss.

  • R.I.P. ...WE LOVE YOU...FROM ITALY

  • R. I. P May God bless u all i'm soooo sorry for your lost. I want 2 thanu frm the bottom of my heart. I am a sufferer of this disease i still battle every day. Surgery after surgey so i know the struggles u face. He truly is a bright light that will remain 2 shine. I will fwd this video to allow others 2 learn more about this rare disease. JACOB gone but NEVER forgotten.

  • GOD NEED HIM!

    RIP

  • wonderful video. I am sorry for your loss.

  • R.I.P

  • I am so sorry for your loss. He is smiling I am sure, looks like he was very loved and had great times in his short life. He is looking down on you and will forever be with you. I pray for your strength and faith that he is in great hands. Rest in Peace Prince Jacob! Shine baby boy, shine!!

  • Beautiful baby. God bless you and your family.

  • im really sorry to hear and see this but i feel so bad he is in good hands now he is back to his maker say a prayer for him if u ever see him in ur dreams may he rip

    love,

    Coleybabey1201

  • o my god im so sorry im sure that god is taking great care of him but always say a prayer for him if u ever see him in ur dreams

    so sorry,

    coleeybabey1201

  • that is sad!!butjust think he is healthy in gods place!!

  • RIP.

  • oh my that is a awful thing to lost you son. But don't worry because he's in god's hands & he will bless him & your family.

  • I'm so sorry Jacob!Monica, Italy.

  • Rest In Peace Jacob

  • So sorry for the lost of your beautiful child, Jacob is home now, no pain, no sorrow, only love and chasing butterflies.

  • beautiful boy, looks like your time here was happy, so sorry for your family's loss - but you will meet them again

  • hes a cute kid

  • :(rip

  • Also, there was a post saying that my dad did not approve that stated that Jacob having ACM was my fault because only people who do drugs have children with it...and that is completely false. Arnold Chiari is a birth defect and has absolutely nothing to do with what a mother does or does not due while she is pregnant. Some people can have Chiari and never know because they have no symptoms, others, like Jacob are unfortunate and lose their lives because of this horrible disease. continued....

  • I would just like to say to everyone who sees this...there have apparantly been some different views as to how Jacob died, but I am writing this as Jacob's mother. Jacob was a happy, loving child and did die from Arnold Chiari Malformation. The primary cause of death was central apnea due to Arnold Chiari Malformation II, related to Myelomeningocele(Spina Bifida). In my opinion ACM did kill my son because without it, he would not have had any of the other issues that he had. to be continued....

  • RIP little dude...an isperation to all with difficulties...keep fighting.

  • new forum:

    arnold - chiari . com

  • its all that nuclear crap/chemical and everythin shit. it just aint natural, and we breath it everyday we just dont know it. einstein made a big mistake.

  • Rest In Peace little Jacob

  • Poor puppy ... I am so sorry for your loss (Francesca,Italy)

  • i'm so sorry for you..

  • my kids name is tyler jacob! i like their taste in names... :)

  • I'm so sorry Jacob! I have ACM too, but I live as a normal person. Last year I've got some photos of my brain, unfortunately I don't understand them. I'm 20 and I knew about my disease for one year. I have symptoms, for example headache and my hand are trembeling a lot.

    Well, deepest sympathy!

    Krisztina

  • God shall wipe all tears from eyes and there will be no death nor sorrow for the former things will passed away. Praise God for that hope inside all those who believe.

  • Just for your info you dont die from Chiari you die from the complications surrounding it. What other problems did he have. So sorry

  • I dont care who you are that is very rude to say to anyone...she lost her child...you do die from the complication from ACm.

  • How dare you!!! Your rude.

  • i had arnold chiari malformation too and thanks god nothing happened to me... im sorry

  • That's what is on the death certificate for cause of death. I think the MD. probably meant complications associated with ACM. Thanks.

  • i am so sorry:(

  • i am sorry for your loss, you will be reunited with jacob in heaven.

  • my condolence by Cristian (Italy)

  • children are so sweet *_*

    knuff

  • I'm soo sorry for your loss.. its' hard as a family to deal with the problems of this condition can cause. I found your video as it was related to mine, my son also has ACM. God Bless you and thank you for having the courage to post this. Awareness is the key. My heart goes out to you.

    Sincerely,

    Rhonda and Alex

  • God Bless

  • Our thoughts and prayers are with you and your family. May God bring you the peace and comfort that only he can bring.

  • my condolence such a cute boy

  • You have my condolences and my upmost sympathy. My friend suffered the same thing, and I know how it must feel. My prayers are with you and Jacob...

  • c'est un ange.. et les anges vivent au ciel..

  • Sorry for your loss. Always keep his memory alive. God Bless

  • heart-breaking

  • lindo homenaje.....saludos y mucho apoyo desde chile

  • Im sorry for your loss.you have my condolence.

  • What a beautiful little boy!  There are no words....

  • I am also terribly sorry for your loss. What a lovely tribute to your little ((Jacob)). I've had 3 surgeries due to Arnold Chiari Malformation. Bless your family, and may Jacob's smile live forever in your hearts.

  • Thanks so much for your kind thoughts.

  • Hi, I am so sorry 2 hear about ur loss. I was diagnosed with Arnold Chiari Malformation with Syringomyelia at this tym last year. However I was luckier than Jacob n managed to survive afta extensive brain surgery last Nov. This video touched my heart as I understand some of wat it feels like 2 b in the position of havin a life threatening condition. I felt I should say something 2 explain how sorry I am 4 your family. You will be in my thoughts...

    .x.x.x.

    .x.x.

    .x.

  • Thanks for your kind words and I wish you well.

    Peace,

    David

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