In 1966 Lyme Disease was unheard of in California, but I still got it walking in the woods. The years of hospitalizations and misdiagnosis until treatment in 1988 were unbelievable torture to me and my family.
When will the government wake up to the truth of Chronic Lyme? How many more have to die? I take antibiotics every day trying to stay in the "now." Hopefully they will continue to work for a while longer
I feel the same as Leslie, I am out spoken on this LD! I am better than I was a year ago. Yet I feel that this disease has numbered my days! I am 37. I feel my time left here on earth is a race! It is a race to warn others. It is a fight not against LD anymore but a Fight against regulation and corrupt government agencies. It Isn't a fight for my life anymore...... It is a fight for others !!!!
It is a fight to Educate I am angry too that I am ignored by so many!
As a retired military pilot, I thought I had seen it all. My hatred for humankind for needlessly killing others couldn’t be reached, yet, this woman touched me. I will, if nothing else, donate money to help find a cure for Lyme disease in her memory. It was a pleasure meeting you, Leslie Wermers.
Yep. I get it. I've got it...Since 1974. Diagnosed in 8/07. Treated...being re-treated since 8/09. That could have been me - verbatim. I did lose a lot of my identity accomplishments after disabilty. I still have my core identity and my God-given purpose, thankfully. I love America. Some things need to be fixed. Enabling greed is one of them. We need research, cure, and vaccine, without greedy intities hoarding info. Period. UR right - too many too sick to fight, let alone brush our teeth.
Just to update... my 11 year old daughter has also been daignosed with Lyme. We are sure it was passed congenitally. My 4 year old is waiting to be tested now. Thank you Lelsey for being so strong.. In memory of everyon who has lost their life and fought so hard.. our family will also fight.
I have had lyme disease for 23 years and noone would listen.. I eventually got a diagnosis a positive serology.. now im so sick but I want to fight.. not just for me but for everyone out there.. everyone who has this disease..
There's not a day that goes by that I don't think about you Leslie. I still can't bring myself to take your name off my email contacts or cell phone book. I know you are looking down and fighting from above. You are so very missed my dear friend. It brings me comfort to know you are whole again, and not in pain anymore. I continue to fight in your honor. I continue to help others in your name. Rest in peace sweet Leslie.
56wiser - I hear ya, same here my whole family has LD, I am the worst as well.
AlabamaLori- get on Samento, Lauricidin, Olive leaf Extract, Garlic, look into natural cures, they have proved to be as effective in many cases as antibiotics. Wish I could give links here, many at my website click on my user name here, watch video to see website - much information for anyone who needs it.
Leslie - I will keep up the fight like you until the day I die. Thanks for all you did, we will miss you. D~
I have been suffering with chronic Lyme since 1998. Told I was cured of Lyme after 2 weeks of antiboitics. The symptoms were so bad after a year, they said I needed a hyster. due to horrid PMS symptoms,...2 years later, found out biopsy was normal, then diag.w/ fibro., chronic fatigue, IBS, sev depression, surgical menopause, bulging discs/spine, torn knee meniscus, mult. infections;now they say I am bipolar. Head meds nearly killed me 3X. IgeneX says Lyme; cant afford meds. Feel I am next.
My extended family does not even believe in Lyme because the almighty doctors say it couldnt be that. I used to be very successful with a great career until I was 36;I haven't been able to work now regularly for nearly ten years. I was denied disablility 3 times already. I have lost my good name in credit. I have insurance, does me no good, cant even afford the co-pays. Have to drive 8 hours to see an LLMD which is great but the meds cost 1300 a month then I get reimbursed 80%, cant pay 20%
I suggest that if you aren't allergic to it, you should regularly eat raw garlic (tastes okay when mixed into hummous or salad dressing) because it is a natural broad spectrum antibiotic or else take a good 'Allicin' supplement if you can handle the strong herx reactions. It's precisely what I'd do if I couldn't afford the meds (luckily my parents are paying for my abx so I don't need to).
You sound like me. I had it for probably 15 years.
I stayed in really good shape and gutted it out.
It went active after an encounter with Black mold.
Never been so sick in my life, lost my memory, rages etc. I thought it was chronic EBV which it was but actually its a co infection from my lack of immune system, too busy dealing with the spirochetes. Western blot was positive. I was excited about IV abs but now I am not so optimistic. Does anyone get better on the IVs?
My band aid to keep my energy up is a drug called Roboxitine. It boosts nor epinephrine and dopamine in the brain. I can work while on it, without it I am a mess. You might want to look into it.
God almighty, WHEN will this madness stop?? My entire family has LD etc. I am the most ill. We have lost everything. Leslie, God be with you in paradise. I too, know I'll die from this disease but helping others over the years has been my greatest gift. I was an OR RN, my husband has his MBA but lost his job. WHY would we give all that up to "pretend" we're very ill?? We hear you, we thank you, we love you! My tears are from sheer frustration because this didn't have to happen to you.
I've come across so many strange deaths in this lifetime, and this is but another one, to so sweet a soul as hers most certainly IS. Leslie has touched many lives, and surely that lives on in her name within the hearts of many.
I just found out about Leslie. I can't stop crying, I am just devistated. She was a WONDERFUL friend to me. and she will be missed so much. It is because of her that I have been able to help so many other lymies. Thank you Leslie for everything. I will miss you so much.
I once told a someone that the quality of life I have isn't that different from a patient with end stage AIDS or on chemo and he seemed annoyed saying cr@p like "Oh it's not as bad as cancer". I think he should see this and if he doesn't eat his words, then I'll know it's time to delete him from my msn and try to forget I ever knew him.
I have had Lyme since 06/00. The most poignant part of, "Under Our Skin" is when Leslie says (and I'm paraphrasing) "I'm angry because I'm being ignored. I'm angry that there is a Hippocratic oath that says that these doctors are supposed to help me and instead they blamed it ON me by telling me it's all in my head."
I never knew her personally, but I can say that I know/knew her physically, mentally, emotionally, and spiritually. God Speed Leslie. Jennifer (aka JELAINEP)
I so relate to this lady's story. Please share this video with anyone you know who's children or a family member is suffering from autism, multiple sclerosis, or even Lou Gehrig's Diseas Amyotrophic lateral sclerosis (ALS). Although proof does not exist, I was convinced that I had one of the two later mentioned diseases before I was finally diagnosed with Lyme. I believe (I admit I'm not a doctor) that there are still many people around the country that don't know they have Lyme Disease.
Leslie - your death has sent ripples into the community which will turn into big waves. Your death was not in vain - it will raise Lyme awareness as so many knew and loved you - and much will be done in your honor and memory. We all loved you and love you - and will miss you, Lynn
How she new that she was going to die from lyme ~ so Sad. I to Would invite anyone inside my body Leslie! How I can not even go out in the sun - or eat certain foods because of lyme .. and possibly LUPUS.
They always ask me, HOW DO YOU FEEL, WHAT WOULD HAPPEND IF YOU AT THAT !!>? Some times I feel so sad - But I am feeling better than I use to ! And Always try to keep my head up , and Try to help other and spread the word about LYME GOD bless you LESLIE
God Bless you Leslie ., We ned more people like you !!!!
I went to see "Under our Skin" when It came out in new york last year. And I just went to a Lyme fund raiser - for a doctor .. who treat ! AND DIED FROM LYME . His wife who is a doctor - and daughter also have it. Lyme Has ruined my Life - I can not longer do what I want for a living . I have not seen a check in 15 months , and can not collect dissability because it always comes out negative. LYME IS A NIGHTMARE~!
Thank you, Leslie, for your brave fight.
In 1966 Lyme Disease was unheard of in California, but I still got it walking in the woods. The years of hospitalizations and misdiagnosis until treatment in 1988 were unbelievable torture to me and my family.
When will the government wake up to the truth of Chronic Lyme? How many more have to die? I take antibiotics every day trying to stay in the "now." Hopefully they will continue to work for a while longer
Again, Thank you Leslie.
BeadnStars 1 year ago
We miss you so much Leslie.
lymefighter30 1 year ago
I feel the same as Leslie, I am out spoken on this LD! I am better than I was a year ago. Yet I feel that this disease has numbered my days! I am 37. I feel my time left here on earth is a race! It is a race to warn others. It is a fight not against LD anymore but a Fight against regulation and corrupt government agencies. It Isn't a fight for my life anymore...... It is a fight for others !!!!
It is a fight to Educate I am angry too that I am ignored by so many!
metieval 1 year ago
As a retired military pilot, I thought I had seen it all. My hatred for humankind for needlessly killing others couldn’t be reached, yet, this woman touched me. I will, if nothing else, donate money to help find a cure for Lyme disease in her memory. It was a pleasure meeting you, Leslie Wermers.
controversialbook 1 year ago
thx for being there for me.
momu4get 1 year ago
Thank you Leslie for all you did and continue you to do with your VOICE! RIP you did not die in vain!
tracymelhorn71 1 year ago
love you leslie...
lynnmichaels1 1 year ago
Yep. I get it. I've got it...Since 1974. Diagnosed in 8/07. Treated...being re-treated since 8/09. That could have been me - verbatim. I did lose a lot of my identity accomplishments after disabilty. I still have my core identity and my God-given purpose, thankfully. I love America. Some things need to be fixed. Enabling greed is one of them. We need research, cure, and vaccine, without greedy intities hoarding info. Period. UR right - too many too sick to fight, let alone brush our teeth.
txsherrie 2 years ago
Just to update... my 11 year old daughter has also been daignosed with Lyme. We are sure it was passed congenitally. My 4 year old is waiting to be tested now. Thank you Lelsey for being so strong.. In memory of everyon who has lost their life and fought so hard.. our family will also fight.
poppymoone 2 years ago
I am on a Picc line for lyme...this disease robs so many lives !
Thank you Leslie, You did so much for so many. Rest in Peace sweet one.
Cammster101 2 years ago
I have had lyme disease for 23 years and noone would listen.. I eventually got a diagnosis a positive serology.. now im so sick but I want to fight.. not just for me but for everyone out there.. everyone who has this disease..
poppymoone 2 years ago 3
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Prethenie 2 years ago
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Prethenie 2 years ago
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Prethenie 2 years ago
There's not a day that goes by that I don't think about you Leslie. I still can't bring myself to take your name off my email contacts or cell phone book. I know you are looking down and fighting from above. You are so very missed my dear friend. It brings me comfort to know you are whole again, and not in pain anymore. I continue to fight in your honor. I continue to help others in your name. Rest in peace sweet Leslie.
lymefighter30 3 years ago 4
when will this madness stop?! rest in peace, leslie. we will continue the fight. your legacy remembered.
i see this and know you were my family, even though i never knew you personally. LOVE.
heiwalove 3 years ago 4
Thanks for posting the video.
apmail6 3 years ago 2
56wiser - I hear ya, same here my whole family has LD, I am the worst as well.
AlabamaLori- get on Samento, Lauricidin, Olive leaf Extract, Garlic, look into natural cures, they have proved to be as effective in many cases as antibiotics. Wish I could give links here, many at my website click on my user name here, watch video to see website - much information for anyone who needs it.
Leslie - I will keep up the fight like you until the day I die. Thanks for all you did, we will miss you. D~
TruthAboutLD 3 years ago 3
I have been suffering with chronic Lyme since 1998. Told I was cured of Lyme after 2 weeks of antiboitics. The symptoms were so bad after a year, they said I needed a hyster. due to horrid PMS symptoms,...2 years later, found out biopsy was normal, then diag.w/ fibro., chronic fatigue, IBS, sev depression, surgical menopause, bulging discs/spine, torn knee meniscus, mult. infections;now they say I am bipolar. Head meds nearly killed me 3X. IgeneX says Lyme; cant afford meds. Feel I am next.
AlabamaLori 3 years ago 3
My extended family does not even believe in Lyme because the almighty doctors say it couldnt be that. I used to be very successful with a great career until I was 36;I haven't been able to work now regularly for nearly ten years. I was denied disablility 3 times already. I have lost my good name in credit. I have insurance, does me no good, cant even afford the co-pays. Have to drive 8 hours to see an LLMD which is great but the meds cost 1300 a month then I get reimbursed 80%, cant pay 20%
AlabamaLori 3 years ago 3
I suggest that if you aren't allergic to it, you should regularly eat raw garlic (tastes okay when mixed into hummous or salad dressing) because it is a natural broad spectrum antibiotic or else take a good 'Allicin' supplement if you can handle the strong herx reactions. It's precisely what I'd do if I couldn't afford the meds (luckily my parents are paying for my abx so I don't need to).
neelubird 3 years ago
You sound like me. I had it for probably 15 years.
I stayed in really good shape and gutted it out.
It went active after an encounter with Black mold.
Never been so sick in my life, lost my memory, rages etc. I thought it was chronic EBV which it was but actually its a co infection from my lack of immune system, too busy dealing with the spirochetes. Western blot was positive. I was excited about IV abs but now I am not so optimistic. Does anyone get better on the IVs?
goblin072 2 years ago 2
My band aid to keep my energy up is a drug called Roboxitine. It boosts nor epinephrine and dopamine in the brain. I can work while on it, without it I am a mess. You might want to look into it.
goblin072 2 years ago 2
God almighty, WHEN will this madness stop?? My entire family has LD etc. I am the most ill. We have lost everything. Leslie, God be with you in paradise. I too, know I'll die from this disease but helping others over the years has been my greatest gift. I was an OR RN, my husband has his MBA but lost his job. WHY would we give all that up to "pretend" we're very ill?? We hear you, we thank you, we love you! My tears are from sheer frustration because this didn't have to happen to you.
56wiser 3 years ago
I've come across so many strange deaths in this lifetime, and this is but another one, to so sweet a soul as hers most certainly IS. Leslie has touched many lives, and surely that lives on in her name within the hearts of many.
truthsleuth 3 years ago
RIP Leslie u will be missed,,JENN
JENBKLYN 3 years ago 2
Hey,Leslie was a friend of mine fr a lyme support grp,,She will be missed,RIP
JENBKLYN 3 years ago
I just found out about Leslie. I can't stop crying, I am just devistated. She was a WONDERFUL friend to me. and she will be missed so much. It is because of her that I have been able to help so many other lymies. Thank you Leslie for everything. I will miss you so much.
love you sweetie.
lymefighter30 3 years ago 2
I once told a someone that the quality of life I have isn't that different from a patient with end stage AIDS or on chemo and he seemed annoyed saying cr@p like "Oh it's not as bad as cancer". I think he should see this and if he doesn't eat his words, then I'll know it's time to delete him from my msn and try to forget I ever knew him.
neelubird 3 years ago 21
Going to miss you hear on earth
and I you will continue your
work elsewhere.
God Bless you and your family
during this time and always!
Karen Marie
kmwmar 3 years ago 2
I have had Lyme since 06/00. The most poignant part of, "Under Our Skin" is when Leslie says (and I'm paraphrasing) "I'm angry because I'm being ignored. I'm angry that there is a Hippocratic oath that says that these doctors are supposed to help me and instead they blamed it ON me by telling me it's all in my head."
I never knew her personally, but I can say that I know/knew her physically, mentally, emotionally, and spiritually. God Speed Leslie. Jennifer (aka JELAINEP)
JELAINEP 3 years ago 10
May God Bless you and keep you safe in his mighty kingdom Free from all the pain you have had
forever in my heart
harleygal60 3 years ago
I so relate to this lady's story. Please share this video with anyone you know who's children or a family member is suffering from autism, multiple sclerosis, or even Lou Gehrig's Diseas Amyotrophic lateral sclerosis (ALS). Although proof does not exist, I was convinced that I had one of the two later mentioned diseases before I was finally diagnosed with Lyme. I believe (I admit I'm not a doctor) that there are still many people around the country that don't know they have Lyme Disease.
joezepy 3 years ago 2
Leslie - your death has sent ripples into the community which will turn into big waves. Your death was not in vain - it will raise Lyme awareness as so many knew and loved you - and much will be done in your honor and memory. We all loved you and love you - and will miss you, Lynn
elijahnyc 3 years ago
This vidoe is so scary .,
How she new that she was going to die from lyme ~ so Sad. I to Would invite anyone inside my body Leslie! How I can not even go out in the sun - or eat certain foods because of lyme .. and possibly LUPUS.
They always ask me, HOW DO YOU FEEL, WHAT WOULD HAPPEND IF YOU AT THAT !!>? Some times I feel so sad - But I am feeling better than I use to ! And Always try to keep my head up , and Try to help other and spread the word about LYME GOD bless you LESLIE
crazygeo81 3 years ago
God Bless you Leslie ., We ned more people like you !!!!
I went to see "Under our Skin" when It came out in new york last year. And I just went to a Lyme fund raiser - for a doctor .. who treat ! AND DIED FROM LYME . His wife who is a doctor - and daughter also have it. Lyme Has ruined my Life - I can not longer do what I want for a living . I have not seen a check in 15 months , and can not collect dissability because it always comes out negative. LYME IS A NIGHTMARE~!
crazygeo81 3 years ago 2
God bless you Leslie. God bless you.
cleric1104 3 years ago 2