This is way weird. My son Gavin has HLHS and TGA as well. Instead heterotaxy and r atrial isomerism, Gavin was born with Situs Inversus, so his internal parts are flip flopped (stomach, liver etc.) It was a situation Children's Mercy hospital had never remembered seein, so I know how it is to have compound defects. Gavin is my little miracle and is almost 2 now. He's my buddy and doesn't appear to be slowed down one bit. It's amazing isn't it?
This is way weird. My son Gavin has HLHS and TGA as well. Instead heterotaxy and r atrial isomerism, Gavin was born with Situs Inversus, so his internal parts are flip flopped (stomach, liver etc.) It was a situation Children's Mercy hospital had never remembered seein, so I know how it is to have compound defects. Gavin is my little miracle and is almost 2 now. He's my buddy and doesn't appear to be slowed down one bit. It's amazing isn't it?
browneyes1386 11 months ago
i wish you all the health well and strength. God bless you. so touching =")
talhateen101 2 years ago
Oh you guys what a sweet video. I love it. He is so adorable. So glad you did this for others to learn about HLHS.
13Chrissie 2 years ago