Best of luck Michelle, I hope you get the cogs of the Medical Community/Pharmacoms machine turning so you and you kin can get some relief'. An unbroken sleep in the very least.
@sarabellemilne Find a way to throw money at them then. Money or influence They'll move on it in a heartbeat. How you go about getting that money? I don't know. I'd probably find someone in the US Congress, or better yet, Hollywood who is at least affected within their family. It's a shame it has to be that way, but fuck it, use the system in your favor.
Naive perhaps, and maybe laughable coming from a non-sufferer, but if I there was a way for me to help, I would.
thank you for giving me a voice. i have had fibro for over 20 years and i don't know why we feel guilty for being sick. it's crazy. i don't talk about it even to my family because i have somehow been made to feel its my fault. so thank you, i intend to speak your words next time i get a chance. i have almost stopped talking because pain has changed the way i speak, the way i process words and express myself. thank you
Michelle, Thanks for being there. Don't ever stop. I am so damned tired of trying to explain to my grown children that I am sick. Diagnosed in 1986, I have had two breaks in fibro, both when I was pregnant. I would think that would be a key to study but hell no. I am not the only one who has had there symptoms subside during pregnancy. All of My Grown Children have said horrific things to me. The latest being You use FM as a CRUTCH. You take too many pills, Do Yoga & Tai Chi. MADDENING.
@01Ellera1 I am 47 yrs old and was diagnosed is 89. They finally called it Chronic Fatigue Syndrome.
My children are all grown and also say the same things. You need to "stop thinking about it", that's my favorite one.
I would love to take care of my grandchildren all the time, and when I do, it takes me 1-2 days to recover, therefore I am a "Bad Grondmother". My daughter yells at me asking me if I know how "Selfish" I am.
They can kiss my ass about anti depressants. And as far as Lyric goes, that stuff didn't do a damn thing. Rambling is part of fibro, brain fog. You mourn the life you lost. This is classic of what I have heard from alot other women I know online. You go places? It's very hard to get out and do things. We are in pain every day. We are in pain in sleep. My former Endo said a hysterectomy is one of the things that send women to him with Fibro/Hashimotos
I too suffer from fibromyalgia and have for so many years. Sometimes the pain is too much to bear and I can’t imagine going on another day feeling this way. But then I found a comforting scripture in the Bible. Revelation 21:4 says “And he will wipe out every tear from their eyes and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.” This is a promise from Jehovah God. This helps me cope day by day.
Wow. I like your straight forward approach to this. I haven't been formally diagnosed with this but 3 doctors (playing the send her to the next specialist game) all said, you may have fibromyalgia, you need to go to ANOTHER doctor (rheumatologist) to get diagnosed. I am in pain all the time. The morning is horrid because my shoulders hurt so bad it is almost impossible to wipe after I pee. I stumbled on this looking for answers. There are no answers, only pain.
Michelle, you keep up with your comments, and that is GOOD! Will you contact me at a a h h massage at G mail? I had to spread it out, or it said there was an error. I learned massage while taking pain pills, then learned how to deal with my own pain. I got off the pills in 06 and have been 'managing' without them ever since. I would like to share some things I learned with you. I don't get into diet or anything else, just how to alleviate the pain. Anyone else who wants can contact me too.....
The Pharmaceutical companies having a filed day with making money off people with this Illness.... fucking sad day in America when people are sick and greedy fucks just profit off sick people !!!
hello michelle, you are telling my story...I know everything you are talking about, including the motorcycle accident (only I was the passenger on the bike)...I also have arthritis, bursitis and a spinal cord injury...I too have had many surgeries as well as a hysterectomy...Thank you
OMG! ?? the pleople still buying the pharmacy that is loaded with unnecessary side effects. I know a product that really helps the problem of fibromyalgia. Contact me for I can help you. I have a friend who was sick with Fibromyalgia and saw the whole process step by wheelchair, then using a cane and now drives his own car and speaks fluently. I can contacts for my pain de youtube searches: aaopr33 HAVE A GREAT DAY!!!!
Dear Michelle, I have gone through 14 years of fibrohell. 52 doctors, lots of treatments...lots lots...desperation, almost suicide. Now I'm really better, painfree. Start trying colonhydrotherapy, homeopathy, healthy diet, you have to detox your body for a long time!!!!No pill will resolve it. love and all the best from Switzerland. Romina
i just made a blog called living with fibromyalgia syndrome but it wont let me post the link on youtube to anyone. i loved your vid. SOO true made me laugh =]
THANK YOU for sharing...i do not have fm, but i have syringomyelia which is a neurological disease.i suffer 24/7 also.i cannot sleep at night without knocking myself the hell out (even then not much). and like you, i need to take a pill just to get out of bed to use the restroom in morning. it's hell! & so many people around me just want me 'to feel better' and that pressure is soooo depressing even more than what i am going thru.i have lost so many people in my life bc of this.it just pure hell
This is Becky. The therepy consists of multiple exercises & adjustments that over time will build strength to the core of your body & give the natural curves back to your back & neck. There is also an exercise that assists in your body pumping spinal fluid back to your brain. This exercise is done after the neck exercises that loosen up your neck to allow spinal fluid to be able to get past the spinal cord in the neck. It will be very helpful to see the website that will be up & running soon. <3
This is Becky again. I am currently still doing therepy & hope to someday be 100% pain free. A quick explaination of the therepy is that the spine is misaligned especially the neck. The neck is so bad off that the spinal fluid is not getting to the brain. There are studys that have proven that Fibro patients brains are smaller than they should be because there's a lack of spinal fluid getting to the brain which results in the brain shrinking because the brain drying up. This causes Fibro Fog.
This is Becky. My husband has been asked to video testimonials by patients & multiple lectures by the Dr. to add to a website that will kick off the opening of this new Clinic in Logan, Utah. The taping is still going on...in fact I did my testimonial a few days ago. When this website gets up & running I would love to share the site with you. I have had Fibromyalgia for over 10 years & have now been off ALL of my pain meds for the last 2 months & I am 80-85% pain free. sunkistphoto@yahoo.com
This is Becky again. This therepy I have been going through is called "The Pettibon System" My Dr. is the only "Pettibon" Dr. who is qualified at this time to care for Fibromyalgia Patients. In fact in about 5 1/2 weeks he will be opening up a Fibromyalgia Clinic @ Utah State University Campus here in Logan, Utah. People will travel from all over the U.S. & possibly the world to take part in learning the therepy for 3 months & then they will go home & finish out there therepy @ home.
Hi Michelle!!! My name is Becky & I have been participating in a Fibromyalgia Study for the past year & a month. My Dr. who is in Logan, Utah has found a break through for Fibromyalgia that I think you would be interested in. It doesn't surprise me that you were in a car accident & a motorcycle accident. In fact this is being found to either cause Fibro or at least make it worse. You can contact me @ sunkistphoto@yahoo.com I would be glad to write you more about this.
Also go to Andrew Wommack's website and watch the video's of people who have been healed. There is one of a man who has been healed from fibromyalgia. No christian has to live with disease. Jesus paid for our healing the same way he paid for our sins. I am not saying you are not a christian if you are sick. I am saying you are healed but need to understand what the bible teaches , not man made church traditional teaching that God puts disease on people to teach them something. He does not.
Mercola dot com just posted an article explaining how root canals cause bacteria to build up causing joint inflamation and other disease including fibromyalgia, lupus, and other autoimmune diseases. I see some here want no solution or cause. I have been attacked for believing there is cause and solutions if a person is willing to not give up. I know it is not easy. I have been blasted as ignorant, judging and uncaring. If I did not care, I would not write anything.
Thank you so much for making these videos! You make me feel like I am not alone. I have tried so many times to talk to everyone i care about and they think that its not that bad or they dont belive me at all. I have lost everyone in my life they all think that i lie for attention. i have been going to the doctors for everything for 10 years and they have put me one everything and it makes me sick ad doesnt help. im on meds for deppresion mood stabizers because they think im crazy.
Thank you so much for making these videos! You make me feel like I am not alone. I have tried so many times to talk to everyone i care about and they think that its not that bad or they dont belive me at all. I have lost everyone in my life they all think that i lie for attention. i have been going to the doctors for everything for 10 years and they have put me one everything and it makes me sick ad doesnt help. im on meds for deppresion mood stabizers because they think im crazy.thank you
Thank you so much for making these videos! You make me feel like I am not alone. I have tried so many times to talk to everyone i care about and they think that its not that bad or they dont belive me at all. I have lost everyone in my life they all think that i lie for attention. i have been going to the doctors for everything for 10 years and they have put me one everything and it makes me sick ad doesnt help. im on meds for deppresion mood stabizers because they think im crazy.
hi there, just wanted to say hello and that i'm really digging your videos - you are funny, smart and speak some fierce TRUTH!
my wife found your channel the other day -- she has been living a chronic pain nightmare for the last 13 yrs that has been getting worse and worse - bedridden for 7 yrs, grossly under-prescribed most of this time. your vids help her by validating her reality, and you help me understand her better, so thank you! keep going warrior woman - in peace & solidarity, Natasha
I am sorry you believe I am advertising. I gave Dr. Mercola's website info because I think it is one of the best I have found for good information. Yes he has some products because people need good products with so many bad ones out there. I also advised to go to thinktwice , vaccines are causing alot of autoimmune diseases. Don't let your pain make you unteachable and suspecious of everyone. There is one website that I did not mention but meant to awmi dot com. All the best.
This is caused by inflamation . Sugar and the are number one causitives. Then other toxins in your food and environment. Go to dr. mercola's website it is his last name plus a dot com. For eye opening facts about vaccines go to (all one word) think twice . com Drugs are only a temporary help. Nutrition and reducing your inflamation causes is your hope.
This is really sweet advice, However, there is no inflammation with FIbro. Some people might have Arthritis (which is an inflammatory disease), which mimics Fibromyalgia. 800MG of IB profen, won't touch the pain. It is caused by nerve pain...this is why cold weather makes you hurt...why don't you go and lay down on a LARGE block of ice until it melts or lye naked in the snow...then, eat a carrot...open YOUR EYES...and then post an opinion.
@cottoncandypoms I agree, thsi mcertonio eats almond milk and nuts for her diet.. Yet she is overweight. Shes obviously eating shit that her body doesnt need. Excessive calories from her comfort foods causing fibro.
@mcertonio I'm the guy who supports the paleo diet. Youre hatin on the wrong guy. Re-read my comment. I dont support milk... Haha. My fibro has been better latly :) stricter diet, more supplements, (magnesium helps) and getting out and active alot more.
I am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure for this horrific disease after 15 years of failed treatments. I understand this illness completely from the inside and back out again. Symptoms are often mistaken as a cause and what can help does not cure. Please, do not give up and keep going. See my You Tube video "Curing Chronic Fibromyalgia - Choosing What Works" and my best wishes to you all!!!
Doctors don't manage my pain either.. I want something effective. Not something that helps for like 45 minutes, and then I have to take another one and another one. Will I start bleeding internally due to poisoning myself, just wondering.
Diabetics need Insulin Pain People ask no more Duragesic patch every 48 hours-100Mcg GENERIC Fentynal WORTHLESS Roxicodone 30MGs- 4 to 6 hours Wellbutrin XL morning Hydrocort 10MG 8am & 1/2 @ NOON Xanax to sleep Guifenensen Treatment NO ONE WILL EVER UNDERSTAND unless they wak"Pain Package I AM so tired of advice WHEN THEY HAVE no education or understanding I tell people I am 43 I star KEEP TRYING laugh at Ignorance
@mcertonio Hi Michelle, I want to start with I've been watching many of your videos.. You seem to be the most honest and T/God down to earth person when speaking your mind as well as your feelings, as I listen I can't help but it almost seems as though your speaking (my) thoughts..well theres so much I could get into but for now I want to express the PAIN !! I see the meds your on, I was on a few of them also now the Drs. put me on Valuim 10milgs 3x day/ oxicodone for break-thru pain, 15milgs
There is no medical hope and will never be. Only remedial treatment can help. Medical help was always misunderstood by doctors and they knows that. As long as you pay for their visits and medication is OK, but that's all. Now: are you developing stomach ache, extreme fatigue, diorrhoea or constipation, poor memory and concentration, sleepless nights, waking up just as you went to bed? Do you really want to get help? No tricks, no scam. Just follow the link and get the answer you need.
I have al reasons to believe you so right. I am treating these rare disorders. I know is too hard to believe. No tricks, no scam. Just follow this link and you get a shocky answer, incredible for yourself and others suffering just like you.
I'm in pain constantly. I just turned 16, I think fibro hell means fibromyalgia? I have that in my lungs and it SUCKS! I also have RSD in my foot and calf and a million things wrong with my knee. I also have to suffer from mental pain too which I'm sure you must! I have autism is what I mean and that sucks.
I know what u are talking about sweety I have fibromyalgia and I have taken Lyrica and it causes nothing but problems just like Topamax I am off of my Topamax cause it was causing more problems and I was taking over 12 different types of pills and I had to just stop taking them cause it was just causing more problems and I have had 10 different types of surgery so I am one big mess but I have a family and that is why I am still here i would love to be friends ... xoxo love ya godbless,*Anne*
Is there any way I could talk to you? I watched you the other day and couldnt believe what I was hearing. I am at the end. No one understands me here. If I had just ONE person maybe I could hang on a little longer. Thank You Michelle
YES! I will help you in any way I can! Are you on Facebook? Email my private address or send me yours.
I have tried everything! And I want to unite and find out why this happens ANd how. I want to create A database of How it started inpeoples lives. I wanna I wanna, Maybe you can help and it feels good to help.
Stop looking for attention from your family and friends, make the most of your life and get what you can out of it... right now....I'll remember you as a babbling whiner, ..even if your family and friends did understand... what the hell do you want them to do?...Grow up! Get over whatever it is that is eating you
You are not alone with fibro... The pain is very real... but I think you are a wacko, or on something! Pissed off with your parents or your Ex or something...Get over yourself, even if your family and friends did understand your pain, there is nothing they can do! Enjoy what you do have... nobody needs to listen to your bullshit...you aren't saying anything worth listeneing too...Pity me, pity me..thats about it
Boy an A**8hole you are. I to have severe pain, but it's about sharing what works, and how to cope. U have no right to say what you have to someone who you don't really know. I have Fibro and other conditions which counteract with other treatment, and it's good to get others comments. If you don't like something keep quiet, we don't want to listen to negative crap like yours. Oh and by the way, if I wasn't a Reverent I would have used more specific instructions on where to shove it. Blessings
Hi,i'm a sufferer too, tell me have you tried any kinda diet to help ease the pain? many day to day food stuffs are like poisen to us, you know that right? and any pain killers should be the Slow/ modified release kind? it is possible to lower the amount of pain your in, i've been where your at many times and it ain't fun, you should try to take up your music (in some form) again, that'll help, i forget my pains when ever i play, we need to be totaly distracted for a while
I am angry! I have been in bed the last week in hell BECAUSE Pharmicist gave WRONG medication, IT'S A battle! I educate through anger MAKING "OTHERS" of no pain Stop & think! I crave gentleness, I am fighting for all of us. I fight to make families accept, Fibro RIP OFF CURES! Dick Dr's, NO ONE else is! I recieve so many heart felt replies from People Thanking me to do what they can't! Express ANGER I do it for them! I will evolve when it follows, I will help whenever i can get out of bed!
HI , wanted to say that I agree with you . If you want to start a group for Fibromyalgia/ on the hill in congress/ for research I'll be the first one to back you up. I'll sign what ever you need . Ive had it for 8 yrs, and had a great pain Dr,But They can do just so much with out research. Ive had all the newest meds. They work as well as can be ex. But thats not good enough ! You know what I mean ! I work some. Im. 54
Thanks for your videos. Sorry your having more troubles too. Sheila T.
Hi, of course us who watch these videos know what pain is and others won't watch this video. If I could suggest, you have information to share, but if you could put a softer edge to your voice(etc) yes. fake it so we don't get reaverb from tiny speakers, people like us are being scowled at by those who face our broken promises time after time. You are very approachable, your looks, but come across as hardened, it can be enduring to anger along with you, I'm tired, need gentleness so bad sorry.
Needed to say a little more. This is how I make it through the day. I take 60 mg of slow release morphine two times a day. Believe me, know when I forget. When the pain get really sharp, I take hydrocodone. Then there's Cyclobenzaprine 10mg 3X per day. I take clonazepam 1mg at bedtime. Also 1 20mg paroxetine a day. I still can't work, but I can at least have some life. I'm a Franciscan Friar and priest. Faith keeps me from getting so angry that it causes more pain.
Thank you. I take meds at pm: morphine15mg(I take it every 8 hours during a flare up), Wellbutrin XL for depression, WellbutrinXl for depression, Requip for Restless Leg Syndrome, and Ambien for insomnia..and clonazepam for anxiety as needed, On a "GOOD" day, I am not doped up and can somewhat function-I am disabled and can't work. Faith helps me with anger. Most days I am bedridden. I LIVE for those days that I am not in a flare up. When in pain, I try to think about the "good" days. It helps.
It seems a very strange thing to say, but acceptance helps. I suppose that is because it keeps our anger down. I don't mean that I stifle my anger. I mean it is not there. This is very important. It often takes a long time to obtain acceptance, but there is a certain relief when it happens.
I am currently feeling very disappointed because the Bishop for my church has not bothered to call me to see how I am. I am constantly being told how important I am to the church. Hmm. How important?
It is difficult for people to know what to say to someone who is sick or to survivors of someone who has died. Sometimes it is ignorance of our need for help,compassion. Acceptance is important, but occasionally I have a pity party. Rarely do I feel anger. Sometimes,I am frustrated or laugh about myself-the fog/ bad memory, ignorant docs or people, lack of compassion or understanding by those who know me,not having a cure,the lack of control of our lives. We are important .We make a difference!
This is one of the most important things for us to remember. We are important and we do make a difference! I always make a joke about the foggy-brain problem. It turns out my bishop's daughter was in the emergency room. So, he's forgiven. I live in Albuquerque, NM now, but lived in Phoenix, AZ before. I have such a good doctor there that I plan on flying back every three months to him. Too bad there aren't more like him. Keep smiling. Not enough room to write much here.
ACCEPT my sisters suicide because of ignorance of pain?
Accept Dr's wrong diagnosis BECAUSE of ignorance?
I used to sing for A living and some called me A Provocotour
People remeber A statement that makes them think & anger is A response before they "Get It" I am an artist I will express As I need and you have your ways. I am not A conformist, I THINK and see The problems that Americans USED to protest but now passively watch TV AND 75% of the commercials from R/X Drugs taht poisen us further.
I know exactly what you are talking about Michelle. It took 35 years for the many doctors who "treated" me to come up with the diagnosis of fibromyalsia. Then there was trying all of the different drugs. I've had a good bit of luck with the rheumatologist I have ben going to for the past seven yeas. He is sympathetic and has come up with a medicine regime that at least let me get out of bed and do a little work around the house. I can't work either. But, the drugs make life better.
Amen. I am 35 and on 18 meds for what they think is chronic pain and FM. I agree with you. Lyrica is horrible. I just stopped. It is disgusting and wrong and the FDA didn't care to know. I have been ill just like you for 4 years to the T... I would like to keep up with you....I had a hysterectomy oct.08.I would like to help...
Keep up the good fight. I felt like I was looking in a mirror and hearing myself talking out loud. You are SO lucky you can put how you feel into words. I'm not that lucky. I love life but MY GOD why does it have to be so freakin' painful! Hang in there.
highfly29 from west england. I think you are fantastic in the way you not only speak to the world what many of us would not dare to say, but your views, your tips really reach out and touch us all. Keep making a difference to the world, because we need you.
PS. watch fibromyalgia-Lisa's story. It is a youtube video of a woman who committed suicide and it is her husbands memorial and promise to do something about fibromyalgia.
I cry everytime I see one of your videos! Take it as a compliment. I suffer from fibro and see all of your points. We must do something. I know no one in my area; only connection= internet. So keep on doing your thing. Im not much help, but will do what I can when I can (lol if you are up to it). E'mail me; im not up to date on e'mail as much as myspace, but hit me up if you need assistance in the quest to legislate or protest etc...
I love how you say how it is. See if I told my father in law and mother in law how that them acting like they don't care breaks my heart. But family doesn't care. They never call to see how I am doing or if I need anything. Yet if they need something , they are over in 5 min. They live close and just can't be bothered. Only thing that keeps me going is 1.) my service dog
Just saw one of your videos, I have Fibro-HELL too! I just hope that you keep on, hangin on.........wish I had a camera to make videos! Totally agree with you sister-I have a Harley too!
Best of luck Michelle, I hope you get the cogs of the Medical Community/Pharmacoms machine turning so you and you kin can get some relief'. An unbroken sleep in the very least.
checomrie 1 day ago
i have MS im in the same boat.........no cure no answers all the pharmaceutical companys wanna do is make MONEY
sarabellemilne 4 days ago
@sarabellemilne Find a way to throw money at them then. Money or influence They'll move on it in a heartbeat. How you go about getting that money? I don't know. I'd probably find someone in the US Congress, or better yet, Hollywood who is at least affected within their family. It's a shame it has to be that way, but fuck it, use the system in your favor.
Naive perhaps, and maybe laughable coming from a non-sufferer, but if I there was a way for me to help, I would.
checomrie 1 day ago
i do lyme treatment and the experiences are very similar. its really frustrating to just be ignored. what kind of art do you do?
ardraneala 2 weeks ago
thank you for giving me a voice. i have had fibro for over 20 years and i don't know why we feel guilty for being sick. it's crazy. i don't talk about it even to my family because i have somehow been made to feel its my fault. so thank you, i intend to speak your words next time i get a chance. i have almost stopped talking because pain has changed the way i speak, the way i process words and express myself. thank you
ascarlettoad 1 month ago
Michelle, Thanks for being there. Don't ever stop. I am so damned tired of trying to explain to my grown children that I am sick. Diagnosed in 1986, I have had two breaks in fibro, both when I was pregnant. I would think that would be a key to study but hell no. I am not the only one who has had there symptoms subside during pregnancy. All of My Grown Children have said horrific things to me. The latest being You use FM as a CRUTCH. You take too many pills, Do Yoga & Tai Chi. MADDENING.
01Ellera1 2 months ago
@01Ellera1 I am 47 yrs old and was diagnosed is 89. They finally called it Chronic Fatigue Syndrome.
My children are all grown and also say the same things. You need to "stop thinking about it", that's my favorite one.
I would love to take care of my grandchildren all the time, and when I do, it takes me 1-2 days to recover, therefore I am a "Bad Grondmother". My daughter yells at me asking me if I know how "Selfish" I am.
mimibel47 2 months ago
@mimibel47 I just want to get in my car and drive off and feel like I am selfish, I am bad, I only love myself...I can't take it anymore
mimibel47 2 months ago
They can kiss my ass about anti depressants. And as far as Lyric goes, that stuff didn't do a damn thing. Rambling is part of fibro, brain fog. You mourn the life you lost. This is classic of what I have heard from alot other women I know online. You go places? It's very hard to get out and do things. We are in pain every day. We are in pain in sleep. My former Endo said a hysterectomy is one of the things that send women to him with Fibro/Hashimotos
MultiReesy1 2 months ago
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I too suffer from fibromyalgia and have for so many years. Sometimes the pain is too much to bear and I can’t imagine going on another day feeling this way. But then I found a comforting scripture in the Bible. Revelation 21:4 says “And he will wipe out every tear from their eyes and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.” This is a promise from Jehovah God. This helps me cope day by day.
charliebelson 3 months ago
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Ramble all you want>>>>> Fibro sux's!!!!
ceahorse56 3 months ago
love you so much. I love that you are blunt and straight forward!!!!!
lymarie1974 5 months ago
Wow. I like your straight forward approach to this. I haven't been formally diagnosed with this but 3 doctors (playing the send her to the next specialist game) all said, you may have fibromyalgia, you need to go to ANOTHER doctor (rheumatologist) to get diagnosed. I am in pain all the time. The morning is horrid because my shoulders hurt so bad it is almost impossible to wipe after I pee. I stumbled on this looking for answers. There are no answers, only pain.
artislife1970 5 months ago
Michelle, you keep up with your comments, and that is GOOD! Will you contact me at a a h h massage at G mail? I had to spread it out, or it said there was an error. I learned massage while taking pain pills, then learned how to deal with my own pain. I got off the pills in 06 and have been 'managing' without them ever since. I would like to share some things I learned with you. I don't get into diet or anything else, just how to alleviate the pain. Anyone else who wants can contact me too.....
bfinfinity 6 months ago
The Pharmaceutical companies having a filed day with making money off people with this Illness.... fucking sad day in America when people are sick and greedy fucks just profit off sick people !!!
cats2napin690091 7 months ago
hello michelle, you are telling my story...I know everything you are talking about, including the motorcycle accident (only I was the passenger on the bike)...I also have arthritis, bursitis and a spinal cord injury...I too have had many surgeries as well as a hysterectomy...Thank you
MXWraithsLady 7 months ago
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OMG! ?? the pleople still buying the pharmacy that is loaded with unnecessary side effects. I know a product that really helps the problem of fibromyalgia. Contact me for I can help you. I have a friend who was sick with Fibromyalgia and saw the whole process step by wheelchair, then using a cane and now drives his own car and speaks fluently. I can contacts for my pain de youtube searches: aaopr33 HAVE A GREAT DAY!!!!
aaopr33 8 months ago
Dear Michelle, I have gone through 14 years of fibrohell. 52 doctors, lots of treatments...lots lots...desperation, almost suicide. Now I'm really better, painfree. Start trying colonhydrotherapy, homeopathy, healthy diet, you have to detox your body for a long time!!!!No pill will resolve it. love and all the best from Switzerland. Romina
ruhaniangel 8 months ago
i just made a blog called living with fibromyalgia syndrome but it wont let me post the link on youtube to anyone. i loved your vid. SOO true made me laugh =]
sheldonjade1 11 months ago
THANK YOU for sharing...i do not have fm, but i have syringomyelia which is a neurological disease.i suffer 24/7 also.i cannot sleep at night without knocking myself the hell out (even then not much). and like you, i need to take a pill just to get out of bed to use the restroom in morning. it's hell! & so many people around me just want me 'to feel better' and that pressure is soooo depressing even more than what i am going thru.i have lost so many people in my life bc of this.it just pure hell
missamelie17 1 year ago
This is Becky. The therepy consists of multiple exercises & adjustments that over time will build strength to the core of your body & give the natural curves back to your back & neck. There is also an exercise that assists in your body pumping spinal fluid back to your brain. This exercise is done after the neck exercises that loosen up your neck to allow spinal fluid to be able to get past the spinal cord in the neck. It will be very helpful to see the website that will be up & running soon. <3
AwsomeSauce72 1 year ago
This is Becky again. I am currently still doing therepy & hope to someday be 100% pain free. A quick explaination of the therepy is that the spine is misaligned especially the neck. The neck is so bad off that the spinal fluid is not getting to the brain. There are studys that have proven that Fibro patients brains are smaller than they should be because there's a lack of spinal fluid getting to the brain which results in the brain shrinking because the brain drying up. This causes Fibro Fog.
AwsomeSauce72 1 year ago
This is Becky. My husband has been asked to video testimonials by patients & multiple lectures by the Dr. to add to a website that will kick off the opening of this new Clinic in Logan, Utah. The taping is still going on...in fact I did my testimonial a few days ago. When this website gets up & running I would love to share the site with you. I have had Fibromyalgia for over 10 years & have now been off ALL of my pain meds for the last 2 months & I am 80-85% pain free. sunkistphoto@yahoo.com
AwsomeSauce72 1 year ago
This is Becky again. This therepy I have been going through is called "The Pettibon System" My Dr. is the only "Pettibon" Dr. who is qualified at this time to care for Fibromyalgia Patients. In fact in about 5 1/2 weeks he will be opening up a Fibromyalgia Clinic @ Utah State University Campus here in Logan, Utah. People will travel from all over the U.S. & possibly the world to take part in learning the therepy for 3 months & then they will go home & finish out there therepy @ home.
AwsomeSauce72 1 year ago
Hi Michelle!!! My name is Becky & I have been participating in a Fibromyalgia Study for the past year & a month. My Dr. who is in Logan, Utah has found a break through for Fibromyalgia that I think you would be interested in. It doesn't surprise me that you were in a car accident & a motorcycle accident. In fact this is being found to either cause Fibro or at least make it worse. You can contact me @ sunkistphoto@yahoo.com I would be glad to write you more about this.
AwsomeSauce72 1 year ago
Also go to Andrew Wommack's website and watch the video's of people who have been healed. There is one of a man who has been healed from fibromyalgia. No christian has to live with disease. Jesus paid for our healing the same way he paid for our sins. I am not saying you are not a christian if you are sick. I am saying you are healed but need to understand what the bible teaches , not man made church traditional teaching that God puts disease on people to teach them something. He does not.
cottoncandypoms 1 year ago
@cottoncandypoms NOW That is Plain Stupity! Which form of Christianity? Which counts?
I know MANY Christians & MANY ARE SICK& DYING! I feel stupid I wasted time & energy on you.
Your KIND ARE BLIND & Uneducated
True Christianity is rarely seen nor PRACTICED! JUDGE NOT! You give educated Christians A BAD NAME!
This is my last response to you, You can not MAKE The blind See OR ACCEPT!
I doubt you even know pain. In Your "HEAVEN" YOU WILL KNOW PAIN FOR YOUR JUDGEMENT!
FIBRO HELL MICHELLE
mcertonio 1 year ago
@cottoncandypoms If you can tell me Jesus Christ's Birthday, I Will!
Also define Ecumenical Conference & Their function.
mcertonio 1 year ago
Mercola dot com just posted an article explaining how root canals cause bacteria to build up causing joint inflamation and other disease including fibromyalgia, lupus, and other autoimmune diseases. I see some here want no solution or cause. I have been attacked for believing there is cause and solutions if a person is willing to not give up. I know it is not easy. I have been blasted as ignorant, judging and uncaring. If I did not care, I would not write anything.
cottoncandypoms 1 year ago
@cottoncandypoms Not attacked, trying to educate you. You sound Young, Naive & Provincial.
FM/CMS has Many Forms, Symptoms, Causations. I Write & Blog & Paint & Sing
TO provoke THOUGHT! My VLOG's- Are MY OUTLETs! I ALLOW YOU INTO ME! Honest, Raw, Painfully
Conversations, Thought & Hopefully Understanding . When you watch 1 of my video's I am
Expressing myself AT THAT MOMENT! Do not judge OR give advice, Unless you know
The STORY, Not The moment! Google michelle Certonio-
mcertonio 1 year ago
Thank you so much for making these videos! You make me feel like I am not alone. I have tried so many times to talk to everyone i care about and they think that its not that bad or they dont belive me at all. I have lost everyone in my life they all think that i lie for attention. i have been going to the doctors for everything for 10 years and they have put me one everything and it makes me sick ad doesnt help. im on meds for deppresion mood stabizers because they think im crazy.
oceansrachael84 1 year ago
@oceansrachael84 You are not ALONE! I wish you were because then I could GET UP! LOL
I awake in pain every 2 hours & most people have NO IDEA, YET THEY still JUDGE!
So we have to get used to being ALONE & made fun of. Save your energy =ONLY
FOR THE GOOD THINGS! Cut OUT everyone else! Most people ARE SO LIMITED
It IS SCARY! FM- Has Many Different symptoms & affect ALL Differently!
The WORST are Anti-Depress.! I can't take them the side affects makes life worse.
KEEP TRYING!
mcertonio 1 year ago
Thank you so much for making these videos! You make me feel like I am not alone. I have tried so many times to talk to everyone i care about and they think that its not that bad or they dont belive me at all. I have lost everyone in my life they all think that i lie for attention. i have been going to the doctors for everything for 10 years and they have put me one everything and it makes me sick ad doesnt help. im on meds for deppresion mood stabizers because they think im crazy.thank you
oceansrachael84 1 year ago
Thank you so much for making these videos! You make me feel like I am not alone. I have tried so many times to talk to everyone i care about and they think that its not that bad or they dont belive me at all. I have lost everyone in my life they all think that i lie for attention. i have been going to the doctors for everything for 10 years and they have put me one everything and it makes me sick ad doesnt help. im on meds for deppresion mood stabizers because they think im crazy.
oceansrachael84 1 year ago
You DO ramble... and I DO have Fibro.
It's called RANTING.... like a dog that's just got HIT BY A CAR does. BECAUSE that how us Fibro folks ALWAYS feel.
I personally think those lucky people WITHOUT fibro wouldn't understand this... RAMBLING/RANTING/CRYING are symptoms that often go unlisted.
videocoverage 1 year ago
hi there, just wanted to say hello and that i'm really digging your videos - you are funny, smart and speak some fierce TRUTH!
my wife found your channel the other day -- she has been living a chronic pain nightmare for the last 13 yrs that has been getting worse and worse - bedridden for 7 yrs, grossly under-prescribed most of this time. your vids help her by validating her reality, and you help me understand her better, so thank you! keep going warrior woman - in peace & solidarity, Natasha
superotter77 1 year ago
@superotter77 Thanks BABE! FIERCE TRUTH! I love it! I think i'll write A song!
Nice comment, Esp-After Cotton & Wordey wasting my time. Judging someone
That Awakes in pain EVERY DAY is Ignorant, Esp-By another FM'r LOL.
I am on Facebook also & there is Alot of support! MCERTONIO
KEEP TRYING!
mcertonio 1 year ago
I am sorry you believe I am advertising. I gave Dr. Mercola's website info because I think it is one of the best I have found for good information. Yes he has some products because people need good products with so many bad ones out there. I also advised to go to thinktwice , vaccines are causing alot of autoimmune diseases. Don't let your pain make you unteachable and suspecious of everyone. There is one website that I did not mention but meant to awmi dot com. All the best.
cottoncandypoms 1 year ago
@cottoncandypoms DR MERCOLA'S products Are 200% more expensive Than Swansons!
When you have been sick for A LONG TIME & Your Grandma Suffered 80 years,
Sister KILLED herself, Brother died, ALL last year & You are giving advice I looked
Into over 20 years ago- Well I don't have patience for JUDGEMENT!
I am here to help AND I DO! I Have Over 2000 comments FROM PEOPLE
AT THE END OF THEIR ROPE! So talk to me when ANYONE tells you
THAT YOU SAVED OR CHANGED Their LIFE!= 90% FM-gain 30 LBS
READ MORE
mcertonio 1 year ago
@cottoncandypoms
mcertonio 1 year ago
Krill Oil is $40 DOLLARS more than Swanson's, NOW leave me alone!
Because I think JESUS LIKES YOU BETTER!
mcertonio 1 year ago
This is caused by inflamation . Sugar and the are number one causitives. Then other toxins in your food and environment. Go to dr. mercola's website it is his last name plus a dot com. For eye opening facts about vaccines go to (all one word) think twice . com Drugs are only a temporary help. Nutrition and reducing your inflamation causes is your hope.
cottoncandypoms 1 year ago
@cottoncandypoms Its called education! At 24 when my prolactin level
Spiked to 240 and my voice was hoarse AND BACK THEN (20 YEARS AGO)
I tried diets, nutrition & spent foolish money on anyting that would help. latest NEWS FM/ME IS NOT Inflammation, going to RHEUM>
Is A disappointing and TRYING experience, LOOK UP DR NANCY KLIMAS.
She STATES: FM life can be MORE diabling than diabetes, HIV, Breast Cancer.
I hope People in Late Stage FM research, cottoncandy because people
like you Harm!
mcertonio 1 year ago
@cottoncandypoms OK I LOOKED! You are advising ILL people
TO make Dr. Mercola rich and his products are designed
TOO MAKE HIM RICH. KARMA girlfriend, lets hope
There is no harm done except for wasting money!
mcertonio 1 year ago 2
@cottoncandypoms
This is really sweet advice, However, there is no inflammation with FIbro. Some people might have Arthritis (which is an inflammatory disease), which mimics Fibromyalgia. 800MG of IB profen, won't touch the pain. It is caused by nerve pain...this is why cold weather makes you hurt...why don't you go and lay down on a LARGE block of ice until it melts or lye naked in the snow...then, eat a carrot...open YOUR EYES...and then post an opinion.
daviscnc 1 year ago
@cottoncandypoms I agree, thsi mcertonio eats almond milk and nuts for her diet.. Yet she is overweight. Shes obviously eating shit that her body doesnt need. Excessive calories from her comfort foods causing fibro.
wordey123 1 year ago
@wordey123 Everbeen to A health food store? Are you aware Most of us
Are lactose Intolerant? Do you idiots know WHAT THE MEANS? FM/CFS- Brain's inability to give
The correct message to the body. So nutrition can't work unless the brain
Tells the intestines WHAT TO DO! LOL Also sends pain signals ALL OVER
Also Nutrition does not work if your intestines are too tired to process food
And your shit backs up, kind of like IGNORANT, Judgemental People! LOL
mcertonio 1 year ago
@mcertonio I'm the guy who supports the paleo diet. Youre hatin on the wrong guy. Re-read my comment. I dont support milk... Haha. My fibro has been better latly :) stricter diet, more supplements, (magnesium helps) and getting out and active alot more.
wordey123 1 year ago
@cottoncandypoms I have been "living" with disease for 20 years or more
AND COTTONPOMS- YOU are Ignorant- meaning WITHOUT Education!
What else is new? You are as ILL INFORMED as most of the Dr's!
Another BAD SIGN is YOUR Judgement-Fast, Narrow & Stupid!
I went ti see top Dr, in the field & anyway I am wasting energy& I don't think you will GET IT!
mcertonio 1 year ago
This has been flagged as spam show
I am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure for this horrific disease after 15 years of failed treatments. I understand this illness completely from the inside and back out again. Symptoms are often mistaken as a cause and what can help does not cure. Please, do not give up and keep going. See my You Tube video "Curing Chronic Fibromyalgia - Choosing What Works" and my best wishes to you all!!!
ValerieLumley 1 year ago
Doctors don't manage my pain either.. I want something effective. Not something that helps for like 45 minutes, and then I have to take another one and another one. Will I start bleeding internally due to poisoning myself, just wondering.
HurtingInPain 1 year ago 2
mcertonio 1 year ago 6
@mcertonio Hi Michelle, I want to start with I've been watching many of your videos.. You seem to be the most honest and T/God down to earth person when speaking your mind as well as your feelings, as I listen I can't help but it almost seems as though your speaking (my) thoughts..well theres so much I could get into but for now I want to express the PAIN !! I see the meds your on, I was on a few of them also now the Drs. put me on Valuim 10milgs 3x day/ oxicodone for break-thru pain, 15milgs
sunny35b2 1 year ago
@sunny35b2 Facebook is easier to talk with-- michelle certonio google me
I AM HERE FO YOU
KEEP TRYING!
mcertonio 1 year ago
Ramble On, baby!!!! And keep making these great videos. I love them.
thistlesw 1 year ago
This has been flagged as spam show
There is no medical hope and will never be. Only remedial treatment can help. Medical help was always misunderstood by doctors and they knows that. As long as you pay for their visits and medication is OK, but that's all. Now: are you developing stomach ache, extreme fatigue, diorrhoea or constipation, poor memory and concentration, sleepless nights, waking up just as you went to bed? Do you really want to get help? No tricks, no scam. Just follow the link and get the answer you need.
bensonmeds 1 year ago
I have al reasons to believe you so right. I am treating these rare disorders. I know is too hard to believe. No tricks, no scam. Just follow this link and you get a shocky answer, incredible for yourself and others suffering just like you.
bensonmeds 1 year ago
I have it..and i tottaly understand..somedays it can be agony i cant move and no amount of painkillers will help...im with you hunnix
scouser2511 1 year ago
I'm in pain constantly. I just turned 16, I think fibro hell means fibromyalgia? I have that in my lungs and it SUCKS! I also have RSD in my foot and calf and a million things wrong with my knee. I also have to suffer from mental pain too which I'm sure you must! I have autism is what I mean and that sucks.
Well I just complained a load..
Hope to talk soon maybe
jaydy11 2 years ago 2
It is easier to respond on FACEBOOK, I will try to keep up
And if I can help in any way I will.
FHM
mcertonio 2 years ago
I know what u are talking about sweety I have fibromyalgia and I have taken Lyrica and it causes nothing but problems just like Topamax I am off of my Topamax cause it was causing more problems and I was taking over 12 different types of pills and I had to just stop taking them cause it was just causing more problems and I have had 10 different types of surgery so I am one big mess but I have a family and that is why I am still here i would love to be friends ... xoxo love ya godbless,*Anne*
brighteyez2k 1 year ago
@jaydy11 Its OK to complain ESP> here! Because NO ONE ELSE GET IT!
I think you are right about Autism & FM, Both are Brain's inability to give
The correct message to the body. So nutrition can't work unless the brain
Tells the intestines WHAT TO DO! LOL
Keep Trying!
Biro hell Michelle
mcertonio 1 year ago
@jaydy11 Its OK to complain ESP> here! Because NO ONE ELSE GET IT!
I think you are right about Autism & FM, Both are Brain's inability to give
The correct message to the body. So nutrition can't work unless the brain
Tells the intestines WHAT TO DO! LOL
Keep Trying!
FIBiro hell Michelle
mcertonio 1 year ago
Is there any way I could talk to you? I watched you the other day and couldnt believe what I was hearing. I am at the end. No one understands me here. If I had just ONE person maybe I could hang on a little longer. Thank You Michelle
wilkinslori 2 years ago
YES! I will help you in any way I can! Are you on Facebook? Email my private address or send me yours.
I have tried everything! And I want to unite and find out why this happens ANd how. I want to create A database of How it started inpeoples lives. I wanna I wanna, Maybe you can help and it feels good to help.
FIBRO HELL MICHELLE
mcertonio 2 years ago
Stop looking for attention from your family and friends, make the most of your life and get what you can out of it... right now....I'll remember you as a babbling whiner, ..even if your family and friends did understand... what the hell do you want them to do?...Grow up! Get over whatever it is that is eating you
TheColourful64 2 years ago
What do you know about me? I talk about A
Life Eating disease! It reaches and HELPS people.
What have you done? I try to get research done and also
to help Fibro's family to understand. My sister shot herself
because Ignorance of Pain management. My Grandma
lived in pain 80 years! My brother died
after living with pain- People like you are ignorant about.
My life has been great except for pain, I am A pro singer,
I play Conga drums, I JUST started painting AND YOU?
Who have you helped?
mcertonio 2 years ago
You are not alone with fibro... The pain is very real... but I think you are a wacko, or on something! Pissed off with your parents or your Ex or something...Get over yourself, even if your family and friends did understand your pain, there is nothing they can do! Enjoy what you do have... nobody needs to listen to your bullshit...you aren't saying anything worth listeneing too...Pity me, pity me..thats about it
TheColourful64 2 years ago
AND Notice, over 30,000 and comments that are positive
98% and ASSes like you, I run over and if I don't
Another FIBRO HELL PERSON WILL
FIBRO HELL MICHELLE
mcertonio 2 years ago
Boy an A**8hole you are. I to have severe pain, but it's about sharing what works, and how to cope. U have no right to say what you have to someone who you don't really know. I have Fibro and other conditions which counteract with other treatment, and it's good to get others comments. If you don't like something keep quiet, we don't want to listen to negative crap like yours. Oh and by the way, if I wasn't a Reverent I would have used more specific instructions on where to shove it. Blessings
jacorn444 2 years ago
Hi,i'm a sufferer too, tell me have you tried any kinda diet to help ease the pain? many day to day food stuffs are like poisen to us, you know that right? and any pain killers should be the Slow/ modified release kind? it is possible to lower the amount of pain your in, i've been where your at many times and it ain't fun, you should try to take up your music (in some form) again, that'll help, i forget my pains when ever i play, we need to be totaly distracted for a while
only tryin to help
ilovemywah 2 years ago
I am angry! I have been in bed the last week in hell BECAUSE Pharmicist gave WRONG medication, IT'S A battle! I educate through anger MAKING "OTHERS" of no pain Stop & think! I crave gentleness, I am fighting for all of us. I fight to make families accept, Fibro RIP OFF CURES! Dick Dr's, NO ONE else is! I recieve so many heart felt replies from People Thanking me to do what they can't! Express ANGER I do it for them! I will evolve when it follows, I will help whenever i can get out of bed!
mcertonio 2 years ago
HI , wanted to say that I agree with you . If you want to start a group for Fibromyalgia/ on the hill in congress/ for research I'll be the first one to back you up. I'll sign what ever you need . Ive had it for 8 yrs, and had a great pain Dr,But They can do just so much with out research. Ive had all the newest meds. They work as well as can be ex. But thats not good enough ! You know what I mean ! I work some. Im. 54
Thanks for your videos. Sorry your having more troubles too. Sheila T.
MsShampoo123 2 years ago
Hi, of course us who watch these videos know what pain is and others won't watch this video. If I could suggest, you have information to share, but if you could put a softer edge to your voice(etc) yes. fake it so we don't get reaverb from tiny speakers, people like us are being scowled at by those who face our broken promises time after time. You are very approachable, your looks, but come across as hardened, it can be enduring to anger along with you, I'm tired, need gentleness so bad sorry.
getbennt 2 years ago
Why do you want me to be LIKE EVERYONE ELSE!
Have you ever noticed if you PISS Someone oFF
They think about it 100 times, I am not here to be A role model, I am here to make CHANGE!
FIBRO HELL MICHELLE
mcertonio 2 years ago
Needed to say a little more. This is how I make it through the day. I take 60 mg of slow release morphine two times a day. Believe me, know when I forget. When the pain get really sharp, I take hydrocodone. Then there's Cyclobenzaprine 10mg 3X per day. I take clonazepam 1mg at bedtime. Also 1 20mg paroxetine a day. I still can't work, but I can at least have some life. I'm a Franciscan Friar and priest. Faith keeps me from getting so angry that it causes more pain.
HolySimplicity1 2 years ago
Thank you. I take meds at pm: morphine15mg(I take it every 8 hours during a flare up), Wellbutrin XL for depression, WellbutrinXl for depression, Requip for Restless Leg Syndrome, and Ambien for insomnia..and clonazepam for anxiety as needed, On a "GOOD" day, I am not doped up and can somewhat function-I am disabled and can't work. Faith helps me with anger. Most days I am bedridden. I LIVE for those days that I am not in a flare up. When in pain, I try to think about the "good" days. It helps.
Krissums1 2 years ago
It seems a very strange thing to say, but acceptance helps. I suppose that is because it keeps our anger down. I don't mean that I stifle my anger. I mean it is not there. This is very important. It often takes a long time to obtain acceptance, but there is a certain relief when it happens.
I am currently feeling very disappointed because the Bishop for my church has not bothered to call me to see how I am. I am constantly being told how important I am to the church. Hmm. How important?
HolySimplicity1 2 years ago
It is difficult for people to know what to say to someone who is sick or to survivors of someone who has died. Sometimes it is ignorance of our need for help,compassion. Acceptance is important, but occasionally I have a pity party. Rarely do I feel anger. Sometimes,I am frustrated or laugh about myself-the fog/ bad memory, ignorant docs or people, lack of compassion or understanding by those who know me,not having a cure,the lack of control of our lives. We are important .We make a difference!
Krissums1 2 years ago
This is one of the most important things for us to remember. We are important and we do make a difference! I always make a joke about the foggy-brain problem. It turns out my bishop's daughter was in the emergency room. So, he's forgiven. I live in Albuquerque, NM now, but lived in Phoenix, AZ before. I have such a good doctor there that I plan on flying back every three months to him. Too bad there aren't more like him. Keep smiling. Not enough room to write much here.
HolySimplicity1 2 years ago
ACCEPT my sisters suicide because of ignorance of pain?
Accept Dr's wrong diagnosis BECAUSE of ignorance?
I used to sing for A living and some called me A Provocotour
People remeber A statement that makes them think & anger is A response before they "Get It" I am an artist I will express As I need and you have your ways. I am not A conformist, I THINK and see The problems that Americans USED to protest but now passively watch TV AND 75% of the commercials from R/X Drugs taht poisen us further.
mcertonio 2 years ago
I know exactly what you are talking about Michelle. It took 35 years for the many doctors who "treated" me to come up with the diagnosis of fibromyalsia. Then there was trying all of the different drugs. I've had a good bit of luck with the rheumatologist I have ben going to for the past seven yeas. He is sympathetic and has come up with a medicine regime that at least let me get out of bed and do a little work around the house. I can't work either. But, the drugs make life better.
HolySimplicity1 2 years ago
Amen. I am 35 and on 18 meds for what they think is chronic pain and FM. I agree with you. Lyrica is horrible. I just stopped. It is disgusting and wrong and the FDA didn't care to know. I have been ill just like you for 4 years to the T... I would like to keep up with you....I had a hysterectomy oct.08.I would like to help...
beccababy73 2 years ago
Keep up the good fight. I felt like I was looking in a mirror and hearing myself talking out loud. You are SO lucky you can put how you feel into words. I'm not that lucky. I love life but MY GOD why does it have to be so freakin' painful! Hang in there.
Cath6Rob 2 years ago
highfly29 from west england. I think you are fantastic in the way you not only speak to the world what many of us would not dare to say, but your views, your tips really reach out and touch us all. Keep making a difference to the world, because we need you.
highfly290 2 years ago
PS. watch fibromyalgia-Lisa's story. It is a youtube video of a woman who committed suicide and it is her husbands memorial and promise to do something about fibromyalgia.
sigmaspirit2003 2 years ago
I cry everytime I see one of your videos! Take it as a compliment. I suffer from fibro and see all of your points. We must do something. I know no one in my area; only connection= internet. So keep on doing your thing. Im not much help, but will do what I can when I can (lol if you are up to it). E'mail me; im not up to date on e'mail as much as myspace, but hit me up if you need assistance in the quest to legislate or protest etc...
sigmaspirit2003 2 years ago
I love how you say how it is. See if I told my father in law and mother in law how that them acting like they don't care breaks my heart. But family doesn't care. They never call to see how I am doing or if I need anything. Yet if they need something , they are over in 5 min. They live close and just can't be bothered. Only thing that keeps me going is 1.) my service dog
2.) knowing
robinnmilo 2 years ago
ah.someone who understands how I feel.
byebyekitty 2 years ago
Just saw one of your videos, I have Fibro-HELL too! I just hope that you keep on, hangin on.........wish I had a camera to make videos! Totally agree with you sister-I have a Harley too!
bikerchickfree 2 years ago
Hey ... Absolutely !! well said Michelle.
zhiaah 2 years ago
hey girl this has been the worst weekend ever for my pain...i can not walk...but still had to go to work for three hours....i can't
remember s***....hope yours is better.
fruitfly31 3 years ago
@fruitfly31 Well "cottoncandypoms" Gave me GREAT NEWS! CHRISTIANS ARE NOT SICK!
She did not say which variety though LOL_ I scream for God & I still hurt! I guess Jesus likes her better!
KEEP TRYING!
FIBRO HELL MICHELLE
mcertonio 1 year ago